Go To Main TNBC Website


  New Posts New Posts RSS Feed - Vitamin D3
  FAQ FAQ  Forum Search   Events   Register Register  Login Login

Vitamin D3

 Post Reply Post Reply Page  <1 34567 45>
Author
 Rating: Topic Rating: 1 Votes, Average 5.00  Topic Search Topic Search  Topic Options Topic Options
Scott View Drop Down
Senior Member
Senior Member
Avatar

Joined: Dec 08 2009
Location: Arkansas
Status: Offline
Points: 126
Post Options Post Options   Thanks (0) Thanks(0)   Quote Scott Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2009 at 1:29pm

Mainsailset, I'm with you, it does get confusing. Where do you buy your Carlson brand at? All the ones at walmart have the zinc in them.

Scott

Back to Top
unklez View Drop Down
Senior Member
Senior Member


Joined: Sep 05 2009
Location: New Jersey
Status: Offline
Points: 1000
Post Options Post Options   Thanks (0) Thanks(0)   Quote unklez Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2009 at 1:35pm
Dear Donna,
I am afraid I don't have any readily available articles to support the theories on copper and zinc etc.
Regards,
 
Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
Back to Top
mainsailset View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 27 2008
Location: Washington State
Status: Offline
Points: 4961
Post Options Post Options   Thanks (0) Thanks(0)   Quote mainsailset Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2009 at 2:39pm
Scott, let's see, you're in Seattle area. I've been getting treatment in Mt. Vernon and was lucky enough to find a Super Supplements store (360) 757-4949 there with very knowledgeable people to help. You might go online and look up the Carlson brand, maybe RiteAid or a Super Supplements store....whatever you do, it helped me considerably to scout around and find a good supplement store and make friends with the folks behind the counter, they were my rocks of support when I was frothing at the mouth trying to figure stuff out!

Edited by mainsailset - Dec 30 2009 at 2:46pm
dx 7/08 TN 14x6.5x5.5 cm tumor

3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
Back to Top
MsBliss View Drop Down
Senior Member
Senior Member
Avatar

Joined: Apr 25 2009
Location: Lost Angeles
Status: Offline
Points: 721
Post Options Post Options   Thanks (0) Thanks(0)   Quote MsBliss Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2009 at 4:14pm
Based on the articles Nancy referenced, I would say yes to zinc, but I don't know how much.  I would absolutely avoid supplemental copper though.

Originally posted by Scott Scott wrote:

Zinc...or not to zinc, I'm beginning to get confused.

Scott
Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 12894
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2009 at 8:39pm
MSBliss,  I agree.  The article that Nancy gave the link to said Zinc and Selenium are the Minerals that fight breast cancer.

As far as copper goes, I looked at every multivitamin bottle at my drugstore today and I couldn't find one that did NOT include copper.  Does anyone know of a multivitamin brand that doesn't contain copper?

Denise,

I'm with you.  I'm trying even harder now to eat right and begin a good exercise program, but you have to have some fun in life.  I need my chocolate (dark of course - isn't that better for you?).  The best we can do is try and live a healthy life.  My grandmother is 101 and smoked until she was 81.  Drank her manhattan's and wine.  Drank coffee with loads of cream all day long instead of water.  Said water was for bathing, not drinking.  Go figure.

DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
Autumn10182001 View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 18 2009
Location: Highland, NY
Status: Offline
Points: 557
Post Options Post Options   Thanks (0) Thanks(0)   Quote Autumn10182001 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2009 at 9:58pm
my multi has 3 mg of copper and iron 6 mg.. which is suppose to feed cancer too.. can't find one without them...
DX2/99 Stg I,ER+PR+ Chemo lumpectomy - Neg nodes,rads, tamox,femara. DX4/09, Stg IIB /III, TNBC IDC, Grade III, 2.5CM, mastectomy. 4AC DD,12 wkly taxol,BRAC1&2Neg, Right Mast 11/25/09
Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 12894
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Dec 30 2009 at 10:21pm
Thanks Autumn.  I know anyone watching me at the drugstore reading the labels of all the multivitamins probably thought I was some weirdo.  I wonder if they make a multivitamin without copper. 

There are multivitamins without iron.  They are usually either the men's formula or the over 50 women's formula.  I checked those and they contain copper, but no iron.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 12894
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jan 13 2010 at 9:04pm
Dr. Schreiber talks about Vitamin D is Anticancer book.  He says that many researchers now believe that Vit D3 contributes to slowing down all forms of cancer, at least in the early stages. 

"Specialists recommend . .  a daily intake of 1,000 to 5,000 IUs. . . Take care:  Vitamin D2, or ergocalciferol, should be avoided, since some specialists have reported potential toxicity from hypercalcemia."

