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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jun 30 2011 at 8:04pm
Pam,

Either way, 4 or 8 years sound great to me!  

Hugs,
Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote denise07 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 01 2011 at 2:55am
It is amazing how cancer can take over our lives can you imagine counting our years I never thought I would.
DX Idc 10/07,st2,gr3,2/6 lymphnodes
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Raine View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Raine Quote  Post ReplyReply Direct Link To This Post Posted: Jul 03 2011 at 2:44am
Working on 15 years from my 1st Dx (Dec) and Just hit 5 years from my 2nd Dx


Raine
Dx Jan 1997 Medullary,6/14 nodes Lumpectomy, Rads & 6xAC
Dx July 2006 IDC, 29/34 nodes, Mastectomy, 4xFEC and 6xTaxol, Rads
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Post Options Post Options   Thanks (0) Thanks(0)   Quote TNBC_in_NS Quote  Post ReplyReply Direct Link To This Post Posted: Jul 03 2011 at 9:29am
Awesome Raine! You are an inspiration! Thanks....
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: Jul 03 2011 at 5:46pm
Congratulations Raine,

So good to hear from you again. I am a 5 yr. survivor and I enjoy counting every year.

God Bless,
Lillie
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote scared Quote  Post ReplyReply Direct Link To This Post Posted: Jul 08 2011 at 1:26am
Our oncologist Dr. Kristine Rinn (Swedish Cancer Clinic, Seattle Madison) said that you start counting days from the date of diagnosis.

FYI,

DSG
Wife diagnosed 7/08 stage 2B 4.78cm with 3 nodes. 15 weeks of Adriamycin and Cytoxin, Mastectomy, 12 weeks of Taxol, and 6.5 weeks of radiation.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote abcmom Quote  Post ReplyReply Direct Link To This Post Posted: Jul 08 2011 at 4:07pm
I wonder about that too.  I have heard count from diagnosis date and then count by end of chemo date?  Curious to know what everyone thinks??
Diag 11/06/09 @ 40; Diag w/ TNBC Stage IIA, Grade 3 12/01/09 Node Neg. Dble MX with Recon 12/09 (twice)
Chemo 1/13/10 Chemo done 4/22/10 More recon surg 07/10, PET/CT Scan clear 07/10 NED 07/11
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Debris Quote  Post ReplyReply Direct Link To This Post Posted: Jul 08 2011 at 4:22pm
Grandma, thank you! And so good to see your "longevity".

As for survival, as far as I am concerned, everyday that I am alive is another day I have survived, regardless of whether it is since Dx or since surgery, or even regardless of the fact that I've been told I will "never" be finished with treatment - which end date some use as the yardstick to be a survivor.

I know it may sound "pollyanna-ish", but I do try to focus on what is good in my life, and enjoy/treasure the here and now, the milestones of everyday life. My hubby and I plan for 5, 10, 15 years from now. If it doesn't come to pass, then that's just the way it is - but we're not going to stop our planning "in case" it doesn't happen.

Well, sorry to be a buttinski, just wanted to share my thoughts on survivorship.

God bless, all - and have a great weekend.
4/12 Xeloda/Tykerb
2 Carboplatin
12/11 Dx IA
9 Gemzar/Taxotere Dx IBC:FEC
5 Ixempra/Sprycel
2 25 Rad
10/10 BRCA1-/2suv
9 NED
6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin
06/08 Dx DCIS 0/SN Rads/AIs
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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jul 08 2011 at 4:37pm
Deborah,

What you said makes so much sense. For me I'd rather say I'm a 2 year survivor instead of starting the count all over again. I look at things differently too. I plan for the next year, 5 or 10, instead of 50.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: Jul 08 2011 at 5:10pm
Dear Deborah,
I guess I could be considered Pollyanna-ish also. Although my thinking is influenced by the age I am presently (70).... I do not worry about every detail of life as I once did. I honestly do try to plan and enjoy each day. That is not to say I don't plan for the future, I do. I'm planning to go to the mountains July 18-20 with my bridge buddies. I can hardly wait. We have a new preacher at my church and I'm looking forwarding to the present and future changes and challenges that will come. I know it is my age, but I can't get caught up in the "what ifs" of life as I did when I was younger.   I sometimes wonder if I will see my 19 and 16 year old granddaughters married.
I just live each day for Jesus and the knowledge that no matter what happens, I will be OK.
Again, I know AGE plays a huge factor in my thinking.

