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sarah66
Groupie
Joined: Oct 15 2010
Location: MCDONALD, ohio
Status: Offline
Points: 67
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Posted: Jul 08 2012 at 11:35pm |
no cleveland clinic radiation, but waiting on appt. with them for 2nd opinion. my dr. are great, but everything moves so slow. i just want to make sure i recieve the best care. they did not do chemo after radiation. because my .pe.t. scan was cancer free. but i still have problems with my rt, side of my body center more rt in back gives sharp pain alot. and the tip of my liver in front. good to hear someone is a survivor. mcdonald is close to youngstown by ten miles. thanks. the only information i could find about tn brain disease, was life expectency of 18-20 months. my mri is aug 6th. thank-yu take care sarah. are you in remission. if so that great. hows everything going for you. my first sign of brian cancer was a piercing pain thru the rt eye that did not go away. then to headache and just stay, mild but there. until radiation started and steriods.
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123Donna
Senior Member
Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 13509
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Posted: Jul 08 2012 at 11:49pm |
Sarah,
Denise could be more exact with the history, but there was a lady on this forum who had wbr and she's 3 years Ned.
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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sarah66
Groupie
Joined: Oct 15 2010
Location: MCDONALD, ohio
Status: Offline
Points: 67
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Posted: Jul 09 2012 at 4:43am |
thanks, would like to think i have longer. right ,3 years sounds good.. take care sarah.
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sarah66
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Joined: Oct 15 2010
Location: MCDONALD, ohio
Status: Offline
Points: 67
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Posted: Aug 13 2012 at 4:05am |
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SagePatientAdvocates
Senior Advisor
Joined: Apr 15 2009
Status: Offline
Points: 4748
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Posted: Aug 13 2012 at 6:42am |
MARVELOUS!!!!!!!
thanks for sharing, Sarah...
warmly,
Steve
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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