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Strange questions about eyelids

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pamurph View Drop Down
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    Posted: Feb 27 2010 at 9:07pm
It is so nice to have a safe place to ask strange questions before asking my oncologist. So here it is..... Have any one noticed your eye lids being sticky along the line where your eye lashes are? If you touch the top and bottom lids, they both feel sticky. Any ideas? I have allergies, but this isn't really the same. I have an appointment Monday, so I can ask him them. Thanks.
Dec 2009
IDC 1.6 Stage 1 Grade 3 Lt Lumpectomy, mammosite radiation completed; 6 Taxotere/Cytoxan treatments-1-4 2010. Port out 6/3. Rt breast LCIS dx 8-2010. Bil Mx 9/2/2010 w/ reconstruction
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Post Options Post Options   Thanks (0) Thanks(0)   Quote hhfheidi Quote  Post ReplyReply Direct Link To This Post Posted: Feb 27 2010 at 10:06pm
Chemo can affect the eyes, creating a dry eye for some (inability to wear contacts, etc.), clogging tear ducts (requiring a flush) and other possible s/e. As you know, people have different reactions to chemo, so your eyelids may be one of them.
Ask you onc, of course, as you planned.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote krisa Quote  Post ReplyReply Direct Link To This Post Posted: Feb 27 2010 at 10:32pm
yes, the eyelids stick together/are sticky after you lose the eyelashes, not sure why the stickiness with lashes.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Feb 28 2010 at 10:17am
Peggy,

There are no strange questions among friends.  Chemo effects all of us differently.  I'd ask your onc about it.  When I was going through treatment, my eyes watered a lot where I felt leakage around my lashes.  I don't know if this is the same problem you're having.

I looked up side effects of Taxotere and eye changes was one of them.  Here's a link:

http://www.taxotere.com/consumer/taxotere_treatment/side_effects.aspx#eyeChanges
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote mainsailset Quote  Post ReplyReply Direct Link To This Post Posted: Feb 28 2010 at 10:24am
I was lucky enough to have an eye doctor appt about the same time my eyelids started to stick. He told me that I needed to start flushing my eyes several times a day with, what he recommended was Ultra Systane eye drops. I had used the regular Systane previously and had gotten lots of red veins in my eye popping up bu the Ultra really helps and I still probably use the drops 3 or 4 times a day. He also warned me that one of hte things that happens when you use the computer is that you have a tendency to blink less...so blink and drop!
dx 7/08 TN 14x6.5x5.5 cm tumor

3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Feb 28 2010 at 10:29am
Mainy,

Thanks for the suggestion.  I used to wear contacts but after chemo, I can't wear them anymore.  I do notice the more time I spend on the computer that my eyes feel dryer.  I'll have to check out the drops you suggested.
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote pamurph Quote  Post ReplyReply Direct Link To This Post Posted: Feb 28 2010 at 11:17am
Thanks to you all for your info. It is nice to have knowledgeable friends to ask!
Dec 2009
IDC 1.6 Stage 1 Grade 3 Lt Lumpectomy, mammosite radiation completed; 6 Taxotere/Cytoxan treatments-1-4 2010. Port out 6/3. Rt breast LCIS dx 8-2010. Bil Mx 9/2/2010 w/ reconstruction
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: Feb 28 2010 at 4:39pm
Chemo messes with the eyeballs.  Mine were blurry right after chemo, and watery, especially in wind, for months afterward.  I even had a really lovely twitch, like a crazy lady.

It'll go back to normal eventually.  :)

-Denise
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote pamurph Quote  Post ReplyReply Direct Link To This Post Posted: Feb 28 2010 at 8:05pm
Denise, I have a lovely twitch too! Chemo is just so much fun! You just never know what fun things to expect.
Dec 2009
IDC 1.6 Stage 1 Grade 3 Lt Lumpectomy, mammosite radiation completed; 6 Taxotere/Cytoxan treatments-1-4 2010. Port out 6/3. Rt breast LCIS dx 8-2010. Bil Mx 9/2/2010 w/ reconstruction
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Post Options Post Options   Thanks (0) Thanks(0)   Quote girlpower731 Quote  Post ReplyReply Direct Link To This Post Posted: Feb 28 2010 at 11:36pm
Denise,
 
I can't believe there are others out there experiencing the eye issues.  After my last chemo my eyes got all dried out and they were extremely blurry.  I would go to work and be squinting and my face so close to the computer just hoping my boss didn't take notice.  I asked my oncologist about it and she kept saying that if anything, you usually get watery eyes not dry eyes.  I'm on some eye drop medication right now, but to tell you the truth, this eye thing really freaked me out. 
 
