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Stage III. Age:20's-30's

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Grateful for today View Drop Down
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    Posted: Jan 19 2012 at 6:57pm
Hi,

Noticed a post on another forum today by a new member hoping to find other
members with Stage III in their late 20's.
http://forum.tnbcfoundation.org/newly-diagnosed_topic9235_page5.html
See post by Dolphinlove84 (Miya) on page 5.
If any one knows of a thread/forum topic for members with Stage III and in their 20-30's,
would you please post it.
Otherwise, maybe having this thread with this topic might help find other members
with similar age and stage."

Thank you.

With caring and hopeful thoughts to all,

Grateful for today...................Judy
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LRM216 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LRM216 Quote  Post ReplyReply Direct Link To This Post Posted: Jan 19 2012 at 8:26pm
I second a thread for the younger gals too, great idea Judy (as usual).  Hope the moderators will add one.  While we all share the same feelings and concerns, there seems to be more and more younger gals being diagnosed, and they certainly have issues that none of us had to deal with at their young ages.  Such a dreadful disease - when will it stop??????????
Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Dolphinlove84 Quote  Post ReplyReply Direct Link To This Post Posted: Jan 20 2012 at 12:33am
Thank you so much Judy. I hope to find other women my age going through this. I know that sounds odd, because I would never wish Breast cancer on anyone else, but I know that I am unfortunately not the only young woman whom this disease is affecting.
I had a huge scare today when my Doctor called to tell me that she "couldn't guarantee my fertility" I was distraught. after consulting with co-worker friend of mine who beat breast cancer 2 years ago, I learned that doctors will always cover themselves against liability by giving vague and non-concrete answers. I wish I had solid answers to go by, but I know I am only in the begining of my process and I will probably not have many concrete answers in the future, so I should get use to it. I guess that's what Faith is for Smile
I should get to bed. I have my PET scan first thing in the morning.
 
Miya
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Jan 20 2012 at 12:42am
Dear Miya,

welcome to our family. I am very sorry you have need to be here. Good luck with your PETSCAN tomorrow!!!

Have you seen a Certified Genetic Counselor and been tested for the BRCA mutation?

My daughter was diagnosed at age 36 seven years ago and she is doing fine.

She became menopausal from the chemo..maybe that is what your physician is talking about? But sometimes the menopause is only temporary. In my daughter’s case, because she was BRCA1+ she decided to have gynecologic risk-reducing surgeries.

Please keep posting and let us know how you are doing.

good luck to you,

Steve
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Post Options Post Options   Thanks (0) Thanks(0)   Quote nmunoz Quote  Post ReplyReply Direct Link To This Post Posted: Jan 20 2012 at 1:15pm
Hi Miya,

I was diagnosed at 32. I was also told that chemo could throw me into permanent menopause and that fertility was an issue as well. I was offered the chance to consult a fertility expert and see if I wanted to do something about it prior to chemo. I already had a six month old baby and I just wanted to focus on fighting the cancer so I didn't do anything about fertility. You do have options however and it is important for you to discuss this issue with your doctor.

During treatment I went into "chemopause" and my period came back a year after I finished chemo. I am BRCA1+ so at this point I am still waiting to decide about having more children or just taking my ovaries out as I am also at high risk for ovarian cancer. So many tough decisions to make.

When I first came to this forum I was also looking for more people young like me. TNBC is one of the most common types of BC in premenopausal women so I have found many young women here and I stuck around because I feel that I have plenty of things in common with all the people here even if not all of them are my age.

A really good source of information and support for young women facing breast cancer is the Young Survival Coalition. Here's their website:
http://youngsurvival.org/

They hold an annual conference called C4YW (Conference for Young Women) which is taking place in New Orleans this year. Here's the website as well:
http://www.c4yw.org/

I wish you luck with your upcoming tests. Feel free to send me a private message if you want to talk. We are here for you.

Best,

Natalia
Natalia, 38 years

Dx TNBC 10/22/08, BRCA1+

Double Mx 11/20/08 with Recon.

3/37 nodes

Rads 7 weeks done 8/09

ACx4 every 2 weeks and Tx12 weeks. Avastin e/3 weeksx10 (Clinical Trial) Done Dec/09
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Post Options Post Options   Thanks (0) Thanks(0)   Quote AlohaGirl Warrior Quote  Post ReplyReply Direct Link To This Post Posted: Jan 20 2012 at 4:46pm
Hello Miya:

Welcome to our TNBC family and sorry you have a need to be here. I see that you are from the bay area. There is a local chapter in the Bay Area for young breast cancer survivors known as "BAYS" (Bay area young survivors). Check out their website below: 
http://www.baysnet.org/

I also live in the Bay Area and I was able to connect with other women with TNBC in the Bay Area. I found this group through American Cancer Society. Calling your local ACS can also be a resource and they can buddy you up with someone close to your age. I did that when I was first diagnosed and it really helped me through my journey. Please know that you are not in this alone. There are tons of resources out there, including your TNBC family online!!!

