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Greetings everyone! I have a question...

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RyB1984 View Drop Down
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    Posted: Jul 23 2017 at 7:05pm
So as we have taken steps forward...of course, we take a step backwards.

Long story short, my mother had not been feeling well this week and on Friday, I brought her to the cancer center to be checked out. The doctor just didnt feel confident about letting her go home and momma dukes was admitted.
I had been suspecting that maybe she caught a cold, collapsed lung, possibly pneumonia....etc. Blood work was "good" but something was going on.
After tests, chest x ray and a cat scan....im just gonna thank you lord that its not somethint exceptionally bad, but Pneumonia is not fun. Yup, somehow my mom has pneumonia. Friday night before i left the hospital, she was running a fever. I knew something wasnt right while her oxygen levels never went lower than 95%.

Well, she began antibiotics yesterday and her fever broke last night as she was sweating.
Since then, all her blood work is going back to normal however the heaviness and shortness of breath is still there, but baby steps seems to be improving now as shes coughing it up.

Ughhh lol. They are going to keep her a few more days but i am at peace and relieved they made her stay at the hospital. Im just thankful shes being looked after and this week we start the next treatment plan (100% confirmed).

Thank you to all for the positive vibes n replies. Ill keep u all posted as usual. 😎😁 thank you susaninva for the kind words.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SusaninVA Quote  Post ReplyReply Direct Link To This Post Posted: Jul 23 2017 at 5:15pm
Hi RyB,
So good to hear from you again.  I think all the way around, you had wonderful news to report!  I hope your Mom will gradually regain her strength and resume her tennis play in the near future.  It sounds like her doctors are keeping a close eye on her, and I'm so thankful to read that her scans came out clear.  I'm also glad to hear that you are keeping a close eye on her - you are a wonderful son! 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote gordon15 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 18 2017 at 5:25pm
Great to hear from you! Oxygen , to me, is a good idea, that boosts energy for your Mom and I don't know if Carboplatin works all the time, but my wife was given Carboplatin-Gemzar chemotherapy, and she is stable today, hope the same progress for you Mom!
wife: IDC/Lobular Stage2B 2008 lumpectomy/TAC+rads
TNBC Stage 3A/w/metaplastic/squamous Nov2015 Carboplatin-Gemzar chemo/masectomy Taxolchemo+rads 4-16
PET scan stable 9-2016/ 1-2017
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jul 16 2017 at 7:58pm
Your mother's response is extremely encouraging!  Best to her and your family.

Donna

DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote RyB1984 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 16 2017 at 6:35pm
Also want to add that they also did a scan of the brain as she was complaining of some headaches/migraine for a short while and that came out NEGATIVE as well too.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote RyB1984 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 16 2017 at 5:45pm
Hello everyone!

Just doing my check in however I am always visiting the forum on a daily basis.
I still pray...EVERYDAY for you all and your battles that you come out STRONG and VICTORIOUS.

I just wanted to give you all an update on Mom's progress as she continues with Chemo (Carboplatin).
She has completed 3 treatments and this journey has been quite a rollercoaster. The fluid on the right lung has now decreased from 150CC's to 25ccs.........25CC'S everyone. That is excellent.
There is now strong talk of having the catheter taken out.
Almost 2 weeks ago, it felt like we had a setback. At the doctor's after having the fluid drained, my mother was still saying she had shortness of breath. Well.....this fluid decided to fill up on THE LEFT side.
Definitely was taken aback on that one. They drained 1000cc's on the left and has since NOT filled back up.

So on that note, a Cat scan, chest x-ray or pet scan (im getting them all mixed up lol) was taken and her body scan was just days later.
Long story short, both body and ALL other scans showed nothing suspicious or anything of cancer. All negative and normal. There was a lymph node that was slightly enlarged that has since shrunk some since. The doctor said this happened last year and then the lymph node went back to normal. Still, she confirmed it......we have no measurable size of disease in her body. P R A I S E god...This carboplatin is CLEARLY working one way or the other!!!!!!!

The only problem is that that 1000cc's fluid that was found on the left side of the pleural and was SUPPOSED to be sent off to be tested...well.... this past wed, the oncologist(according to my mom), came into the appointment MAD and HOT as hell because someone dropped the ball and the fluid was never tested and was disposed. Oh...no...the oncologist is/was so upset as this was an indicator on how this chemo is working on my mother. I believe there may be some talk now about her continuing with the Carboplatin but possibly doing a trial with Immunotherapy at Dana Farber now.

