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123Donna View Drop Down
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    Posted: Nov 03 2010 at 7:55pm
I just talked to my oncologist.  It appears that the spot that lit up in the PET scan and showed on the MRI was an internal mammary lymph node.  One node is enlarged, about 1".  The problem is it's in a tricky area behind the rib cage and hard to get at.  She's going to be talking to some surgeons/thoracic surgeons on how best to biopsy the node.  I know that it may be something other than a recurrence until we have the biopsy and know for sure.  However, my onc's going at this as if it's a recurrence, which would mean radiation and possibly chemo againCry.

Have any of you had a recurrence in this area?  What kind of treatment did you have?  Did it clear it (NED)?

What do I need to know or ask my medical team?  Any help would be appreciated.

Donna


Edited by 123Donna - Dec 01 2010 at 7:18am
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote livelife Quote  Post ReplyReply Direct Link To This Post Posted: Nov 03 2010 at 7:59pm
I am sorry.  I did have a recurrance there and did chemo and radiation.  It did clear up though. 
Christine
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Post Options Post Options   Thanks (0) Thanks(0)   Quote harbin Quote  Post ReplyReply Direct Link To This Post Posted: Nov 03 2010 at 10:38pm
Hi Donna, I did have recurrence in mammory node. It was grown to about 4-5 cm before it was removed surgically. I had toracic surgeon to remove it. The tumor was between 2nd and 3rd ribs and also next to sternal bone. The operation was not small, but my surgeon did excellent job. He had to cut off parts of the two ribs and sternal bone. After the operation, I had radiation and chemo. The tumor area is cleared after those treatment. However, the recent PET/CT discovered that 2 nodules in my lungs. I am current under chemo and was just selected in PARP trial last week.  I hope and pray for you that your biopsy will find the enlarged node is not cancerous.
4/08 dx IDC,stg2,neg. nodes,4xAC,8xTexol& Avastin,BRCA-
3/10 Recurr Chestwall,surgery
6/10 Lung mets
10/10 Parp
05/11 Surgery on 2 lung nodules
08/11 Parp failed
10/11 Cyberknife 1 lung nodule
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Post Options Post Options   Thanks (0) Thanks(0)   Quote bjoangtx Quote  Post ReplyReply Direct Link To This Post Posted: Nov 03 2010 at 11:54pm
Donna,
 
I hope everythingh is benign but my mind immediately goes to the worst case scenario whenever they do/find anything. I had radiation after chemo and I asked if they had radiated he internal mammary nodes because in the studies I had found high grade tumors with lymph node involvement (my Ki67 was 80%) needed to be careful about those nodes. He seemed surprised when I asked and like so many of my docs didn't give me a straight answer. I can't have radiation again,too close to my heart and I've already  done it on the left side. I'd ask cam on edges about chemo therapy types. I have found him to be direct and explicit with his recommendations and explanations. Something I appreciate.
I don't post much but I follow yours. We were dx at the same time(I was 8/09) but you've become such a force here on the forum. You've helped me several times with the studies you post and you're always so gently positive with anyone who posts.
However it goes I know you have a strong cheering section here. My thoughts ad prayers as well.
Joan
St 2 Gr 3 2/5 nodes dx 8/9 age 56 Neoadj ACT @ x 6 @3wks bi mst. 12/09 Infect expander 12/31 remvd, replcd 1/27. 28 rads 4/10 Brkn rib 5/10 PET   6/10 NED Recon 9/17 & 12/10 Ki67 85% basal
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Nov 04 2010 at 6:46am
Christine,

How long ago did you have chemo and radiation on those nodes?  What type of chemo did you receive?  What type of follow up care are your receiving?  Was it difficult to biopsy the node?

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Nov 04 2010 at 6:52am
Harbin,

Do you think the recent lung nodules are the result of the mammory node?  How long ago did you have the surgery for the mammory node?  Do they monitor that area closely?  What type of chemo did you get after your surgery?

