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arleneb View Drop Down
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    Posted: Aug 06 2013 at 12:27pm
TNBC Foundation Community,

Many of you have already visited our Spotlight Stories page: https://tnbcfoundation.org/living-with-tnbc/spotlight-stories

We are always on the lookout for additional, inspirational stories to share with our visitors. If you would like to submit your story for consideration, please email your narrative along with a photo to: info@tnbcfoundation.org

Thank you for helping us with this ongoing project.

- Arlene



Edited by arleneb - Jan 16 2019 at 1:14pm
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Melissa P. View Drop Down
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Points: 330 		Post Options Post Options   Thanks (0) Thanks(0)   Quote Melissa P. Quote  Post ReplyReply Direct Link To This Post Posted: Aug 08 2013 at 5:45pm
Posted in my TNBC online group, I hope you get some good stories from these ladies.
 Heart Melissa
"Hope for more Tomorrows"
TNBC dx August 2009, Age 41, Stage 2, 2cm, 0 nodes Lumpectomy/ACx4,Taxolx4/33rads
Triple Negative Breast Cancer, "I Won't Back Down!"
mlsspaskvan.blogspot.com
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arda View Drop Down
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Points: 2 		Post Options Post Options   Thanks (0) Thanks(0)   Quote arda Quote  Post ReplyReply Direct Link To This Post Posted: Jan 13 2014 at 2:47am
t seems that when women have IBC about 30-35% of the time it is also TNBC. It can be a very challenging combination to treat and after helping about ten women with IBC/TN over the last several years it has become a particular passion of mine. I am hoping that the efforts of the scientists present will help the women with IBC and IBC/TN. I know it is a small group, in numbers, and therefore challenging, funding-wise, but I so admire those who have dedicated their efforts to find a cure/better treatment for the IBC community.




Edited by arda - Aug 27 2014 at 12:41am
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Melissa P. View Drop Down
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Points: 330 		Post Options Post Options   Thanks (0) Thanks(0)   Quote Melissa P. Quote  Post ReplyReply Direct Link To This Post Posted: Jan 13 2014 at 4:21pm
I agree, we need to bring more attention to both IBC and TNBC, both rare and aggressive... we need more awareness and funding... and a cure.
"Hope for more Tomorrows"
TNBC dx August 2009, Age 41, Stage 2, 2cm, 0 nodes Lumpectomy/ACx4,Taxolx4/33rads
Triple Negative Breast Cancer, "I Won't Back Down!"
mlsspaskvan.blogspot.com
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Jgari View Drop Down
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Points: 18 		Post Options Post Options   Thanks (0) Thanks(0)   Quote Jgari Quote  Post ReplyReply Direct Link To This Post Posted: Mar 02 2014 at 8:22am
I am in that group and very worried about constipation when my chemo begins
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Well done ! Such inspirational stories full of encouragement and life are essential for bright and hopeful future.
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dayle View Drop Down
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Points: 30 		Post Options Post Options   Thanks (1) Thanks(1)   Quote dayle Quote  Post ReplyReply Direct Link To This Post Posted: Jun 17 2016 at 12:31am
hi....i have tnbc....stage 3c....i also suffer from ulcerative colitis and when i have a flare up it is something else..i have a great doctore in meridian , ms. that is very knowleedgeable and kind and compassionate....and he has helped me get into the first remission in 30 yrs so i just love him lol....im onot sure what info you wer wanting but let me know and i wil 
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What is IBC?
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Irishone65 View Drop Down
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Hey
Noticed it's been 7 years for you. No problems in 7 yrs?
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Jacklin View Drop Down
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Points: 559 		Post Options Post Options   Thanks (0) Thanks(0)   Quote Jacklin Quote  Post ReplyReply Direct Link To This Post Posted: Dec 16 2016 at 2:18pm
IBC = Inflammatory Breast Cancer
Dx: Nov. 27/15, TNBC, left breast & lymph, BRCA -; Chemo: Dec 4/15 - Mar 4/16; 4 DD A/C, 3 DD Taxol; BMX/ALND: April 26/16; Stage 3C; Radiation: June 10-July 15/16; 1 cycle Xeloda: Aug 15 - 28/16
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7 years? Not seeing story? What is the story? 7 years NED? What got you there? How are you doing now?
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Points: 975 		Post Options Post Options   Thanks (0) Thanks(0)   Quote mindy555 Quote  Post ReplyReply Direct Link To This Post Posted: Oct 23 2017 at 3:43pm
Hi Sara,

We have many ladies 7 plus years.. I think about 13-14 or more years on this particular forum.  I'm well on my way to the 7 year mark.  A tiny bit of residual neuropathy, a toe nail problem.. I'd say that's minor in the big scheme of things. LOL

I feel extremely BLESSED to be surrounded by loving family, a grown son and daughter I couldn't be more proud of.  2 college student daughters (actually I really did marry young and my daughter started having babies young) with a total of 5 grands in our blended blessed family.  I love them all like there's no tomorrow!
Dx July 2011 56 yo
Stage I IDC,TN,Grade 3
Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia
Daughter also BRCA1+
Mass grew on Taxol
FEC 6x better
BMX 3/19/12 pCR NED
BSO 6/2012
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Points: 6 		Post Options Post Options   Thanks (0) Thanks(0)   Quote Lisajo Quote  Post ReplyReply Direct Link To This Post Posted: Aug 02 2018 at 9:01am
I am new to this site. My sister was diagnosed almost 3 weeks ago with Triple negative invasive ductal breast cancer. She had surgery to remove the tumor, but the margins were positive so she had to have another surgery. They removed 4 lymph nodes and they were a positive negative meaning that there were cancer cells present but they were so minutely present that it was considered negative. She went to the dr yesterday and the margins are negative so they are proceeding with a treatment called SAVI. Any info that you can provide will be so appreciated. She is scared to death of corse, and seeing that you have seemed to do something right maybe you can share what you have done. Thank you 😊
Sister of a Tripple Negative Fighter
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