For those new to the TNBC forums, Welcome.
You may still be exploring all the information on the webstie.
There is a lot of information to explore by checking out all the topics on the horizontal bar on
the home page
http://www.tnbcfoundation.org/ ("about TNBC" "about us" and so forth)
as well as in the various forums
http://forum.tnbcfoundation.org/TNBC (General Information)
For example, on the horizontal bar, under " about TNBC", you will find: "understanding TNBC" and then
one may download, a copy of :
*****Guide to Understanding TNBC
http://www.tnbcfoundation.org/tnbcguide.htm also at:
http://www.lbbc.org/Understanding-Breast-Cancer/Guides-to-Understanding-Breast-Cancer/Guide-to-Understanding-Triple-Negative-Breast-Cancer*****State-of-the-Art Treatment for Triple Negative Breast Cancer: Talking With the Experts
http://www.tnbcfoundation.org/State-of-the-Art%20Treatment%20for%20TNBC.pdfThe brochures are a good place to start. Just remember by the time a brochure or article is
published, there's always the possibility that there may be some new information.
QUESTIONS
You will have many questions on your list to ask your physician.
Be sure to consider including the following with your questions:
- What are the pros and cons of chemo first?
- What are the pros and cons of surgery first?
- What are the pros and cons of each chemo option?
- What are the pros and cons of each surgery option?
- Request a referral to a Certified Genetics Counselor for a BRCA* test consult.
- Confirm that a Vit D ** test has been done.
- How do I contact you for any questions after my appointments?
- How much time do I have to make my decision?
- Confirm that your oncologist is knowledgeable on TNBC and treats about how many cases
per year.
- Seek a 2nd TNBC Expert Opinion if there are any questions on TNBC provider expertise
/TNBC treament plan.
- Am I eligible for any clinical trials? Pros and cons.
http://forum.tnbcfoundation.org/choosing-your-treatment-team-questions-to-ask_topic8937.html*BRCA TESTING:
http://forum.tnbcfoundation.org/very-important-news-re-tnbc-brca-testing_topic8458_page1.html?KW=BRCA**VITAMIN D3: See especially page 26
http://forum.tnbcfoundation.org/vitamin-d3_topic5338_page26.htmlTNBC NEWS/RESOURCES/TIPS
Another resource is the Forum: TNBC News, Resources and Tips:
http://forum.tnbcfoundation.org/tnbc-news-resources-tips_forum6.htmlTNBC/BREAST CANCER ARTICLES
There is a forum topic with lots of TNBC/breast cancer related articles:
http://forum.tnbcfoundation.org/open-access-links-articles-tnbc_topic9440.htmlABBREVIATIONS
There is a thread with some of the abbreviations used on the forums.
http://forum.tnbcfoundation.org/abbreviations-on-forums_topic9524.html10/16/12: Meet TNBC Foundation's first (Un)Common Knowledge Webinar Presenter - Patricia Prijatal
Author of " Surviving Triple Negative Breast Cancer"
http://www.tnbcfoundation.org/uncommonknowledge_prijatel.htm( Click on [ Link to webinar ] on the above link )
To view this Webcast Adobe Flash Player 10.1 or higher is required.
SURVIVORS
It is very important to know that there are many survivors of triple negative breast cancer.
It is important to know that many newly diagnosed and those with recurrences
post on this site. But there are many survivors who do not post.....they are so
busy living their lives.
In fact, there are a few forum topics about survivors. One is:
http://forum.tnbcfoundation.org/survivors-needed_topic8221.html FORUMS: FAQs on POSTING etc on the FORUMS.
http://forum.tnbcfoundation.org/faq-on-posting-etc-on-the-forums_topic11222.htmlMEDICAL BINDER- THE ORGANIZED PATIENT
http://forum.tnbcfoundation.org/medical-binder-the-organized-patient_topic10842.htmlSCARFS, HATS
http://forum.tnbcfoundation.org/scarfs-hats-with-hair-attached_topic9503.htmlSUPPORT FOR THE NEWLY DIAGNOSED. Sloan Kettering Cancer Center psychiatrist's 4 videos on support.
http://forum.tnbcfoundation.org/support-for-newly-diagnosedvideos_topic9641.htmlSURFING THE WEB FOR CANCER INFORMATION
http://forum.tnbcfoundation.org/surfing-the-web-for-cancer-info_topic9895.htmlTHE 10 COMMANDMENTS OF BREAST CANCER
http://secondbasedispatch.com/2011/09/21/the-10-commandments-of-breast-cancer/The following video is on the "about us" section of the forum under tnbc video clips.
It is from the Discovery Channel Patient education: TNBC: Get the Facts.
The Discovery Channel presents an all new patient education program that addresses triple-negative breast cancer, including risk factors, treatment, and promising research being done on targeted therapy for the disease.
http://discoveryhealthcme.discovery.com/tnbc/media/program.html or directly at
http://discoveryhealthcme.discovery.com/tnbc/tnbc.html and click
on "Watch the program."
There are many, many other forum topics/threads that are important and informative.
The above are some of the ones when first coming to the forum to consider reading or at least
be aware of them.
With caring and positive thoughts,
Grateful for today..............Judy
Edited by Grateful for today - Jun 22 2013 at 12:57am