Thanks,

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote TNBC_in_NS Quote  Post ReplyReply Direct Link To This Post Posted: Nov 04 2010 at 8:39am
Glad you posted here Donna! You are getting some positive answers! Yeahhh!
Keep the faith my dear, you will soon be CLEAR!
xoxo h
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Deann Quote  Post ReplyReply Direct Link To This Post Posted: Nov 04 2010 at 9:50am
Hi Donna - I am so sorry the PET/CT scan came back with the mammory node lit.  We spoke last week and as  I said then my prayers are with you that once biopsied it will come back okay.  Please try to keep positive, easier said than done I know, but I am sending prayers and positive thoughts your way.  When you went for the initial MRI before the PET/CT was that a routine MRI done annually or was it because of the pain you had been feeling on the one side you were experiencing?   Please keep us posted as you find out more about when they will biopsy it, etc.  Please know that we are all here for you, as you have been for everyone on this site. 
Dee
DX IDC TNBC July 09 at age 42, SNB Clear, Bilateral Mast. w/tissue expanders 9/25/09, Stage 1 Grade III, BRCA1+, TCx4 completed 12/31/09    
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Debris Quote  Post ReplyReply Direct Link To This Post Posted: Nov 04 2010 at 12:56pm
Donna, sending positive thoughts and prayers to you for quick resolution of this.
 
Heart
 
Deborah.
4/12 Xeloda/Tykerb
2 Carboplatin
12/11 Dx IA
9 Gemzar/Taxotere Dx IBC:FEC
5 Ixempra/Sprycel
2 25 Rad
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9 NED
6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin
06/08 Dx DCIS 0/SN Rads/AIs
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Nov 04 2010 at 1:25pm
Thanks all for the well wishes and prayers.  I'm having the biopsy on the 15th and should know the results by the 17th or 18th.  I guess I won't know for sure what it is until it's biopsied.  This latest Pet scan was a routine scan, nothing symptomatic.  The MRI was because the area on the PET that lit up needed to be looked at closer so I had a contrast MRI.  Prior to my bi-mx surgery initially, I had an MRI and  CT scan of the chest.   Both of those tests were clear for anything else besides the original tumor.  I feel better that my onc told me she has a plan either way.  I feel we're on top of things for now and just waiting for the biopsy and to find out the results.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote thenewme Quote  Post ReplyReply Direct Link To This Post Posted: Nov 04 2010 at 2:28pm
Oh Donna,
Oh ugh.  Ugh, ugh, ugh.  I'm so sorry about this, but HOPEFULLY it will be benign!!!  I originally had an IM node light up on my initial PET scan, but it was thought (hoped!) to be just inflammation from surgery, a recent sinus infection, or an anomaly.  They thought mine was in an area that was inaccessible so it was never biopsied, tested, or removed.  I didn't have another PET scan until after chemo/rads, and it had disappeared, so that's what I'm wishing for you too - that it just disappears!  Any chance you've had any kind of recent infection or anything?  Please do keep us updated and know we're thinking about you!

That's it - I'm giving you back the crown!  You be False Alarm Queen - it sure beats the alternative! Wear it well!



Edited by thenewme - Nov 04 2010 at 2:30pm
DX: IDC/TNBC 11/08 5-cm Stage IIb Grade 3. Age 39. Double Mast 12/08 (prophy right) with tissue expanders . ACx4-Tx3. Suspicious IM node. 25 Rads. BRCA NEG.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Nov 04 2010 at 3:09pm
Thenewme,

Thanks, I'll take the crown anytime!  I did have a bad sinus infection/bronchitis in September that took a long time to get over.  I was on the Zpack, bronchial inhaler and mucinex.  I've been much better for about 3 weeks and no longer having symptoms.  It's comforting to know you has suspicious nodes and now they're clear.  Great news!
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote NinaE Quote  Post ReplyReply Direct Link To This Post Posted: Nov 04 2010 at 3:52pm
Donna, I've got my fingers crossed for you. The waiting is very hard, I know. I hope you're able to find some comfort and distraction these next few weeks.

(I do have mets to my internal mammary nodes but only the lung met was biopsied, so I don't have any concrete info for you about how that works.)


Edited by NinaE - Nov 04 2010 at 3:53pm
Stage IV at dx in Dec 09, at age 38. Mets to lung, axillary, IM and mediastinal nodes.

4xAC-->dd Taxol. Dbl mast, 6/10. Radiation, 8/10. NED since June 2010.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote thenewme Quote  Post ReplyReply Direct Link To This Post Posted: Nov 04 2010 at 6:52pm
Ohmigosh, Donna - I'm SOOO glad you had a recent severe sinus infection, LOL!!  I'm sure you know what I mean - just that I want THAT to be the reason for your IM node to be suspicious, like mine was!  I don't remember - did you have rads before?  They included my IM node in my rads since they weren't able to biopsy it.  With the IM node plus my left-upper-inner tumor, I was concerned about heart/lung damage from the rads - but as far as I know there are no significant effects so far.  My MUGA scan to check my heart after treatment was very good, and I think I have some very minimal lung damage, but in the scheme of things I don't mind.

