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T-Shirts for chemo and radiation

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    Posted: Feb 06 2008 at 9:48pm

My friends have all sent me an, old, used t-shirt of theirs where they have drawn something, written a message and have signed it. I will wear one to each of my chemo and radiation sessions. That way, I have my friends and loved ones near me during all of this.

BTW, I live in MI and was diagnosed in Austin, TX on 12/14/07 and am in AZ now on a pre-planned trip with friends (we have RV's). T2, N0, Mx (tiny spot on right lower lung, all drs. think it is nothing), 4.6 cm, lumpectomy beginning of Jan 08, 3-, last week blood test for cancer in blood came back showing no sign of cancer. SO, as of now, I guess, technically, I'm cancer free.
 
Had my first chemo today, with a port, not bad at all, no big deal, so far. Doing dose dense every 2 weeks for 4 sessions of Cytoxan and Epirubicin. THen 35 radiation days. Then more chemo 4 sessions, 3 weeks on 1 off of Taxotere and a carboplatin, if my body can take it
 
SO, now that I got off of the topic. I hope you'll all get t-shirts from your family and friends that you can wear to your treatments. It's fun and everyone reads them and love what is on them.
 
Today's said: (from my brother-in-law)
 
Save the Environment!
Save the Whales!
Save the Baby Seals!
Save the Tattas!
 
Too cute, guess the term tattas is a MI word, the dr. in AZ didn't know what it meant, when I told him he said, "Oh, I call them chimychungas (sp)."
 
So, hang in there everyone, we'll do just fine. One step at a time, one step in front of the other and remember we're our own best advocates.
 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Netterz Quote  Post ReplyReply Direct Link To This Post Posted: Feb 07 2008 at 12:00am
What a wonderful idea!!!!! I am in the process of emailing you with my ordeal, so you have an idea of what Ihave been dealin with. Not sure what part of MI you are from, but we got 12+ inches of snow today, and more on the way. Be glad you are down there where its warm!!!!! LOL, I am so jealous!
T-Neg diag.5/07-40yo
Stage IIIa
Grade III
7/26 +nodes ax.
4-A/C pre-lumpectomy 2 Taxol post
+Tissue involvement
Finished Rad 4/08
DX of Advanced CTCL 2/09
Lansing,MI
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Cookie Quote  Post ReplyReply Direct Link To This Post Posted: Feb 07 2008 at 6:30am
We're from Saint Clair Shores. We are actually on Lake St. Clair. In Oct. I will have been away from MI for 2 years. We left in Oct. 2006 for Austin for the holidays, then 1st of the year 2007, met friends came to Coolidge, AZ then went back to Austin for Easter. We were to leave after Easter and get our butts home, but Thurs after Easter my husband fell off of his bike and broke his right leg, both sides with a compound fracture, emergency surgery and months and months of recorvery. So, we made the decision to remain in Austin to keep him with his original doctors, which we really liked, besides he couldn't drive the RV with his right ankle being involved. Then, on 12/14/07 I found out about the cancer. Being that we were away from home for so long we went for our regular yearly physicals and I requested a RX for a mammogram (my gyn in MI wouldn't give me a script because I hadn't been in to see her for a year or two - I'm 60, no need for a pap smear every year any more). So, by the grace of God, we thought about our physicals, etc.
 
I had the lumpectomy in Austin and was cleared by surgeon and onc to travel to AZ, just after the first of the year (2008). We have plans every winter with our friends to stay here and away from MI. So, I decided I didn't want to go back to Austin. My daugher and her family live there but for some reason we just were'nt gettin much support from them. They never asked any questions, I didn't want to bring up the subject if they didn't want to hear about it, blah, blah blah.
 
So, here we are, I love my doctor here in AZ (Casa Grande), I think I'll have my radiation here then go to MI for the last part of chemo, if I find a doctor that will agree with the doctor here and be aggressive. I am leaning toward U of M. Have read bios of a couple of doctors that interest me.
 
