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Team Donna

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LRM216 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LRM216 Quote  Post ReplyReply Direct Link To This Post Posted: Oct 28 2011 at 7:06pm
Donna:
 
Such wonderful news, I am sooooooo happy for you and for all of us, that you are NED.  Three little letters, but what wondrous ones they are.
 
Linda
Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Allison Quote  Post ReplyReply Direct Link To This Post Posted: Oct 28 2011 at 8:44pm
Donna -- 

Even better than a Cardinal's win!!!  GO DONNA!!!  I am so glad that your treatment was successful. Keep up the fight. 

Allison
9/07 IDC, trip neg, BRAC-, Lumpectomy with SNB (all clear) 10/07, FEC & Taxatere 11/07 - 2/08, 32 rads, 3/08 - 5/08.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Suze35 Quote  Post ReplyReply Direct Link To This Post Posted: Oct 28 2011 at 9:03pm
NED - how wonderful!!  Yay!!
9/2010 Stg IIIa, AC+T and Carbo
July 2011-Xeloda+Avastin
9/2011 Stg IV-nodes, bones, liver
10/2011-Abraxane/Tig trial - Abx arm
11/2011-progression, Tig/Abraxane
12/2011-Off trial - Eribulin
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Oct 28 2011 at 10:36pm
Hi Donna,

Wonderful, wonderful news. Soooo glad and happy for you on your results.

Thoughts on selecting your new oncologist:
    (You have probably already done the following but will post anyways.)
    Is there a nurse or social worker in your current oncologist's office that you might speak with
       about selecting a new oncologist?   They might also know of other oncologists in another
       office.
    Suggestion: I have sometimes asked....... If you could give me the names of a few doctors you
        would highly recommend with qualities of __________ ( and give what's most important for you.)
        I ask the list not be alphabetical. I somehow state if you can not state who is best or better .....
        be aware that I would be paying special attention to who you list first and second. Sometimes,
        have found providers are hesitant to state a number one or number two choice. So, I try to
        word the question in such a way that I will know who is #1 or #2 without them saying MD so and
        so is #1, (Hope you understand what I am trying to say).   Sometimes, I have been given the
        answer that ALL MD's at that facility/practice are excellent.
       
With tons of hope for your continued good health,

Grateful for today.....................Judy
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Wade Quote  Post ReplyReply Direct Link To This Post Posted: Oct 28 2011 at 11:13pm
How fantastic for you, Donna! 

It is indeed exciting to hear that you're doing so well. May you continue to do so. We will be keeping you in our thoughts.

Wade
Wife DX 5/2011@52 2.5x3.1cm;6/2011 DD A/C 4x,Abraxane 4x; Lumpectomy, SN biopsy 10/2011; 10/27/2011 NED; Rads start 11-22-2011, Rads fin 1-11-2012; 10-2013 NED; 07-18-2014 NED; 08/07/2015 NED!

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Post Options Post Options   Thanks (0) Thanks(0)   Quote suec Quote  Post ReplyReply Direct Link To This Post Posted: Oct 30 2011 at 5:44am
Donna, so glad to hear ned came your way.   tell that elusive fellow to stay a long time cause you have lots of dancing to do.   suec
tnbc 3b: partial mas 5/06; 6 rounds FEC; 36 rad; 05/09-mets to bone; xeloda, avastin, zometa; gemzar & avastin; rads to hips; 8 mo on methotrexate+5fu; 5/11 mets to liver/lung; halevan fails;carb&Abrx
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Post Options Post Options   Thanks (0) Thanks(0)   Quote nmunoz Quote  Post ReplyReply Direct Link To This Post Posted: Oct 31 2011 at 1:35pm
I just saw your post Donna and I am really happy for you! Enjoy your test results and I will be praying for many more like this to come.

Best,

Natalia
Natalia, 38 years

Dx TNBC 10/22/08, BRCA1+

Double Mx 11/20/08 with Recon.

3/37 nodes

Rads 7 weeks done 8/09

ACx4 every 2 weeks and Tx12 weeks. Avastin e/3 weeksx10 (Clinical Trial) Done Dec/09
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Post Options Post Options   Thanks (0) Thanks(0)   Quote MrsLyons Quote  Post ReplyReply Direct Link To This Post Posted: Oct 31 2011 at 2:27pm
Yay, Donna! I'm so thrilled for you!!
DX IDC TNBC 11/10 age 32, Stage 3a, Grade 3, 3.5 cm, 1/9 nodes, Right, KI-67 91%, BRCA-1, ACx4 (12/13/10) followed by TXx12, BMX w/expanders (6/1/2011), Rads begin 7/11/11
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Georgia Quote  Post ReplyReply Direct Link To This Post Posted: Oct 31 2011 at 6:01pm
Donna, I too follow you and have also gained useful information from the articles you post! In addition, I agree that you are a strong and loving person! God bless!
DX 02/2010,IDC-TNBC,Grade3, Stage 2A,1 positive node.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Pink Warrior Quote  Post ReplyReply Direct Link To This Post Posted: Oct 31 2011 at 6:21pm
I love you, my sister.  

xo

Smiling all around you!