Please feel free to PM is you want to talk or want more information.

Wishing you all the best,
D
_______________________________________________________________________________
Dx'ed 8/11 with stage II IDC TNBC; 9/11 Mastectomy Unilateral; Sentinel lymph nodes x3 negative ; 9/11-1/9/12 TAC x6; BRCA genetic testing results pending
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Post Options Post Options   Thanks (0) Thanks(0)   Quote AlohaGirl Warrior Quote  Post ReplyReply Direct Link To This Post Posted: Jan 20 2012 at 4:55pm

Hello Miya:

I forgot to mention another resource that I utilized when I first was diagnosed last August. The founder was only 32 years old, Maimah Karmo, and she also had triple negative breast cancer. She was the founder of Tiger lily, check out their website below:

Tiglerlilyfoundation.org

All the best,
D
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Jan 20 2012 at 6:32pm
Hi Miya,

You also received some posts on the other forum: Welcome New Members: Newly diagnosed.
You probably have seen them already.......thought it better to say something you already know
then just assume you saw them.

With caring and positive thoughts,

Grateful for today.............Judy

___________________________________________________________

Natalia and Aloha Girl Warrior,

Am sure Miya.... and others appreciate the resources you shared.
Thank you for posting.

With caring and positive thoughts,

Grateful for today................Judy
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nicole26 Quote  Post ReplyReply Direct Link To This Post Posted: Jan 26 2012 at 2:32pm
Hi. Miya. I'm 26 years old, and I was diagnosed TNBC back in Oct. Just to reassure you are not alone in this battle.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Dolphinlove84 Quote  Post ReplyReply Direct Link To This Post Posted: Feb 02 2012 at 6:54pm
Thank you everyone for welcomes and warm wishes. My PET scan went well. I just had a breast MRI today, not pleasant AT ALL, ugh, very uncomfortable, especially having started chemo on friday. Laying on my stomach for 45 mins was no fun and the injection for the conductor fluid was sooo uncomfortable. Chemo was rough for 3 days, no tastebuds, no appetite, but luckily no vomiting either, so it wasn't all bad. I started feeling better last night and today has been great. If this is the face of chemo for me then I think I can handle it Smile Just very eager to get it done with and get better. Hope everyone else is dong well.
 
Miya
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LRM216 Quote  Post ReplyReply Direct Link To This Post Posted: Feb 03 2012 at 9:17am
Just want to wish all of our "young ones" the easiest of journeys, side effects that are tolerable, and the promise that "this too shall pass."  We are here for you 24/7 and wish to God you didn't have to be! 
 
Hugs,
Linda
Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lee21 Quote  Post ReplyReply Direct Link To This Post Posted: Feb 03 2012 at 9:45am
Miya
I know what you mean about the MRI being kinda of surreal -- being suspended there for 30min+ and immobile was difficult. I kept counting one-one hundred, two-one hundred.... that helped pass the time and not focus on my body.  I know I will have to do it again in 8 weeks and then again and again. But at least I know what to expect.
All the best, Lee
12/9/11 @59,IDC,grade3, TNBC,3cm(MRI),SLNB0,stage IIA, BRCA1 variant
1/30/12 DD AC-T, 6/7/12 Lumpectomy, ypT1b(0.8 cm), 7/9/12 Rads x 30
11/9/12, clinical trial cisplatin/rucaparib, cisplatin-only arm
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Post Options Post Options   Thanks (0) Thanks(0)   Quote mindy555 Quote  Post ReplyReply Direct Link To This Post Posted: Feb 11 2012 at 12:14am
Hi Mia,

I'm really sorry you have to be here.  I AM glad to hear side effects of chemo haven't been too bad for you.  They really aren't for many of us.  I'm older, though chemo was my biggest fear in this whole thing and now I feel kinda foolish for assuming.  

I do hope you'll feel at home here as you seek out some of the recommended areas for young survivors.   Feel free to ask anything.. you can vent, or share whatever you feel like sharing.  We're like family in all age ranges and welcome you with open arms.

Hugs,
Mindy 
Dx July 2011 56 yo
Stage I IDC,TN,Grade 3
Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia
Daughter also BRCA1+
Mass grew on Taxol
FEC 6x better
BMX 3/19/12 pCR NED
BSO 6/2012
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