Go To Main TNBC Website


  New Posts New Posts RSS Feed - TM users
  FAQ FAQ  Forum Search   Events   Register Register  Login Login

TM users

 Post Reply Post Reply
Author
TinaM View Drop Down
Newbie
Newbie
Avatar

Joined: Jan 27 2018
Location: NY
Status: Offline
Points: 10
Post Options Post Options   Thanks (0) Thanks(0)   Quote TinaM Quote  Post ReplyReply Direct Link To This Post Topic: TM users
    Posted: Apr 11 2018 at 7:47pm
Looking for doctor to prescribe TM (tetrathiomolybdate) copper depletion drug
Dx 80% TN 20% POS, 2B-3,BRCA neg, sentinel node neg., three LX w/no clear margins lymphovascular invasion, chemo 4 AC 4 TC, single Mx, RT not rec., reconstruction
Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 12845
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Apr 11 2018 at 10:56pm
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
Jojocat View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jan 11 2014
Location: New York
Status: Offline
Points: 106
Post Options Post Options   Thanks (0) Thanks(0)   Quote Jojocat Quote  Post ReplyReply Direct Link To This Post Posted: May 05 2018 at 1:29pm
Hi everyone, I am taking TM for 4 years already. I have been 4.5 years out of cancer. I have ignored this forum for a long time since life is quite normal now. My oncology who prescribes me TM told me many successful cases including using TM to control a stage 4 patient’s disease progression. I am so glad that I am back to this forum that I can share my journey to many of you. I just want to say to newbies, hey don’t get scared and don’t quit. We will be fine.
        My friend’s mom had non-small cell lung cancer. She got the recurrence on the surgery spot a year after the original diagnosis. She started to take TM 2 years ago. She just had scan and everything is clear recently.
Joanie.
DX 10/24/2013 Between stage 2b and 3a. 2 big nods 1.8cm a d 1.4 cm. tumor 4.5 cm.   35 years old. 11/15/2013. AC/T
Back to Top
Jojocat View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jan 11 2014
Location: New York
Status: Offline
Points: 106
Post Options Post Options   Thanks (0) Thanks(0)   Quote Jojocat Quote  Post ReplyReply Direct Link To This Post Posted: May 05 2018 at 1:31pm
I am seeing Dr mark Rosenberg. He is great, you can contact him if you want.
DX 10/24/2013 Between stage 2b and 3a. 2 big nods 1.8cm a d 1.4 cm. tumor 4.5 cm.   35 years old. 11/15/2013. AC/T
Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 12845
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: May 06 2018 at 10:17pm
Jojocat,

Do you have a contact number for your doctor or a website?  Is he in New York?


DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
 Post Reply Post Reply
  Share Topic   

Forum Jump Forum Permissions View Drop Down

Forum Software by Web Wiz Forums® version 11.05
Copyright ©2001-2016 Web Wiz Ltd.