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To stage 4 in just 55 days

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Soorya View Drop Down
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    Posted: Jul 13 2018 at 12:34pm
Hi Everyone

I cannot believe this is happening.I had third recurrence and they did CT scan on May 11.Everything was clear and my lump on my chest didn't show up in the CT.
Then my doctor ordered PET scan on Jul6
Now PET scan is showing mets to liver, lungs,spine and bones.

Also My oncologist said, chemo will not be better option since i already had 5 powerful chemos.

They want to give me only immunotherapy this time.

I am 36 yrs old and i want to see my daughter growing

Scared so much and not sure what to do


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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Yesterday at 12:55pm
Soorya,

I'm so sorry you received this news.  I don't have any suggestions except could you look at clinical trials?


Edited by 123Donna - Yesterday at 12:56pm
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote rstar Quote  Post ReplyReply Direct Link To This Post Posted: Yesterday at 3:43pm
Hi,

Im sorry for your news. Did u happen to check for the brca gene? U may benefit from a parp inhibitor.

Edited by rstar - Yesterday at 3:44pm
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bfriend Quote  Post ReplyReply Direct Link To This Post Posted: 18 hours 57 minutes ago at 12:04am
Hi, I joined this chat to support a friend and I saw this post. I have survived ovarian Stage 4 cancer for 13 years. I know the twists and turns and BUMPS in this long road. I am also a student at TWU.edu in the Medical Librarian program. Let me look up immunology recent articles and post the link so you can read. Take a deep breath every 15 minutes and close your eyes. That exercise will help alleviate anxiety. Remember you can not do anything about "this" on the weekends and non-business hours mon-fri. I used to pretend that I was fine and that I could not receive any more bad news during my off- times. Tomorrow is Sunday- take the day off from "this" and spend the day with your daughter outside doing anything regular and do not let "this " creep back your head  till Monday at 8 am. Then it's back to work kicking this!!!!!!!!!!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bfriend Quote  Post ReplyReply Direct Link To This Post Posted: 18 hours 8 minutes ago at 12:53am
Found a june 18, 2018 article on the official pubmed.gov website. This is the only official website for every clinical trial done in the US! If there is ever an article you can not open- go to your local college, hospital or local library and ask the Librarian for assistance . Staff at the check-out desk are not usually librarians so ask to speak to the Librarian.
Then take a look at the National Center for Biotechnology Information site www.ncbi.nlm.nih.gov
go to All databases
click Literature
click Pubmed health database
type in your exact questions or diagnosis
The title of the article 29916188 is "New Horizons in breast cancer: the promise of immunotherapy"
WOW! promise is promising and immunotherapy is what the scientific community is praising right now
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bfriend Quote  Post ReplyReply Direct Link To This Post Posted: 12 hours 28 minutes ago at 6:33am
I want to explain that pubmed.gov is the search engine that finds academic and scientific RESULTS of clinical trials and explains the findings of those trials in terms of effectiveness and research and information based on it.
The NLM stands for The United States National Library of Medicine at The NIH- National Institutes of Health.

To find a clinical trial to possibly participate in: https://clinicaltrials.gov ;    is a resource provided by the U.S. National Library of Medicine

Be careful with reading information on the internet!  Always refer to .gov and .org websites. Remember to ask/call or email a librarian for help! Trying to figure out cancer is not the patient's job- we have enough on our plate. We just need to know where to go for help, information and then educate ourselves.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bfriend Quote  Post ReplyReply Direct Link To This Post Posted: 12 hours 26 minutes ago at 6:35am
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