Kim
Dx:10/09,IDC Stg 2,Gr 3,TN
BRCA 1&2 -
Partial DD EC/AC
Local recur 11/10
BMX 12/10 Right proph
TC x 4 Rads x 33
9/11 Skin mets, mediastinal & hilar nodes
Abraxane/Avastin
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: Oct 31 2011 at 6:26pm
So happy for you, Donna!  (but you knew that)
:)
:)

love,
d
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Oct 31 2011 at 6:51pm
Dear Donna,

NED!!!! The sweetest acronym in the English language.

CONGRATULATIONS!!!!!!!

hugs,

Steve
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Post Options Post Options   Thanks (0) Thanks(0)   Quote bashamk Quote  Post ReplyReply Direct Link To This Post Posted: Oct 31 2011 at 7:31pm
Best news ever! Fantastic!
Kay
dx 6/25/09 age 45, IDC TNBC,
stage 1, grade 3, 1.5 cm
Lumpectomy, T/C x 4, 33 rads
Dx Dec 2015 Stage 4 metaplastic
Cell growth on nerves in shoulder to rt arm; mediastinal nodes; Bone; skin mets
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Post Options Post Options   Thanks (0) Thanks(0)   Quote kirby Quote  Post ReplyReply Direct Link To This Post Posted: Nov 02 2011 at 12:41am
fabulous news
kirby

dx Feb. 2001. Age 44
Lumpectomy

2cm. no nodes stage 1 grade 3

4 rnds AC, 35 rads
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Post Options Post Options   Thanks (0) Thanks(0)   Quote conniec Quote  Post ReplyReply Direct Link To This Post Posted: Nov 02 2011 at 6:19am
Donna is NED! Just the news we all need to hear.
So happy for you and for us!!!
Connie

Age 40,
Felt lump 8/20/10
Lumpectomy 9/7
DX 1.5 tumor stg I 9/13 margin not clear
Double MX w/ expanders 10/8
Final tumor size 1.7, 0/3 + nodes
AC-T chemo 11/8 - 2/21
TE/implant exchange 3/29

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Post Options Post Options   Thanks (0) Thanks(0)   Quote outnumbered Quote  Post ReplyReply Direct Link To This Post Posted: Nov 02 2011 at 12:32pm
Havent been here for a while, but glad to see such happy news!  Congrats Donna!
~Sara

DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG

BMX (nipple-areola-sparing) 8/5/08

Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09

BSO 9/3/09

NED since 08/05/2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote btstark2003 Quote  Post ReplyReply Direct Link To This Post Posted: Nov 02 2011 at 1:29pm
Donna,
Hooray!!!!! Let's get together to celebrate!

Much love,
Beth
2008 Stg1 TNBC, LX, FEC+T, rads
2010 2.5cm tumor BRCA-, BMX,CMF
2011 LN mets, Gem/Carbo, surgery, rads
2012 lung mets, PI3Ki/taxo
2013 anti-PD-1
2014/15 Xeloda, IMMU-132, eribulin
Aug 2015 Keytruda
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Nov 02 2011 at 3:19pm
Beth, Kim, Allison and anyone else in the St. Louis area.  PM me or let me know if you'd like to get together and what day/time would work best for you.   I've been saying for sometime that I'd organize this and I'm finally going to do it!

Donna


DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote sue Quote  Post ReplyReply Direct Link To This Post Posted: Nov 02 2011 at 3:44pm
Donna, 
YEA!!! NED!!! I am sooo happy for this news.  Thanks for the mantra also. Big smile I just know you will find the best new onc.  

Love and Peace, 
Sue
Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11.          
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Post Options Post Options   Thanks (0) Thanks(0)   Quote overwhelmed Quote  Post ReplyReply Direct Link To This Post Posted: Nov 02 2011 at 4:43pm
Donna,
I just got to thinking it's been about a year since you started fighting the IM battle. It's so  hard to believe it's been that long. I've not always posted, but I was always checking Team Donna. It's suchgreat news. 
DX ILC TNBC 3/10 at 50, Stage IIb; Grade 3; 5.1 to 7 cm,SNB neg;TC-6 rnds, 30 rads, Avastin-18 rnds, BRAC 1&2-
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