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Tnbc with the BRCA gene

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cherylbrca View Drop Down
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    Posted: May 25 2012 at 12:39pm
Looking for others that are have tnbc and also the brca gene. So that we can see what is  being tried and  working and to support one another. Please come to the fb page that was just started.
 
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henn9438 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote henn9438 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 07 2013 at 1:44am
Thanks for the support.  Will keep in touch.
adem
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eschindler View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote eschindler Quote  Post ReplyReply Direct Link To This Post Posted: Jun 15 2016 at 5:04pm
Hi All,
I notice that this thread is kind of inactive. I did sign up for the FB group, but I was wondering if anyone is actively checking this thread.
If so, I would love the chance to share experiences and challenges with other BRCA+ TNBC survivors.
Thanks,
Emily
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Post Options Post Options   Thanks (0) Thanks(0)   Quote AmyB Quote  Post ReplyReply Direct Link To This Post Posted: Jun 21 2016 at 10:43am
I am BRCA+. Was diagnosed with stage 2a on May 17. Starting dose dense AC-T chemo on Thursday.
Trying to be positive. But afraid of what's to come.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote romnessprite2 Quote  Post ReplyReply Direct Link To This Post Posted: Jun 22 2016 at 2:35am
Hi. Im brca+ also and done with treatment. This thread isnt very active. Try tnbc talk. On this site that one is the most active
Stage 3A. TNBC Diagnosed 9/15/15 2cm grade3. 4AC & 12taxl .double mastectomy3/8/16. 25 rads finished6/2. xeloda started 7/7/16 stopped xeloda because of side effects7/14/16. BRCA+
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newalex View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote newalex Quote  Post ReplyReply Direct Link To This Post Posted: Oct 02 2018 at 4:05am
Hi, I went to the Facebook group and the group is closed.
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Meadow View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Meadow Quote  Post ReplyReply Direct Link To This Post Posted: Oct 02 2018 at 6:51pm
I am BRCA1+. I finished treatment for TNBC in May 2010. Have you looked at FORCE (www.facingourrisk.org)? A lot of folks on that site have not had cancer, but many have. The message boards there have become less active in the past few years, but there's a good search tool for searching past discussions. The site also has lots and lots of vetted medical information. You can also sign up to get one-on-one support from a volunteer (I'm a volunteer). And in some cities there are live FORCE support groups that meet regularly. Take care.
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