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123Donna
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Joined: Aug 24 2009
Location: St. Louis, MO
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Posted: Jul 16 2012 at 11:16pm |
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Kay,
Congrats on 3 years!! Woohoo
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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TripleTip
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Joined: Apr 16 2009
Location: La Verne
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Posted: Jul 17 2012 at 12:05am |
5 years since surgery on 7/13/12! Thankful and living in the present :)
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Lump discovered May 07
Stage IIa, Grade 3
Lumpectomy, SNB, 2/5 nodes +
4 DD A/C, 10/12 Taxol
Radiation 28 with 5 boosts
BRCA2+
PBM with free TRAM, Salpingo oophorectomy Dec 08
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Grateful for today
Senior Member
Joined: Sep 21 2011
Location: U.S.A.
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Points: 1835
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Posted: Jul 17 2012 at 12:34am |
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TripleTip,
Love to hear from those who are 5 years.
Thank you for sharing the all important 5 year mark.
Like your "Thankful and living in the present".
With positive thoughts and wishes for health and happiness.
Grateful for today.............Judy
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mindy555
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Joined: Aug 13 2011
Location: Oklahoma
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Points: 980
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Posted: Jul 17 2012 at 4:32am |
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Kay and TripleTip - A HUGE happy dance!!! Yay, YAY, YAY!!!!
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Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012
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Charlene
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Joined: Aug 14 2010
Location: Atlanta, GA
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Points: 613
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Posted: Jul 17 2012 at 7:37am |
Kay and TripleTip,
Thanks for posting! Love to hear the survivor stories.
Charlene
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DX 3/10 @59 ILC/TNBC Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads 3/14:NED
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Lillie
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Joined: Jul 10 2009
Location: Eastern NC
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Points: 3616
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Posted: Jul 17 2012 at 9:19am |
Hey Kay,
Congratulation..... 
Remember a couple of years ago when you, overwhelmed (Lori), and myself met in Greenville, SC for lunch. Lori was still in treatment, you were a year out (cautiously optomistic), and I was 3 years out (a little more optomistic, I think???). That was a NICE day for me; meeting you and Lori.
I'm so glad you shared this happy milestone day with us....  Here's to many more years ahead.
God Bless,
Lillie
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Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED
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Lillie
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Joined: Jul 10 2009
Location: Eastern NC
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Points: 3616
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Posted: Jul 17 2012 at 9:22am |
Dear Triple Tip,
Thanks for posting about your 5 years. It really is good to let others know when we reach these milestones.
God bless,
Lillie
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Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED
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bashamk
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Joined: Oct 17 2009
Location: Charlotte, nc
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Points: 55
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Posted: Jul 17 2012 at 6:06pm |
Tripke Tip - 5 years? I can't wait! Congratulations! Hey all, at my onc appt this morning, after he congratulated me on 3 years, he changed my visits to every 6 months and said I needed to consider Eating Healthy and Exercising as my job now. Don't slack off. Asked if I'd call in to work if I didn't want to go?, and to go at exercising and eating the same way. Interesting way of putting it. Just thought I'd pass it along. Enjoy the day, each and every one of them! Love to all. Kay
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dx 6/25/09 age 45, IDC TNBC, stage 1, grade 3, 1.5 cm Lumpectomy, T/C x 4, 33 rads Dx Dec 2015 Stage 4 metaplastic Cell growth on nerves in shoulder to rt arm; mediastinal nodes; Bone; skin mets
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bashamk
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Joined: Oct 17 2009
Location: Charlotte, nc
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Posted: Jul 17 2012 at 6:07pm |
Lillie - Yes, I remember meeting you and Lori! That was a huge turning point for me. I was so overjoyed to meet others who had gone through the same thing, I didn't feel alone anymore. You two were Godsends. Thought you might want to know what a difference you've made in someone else's life. Always a special place in my heart for you both. Kay
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dx 6/25/09 age 45, IDC TNBC, stage 1, grade 3, 1.5 cm Lumpectomy, T/C x 4, 33 rads Dx Dec 2015 Stage 4 metaplastic Cell growth on nerves in shoulder to rt arm; mediastinal nodes; Bone; skin mets
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miss302
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Joined: Nov 01 2009
Location: MN
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Points: 5
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Posted: Jul 18 2012 at 10:25pm |
I celebrated 5 years in April 2012 and my sons first birthday that month! I am NED and doing great, also expecting number two, when they were not even sure i would be able to have any children i will soon hav two!
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Lillie
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Joined: Jul 10 2009
Location: Eastern NC
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Points: 3616
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Posted: Jul 18 2012 at 10:35pm |
Dear miss302
Congratulation on your 5 years NED. And more especially two wonderful babies. How Great Is That????
God Bless,
Lillie
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Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED
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Grateful for today
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Joined: Sep 21 2011
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Posted: Jul 18 2012 at 10:38pm |
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Miss302,
Thank you, thank you for posting.
Happy to join in your celebration of 5 years.
Love to hear of those who past that 5 years mark.
A 1 year one and a baby on the way.............what wonderful news.