As of now, there seems to be some suspect of maybe something going on with her heart (possibly some kind of heart disfunction), possibly due to the AC from last year. She still has some shortness of breath. We have a visiting nurse that comes and the doctor checks her lungs and according to them, mom's lungs sound clear! (FINALLY) Since this has started, a company who delivers home oxygen has brought oxygen tanks to the house and momma dukes does oxygen every other day-every 2 days (really she is only required to use it when she needs it) as obviously this helps keeps the organs working correctly. I will say this home oxygen gives me personally, deja vu, as my father had to do the same thing but he had to have it on at all times and unfortunately, the ending result was that he died the day after Xmas, in 2005. Completely different situation but it's at times emotional.

Hopefully, we can tackle if there is a heart issue and why there is still shortness of breath as mom is ready to return to tennis and be very active again.

There's the update people.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote gordon15 Quote  Post ReplyReply Direct Link To This Post Posted: Jun 19 2017 at 4:50pm
RyB: thanks for the update on your Mom, we are fighting this with you.
wife: IDC/Lobular Stage2B 2008 lumpectomy/TAC+rads
TNBC Stage 3A/w/metaplastic/squamous Nov2015 Carboplatin-Gemzar chemo/masectomy Taxolchemo+rads 4-16
PET scan stable 9-2016/ 1-2017
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Post Options Post Options   Thanks (0) Thanks(0)   Quote snugltz Quote  Post ReplyReply Direct Link To This Post Posted: Jun 18 2017 at 12:38am

RyB

I will be praying for you and your mom.  So happy for the progress.
1 cm, 0/2 neg nodes, lumpectomy 6/16/10, cytoxin/taxotere 4x every three weeks, rad start 11/8 33X
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Post Options Post Options   Thanks (0) Thanks(0)   Quote RyB1984 Quote  Post ReplyReply Direct Link To This Post Posted: Jun 17 2017 at 8:12pm
Also to add, her blood work is ALL going back to normal, which was crazy to see. All her blood levels, liver, magnesium, WBC, RBC, platelets, glucose EVERYTHING....is all going back to normal. there were a few blood tests in the past when we first got the DX back in may of the reoccurrence, a few levels were low and the a few things were high.
once again, everything is all going back to the normal range again which makes me scratch my head. Not saying I am not thankful and thanking god that the doctors are keeping a close eye on her and making sure she's good, but I'm hoping this is another signal that we are going in the right direction.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote RyB1984 Quote  Post ReplyReply Direct Link To This Post Posted: Jun 17 2017 at 8:06pm
Good Evening everyone!

So I wanted to keep you all updated on things that are going on.
Mom has completed 2 treatments and a new update is that she has had a catheter placed in to help with drainage (this Monday will be 2 weeks since it has been placed in).
Momma dukes is in pain often due to the catheter and the fact that the lung feels sore. Nausea is a problem for sure. There has been some slight weight loss but nothing CRAZY. It's like a roller coaster but she does eat!
We have a visiting nurse that comes every other day. The typical amount that would be extracted was 1000ccs (I believe that would equal 1 liter)
Just last week (last Thursday to be exact), 900ccs was drained,
Last Saturday was almost 800ccs
This past Monday was 400ccs.
This past Wednesday was 400ccs again.
So they lowered the amount that would be extracted instead of 1000ccs, it would be 500ccs. The visiting nurse even went as far as saying ill come every 3 days.
Today, the visiting nurse extracted....drum roll......150ccs!!!
Even the nurse was saying something is clearly working.

Something is working everyone. This Carboplatin seems to be working.
She has done some walking at the track and at times even runs during her walking just to keep the blood flowing etc and get that oxygen in. Oxygen levels never go below 97%.

I'm not sure what or why this Carboplatin(platinum chemotherapy) is different than the standard chemotherapies but this sure is working.
I feel like some time soon, this catheter may really be coming out (Prayers up!)
There was talk of possible chemo for long term which was disturbing to hear but I do know God has the final rule on that one. I am hoping at some point we will hear NED again and she will have no meds and can live freely again....I'M HOPING!!!!!
Prayers prayers!!!!