He recommends measuring blood levels of D3 and calcium before supplementing and then about every three months after.
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
Scott View Drop Down
Senior Member
Senior Member
Avatar

Joined: Dec 08 2009
Location: Arkansas
Status: Offline
Points: 126
Post Options Post Options   Thanks (0) Thanks(0)   Quote Scott Quote  Post ReplyReply Direct Link To This Post Posted: Jan 13 2010 at 11:03pm
We got my beautiful brides vitamin D test back last week, it was 34.9.."perfect" doc says.."not so fast there kemosabi" I say..we think at least 50 is important in the cancer battle...he says "how about 5000IU's a day"..."we'll take some, sign us up" I then say.
 
Seriously though the cal/mag issue is driving me freaking crazy..I cant find it anywhere without that freaking zinc, any new thoughts out there on this?
Scott
Back to Top
MsBliss View Drop Down
Senior Member
Senior Member
Avatar

Joined: Apr 25 2009
Location: Lost Angeles
Status: Offline
Points: 721
Post Options Post Options   Thanks (0) Thanks(0)   Quote MsBliss Quote  Post ReplyReply Direct Link To This Post Posted: Jan 14 2010 at 5:21am
I love that--about the D2.  That is the form my onc put me on for FOUR months after my diagnosis.  And that was only after they decided to tell me I was severely deficient, at 16, and well, maybe I should do something about that.  How much faith am I supposed to have in this system?
Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 12894
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jan 14 2010 at 7:43am
MsBliss,

I agree.  If it wasn't for this forum, I would never have learned about the importance of D3. 

Scott,

Most Calcium/Magnesium supplements contain Zinc.  You may be able to fine some online that don't have zinc.  Try checking out:  http://www.vitaminshoppe.com

However, from reading previous posts, I understand Zinc to be important.  Please read Nancy's post:

http://forum.tnbcfoundation.org/vitamin-d3_topic5338_post45447.html?KW=zinc#45447


Edited by 123Donna - Jan 14 2010 at 7:48am
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
mainsailset View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 27 2008
Location: Washington State
Status: Offline
Points: 4961
Post Options Post Options   Thanks (0) Thanks(0)   Quote mainsailset Quote  Post ReplyReply Direct Link To This Post Posted: Jan 14 2010 at 10:33am
Scott, I led you astray! Sorry, I had said I used the Carlson, but that's my Vit D3, the Cal-Mag I use is Country Life. I'm looking at the label and it only lists Calcium (1,000 mg in 2 tab) Phosphorus & Magnesium (500 mg). But as Donna said above, the zinc just might be a good thing!
dx 7/08 TN 14x6.5x5.5 cm tumor

3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 12894
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Mar 10 2010 at 12:10am
bump
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 12894
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Mar 11 2010 at 7:56am
Thanks MSBliss for posting this on another thread.  It has some good information on D3.

http://www.nosurrenderbreastcancersurvivorforum.org/post?id=4530242
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
lrderedita View Drop Down
Groupie
Groupie
Avatar

Joined: Nov 15 2008
Location: Tulsa, OK
Status: Offline
Points: 69
Post Options Post Options   Thanks (0) Thanks(0)   Quote lrderedita Quote  Post ReplyReply Direct Link To This Post Posted: Mar 11 2010 at 8:29am
WOW. This opens a whole new world to me.

I've often wondered why there isn't more following of our (cancer survivors') environment, supplements, nutrition, etc, from our oncologists. All that I have ever heard them say is to avoid anti-oxidants during treatment.

But TNBC Foundation and Forum has it covered. This is such good information and has my full attention! Thanks Donna and all you fellow survivors :)

Lynne
Age 46-5/06 lump ACT, Rads; 5/08 Rec bi-mast,Etopiside/ Cisplatin; 11/08 Rec Rads/ Gemzar(rad dose); 7/09 supraclav nodes Avastin/ Abraxane Sept09-current
Joyful in Christ through all circumstances!
Back to Top
jodiel1 View Drop Down
Newbie
Newbie


Joined: Mar 20 2010
Location: england
Status: Offline
Points: 13
Post Options Post Options   Thanks (0) Thanks(0)   Quote jodiel1 Quote  Post ReplyReply Direct Link To This Post Posted: Mar 20 2010 at 8:26am
hello, just wanted some advise. my mum hasnt had her levels checked yet for vitimin d 3 but just wondered what was a good amount to take? and is liquid form the best? also does anyone no a good website to get vitimins?
thanks x
Back to Top
mainsailset View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 27 2008
Location: Washington State
Status: Offline
Points: 4961
Post Options Post Options   Thanks (0) Thanks(0)   Quote mainsailset Quote  Post ReplyReply Direct Link To This Post Posted: Mar 20 2010 at 10:11am
Hi Jodie: I think you'll find many here have settled in on taking 2,000 IU a day. We cancerfolk need to have more than the average. My sister takes the liquid and has not had good luck with it bringing her levels up, I take the gel caps and they have done the job of bringing my levels up from 19 to 60.
 