Last night I had an awful headache, don't know if it was a migrane or from the chemo, but this a.m. my friend told me I drank way too much water and it could have been from that. I drank about 154 oz. I just didn't want to make a mistake and have that crap sitting in my bladder. Took tylenol for headache, still had it, then "funny stomach" so I took on of my 12 hour Kitryl anti-nausea pills around 8. Then at 10 took my RX migrane pill. By 2:30, headache never eased so took 2 excedrine migrane, 6 hour anit-nausea pill and a xanax. Finally fell asleep! But was up at 7 ish. A little shaky this a.m., but before I got up ate some apple slices and a cracker. I heard that when one is pregnant apples before getting out of bed helps the nausea. ???
 
Feeling pretty good this a.m. We'll see how the day goes.
 
That's my story and I'[m sticking to it.
 
We have a win win situation in MI. My daughter and son-in-law's friend moved to MI from Bloomington, IN - her husband decided not to move with her and their daughter, after the move. So she, unfortunately, isn't making much money and pays for day-care (now the daughter is in latch key, she's in the 1st grade now) and was renting an apartment in Troy. She had been talking about moving closer to her work and/or at some point moving back to MN where her family is. So, we suggested that she move into our house, rent free until she found an apartment (last spring) with no hurry in her moving - the house is pleanty big for all of us. Then all these situations came up, so she is there for however long she wants to. Even if I go back to MI for my last part of chemo, no need for them to move because we'll just be leaving again in Oct or Nov.
 
Boy, didn't mean to write a journal.
 
Take care and keep me posted.
 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Feb 07 2008 at 6:41am
Hi Cookie and welcome.Smile
 
I hope you continue to feel better today.
 
I love the t-shirt idea.  That could fall under our "comfort" forum.
 
There is a website that sells save the tata shirts and items.  How funny about what your doc calls them.LOL  Whatever you want to call them we need them saved!
 
Keep in touch and let us know how you are doing,
Stage 2 2003
Stage 1 2007
BRCA 1+
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jessie Quote  Post ReplyReply Direct Link To This Post Posted: Feb 08 2008 at 9:43am
Never heard of a "tata"  Embarrassed   Have to look that one up -- must not have them in the South.
 
I love the idea of wearing a used T-shirt from a loving friend to chemo treatments ! 
 
Jessie
IDC,Stage I,Grade 3,dx 4/06
dbl mast 5/06,
systemic MRSA post surgery
septic shock, heart attack
triple bypass 1/07
no chemo due to infections and heart issues
so far NED!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Netterz Quote  Post ReplyReply Direct Link To This Post Posted: Feb 08 2008 at 11:51am
If your looking for a really good Onc is that area, we took my dad to a fantastic one out of St Joes, his name is Dr. Eisenburg, he was the ONLY one that gave us straight up answers and told us had we gotten dad down there sooner,( was about a year too late by then) they probably could have done surgery, and prolonged his life wth some quality. My brother is friends with a vascular surgeon down in that area, and he recommended us to Dr. E. when we started really questioning dads care.  He is very personable, direct, and agressive.  He has a sattelite office in Brighton, which is about an hour from them. We took my dad to him twice, and he has been really helpful to my brother in understanding my cancer, has looked over my case a couple times, and been helpful with making suggestions. If I were in that area, he would definately be my choice. I live near Lansing, so am going to Sparrows Cancer Center now, and am soooooo much happier than I was with the other oncologist.  Since I have changed centers and a complete new set of  oncology specialists,I feel much more secure in my treatment, I can feel that they are truly concerned and treat me like a human, instead of the other one, she was about as interested as a rock in my yard. My questions and concerns are answered directly and honestly, I just cant get over the change. I have kicked myself 100 times for not going there right from the start. I can you his #, I am not sure if I am spelling his name right for sure,
T-Neg diag.5/07-40yo
Stage IIIa
Grade III
7/26 +nodes ax.
4-A/C pre-lumpectomy 2 Taxol post
+Tissue involvement
Finished Rad 4/08
DX of Advanced CTCL 2/09
Lansing,MI
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Netterz Quote  Post ReplyReply Direct Link To This Post Posted: Feb 08 2008 at 12:06pm
http://www.sjmercyhealth.org/bodysub.cfm?id=56
The link to the cancer center there, if you are interested, they head up the Michigan Cancer Research Consortium.
T-Neg diag.5/07-40yo
Stage IIIa
Grade III
7/26 +nodes ax.
4-A/C pre-lumpectomy 2 Taxol post
+Tissue involvement
Finished Rad 4/08
DX of Advanced CTCL 2/09
Lansing,MI
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Netterz Quote  Post ReplyReply Direct Link To This Post Posted: Feb 08 2008 at 12:10pm
AND........geeesh......I wish my center had  it...... FREE MASSAGE for cancer pts!!!!!!!!!!!!!
T-Neg diag.5/07-40yo
Stage IIIa
Grade III
7/26 +nodes ax.
4-A/C pre-lumpectomy 2 Taxol post
+Tissue involvement
Finished Rad 4/08
DX of Advanced CTCL 2/09
Lansing,MI
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Post Options Post Options   Thanks (0) Thanks(0)   Quote smithlme Quote  Post ReplyReply Direct Link To This Post Posted: Feb 09 2008 at 5:24pm
I found the best shirts at www.cafepress.com. Type in Breast Cancer and get ready to see thousands of hilarious shirts. My Oncologist loved her, "Oncologists Rock," T-shirt. There are ones for every step of your journey. My next one will be, "Under Construction!"
 
