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TNBC IBC Recourance

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Bgbowls View Drop Down
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    Posted: Nov 05 2015 at 9:43pm
Was diagnosed with TNBC Feb. 2015 Lumpectomy and 1 lymph node was positive, during 14th Chemo treatment woke up with IBC tried Cisplatin to shrink the Tumor no luck so Mascectomy then 16 of 21 Lymph nodes tested positive and none of the margins were clean then two weeks later IBC started growing again at same location had 20 Radiation Treatments along with 3000 mg of Xelada a day and the Tumors are popping out as fast as the others are getting burnt
Just found out there are 6 mutations and only two responded to a drug that is called Everolimus that is not approved with insurance Dr is looking for a Trial
Is anyone out there familiar with this aggressive type and if so, what have you learned?
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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Nov 06 2015 at 11:58am
I'm so sorry you are dealing with all of this.  Have you looked at the IBC website?  Terry Lynn Arnold, who is the founder and works tirelessly to help others.


DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bgbowls Quote  Post ReplyReply Direct Link To This Post Posted: Nov 06 2015 at 2:07pm
Thank you
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