Go To Main TNBC Website


  New Posts New Posts RSS Feed - Welcome From TNBC Foundation
  FAQ FAQ  Forum Search   Events   Register Register  Login Login

Welcome From TNBC Foundation

 Post Reply Post Reply Page  <1 324325326
Author
Newbie14 View Drop Down
Newbie
Newbie
Avatar

Joined: Apr 06 2016
Location: NE
Status: Offline
Points: 39
Post Options Post Options   Thanks (0) Thanks(0)   Quote Newbie14 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 17 2018 at 7:30pm
Ladies, so nice of you to reply! I will be 4 years out in July, Stage 1b, 4 A/C, 12 Taxol.
Bilateral mysectomy... my fear of reoccurrence is numbing...as you both know.
I am fine most days, but, terrified on others. There’s so MUCH doom and gloom attached to TNBC. I don’t know how to get past the fear of reoccurrence.
Thank you, so much for replying!
Back to Top
Autumn10182001 View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 18 2009
Location: Highland, NY
Status: Offline
Points: 557
Post Options Post Options   Thanks (0) Thanks(0)   Quote Autumn10182001 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 17 2018 at 10:47pm
9 yrs for me,,   stage IIIA/B  very aggressive... gave me a 20% chance of seeing 2014..  still in remission

DX2/99 Stg I,ER+PR+ Chemo lumpectomy - Neg nodes,rads, tamox,femara. DX4/09, Stg IIB /III, TNBC IDC, Grade III, 2.5CM, mastectomy. 4AC DD,12 wkly taxol,BRAC1&2Neg, Right Mast 11/25/09
Back to Top
Kellyless View Drop Down
Senior Member
Senior Member


Joined: Jun 18 2009
Location: Dallas, Texas
Status: Offline
Points: 892
Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Apr 18 2018 at 1:05am
Here's a good thread of survivors that's recent. We have long term survivor pop in to say hey all the time!click here
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/17 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
Back to Top
MLindaG View Drop Down
Senior Member
Senior Member
Avatar

Joined: Feb 16 2013
Location: Pittsburgh PA
Status: Offline
Points: 378
Post Options Post Options   Thanks (0) Thanks(0)   Quote MLindaG Quote  Post ReplyReply Direct Link To This Post Posted: Apr 18 2018 at 9:06am
I just wanted to post that I was diagnosed at 59 years old TNBC Stage 3 C.  I had A/C every three weeks 4 times and taxol every week for 12 weeks.  Lumpectomy.....Radiation.  I am now almost 5 years from all the treatments and in June it will be 6 years from diagnosis.  I really do not think much about it anymore.  (Except when my toes nails decided to break off again!) I too, decided early on that worrying about this was not going to do a thing one way or the other.  As my onc said......don't look at statistics.....basically you have a 50/50 chance........it is either going to come back or not! So on that note I gave it up to God and I have never freaked out about it.  I did go to a hypnotist who gave free group sessions to Cancer patients and listened to his CD every night when I went to bed.......uplifting........peaceful.......and positive.  He felt strongly that your thoughts can affect the chemistry in your body.  So I have always tried to maintain a joyful and positive attitude which has served me well.  I was telling my mil who is 91 yesterday.........look at these beautiful snowflakes as she was complaining about the snow in April.......I said "You need to find the joy and beauty in everyday! - Yes its cold but don't the daffodils (there was a whole bunch together) look so pretty with the snow all around them."  She laughed and said "I need to be around you more you make me feel better!" LOL  Mission accomplished! Smile
Dx TNBC 6/12; age 59; Stage 3, Grade 3; 3.5 cm, 3/10 nodes + chest wall nodes; A/C x4, T x 12 completed 12/12 with PCR, 2/13/13 lump; IMRT Rads x 33 completed 5/22/13 BRCA 1 negative.
Back to Top
Kellyless View Drop Down
Senior Member
Senior Member


Joined: Jun 18 2009
Location: Dallas, Texas
Status: Offline
Points: 892
Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Apr 18 2018 at 11:15am
I've just been thru a recurrence after 9 years - don't let that scare you tho! What I learned is, having a brand new cancer after 3+ years is so rare there is no standard of care to treat it. They've done NO studies, no testing on how to treat it because there are no patients to test. My new friend here on the boards that also has a recurrence after 9 years and I are unicorns. The high risk of recurrence you hear so much about with our disease is the Same Cancer showing up, usually in the first 2 years, mostly somewhere other than breast tissue. TNBC is aggressive and fast growing, it does not lie around dormant for years, so if you've made it for 4 years cancer free your odds of recurrence are quite low. The exception to all of this is a BRCA positive patient that did not have a mastectomy the first time, but other than that you're statistically pretty dang safe at this point - congrats on a successful recovery!!
Kelly
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/17 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
Back to Top
Newbie14 View Drop Down
Newbie
Newbie
Avatar

Joined: Apr 06 2016
Location: NE
Status: Offline
Points: 39
Post Options Post Options   Thanks (0) Thanks(0)   Quote Newbie14 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 18 2018 at 12:36pm
Kelly, you have a reoccurrence after 9 yrs.? That’s not unusual is it. What stage were you, if I may ask.
Thank you for your positive words!
Back to Top
Kellyless View Drop Down
Senior Member
Senior Member


Joined: Jun 18 2009
Location: Dallas, Texas
Status: Offline
Points: 892
Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Apr 20 2018 at 12:25pm
It's extremely unusual, very rare. I couldn't find another person that experienced it for a year and a half until Blair came here a little while ago.
I "sensed" it was back. I said I could feel it, but they found nothing on mammogram or ultrasound. My Very Experienced surgical oncologist said she'd learned to always trust the instincts of a survivor and ordered an MRI with contrast. My insurance said they wouldn't pay for it she said do it anyway, we'll sort out the payment. it showed right up, 2 thin areas side by side, total sizewise on the line of stage 1 & 2A..after biopsy confirmed insurance sent me a letter saying oops, we'll pay for that MRI now. When I saw my awesome, world famous MD Anderson oncologist for a second opinion and told him that story he said, "of course you knew, survivors always know." I wish I could describe why I knew, what I felt. ...I just knew it. After the negative mammogram & ultrasound I felt no relief, because I just KNEW it was wrong. That part was instinct - I also felt I was a goner, that it being back must mean I wouldn't survive this a second time - that part was emotion and fear and luckily wrong so far. The lessons I got from it were: You really are statistically very safe 2-4 years after the end of treatment if you don't have a genetic mutation. Trust your gut!!! With TNBC especially, see very experienced with TNBC oncologists, both medical and surgical. And lastly, GET A SECOND OPINION before doing any treatment!!!!! Always, without exception!
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/17 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
Back to Top
Newbie14 View Drop Down
Newbie
Newbie
Avatar

Joined: Apr 06 2016
Location: NE
Status: Offline
Points: 39
Post Options Post Options   Thanks (0) Thanks(0)   Quote Newbie14 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 20 2018 at 2:25pm
Kellyless,

I’m sorry, your going through TNBC, again!

Did you have a Braca mutation? Was your first round an early Stage?

Thank you, for replying!
Back to Top
 Post Reply Post Reply Page  <1 324325326
  Share Topic   

Forum Jump Forum Permissions View Drop Down

Forum Software by Web Wiz Forums® version 11.05
Copyright ©2001-2016 Web Wiz Ltd.