Before she starts, have her tested. Since you're in the northern climes of England it's going to be a safe bet that she is deficient, and it has been well document that those who get breast cancer are in the highest percentage of having low levels.
 
I hesitate to send you a good link as I don't know what happens when things are shipped country to country...but I do know that Scotland and Britain both have been in the forefront of Vit D studies so hopefully there will be a good vitamin store you can drive to. I mention that because a good vitamin/supplement store with knowledgeable people are very helpful with many things. I also get a power Vit B liquid at mine that helps boost my energy when I need it.
 
Once she starts up on the D supplement it will take awhile for it to start to make a difference in how she feels, with me it took about 6 weeks. And it took about 6 months to get my levels up.
 
welcome to you and your mom both, please tell us more about your mum's treatment and how she's doing, we'll try and help with other things that may crop up as well.
dx 7/08 TN 14x6.5x5.5 cm tumor

3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 12894
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Mar 20 2010 at 10:18am
Jodie,

I take 4,000 to 5,000 iu of D3 a day (gel cap).  Most women with bc have low levels at dx.  Mine was 19 after chemo and 47 after a few months of taking D3.  I'm getting my D3 levels tested next week and hope that it's even higher. 

It's important that you mom gets tested before supplementing so she knows her beginning levels.  Any website or healthfood/vitamam store that sells vitamins should offer D3.  You can google it and see if there are sites that pop up.  You want to make sure you're getting D3 and not D2.

Here's some information that was posted on the nosurrenderbreastcancersurvivorforum.org

What's New  (01/22/10): Vitamin D3 in Triple Negative Disease

New evidence suggests that the triple-negative breast cancer (TNBC) phenotype has the lowest average vitamin D level and the highest percentage of patients that are vitamin D deficient, strongly suggesting that low vitamin D levels are characteristic of the triple-negative phenotype. In a case series presented by Christa Rainvillle and colleagues,  patients with the more aggressive triple-negative phenotype had a mean serum vitamin D level of 20 ng/ml compared to a mean of 36 ng/ml for normal volunteers (Whittier, CA).  Furthermore, this may help to account for the fact African American women have the highest breast cancer specific mortality rates, the lowest serum levels of 25(OH)D, and the highest incidence of aggressive triple-negative or basal-like tumors (39%), as Lisa Carey and colleagues found in their Carolina Breast Cancer Study of race, breast cancer subtypes, and survival, and the Rainville findings further support that lack of vitamin D transport into cells may contribute to aggressive phenotypic expression (especially of TNBC, but possibly also, evidence suggests, of aggressive HER2+ and IBC disease). Therefore, my strong guidance for TNBC patients is to assure consistent (3 consecutive monthly readings) optimal (66+ ng/ml) Vitamin D3 levels, with periodic retesting (every 6 months).

 




Edited by 123Donna - Mar 20 2010 at 10:30am
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 12894
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Mar 20 2010 at 11:14am
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
jodiel1 View Drop Down
Newbie
Newbie


Joined: Mar 20 2010
Location: england
Status: Offline
Points: 13
Post Options Post Options   Thanks (0) Thanks(0)   Quote jodiel1 Quote  Post ReplyReply Direct Link To This Post Posted: Mar 20 2010 at 3:09pm

thanks very much for your replies.

My mum doesnt come on here but ive been trying to do some research for her.

She was dx aug 09 with grade 3 idc, she had three lumps one 1.8, 1.7 and 0.5. She had surgery sept and had her lymph nodes removed in october. She had 1 possitive out of 11.

She has had 3 fec and 2 taxol, just one more taxol to go. She has had an ok time with it although she does feel really down lately whitch is understandable.

I read some many different things about supplements and i have been looking to see the best ones to get for her. So do you think she should wait to be tested to start d3 or just take a low does now? I dont think she will see her oncologist till late april.

thank you for your time.
Back to Top
 Post Reply Post Reply Page  <1 34567 45>
  Share Topic   

Forum Jump Forum Permissions View Drop Down

Forum Software by Web Wiz Forums® version 11.05
Copyright ©2001-2016 Web Wiz Ltd.