Hello everyone,
My name is Ana I am 27 years old and I was diagnosed with a TNBC last month....
First of all I must apolagize for my english because i am portuguese and my english is not so good but i feel like i really need to "talk".
I found this site few days after the diagnose and i come here every day , mostly when i get more desperate...it´s wonderfull that this site exists so that we, "people leaving whith TNBC", can have some emotional suport and  some hope.
My story is: I felt a lump in my right breast in January and I did an ultrasound.The doctor said that it was nothing to worry about (He said it was a fibroadenoma and that it was 1,7x1,5cm).
Because I felt that it was a little diferent, I decided to do another ultrasound July 2nd...and they call me the day after to give me the diagnose....The tumor was 4cm, grade 3, and my sentinele node was negative so they say I am T2N0M0( all my exams were ok- liver, lungs and bones).
I started chemo ( TAC) 10 days after the diagnose and they said that the plan is to do 6 cicles every 3 weeks ( with neulasta the day after chemo) and than surgery...depending on the kind of surgery i will have radio or i wont.
I still can´t belive that this is happening...do you know anyone with my age with this terrible disease??I have no family history.
My oncologist says that i will have to check if i have  BRCA 1-2 mutation
GOD...is so much information....i am trying to be as positive as i can but i have to admit that somedays it's really dificult....does anyone know any case of a 4 cm TNBC survivor?

I´m sorry for this long post and also because my english.

I wish you all the best,

Ana

Ana, I'm glad you found this forum. I know of a couple of ladies diagnosed with TNBC at 27 and 29 and are doing very well today 2years later. Be strong and positive, you'll get through this and get on track again to live a long healthy life. ((hugs)) Melissa

Thank you for your post!

Thank you everyone for your support and suggestions. We finally got results of CT and bone scans (taken in July) at an appt yesterday - NO Mets! And we finally got her actual diagnosis which is Stage IIb with 1 lymph node that tested positive.

Thanks so much, your message to me was a delight to see...I will have my vitimin D checked again, I'm currently take 2,000 mil grams a day which was prescibed by my physican a few months ago when she noticed from by blood work that my vitimin D was low...Feeling really good this evening, keeping positive thoughts that I'm going to bet cancer!!!!

I'm not sure I'm putting these posts in the right place??

Hi Guys,

Kat,

My arm bothered me for several years afterwards. Yes, dr.s told me I was "too sensistive!" I tried accupressure with the most relief, then fed up I tried accupuncture. I had always said "no needles in that arm !" My friends sister, an accupuncturist from your country was visiting. I threw caution to the wind, she put needles in that arm and it has been great ever since. This was performed for mostly the stiffness in the shoulder area, more of a frozen shoulder.

The cording, if it is the same, reactions from scar tissue that would seem to bind the arm from breast scar to axillary, I had well trusted massage therapist "work" the affected area. She could feel where it was binding. I would have to have it done maybe every 6 months for a couple years. Sometimes afterwards it felt bruised and painful but it also has been gone for years now.

lakisha,

It was good to read on your post of August 24 that you were feeling really good that evening,
keeping positive thoughts that I'm going to bet cancer!!!!

I apologize that I did not understand completely when you said.....will get a second opinion once
I have met with the oncologist after my surgery.   Think the second opinion is after your surgery.
I was not clear if your oncology appointment was before or after your surgery.
There is a reason for wanting to clarify when you will see your medical oncologist.
When one sees the medical oncologist prior to surgery, the medical oncologist has the opportunity
to review your situation and provide information about the pros and cons of whether to do surgery or
chemo first.

Please disregard the following if you have already seen your medical oncologist and either the medical
oncologist or surgeon have already explained about doing surgery versus chemo first and you have
made your decision.
When one does chemo first, one can tell if the planned chemo is working on one's tumor mass.
When one does surgery first, one does not know if the chemo was effective on one's cancer cells
(IF there were any remaining after surgery or in the blood/lymph system ).

There is a prior thread about chemo vs surgery first.
There may be some information there that would be helpful.
   http://forum.tnbcfoundation.org/newly-diagnosed-chemo-before-surgery_topic8811.html

The important thing is to have the information with the pros and cons of all your options:
           Surgery or chemo first.
           Various chemo options.
Many find a second opinion helpful ........and sometimes the second opinion gives one a greater sense
        of comfort on the initial plan.
When you have the information, you can make the decision that will be best for you.

If the above is not clear and/or you have questions, please let us know.

With caring and positive thoughts,
Grateful for today.........Judy