My vision has been coming back and I'm no longer squinting which is good.   
 
Girlpower
dx: age 31. Stage 2a, BRCA1/2 -, Lumpectomy 8/09, AC/Taxol dense dose 9/09-1/10
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: Feb 28 2010 at 11:47pm
When I saw my second opinion onc at UCSF after a chemo and was worried about my blurry vision (wondering...could it be eye mets?) she basically said "duh. It's poison!"  You know how in movies when someone gets poisoned their vision gets really blurry before they fall down in a heap?  Well, apparently there's some truth to this and it applies to our treatments as well.  Amazing what we live through!
-Denise
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Mar 01 2010 at 8:37am
I also had blurry vision during chemo and watering eyes.  After finishing chemo, I went for an eye exam.  My vision had changed substantially, so much so he used the words "perplexed".  I love it when the docs are perplexed!  Chemo, the gift that keeps on giving.
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
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Post Options Post Options   Thanks (0) Thanks(0)   Quote kyrie Quote  Post ReplyReply Direct Link To This Post Posted: Mar 03 2010 at 11:45am
Mine stick a lot too (and I use Systane). Sounds like it goes away after a bit. I thought it was because there were no eyelashes there now!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote mom&grandma Quote  Post ReplyReply Direct Link To This Post Posted: Mar 08 2010 at 12:22am
Hi Peggy,
 
My daughter had a hard time with sticky gunk in her eyes that has cleared up since the end of her chemo.
 
Bonnie
Bonnie, mom of Heather, age 32, Dx on 9/1/09 TN IDC Stage 1, 1.4 c, lumpectomy, 10/8/09, DD AC & T, 3/9/10 bilateral mastectomy and immediate reconstruction, BRCA 1/2-
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol (Tenn) Quote  Post ReplyReply Direct Link To This Post Posted: Mar 08 2010 at 8:14am
Yep, gunk is just another part of it...Confused
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Post Options Post Options   Thanks (0) Thanks(0)   Quote TNBC_in_NS Quote  Post ReplyReply Direct Link To This Post Posted: Mar 08 2010 at 9:14am
Oh thanks girls!  I thought there was something really wrong with my eyes and have booked an appt. for the 26th of this month.  Along with loosing my eyelashes and the gook and now the blurring so bad I rub them, and I know the vision has changed, big time.  Pre-chemo I had readers at 2.0 so I can't wait to see the changes.  Ugh...another thing to deal with, but that is ok will get through it.  As far as ringing in the ears, I thought that meant someone was talking about ya?? Duh, yes, I have the ringing too.  Not all the time but when it starts it is loud!
 
Thanks for the info ladies!  Helen in NS Clap
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Mar 08 2010 at 9:17am
Helen,  You are so funny!

When I went to the eye dr after finishing chemo, my vision really changed.  He used the word "perplexed".  I just love that!  New glasses and seeing much better now!
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote TNBC_in_NS Quote  Post ReplyReply Direct Link To This Post Posted: Mar 08 2010 at 9:21am
Good to see that smile upon your face Donna! Laughing is GOOD!LOL
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Mar 08 2010 at 10:24am
I was due to have an eye exam right when I started chemo.  I took my son to the eye doc and asked her what she thought.  She said NO WAY do it now, wait until chemo is over for a couple of months then come see me.  She was sure my vision would change.  BOY was she right!  Both near and far sightedness changed drastically!  When I got my new glasses in December I could see so much clearer it gave me vertigo at first.  Everyone should get an eye exam a few months after chemo. 
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/17 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote mainsailset Quote  Post ReplyReply Direct Link To This Post Posted: Mar 08 2010 at 10:35am
The only time an infusion nurse gave me poor advice was the day I mentioned my eyesight getting worse and the nurse said that was common but not to worry because it would come back after chemo was complete. mmm notsomuch
dx 7/08 TN 14x6.5x5.5 cm tumor

3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
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