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livelife View Drop Down
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    Posted: Nov 22 2010 at 12:25am
Hi all,
I had surgery on August 25th for two tumors in my cerebellum.  They were removed and radiation of 15 treatments was given.  I had MRI on Nov. 15 which showed that the previous areas were still clear, but there was a new spot of about 1cm in the right frontal lobe near a ventricle???  So, I will have steriotactic radiosurgery on that spot coming up in about a week.  I have no idea what that is like.  I am hoping that someone here can help me.  I don't know what to expect or the outlook of this treatment.  I had a clear CT scan from the neck down mid-October after completeing chemo in May 10.  HELP!
Christine
 
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123Donna View Drop Down
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Points: 13510 		Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Nov 22 2010 at 12:38am
Christine,

Denise or others may have more information about this type of surgery.  I found this link and hope it helps:

http://www.irsa.org/radiosurgery.html

Types:
There are three basic forms of stereotactic radiosurgery represented by three different technological instruments. Each instrument operates differently, has a different source of radiation and may be more effective under different circumstances. The three are:

  • Particle beam (proton)
  • Cobalt-60 based (photon)
  • Linear accelerator based (linac)
The cobalt-60 based machines are located at dedicated neuroscience centers in the United States and throughout the world. These machines provide extremely accurate targeting and precise treatment for brain cancers. They are dedicated to treating only brain tumors and dysfunctions in a one-day treatment. The most well-known machine is the Gamma KnifeŽ.

The Gamma KnifeŽ does not move during treatment, thus providing a high degree of precision within the brain. It has been available for over 40 years, with constant enhancements, substantial research and follow-up backing its treatments and outcomes. The unit today is much the same as when it was developed. The machines utilize multiple sources of radiation, which causes less damage to healthy tissue and results in better targeting. Over 350,000 people have received treatment with this machine at this time. These machines are ideal for smaller tumors (less than 3.5 cm) and functional disorders of the brain. The manufacturer's name is Elekta Instruments.
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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SagePatientAdvocates View Drop Down
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Points: 4748 		Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Nov 22 2010 at 9:43am
Dear Christine,

Donna has given you a enlightening explanation of the surgery....

In addition, I suggest you consider some resources of the National Brain Tumor Society and others



Christine, I think it is essential, though, for you to have a comprehensive meeting with your neurosurgeon to go over all of your questions/concerns...If that is not possible at least the P.A. Your particular set of circumstances may be different than other folks...and you may have a different reaction than others. This is an important topic and I hope your physician and/or his staff is able to take the time and meet with you.

good luck to you!!!! I am very sorry you are dealing with a new lesion.

you shall be in my prayers,

Steve
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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