I had a TRAM flap on January 28th, that failed. I had emergency surgery the following day to remove the flap, because the blood flow was compromised and the muscle died. "Plan B" is to have an expander and implant. NOT what I wanted, but I can only move forward. After this second loss, I'm trying to focus on my healing and future...
 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote gojodigo Quote  Post ReplyReply Direct Link To This Post Posted: Feb 11 2008 at 2:14pm
Hi everyone, I'm all new to this so forgive me from barging in. I love the idea of t;shirts. Although, when I was going through treatment my wig and chemo gray face kind of gave it away. When I did the Avon walk for BC, the shirts I saw were priceless. Save oue Tatas, Cancer sucks, Chemo sucks and alot more.Jodi
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Netterz Quote  Post ReplyReply Direct Link To This Post Posted: Feb 11 2008 at 5:00pm
Welcome Jodi!!!!!!Hug
 
You never need to feel like you are intruding anywhere here, your always welcome. Thats what this site is all about, bringing us all together, to be able to comment, support, share thoughts and ideas. So please never ever feel like you are barging in on any conversations. I hope you join us more, anytime you like. Best wishes, and keep fighting!
T-Neg diag.5/07-40yo
Stage IIIa
Grade III
7/26 +nodes ax.
4-A/C pre-lumpectomy 2 Taxol post
+Tissue involvement
Finished Rad 4/08
DX of Advanced CTCL 2/09
Lansing,MI
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Cookie Quote  Post ReplyReply Direct Link To This Post Posted: Feb 11 2008 at 7:12pm
Thanks - I sent them an e-mail asking if they have anyone who is an "expert" with triple negative breast cancer. Is that St. Joseph in Pontiac?
 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Cookie Quote  Post ReplyReply Direct Link To This Post Posted: Feb 11 2008 at 7:26pm
Jodi:
 
The more the merrier! Never feel like you are intruding. The more we communicate, the more we learn and the more informed we are, thus enabling us to get the best treatments we can to fight this awful thing. There is so little known about triple negative and we have to find out what everyone is learning and doing.
 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Netterz Quote  Post ReplyReply Direct Link To This Post Posted: Feb 12 2008 at 6:48am
No, I believe he is at the Ann Arbor one.  That is where we took dad the first time anhe had his colonoscopy done shortly after, and by the 2nd time, he had opened the Sattelite office in Brighton, so we went there. Alotof the Onc's travel between hospitals of there own, bt he was definately worth the drive to see. My mom loved him, h was the only onc thru dads entire ordeal, who cted like he knew what he was talking about, and that he actually cared, and sat down to talk with them, then after dad left the room, took the time to sit and talk to he after, even tho it was mainly another opinion, both times, because the trips took everything dad had, and the 'other onc' who was supposedly treating dad, never told the truth, and treated them like a # and $.
T-Neg diag.5/07-40yo
Stage IIIa
Grade III
7/26 +nodes ax.
4-A/C pre-lumpectomy 2 Taxol post
+Tissue involvement
Finished Rad 4/08
DX of Advanced CTCL 2/09
Lansing,MI
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