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Survivors Needed

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lynda65 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lynda65 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 03 2017 at 2:41pm
I am a five year breast cancer survivor. First diagnosed 4/2012, second time 10/14. I am 70 years old and here to stay. I figure I will see "90." You have to keep the faith. Be happy and enjoy each day.EmbarrassedSmileWink
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kirby View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote kirby Quote  Post ReplyReply Direct Link To This Post Posted: Jul 06 2017 at 8:15pm
I wish the best for all of you. I rarely come on site anymore and generally use my iPad, which doesn't let me post. 

I was dx 17 1/2 years ago at the age of 44. Then, TN wasn't named, they only knew what I didn't have. I read about this site in Oprah magazine and joined shortly afterwards. 

I know what you read sounds scary. Sometimes I think I was lucky because it was all unknown then. I was given standard protocol tx, listed at my signature, which is half of what is generally given now. I only tell you this to give you hope and encouragement. 

Kirby
kirby

dx Feb. 2001. Age 44
Lumpectomy

2cm. no nodes stage 1 grade 3

4 rnds AC, 35 rads
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Post Options Post Options   Thanks (0) Thanks(0)   Quote denise07 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 08 2017 at 1:07am
kirby, so nice to hear from you with your kind and wonderful advice! 17 1/2 years amazing! lynda 65 another amazing person two time survivor incredible! Positive people positive thoughts is what we need to hear from kind courageous people like you too!
thank you...
Denise
DX Idc 10/07,st2,gr3,2/6 lymphnodes
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bgbanks View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote bgbanks Quote  Post ReplyReply Direct Link To This Post Posted: Jul 17 2017 at 1:59pm
I am a year cancer free. I live and appreciate every day and try not to dwell on the pain and confusion of 2016. My motto is that I may have had cancer but cancer didn't have me!! My mastectomy scars mean I'm alive!! Looking ahead to health and prosperity.
56 year old; Dx: 3/4/2016 w/TNBC in right breast 5.3cm tumor; Stage 11B; Grade 3; 4AC treatments complete/ 4 Taxol complete; Bi-lateral mastectomy 8/31/16.
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gordon15 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote gordon15 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 18 2017 at 5:38pm
Thanks for your post, my wife is about a year also...


Edited by gordon15 - Jul 18 2017 at 5:39pm
wife: IDC/Lobular Stage2B 2008 lumpectomy/TAC+rads
TNBC Stage 3A/w/metaplastic/squamous Nov2015 Carboplatin-Gemzar chemo/masectomy Taxolchemo+rads 4-16
PET scan stable 9-2016/ 1-2017
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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jul 18 2017 at 6:40pm
Hope this post will give others hope.  I'm 8 years from my first diagnosis - stage 1.  And 6 years from completing treatment for a recurrence - stage 3.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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gordon15 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote gordon15 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 18 2017 at 7:46pm
My wife and I are also trying to forget the pain and confusion of chemo, then mast, then more chemo, we don't think about scars, but we are older, we try and move on from emotional issues...and rely on PET scans
wife: IDC/Lobular Stage2B 2008 lumpectomy/TAC+rads
TNBC Stage 3A/w/metaplastic/squamous Nov2015 Carboplatin-Gemzar chemo/masectomy Taxolchemo+rads 4-16
PET scan stable 9-2016/ 1-2017
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English Jan View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote English Jan Quote  Post ReplyReply Direct Link To This Post Posted: Jul 20 2017 at 6:14pm
Hi Everyone,
Here I am ..  a Florida survivor from 2007 ..10 years and healthy.
I apologize for not writing ... for not giving hope that we  can and do survive/thrive.

No recurrences ... healthy and happy.
I was terribly afraid in the beginning and every twinge I thought it was back.
Even though I had no pain ..go figure!

The chemo whacked me and wiped me out for what seemed like years.
The radiation gave me burns and years later periodic rib tenderness.

My Oncologist told me to stop scaring myself to death reading myths..
I would fax questions to him, so at appt time we could discuss my fears.

Each time I went to my Oncologist I would say "Hi English Jan here, your Triple Negative" .. just to keep it fresh.
Instead of the 5 years , my onc. watched me for 7...he liked me..lol.

Now its just me and my GP ... I'm 63 now .. had a colonoscopy (Family history of colon cancer) in 2014 and had polyps removed.

I have no fear of recurrence any more .. I once asked my Onc. "How do I know I've got rid of cancer?" His glib and helpful reply ... "When you die of something else.".

So I'm planning on dying at 96 from a lobster dinner overdose .... LOL 

So I guess I became .. oh, I don't know .. alive and living a day at a time, me and my family, friends and posse of docs did great .. I know if it comes back, we will tackle it again.

Get your posse of family, friends, docs, and especially our TNBC friends together and hang on.. 
Love to you all
English Jan


FL. 58yrs DX LIDC 8/18/07. 08/23/07 Lump+SNB Node -ve. T2.5cms clear margins, TNBC, Stage 2A Grade 3. 9/18/07 TX Cytoxan+Taxotere.Neulasta.4x3 wks.Rads 30+5 FINISHED 28th Jan 2008.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote gordon15 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 22 2017 at 7:49pm
English Jan: thanks for posting your update that you are stable after 10 years, it's great to hear.

By the way, my wife's doctors are not saying NED anymore, the pathologists aren't either, they say "nothing new" or "stable" ... I really don't think they know if there is evidence of disease, thus they are no longer claiming "NED" (No Evidnce of Disease") That's fine by me, I have no problem with this, doctors are not God.


Edited by gordon15 - Jul 22 2017 at 7:50pm
wife: IDC/Lobular Stage2B 2008 lumpectomy/TAC+rads
TNBC Stage 3A/w/metaplastic/squamous Nov2015 Carboplatin-Gemzar chemo/masectomy Taxolchemo+rads 4-16
PET scan stable 9-2016/ 1-2017
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Cbardar View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Cbardar Quote  Post ReplyReply Direct Link To This Post Posted: Jul 22 2017 at 8:17pm
Mine has come back it's been a year any advise for me. Since yours came back twice.
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Cbardar View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Cbardar Quote  Post ReplyReply Direct Link To This Post Posted: Jul 22 2017 at 8:19pm
Originally posted by 123Donna 123Donna wrote:

Hope this post will give others hope.  I'm 8 years from my first diagnosis - stage 1.  And 6 years from completing treatment for a recurrence - stage 3.

Donna


Mine has returned and I meet with the doctors on Monday would love to reach out to you. I am really scared
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