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TinaM View Drop Down
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Joined: Jan 27 2018
Location: NY
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    Posted: Apr 11 2018 at 7:47pm
Looking for doctor to prescribe TM (tetrathiomolybdate) copper depletion drug
Dx 80% TN 20% POS, 2B-3,BRCA neg, sentinel node neg., three LX w/no clear margins lymphovascular invasion, chemo 4 AC 4 TC, single Mx, RT not rec., reconstruction
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123Donna View Drop Down
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Joined: Aug 24 2009
Location: St. Louis, MO
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Apr 11 2018 at 10:56pm
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Jojocat View Drop Down
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Joined: Jan 11 2014
Location: New York
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jojocat Quote  Post ReplyReply Direct Link To This Post Posted: May 05 2018 at 1:29pm
Hi everyone, I am taking TM for 4 years already. I have been 4.5 years out of cancer. I have ignored this forum for a long time since life is quite normal now. My oncology who prescribes me TM told me many successful cases including using TM to control a stage 4 patient’s disease progression. I am so glad that I am back to this forum that I can share my journey to many of you. I just want to say to newbies, hey don’t get scared and don’t quit. We will be fine.
        My friend’s mom had non-small cell lung cancer. She got the recurrence on the surgery spot a year after the original diagnosis. She started to take TM 2 years ago. She just had scan and everything is clear recently.
Joanie.
DX 10/24/2013 Between stage 2b and 3a. 2 big nods 1.8cm a d 1.4 cm. tumor 4.5 cm.   35 years old. 11/15/2013. AC/T
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Jojocat View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Jojocat Quote  Post ReplyReply Direct Link To This Post Posted: May 05 2018 at 1:31pm
I am seeing Dr mark Rosenberg. He is great, you can contact him if you want.
DX 10/24/2013 Between stage 2b and 3a. 2 big nods 1.8cm a d 1.4 cm. tumor 4.5 cm.   35 years old. 11/15/2013. AC/T
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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: May 06 2018 at 10:17pm
Jojocat,

Do you have a contact number for your doctor or a website?  Is he in New York?


DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Chris RN View Drop Down
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Joined: Jun 25 2018
Location: Tucson Arizona
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Chris RN Quote  Post ReplyReply Direct Link To This Post Posted: Oct 05 2018 at 6:53pm
Hi
I am new to the TNBC forum. I was diagnosed with Stage 3a NED, in February 2017. After a bilateral mastectomy and lymph node dissection, ACT chemo and 44 radiation treatments ( the scorched earth approach) I asked .my oncologist to review the original research for TM at University of Michigan George Brewer MD. And to also review the clinical trial outcomes at Wei l Cornell Medical in New York City. I am so fortunate that she felt that it was an excellent choice and gave full support. Thank you for your message and I am so happy that you are doing so well! Yay! I have been on TM since November 2017. I am grateful to have no metastasis at this time and below normal cancer markers. Zero side effects. Christine Simon RN Tucson Arizona
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