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Welcome From TNBC Foundation

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snugltz View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote snugltz Quote  Post ReplyReply Direct Link To This Post Posted: May 27 2017 at 1:49pm
I did have a mammogram every 6  months for 5 years.  Now its only yearly.  Also apparently many oncologists order a bone density.  Think chemo or something can damage your bones.  My previous oncologist (who quit and went to a place my insurance does not take) always ordered blood and tumor markers every 3 months for 3 year.  Then it was every 6 months.  My new oncologist does not do the tumor markers but does blood work.  Every 6 months still, even though it has been 7 years.
1 cm, 0/2 neg nodes, lumpectomy 6/16/10, cytoxin/taxotere 4x every three weeks, rad start 11/8 33X
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Post Options Post Options   Thanks (0) Thanks(0)   Quote jeffinn Quote  Post ReplyReply Direct Link To This Post Posted: Aug 07 2017 at 11:40am
My oncologist says that research shows there is no difference in outcome between those who have scans and those who wait until they have symptoms and go to their doctor at that time. The oncologist says the scans may do more harm than good. He does no tests except a mammogram yearly for 10 years and I am to see the oncologist in 6 months then yearly for now (my blood work is done at that time).  My surgeon wants to see me yearly for 5 years (he does a good physical breast exam of the unaffected breast).    I was diagnosed with stage 2 triple negative breast cancer and had a mastectomy and removal of 12 lymph nodes in January 2016 followed by chemotherapy (5 nodes affected)in spring and in summer radiation(one larger and one smaller tumor). Last treatment Sept 7, 2016.  My problem is lymphedema in arm and hand from the surgery and peripheral neuropathy from the chemo.  I have linked up with the lymphedema association locally and have the correct massage therapist finally but I am unsure if anything helps with the peripheral edema (I do take pregabulin).  I can walk but cannot feel my feet.  I go to Curves for resistance exercises and strengthening.  I try to go to a pool for the compression of my arm and I do aquafit for lymphedema on my own after learning from a pool program run by the cancer support organization in the city an hour away from me.  I am feeling positive as my energy returns a bit more each day.
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MLindaG View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote MLindaG Quote  Post ReplyReply Direct Link To This Post Posted: Aug 07 2017 at 3:13pm
Hi!  Just wanted you to know about something that I used that helped with the lymphadema.......something called a flexitouch machine.  It was suggested by my PT person.  I had lymphadema in my breast and it really helped to move the fluid out without having to go to PT.  It is a machine that helps to move fluid.  Check it out may be something you might consider as long term therapy.
Dx TNBC 6/12; age 59; Stage 3, Grade 3; 3.5 cm, 3/10 nodes + chest wall nodes; A/C x4, T x 12 completed 12/12 with PCR, 2/13/13 lump; IMRT Rads x 33 completed 5/22/13 BRCA 1 negative.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Canapoli Quote  Post ReplyReply Direct Link To This Post Posted: Sep 02 2017 at 12:39pm
Hi, I am trying to decide on type of surgery for early stage tnbc,but radiation with lumpectomy scares me more than mastectomy because of possible reoccurrence and possible stray cancer cells. What helped you decide? My drs don't want to do any scans post chemo prior to surgery so how do you even need know chemo is working? Just about to finish last treatment of dose dense taxol. Dx may 19 2017
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jasmine_501 Quote  Post ReplyReply Direct Link To This Post Posted: Sep 16 2017 at 8:59pm
I have TNBC, I've had Lumpectomy surgery, chemo and RAD's.  I go for my month check up after RAD's this coming week.  Then I go to every 3 months for 1 year.  I was diagnosed T1c, Grade 3, no Lymph Node involvement, all clear margins.  I am 65 years old and was 64 years old when diagnosed.  I had A/C and Taxol, strong density dose of 4 each every 2 weeks when able if counts were up.  I had 4 weeks RAD's with the last ones boost RAD's, don't remember how many at the moment 5 or 6, something like that.  I am trying to get used to living with the knowledge that I could have a reoccurence.  So I am trying to live one day at a time.  Just trying to get used to my new normal.Hug 

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TriplePositiveGirl View Drop Down
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Post Options Post Options   Thanks (1) Thanks(1)   Quote TriplePositiveGirl Quote  Post ReplyReply Direct Link To This Post Posted: Sep 16 2017 at 9:10pm
I know it's hard, but it does get easier over time. You have a good chance of never having a recurrence by the way based on your overall stats. Try not to worry. I know that is easier said than done :)
Diagnosed Jan 2010; Stage IIa, grade 2, 3.2cm in rt. breast, no nodes and BRCA-. 4 cycles Carbo/Gemzar 3/10; Lump 6/10; 2 cycles carbo/gem after surgery 8/10; 35 Rads finished 12/1/10. NED.
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