Much happiness and health to you and your family
Grateful for today............Judy
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Katdoll
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Joined: Mar 13 2012
Location: WA
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Points: 214
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Posted: Jul 18 2012 at 10:48pm |
I am just a baby survivor at 2 years plus, but I thought I'd mention my aunt, who is 15 years cancer free since finishing chemo, and good friend, who is NED 8 years after being treated for a local recurrence. Both had TNBC. I am looking forward to posting about myself on this thread when I am eligible to join the 5-year club!!
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Tested positive for BRCA1 mutation (187delAG) in 4/09 @ age 44; BSO 9/09; diagnosed w/TNBC in 10/09; 1 cm Stage 1 TNBC IDC, grade 3 + 1.5 cm DCIS; BMX 11/09, nodes clear; chemo (AC/T).
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SagePatientAdvocates
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Joined: Apr 15 2009
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Points: 4748
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Posted: Jul 18 2012 at 11:50pm |
Dear all,
I have mentioned it before but my daughter on August 24th will be 8 years NED, TNBC.
I spoke to her today and she excitedly told me that she and her husband bought a piece of land in Bluffton, SC and hope to build a home there where he will, most likely, retire.
Wonderful to see her make plans...
This is such an important thread. For those of you lurking about  , who are longer term survivors, please share your stories. We all would love to hear them and draw encouragement from them.
Many, many women who are NED leave the forum when they feel they no longer need support. That is totally understandable but perhaps you know someone who has done that. Please encourage them to post.
warmly,
Steve
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Horse Lover
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Joined: Mar 06 2011
Location: Las Vegas, NV
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Posted: Jul 19 2012 at 12:07am |
I am NED as of September 2, 2011. Scans this week. Start new job Monday. No boyfriend, though...looking around a little. Daughters still absent. Lots of new wonderful friends, though---my new family. Every day is a gift. I am changing me in every way I can; the past way of doing things didn't work out so well and now I have another chance.
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57 years old, mother of two daughters. 5/09 lumpectomy, rad; 3/11 C/T 6X, clear scans; 9/11 bilateral/lymph nodes surgery, NED
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Charlene
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Posted: Jul 19 2012 at 7:27am |
Horselover,
Glad to see you post and hear your good news. Wishing you a lifetime of NED!
Charlene
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DX 3/10 @59 ILC/TNBC Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads 3/14:NED
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kirby
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Posted: Jul 19 2012 at 11:19am |
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I figure some of you tire hearing of me. Thanks Steve, for the encouragement. I was dx in Feb. 2001 . That was before they named TN. I only knew what I didn't have and I didn't fit with the rest. My stats are listed so I won't go over that detail. My dx was just prior to sentinel node becoming routine. They did shoot the dye but took 13 nodes feeling "better safe, than sorry" . Because of the size of my tumor I think they expected a worse prognosis. My surgeons exact words were " you don't know how lucky you are." Protocol for the day was only 4 tx, no ports, no decadron, no DD. 11 years ago this month I finished tx. Good luck to you all. There is light at the end of the tunnel.
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kirby
dx Feb. 2001. Age 44 Lumpectomy
2cm. no nodes stage 1 grade 3
4 rnds AC, 35 rads
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Lillie
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Posted: Jul 19 2012 at 1:43pm |
Dear Kirby,
We never tire of hearing from you. You give us an opportunity to be thankful for the things we had that you didn't. Also, we all need to hear these longevity reports. You have been an inspiration to me for 3 years.
God Bless,
Lillie
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Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED
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mindy555
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Posted: Jul 19 2012 at 2:03pm |
Kirby - Listen up! I'm ABSOLUTELY sure I speak for everyone! There's NO WAY in HELL(O Operator) we could EVER tire of your story! The encouragement and joy it brings us is as good as it gets. Keep telling it.. WE LOVE hearing your 11 years and counting.  You're a HUGE inspiration girl! Another long-term success was my own dear mom. The BRCA1+ gene was inherited from her side of the family. Her father, my granddad was of Ashkenazi descent. When Mom was 38 or 39 (still not certain) she was diagnosed with BC from a palpable breast lump that cropped up overnight while in the hospital recouping from back surgery. The surgeon did not pass go and went straight away into surgery. She doesn't even remember signing a consent to do the radical mastectomy (the entire breast... plus tissue, nodes & muscle from under the arm). I recall back then it was indeed a radical surgery and it took her years to recover use of her arm. Since TN had no name and they knew little about negative hormone receptor bcs or the BRCA mutation, the other breast was never removed.. She never had a recurrence or new growth there though! No 'after drugs' were taken. I remember how barbarically harsh the treatment was back then. They gave her massive doses of radiation. (didn't treat w/chemo back then) Her hair texture changed & thinned out.. she had severe burns all the way through to her back. All of this to say she survived almost 30 years until she developed leukemia- AML.
Edited by mindy555 - Jul 19 2012 at 4:52pm
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Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012
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Doxielvr
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Posted: Jul 24 2012 at 5:59pm |
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My mom is a 5 year survivor from her first dx in 2006. On her way to becoming a two time survivor!! She just finished treatment and will have a mast. in September. She is BRCA1+
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