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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jul 16 2012 at 11:16pm
Kay,

Congrats on 3 years!! Woohoo
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote TripleTip Quote  Post ReplyReply Direct Link To This Post Posted: Jul 17 2012 at 12:05am

5 years since surgery on 7/13/12!  Thankful and living in the present :)

Lump discovered May 07
Stage IIa, Grade 3
Lumpectomy, SNB, 2/5 nodes +
4 DD A/C, 10/12 Taxol
Radiation 28 with 5 boosts
BRCA2+
PBM with free TRAM, Salpingo oophorectomy Dec 08
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Jul 17 2012 at 12:34am
TripleTip,

Love to hear from those who are 5 years.

Thank you for sharing the all important 5 year mark.
Like your "Thankful and living in the present".

With positive thoughts and wishes for health and happiness.
Grateful for today.............Judy

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Post Options Post Options   Thanks (0) Thanks(0)   Quote mindy555 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 17 2012 at 4:32am
Kay and TripleTip -  A HUGE happy dance!!!  Yay, YAY, YAY!!!!
Dx July 2011 56 yo
Stage I IDC,TN,Grade 3
Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia
Daughter also BRCA1+
Mass grew on Taxol
FEC 6x better
BMX 3/19/12 pCR NED
BSO 6/2012
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Charlene Quote  Post ReplyReply Direct Link To This Post Posted: Jul 17 2012 at 7:37am
Kay and TripleTip,
Thanks for posting!  Love to hear the survivor stories.
Charlene
DX 3/10 @59 ILC/TNBC
Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision
SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads
3/14:NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: Jul 17 2012 at 9:19am
Hey Kay,
Congratulation.....Hug
 
Remember a couple of years ago when you, overwhelmed (Lori), and myself met in Greenville, SC for lunch.  Lori was still in treatment, you were a year out (cautiously optomistic), and I was 3 years out (a little more optomistic, I think???).   That was a NICE day for me; meeting you and Lori.
 
I'm so glad you shared this happy milestone day with us....Beer Here's to many more years ahead.
 
God Bless,
Lillie
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: Jul 17 2012 at 9:22am
Dear Triple Tip,
Thanks for posting about your 5 years.  It really is good to let others know when we reach these milestones. 
 
God bless,
Lillie
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote bashamk Quote  Post ReplyReply Direct Link To This Post Posted: Jul 17 2012 at 6:06pm
Tripke Tip - 5 years? I can't wait! Congratulations!
 
Hey all, at my onc appt this morning, after he congratulated me on 3 years, he changed my visits to every 6 months and said I needed to consider Eating Healthy and Exercising as my job now. Don't slack off. Asked if I'd call in to work if I didn't want to go?, and to go at exercising and eating the same way.  Interesting way of putting it. Just thought I'd pass it along.
 
Enjoy the day, each and every one of them!
Love to all.
Kay
dx 6/25/09 age 45, IDC TNBC,
stage 1, grade 3, 1.5 cm
Lumpectomy, T/C x 4, 33 rads
Dx Dec 2015 Stage 4 metaplastic
Cell growth on nerves in shoulder to rt arm; mediastinal nodes; Bone; skin mets
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Post Options Post Options   Thanks (0) Thanks(0)   Quote bashamk Quote  Post ReplyReply Direct Link To This Post Posted: Jul 17 2012 at 6:07pm
Lillie -
Yes, I remember meeting you and Lori! That was a huge turning point for me. I was so overjoyed to meet others who had gone through the same thing, I didn't feel alone anymore. You two were Godsends.
Thought you might want to know what a difference you've made in someone else's life.
Always a special place in my heart for you both.
Kay
dx 6/25/09 age 45, IDC TNBC,
stage 1, grade 3, 1.5 cm
Lumpectomy, T/C x 4, 33 rads
Dx Dec 2015 Stage 4 metaplastic
Cell growth on nerves in shoulder to rt arm; mediastinal nodes; Bone; skin mets
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Post Options Post Options   Thanks (0) Thanks(0)   Quote miss302 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 18 2012 at 10:25pm
I celebrated 5 years in April 2012 and my sons first birthday that month! I am NED and doing great, also expecting number two, when they were not even sure i would be able to have any children i will soon hav two!


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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: Jul 18 2012 at 10:35pm

Dear miss302

Congratulation on your 5 years NED.  And more especially two wonderful babies.  How Great Is That????
 
God Bless,
Lillie
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Jul 18 2012 at 10:38pm
Miss302,

Thank you, thank you for posting.
Happy to join in your celebration of 5 years.
Love to hear of those who past that 5 years mark.
A 1 year one and a baby on the way.............what wonderful news.