In any case, I'm sending good vibes your way!  Hang in there and try to distract yourself as much as possible while you wait!   Got some good chick flicks to watch for distraction?

ETA-My double MX was delayed for several weeks because of....guess what.... a severe sinus infection, so I don't mean to downplay the misery of that!


Edited by thenewme - Nov 04 2010 at 6:55pm
DX: IDC/TNBC 11/08 5-cm Stage IIb Grade 3. Age 39. Double Mast 12/08 (prophy right) with tissue expanders . ACx4-Tx3. Suspicious IM node. 25 Rads. BRCA NEG.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote harbin Quote  Post ReplyReply Direct Link To This Post Posted: Nov 04 2010 at 6:57pm
 
Hi Donna, I think the mammory node and lung nodules are bot the met from TNBC. Although no one knows for sure how they happened. The mets could pop up anytime and anyplace when they want.
The tumor in the node was shown in January and I had the operation in April. (It was mis-diagnosed initially, it's a long story). My doc. has been monitoring me incl. the surgical area closely. I get PET/CT scan every 3 weeks. I had cisplatin for chemo after the surgery. Now I am on PARP. Please let me know if you have more questions. It looks like you have a great doc. but I really hope your finding is nothing serious. ALl the best.


Edited by harbin - Nov 04 2010 at 8:48pm
4/08 dx IDC,stg2,neg. nodes,4xAC,8xTexol& Avastin,BRCA-
3/10 Recurr Chestwall,surgery
6/10 Lung mets
10/10 Parp
05/11 Surgery on 2 lung nodules
08/11 Parp failed
10/11 Cyberknife 1 lung nodule
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Allison Quote  Post ReplyReply Direct Link To This Post Posted: Nov 04 2010 at 8:29pm
Donna,

I am hoping for the best for you - I had hot nodes on the right side (cancer was on the left). These were discovered when I had a PET just prior to chemo. It was decided that they were reactive due to the flu shot that I had received just a few weeks before. Now, however, I'm extremely nervous. My Ki67 was 97%. Although I have had a few MRI's here and there I have not had a pet scan in quite a long time. I'm not due back to Borson's office until Feb. It's the quiet, lurking stuff that scares the begeebees out of me. I'm definitely going to talk to her about the possibility of a PET scan.

Truly hoping that your situation is b9. My thoughts and prayers will be with you. Hang in there!!

Allison
9/07 IDC, trip neg, BRAC-, Lumpectomy with SNB (all clear) 10/07, FEC & Taxatere 11/07 - 2/08, 32 rads, 3/08 - 5/08.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Nov 04 2010 at 9:42pm
Allison,

I know how you feel.  I'd definitely talk to Dr. Borson about your concerns and maybe getting a PET scan if it will help relieve some fears.  You're three years out!  Congratulations.

You made me think of something else, I had a flu shot last month.  I know I'm grasping at straws, but trying to think of everything that may be the cause except the worst one.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Bonnie Quote  Post ReplyReply Direct Link To This Post Posted: Nov 05 2010 at 4:19pm
Donna:  Sorry to hear that you are dealing with this.  Ashley did have internal mammary lymph nodes light up at initial diagnosis.  AC and Ixempra didn't seem to help, but the Carpoplatin and Gemzar seemed to for about 3 months, but at 6 months they were glowing brighter than before.  We have more scans scheduled for November 22.  Our onc and surgeon really never gave us surgery as an option because they said it would be thoracic surgery and would delay Ashley getting started on chemo.  Better to let the chemo and radiation take care of those nodes.  Well, that was back in September 09, and the chemo did not take care of it, and she has never made it to radiation.  I think I'll ask about surgery again at our next appointment.  I'm praying for your biopsy results to be benign! 
Bonnie
Bonnie - Daughter Ashley dx TN 8/09 @ 22; St3, BRCA1/2-; AC&Ixempra done 2/10; mets to lung 3/10; G/C 3/10; PARP 6/10; sternum mets 9/10; NK012 failed; mets to liver, spine, kidney; Avastin/Xeloda
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Nov 05 2010 at 4:26pm
Bonnie,

Were the mammary nodes close to her original tumor?  I'm wishing her the best and hope that something works for her. 

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote TNBC_in_NS Quote  Post ReplyReply Direct Link To This Post Posted: Nov 05 2010 at 4:59pm
Donna, I remember when you said you had the flu shot!!!!! I forgot about the sinus infection????
Maybe these are residuals from the infections in your body during this time.?????
 
I ask our God to keep His hand upon you and your dear family with all this waiting, worrying and more needles....
 
Bless you my dear friend,
Helen in NS
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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