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Post Options Post Options   Thanks (0) Thanks(0)   Quote SusaninVA Quote  Post ReplyReply Direct Link To This Post Posted: May 24 2017 at 10:39pm
Hi RyB, Thanks so much for letting us know about your Mom.  This news does give a lot of hope that the chemo can eradicate those cells.  You are such a sweet and vigilant son, and I know your Mom must be so thankful for you!  I'm sorry she has to go through so much, but I am thankful to hear that the oncologist sounds optimistic.  I will keep your Mom and you and your family in prayer.  Sending my love and best wishes!  
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Post Options Post Options   Thanks (0) Thanks(0)   Quote gordon15 Quote  Post ReplyReply Direct Link To This Post Posted: May 24 2017 at 9:51pm
Dana Farber is one of the best. It's my opinion, it's best for you to believe in your Mom's doctors right now, and give their recommendations a chance.

 We can compare notes later, if needed, my wife had a PET/CT about 2 weeks ago, she has a few spots they are watching, she has some lung lesions but they are benign (they are called "ground glass nodules") Since she hasn't had lung issues, other than shortness of breath from radiation to top-outer lobe, when they had to do radiation in her clavicle area, because there are lymph nodes there, that has subsided.

Next time I go in I will ask about any new lung therapies, in the meantime, let us know how your Mom is responding.





wife: IDC/Lobular Stage2B 2008 lumpectomy/TAC+rads
TNBC Stage 3A/w/metaplastic/squamous Nov2015 Carboplatin-Gemzar chemo/masectomy Taxolchemo+rads 4-16
PET scan stable 9-2016/ 1-2017
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Post Options Post Options   Thanks (0) Thanks(0)   Quote RyB1984 Quote  Post ReplyReply Direct Link To This Post Posted: May 24 2017 at 9:27pm
could you please ask.....i'm trying not to question what the oncologist is doing cuz she knows what shes doing and consults on the tumor board every week but... I have seen a lot of Combo treatments with Carboplatin. Is Carboplatin an effective chemo or should we consider something with it as a combo? Taxol is not an option as it did something to her lungs last year and it was easily recoverable. what kind of other options could we look at?
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Post Options Post Options   Thanks (0) Thanks(0)   Quote gordon15 Quote  Post ReplyReply Direct Link To This Post Posted: May 24 2017 at 8:59pm
My wife's oncologist is Dr. James Sinclair, he has a partner who specializes in ALL cancer, whereas Sinclair is just breast cancer. He has talked about mets to lung. He's on top of all the latest. He recommended my wife to UCSD/Moores, where she is seeing a doctor , if there is anything I can ask them, just tell me. Sinclair said, just as an example, Keytruda was very effective for melanoma, but he was disappointed in the trials for breast cancer to the lungs. I try to keep up on "eventualities" that might happen, I'm glad to hear you have some good doctors doing the best they can.
wife: IDC/Lobular Stage2B 2008 lumpectomy/TAC+rads
TNBC Stage 3A/w/metaplastic/squamous Nov2015 Carboplatin-Gemzar chemo/masectomy Taxolchemo+rads 4-16
PET scan stable 9-2016/ 1-2017
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Post Options Post Options   Thanks (0) Thanks(0)   Quote RyB1984 Quote  Post ReplyReply Direct Link To This Post Posted: May 24 2017 at 8:51pm
absolutely. I will keep you all in the loop. Thank you, thank you!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote gordon15 Quote  Post ReplyReply Direct Link To This Post Posted: May 24 2017 at 8:50pm
We are thinking of your Mom and you, it may take a week to see results, keep us posted, ok?
wife: IDC/Lobular Stage2B 2008 lumpectomy/TAC+rads
TNBC Stage 3A/w/metaplastic/squamous Nov2015 Carboplatin-Gemzar chemo/masectomy Taxolchemo+rads 4-16
PET scan stable 9-2016/ 1-2017
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Post Options Post Options   Thanks (0) Thanks(0)   Quote RyB1984 Quote  Post ReplyReply Direct Link To This Post Posted: May 24 2017 at 8:43pm
Thank you Gordon!

its starting to feel comforting that at least shes being treated now. I am trying my best to move on from that time frame but my mother...man....shes focused on beating this.
We are thankful it's not IN the lung, its on the outside of the right lung and its only fluid. I am praying this Carboplatin works...never heard of it though.

and I agree with you, the oncologist is trying on the behalf of god.
Thank you SOOOOO much! it sincerely means a lot.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote gordon15 Quote  Post ReplyReply Direct Link To This Post Posted: May 24 2017 at 8:19pm
RyB1984: thanks for the update! Emotions run high here too

That is really good news that it's only a lung problem !