Much happiness and health to you and your family

Grateful for today............Judy
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Katdoll Quote  Post ReplyReply Direct Link To This Post Posted: Jul 18 2012 at 10:48pm
I am just a baby survivor at 2 years plus, but I thought I'd mention my aunt, who is 15 years cancer free since finishing chemo, and good friend, who is NED 8 years after being treated for a local recurrence.  Both had TNBC.  I am looking forward to posting about myself on this thread when I am eligible to join the 5-year club!!Smile
Tested positive for BRCA1 mutation (187delAG) in 4/09 @ age 44; BSO 9/09; diagnosed w/TNBC in 10/09; 1 cm Stage 1 TNBC IDC, grade 3 + 1.5 cm DCIS; BMX 11/09, nodes clear; chemo (AC/T).
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Jul 18 2012 at 11:50pm
Dear all,

I have mentioned it before but my daughter on August 24th will be 8 years NED, TNBC.

I spoke to her today and she excitedly told me that she and her husband bought a piece of land in Bluffton, SC and hope to build a home there where he will, most likely, retire.

Wonderful to see her make plans...

This is such an important thread. For those of you lurking about Smile, who are longer term survivors, please share your stories. We all would love to hear them and draw encouragement from them.

Many, many women who are NED leave the forum when they feel they no longer need support. That is totally understandable but perhaps you know someone who has done that. Please encourage them to post. 

warmly,

Steve
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Horse Lover Quote  Post ReplyReply Direct Link To This Post Posted: Jul 19 2012 at 12:07am
I am NED as of September 2, 2011. Scans this week. Start new job Monday. No boyfriend, though...looking around a little. Daughters still absent. Lots of new wonderful friends, though---my new family. Every day is a gift. I am changing me in every way I can; the past way of doing things didn't work out so well and now I have another chance. Wink
57 years old, mother of two daughters. 5/09 lumpectomy, rad; 3/11 C/T 6X, clear scans; 9/11 bilateral/lymph nodes surgery, NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Charlene Quote  Post ReplyReply Direct Link To This Post Posted: Jul 19 2012 at 7:27am
Horselover,
Glad to see you post and hear your good news.  Wishing you a lifetime of NED!
Charlene
DX 3/10 @59 ILC/TNBC
Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision
SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads
3/14:NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote kirby Quote  Post ReplyReply Direct Link To This Post Posted: Jul 19 2012 at 11:19am
I figure some of you tire hearing of me. Thanks Steve, for the encouragement. I was dx in Feb. 2001 . That was before they named TN. I only knew what I didn't have and I didn't fit with the rest. My stats are listed so I won't go over that detail. My dx was just prior to sentinel node becoming routine. They did shoot the dye but took 13 nodes feeling "better safe, than sorry" .  Because of the size of my tumor I think they expected a worse prognosis. My surgeons exact words were " you don't know how lucky you are." Protocol for the day was only 4 tx, no ports, no decadron, no DD. 11 years ago this month I finished tx. Good luck to you all. There is light at the end of the tunnel.
kirby

dx Feb. 2001. Age 44
Lumpectomy

2cm. no nodes stage 1 grade 3

4 rnds AC, 35 rads
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: Jul 19 2012 at 1:43pm
Dear Kirby,
We never tire of hearing from you.  You give us an opportunity to be thankful for the things we had that you didn't.  Also, we all need to hear these longevity reports.  You have been an inspiration to me for 3 years. 
 
God Bless,
Lillie
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote mindy555 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 19 2012 at 2:03pm
Kirby - Listen up!  I'm ABSOLUTELY sure I speak for everyone!  There's NO WAY in HELL(O Operator) we could EVER tire of your story!  The encouragement and joy it brings us is as good as it gets.  Keep telling it.. WE LOVE hearing your 11 years and counting.Thumbs Up  You're a HUGE inspiration girl! 

Another long-term success was my own dear mom.  The BRCA1+ gene was inherited from her side of the family.  Her father, my granddad was of Ashkenazi descent.  When Mom was 38 or 39 (still not certain) she was diagnosed with BC from a palpable breast lump that cropped up overnight while in the hospital recouping from back surgery.  The surgeon did not pass go and went straight away into surgery.  She doesn't even remember signing a consent to do the radical mastectomy (the entire breast... plus tissue, nodes & muscle from under the arm).  I recall back then it was indeed a radical surgery and it took her years to recover use of her arm.  Since TN had no name and they knew little about negative hormone receptor bcs or the BRCA mutation, the other breast was never removed.. She never had a recurrence or new growth there though!  No 'after drugs' were taken.   I remember how barbarically harsh the treatment was back then. They gave her massive doses of radiation. (didn't treat w/chemo back then) Her hair texture changed & thinned out.. she had severe burns all the way through to her back.  All of this to say she survived almost 30 years until she developed leukemia- AML. 


Edited by mindy555 - Jul 19 2012 at 4:52pm
Dx July 2011 56 yo
Stage I IDC,TN,Grade 3
Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia
Daughter also BRCA1+
Mass grew on Taxol
FEC 6x better
BMX 3/19/12 pCR NED
BSO 6/2012
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Doxielvr Quote  Post ReplyReply Direct Link To This Post Posted: Jul 24 2012 at 5:59pm
My mom is a 5 year survivor from her first dx in 2006. On her way to becoming a two time survivor!! She just finished treatment and will have a mast. in September. She is BRCA1+
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