God Bless,
Lillie
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Charlene Quote  Post ReplyReply Direct Link To This Post Posted: Jul 08 2011 at 5:48pm
I agree totally, Deborah, Donna, Lillie.  Each morning when I wake up, I thank God for giving me another day.  I still make plans for the future, but not for too far down the road any more.  None of us (even people who have never had cancer) knows how much time we have and I am extremely thankful for what I have already been given.  BTW--abcmom--my oncologist also counts from day of diagnosis, which I like.  There are too many variables after that!  Have a good weekend everybody!
 
Charlene
DX 3/10 @59 ILC/TNBC
Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision
SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads
3/14:NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: Jul 08 2011 at 6:46pm
Deborah, your 'butt' is hardly 'inski'.  I love your attitude, and share it in my better moments.   (the whole survivorship thing is pretty confusing and potentially downright offensive to the many, many of us who go on to recur and/or live with metastatic disease).
love,
d
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Horse Lover Quote  Post ReplyReply Direct Link To This Post Posted: Jul 08 2011 at 7:31pm
Thank you so very much for sharing your stories of being NED and of surviving 3 years, 5 years, +. This so so heartening; I read every message eagerly and they gave me hope and encouragement. You are the ones I need to think of every day as I fight to round the corner on metastatic TNBC. Thank you for showing us that it can be done! 
57 years old, mother of two daughters. 5/09 lumpectomy, rad; 3/11 C/T 6X, clear scans; 9/11 bilateral/lymph nodes surgery, NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote yowyow Quote  Post ReplyReply Direct Link To This Post Posted: Jul 09 2011 at 10:44pm
Hi all.... just a quick check in
 
My 5 years from DX was in May - IDC & DCIS and 2+ nodes
 
Raine, you know your my triple neg poster girl xx
 
dx may 06, 1.4cm IDC 5cm DCIS
WLE,re-Exc, skin & nipple sparing Bilat mast, 2/14+ 6xFEC NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Barbi Quote  Post ReplyReply Direct Link To This Post Posted: Jul 10 2011 at 10:50am
Thanks ladies for sharing those wonderful anniversaries! It gives us all a reminder that it is the norm, not the exception!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lisa L Quote  Post ReplyReply Direct Link To This Post Posted: Jul 10 2011 at 3:44pm
I will be six years from dx in August.  I have heard that since you are diagnosed with cancer, and you are surviving it at that point, you use that date. Hug
Dx 8/05 age 43
mast & lat flap 10/05
Triple neg
BRCA neg
IDC 4.5cm rt br
0/1 sen node
6 A/C 5 Taxol, 25 rads 11/05-6/06
Central Illinois
Currently NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Georgia Quote  Post ReplyReply Direct Link To This Post Posted: Jul 10 2011 at 8:51pm
Lets hear it for the Survivors!
I know of five in Arkansas, myself included! Since ending treatment last November, I rarely post. However, I visit most everyday! I can testify that the people here are very informed and genuine in there efforts.
 The educational brochure is EXACTLY what we needed, as many arent aware of our subtypes. You will find that we are all committed  to the "cause" and that each of us have our unique spiritual gifts to offer one another. As for me, I did a fundraiser, and sometimes speak. (You can go to the "get involved" and view "Help find Lucky")
 My prayer for you is that you find peace in all things. Trust in the Lord for he is our God and we his people. 

Your sister in Cancer and Christ
Georgia Lewis

DX 02/2010,IDC-TNBC,Grade3, Stage 2A,1 positive node.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Susie Quote  Post ReplyReply Direct Link To This Post Posted: Jul 11 2011 at 10:04am
I will be a 3 yr survivor in October. I am thankful for each day, but I honestly never forget it. Lately, and I don't know why, I am a little anxious that I am going to have a recurrence.. Weird..
dx 10/08,age 56,.75 cm. Stage1 Grade3,lumpectomy,SN neg..,AC 12/08-02/09,35rads,03/09-05/09,BRCA2+(E1415X),06/09,oophorectomy 10/09,
Zometa - IV/mo.,07/09-08/10, lumpectomy #2 10/20/10 NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote snowflake1977 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 11 2011 at 4:58pm
I am 33 years old and was diagnasoed with tnbc in october 2010.Im still very scared with having this cancer from reading alot of diffrent stories on it.How did you cope with it?Did you get on any special diets after your treatments?Im very happy to hear your 8 years cancer free,your story gave me strength.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote abcmom Quote  Post ReplyReply Direct Link To This Post Posted: Jul 11 2011 at 10:11pm
Thanks ladies!!!
 
 
Diag 11/06/09 @ 40; Diag w/ TNBC Stage IIA, Grade 3 12/01/09 Node Neg. Dble MX with Recon 12/09 (twice)
Chemo 1/13/10 Chemo done 4/22/10 More recon surg 07/10, PET/CT Scan clear 07/10 NED 07/11
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