We hope the Carboplatin continues to help! Please don't dwell on the time-frame from dx to therapy, this is , from what we have been through, always longer than what we expected....I agree, the loss of one in the family closest is impossible to comprehend, ...

the oncologist is basically, the key to life, is the way I see it. They aren't God, but they are trying to their best on behalf of God.

We are thinking of your Mom, you, and your family tonight.
wife: IDC/Lobular Stage2B 2008 lumpectomy/TAC+rads
TNBC Stage 3A/w/metaplastic/squamous Nov2015 Carboplatin-Gemzar chemo/masectomy Taxolchemo+rads 4-16
PET scan stable 9-2016/ 1-2017
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Post Options Post Options   Thanks (0) Thanks(0)   Quote RyB1984 Quote  Post ReplyReply Direct Link To This Post Posted: May 24 2017 at 7:08pm
Hello Everyone!

I hope everyone is doing well.
It's been an interesting time since I last posted. Many many emotions running through this family right now.

I wanted to give you all an update.
So Mom had a full body scan to see if the cancer has spread anywhere and to our amazement......the cancer is only fluid around the right lung and no cancer in any other part of the body. (THANK...GOD!!!!)
Her Cancer Antigen 27.29 was 30, which I guess the normal rate is between 0-38 or 0-42. Oncologist said this is very normal.
Her port was placed back in and she has started chemo.
The oncologist recommended we go to the Dana Farber Cancer Institute in Boston and we met with Dr. Wendy Chen....what. a. sweetheart. She's highly recommended and one of the top in the US.
So this was indeed an EARLY reoccurrence of the original breast cancer (it moved).....Dr. Chen said that she is not eligible at this time for any clinical trials as it's TOO EARLY as there is no measurable size of disease in the body.
The timeframe between the diagnosis and treatment was quite painful. I cried almost everyday and I even cried after I asked for a hug on Mother's day (the night before treatment, who does that SMH) as I told her, "I have been forced to think about continuing my life without her. I told her I cant lose her or I'm going to be a wreck."
She said she will fight and will beat this for me, my brother, my sister-in-law and her grandchildren. Wiped away the snots and tears (lol) and Strength came roaring back and I've been better since.

The recommendation right now is that she will start Carboplatin (she had one infusion already). Both Dr. Chen and our current oncologist are working together and we feel good that we have both the RI Cancer Center and Dana Farber aligned with us. Dr. Chen said there is every reason in the world to believe there is strong hope for my mom. She said she is not dying (she was very blunt, honest and told it like it is)

I think what we are most grateful for is that it's no where else in the body. She's had too taps of the thorentesis (every 2 weeks). This past Monday marked 2 weeks since she had the extracting of fluid and she is starting to believe she may not need another one. Shes starting to sleep a little better, Her shortness of breath has improved, and she goes walking. She recovers a lot faster since she has started treatment. Tomorrow, they are doing a Chest xray to see how the fluid is doing and if another thorentesis needs to be done (she would prefer not to, but if it has to be done, it has to be done, not a good or bad thing as long as it dries.) Oncologist believes the chemo is working.

I am not questioning the oncologist because she TRULY CARES and wants to help my mother. She has told to my mom's face, "I Love you"....she's excellent and truthful, however, I am willing to do ANYTHING in this world to keep my mother on this earth. If there are any other recommendations anyone has, please feel free to let me know. I am asking for you all for prayers and send positive vibes. We are ahead of the game at this time, but I want my mother CURED just like I want every person who is suffering from this horrible horrible disease to be CURED! And according to an article I read recently, they are SO CLOSE to curing SPECIFICALLY TRIPLE NEGATIVE BREAST CANCER!



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Post Options Post Options   Thanks (0) Thanks(0)   Quote gordon15 Quote  Post ReplyReply Direct Link To This Post Posted: May 02 2017 at 8:12pm
I'm so sorry to hear of this setback. Oncologists are working to find agents to treat lung cancer mets originating from breast cancer, I wish I had a suggestion, please know we are thinking of your Mom and all your family.
wife: IDC/Lobular Stage2B 2008 lumpectomy/TAC+rads
TNBC Stage 3A/w/metaplastic/squamous Nov2015 Carboplatin-Gemzar chemo/masectomy Taxolchemo+rads 4-16
PET scan stable 9-2016/ 1-2017
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