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arleneb 
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TNBC Foundation Administrator
Joined: Nov 03 2009
Location: New Jersey
Status: Offline
Points: 328
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 Topic: Spotlight Stories - Submission Request
Posted: Aug 06 2013 at 12:27pm |
TNBC Foundation Community, Many of you have already visited our Spotlight Stories page: http://www.tnbcfoundation.org/spotlightstories.htm
We are always on the lookout for additional, inspirational stories to share with our visitors. If you would like to submit your story for consideration, please email your narrative along with a photo to: info@tnbcfoundation.orgThank you for helping us with this ongoing project. - Arlene
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Melissa P.
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Joined: Jun 10 2012
Location: Toledo, OH USA
Status: Offline
Points: 330
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Posted: Aug 08 2013 at 5:45pm |
Posted in my TNBC online group, I hope you get some good stories from these ladies.  Melissa
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"Hope for more Tomorrows"
TNBC dx August 2009, Age 41, Stage 2, 2cm, 0 nodes Lumpectomy/ACx4,Taxolx4/33rads
Triple Negative Breast Cancer, "I Won't Back Down!"
mlsspaskvan.blogspot.com
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arda
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Joined: Jan 13 2014
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Points: 2
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Posted: Jan 13 2014 at 2:47am |
t seems that when women have IBC about 30-35% of the time it is also
TNBC. It can be a very challenging combination to treat and after
helping about ten women with IBC/TN over the last several years it has
become a particular passion of mine. I am hoping that the efforts of the
scientists present will help the women with IBC and IBC/TN. I know it
is a small group, in numbers, and therefore challenging, funding-wise,
but I so admire those who have dedicated their efforts to find a
cure/better treatment for the IBC community.
Edited by arda - Aug 27 2014 at 12:41am
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Melissa P.
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Joined: Jun 10 2012
Location: Toledo, OH USA
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Points: 330
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Posted: Jan 13 2014 at 4:21pm |
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I agree, we need to bring more attention to both IBC and TNBC, both rare and aggressive... we need more awareness and funding... and a cure.
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"Hope for more Tomorrows"
TNBC dx August 2009, Age 41, Stage 2, 2cm, 0 nodes Lumpectomy/ACx4,Taxolx4/33rads
Triple Negative Breast Cancer, "I Won't Back Down!"
mlsspaskvan.blogspot.com
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Jgari
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Joined: Feb 27 2014
Location: New yok city
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Points: 18
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Posted: Mar 02 2014 at 8:22am |
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I am in that group and very worried about constipation when my chemo begins
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rahul2630
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Joined: Sep 30 2014
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Points: 10
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Posted: Oct 04 2014 at 2:54am |
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Well done ! Such inspirational stories full of encouragement and life are essential for bright and hopeful future.
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dayle
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Joined: Apr 11 2016
Location: mississippi
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Points: 30
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Posted: Jun 17 2016 at 12:31am |
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hi....i have tnbc....stage 3c....i also suffer from ulcerative colitis and when i have a flare up it is something else..i have a great doctore in meridian , ms. that is very knowleedgeable and kind and compassionate....and he has helped me get into the first remission in 30 yrs so i just love him lol....im onot sure what info you wer wanting but let me know and i wil
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Irishone65
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Joined: Dec 16 2016
Location: Toronto
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Points: 6
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Posted: Dec 16 2016 at 1:58pm |
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What is IBC?
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Irishone65
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Joined: Dec 16 2016
Location: Toronto
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Posted: Dec 16 2016 at 1:59pm |
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Hey
Noticed it's been 7 years for you. No problems in 7 yrs?
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Jacklin
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Joined: Dec 26 2015
Location: Canada
Status: Offline
Points: 559
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Posted: Dec 16 2016 at 2:18pm |
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IBC = Inflammatory Breast Cancer
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Dx: Nov. 27/15, TNBC, left breast & lymph, BRCA -; Chemo: Dec 4/15 - Mar 4/16; 4 DD A/C, 3 DD Taxol; BMX/ALND: April 26/16; Stage 3C; Radiation: June 10-July 15/16; 1 cycle Xeloda: Aug 15 - 28/16
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Sara414
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Joined: Jan 25 2017
Location: Owensboro
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Points: 24
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Posted: Jan 28 2017 at 8:21am |
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7 years? Not seeing story? What is the story? 7 years NED? What got you there? How are you doing now?
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mindy555
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Joined: Aug 13 2011
Location: Oklahoma
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Points: 975
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Posted: Oct 23 2017 at 3:43pm |
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Hi Sara,
We have many ladies 7 plus years.. I think about 13-14 or more years on this particular forum. I'm well on my way to the 7 year mark. A tiny bit of residual neuropathy, a toe nail problem.. I'd say that's minor in the big scheme of things. LOL
I feel extremely BLESSED to be surrounded by loving family, a grown son and daughter I couldn't be more proud of. 2 college student daughters (actually I really did marry young and my daughter started having babies young) with a total of 5 grands in our blended blessed family. I love them all like there's no tomorrow!
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Dx July 2011 56 yo
Stage I IDC,TN,Grade 3
Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia
Daughter also BRCA1+
Mass grew on Taxol
FEC 6x better
BMX 3/19/12 pCR NED
BSO 6/2012
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