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Quote Request- How has TNBC Foundation helped you?

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MLindaG View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote MLindaG Quote  Post ReplyReply Direct Link To This Post Posted: Feb 06 2014 at 7:44pm
When I was diagnosed my onc and surgeon really didn't say much other than "this is an aggressive type of cancer". Finding this site was one of my blessings. I got to understand in a straight forward manner what TNBC is and how we need to be warriors to fight this beast. Having others who understand what you are going through is invaluable. I will be forever grateful for the information, advice, support and fellowship.

Linda Pittsburgh PA 6/10/12 Stage 3 3.5 cm lump 3/10 lymph nodes chest wall lymph
Dx TNBC 6/12; age 59; Stage 3, Grade 3; 3.5 cm, 3/10 nodes + chest wall nodes; A/C x4, T x 12 completed 12/12 with PCR, 2/13/13 lump; IMRT Rads x 33 completed 5/22/13 BRCA 1 negative.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sabinecalifornia Quote  Post ReplyReply Direct Link To This Post Posted: Feb 06 2014 at 3:56pm
The TNBD Foundation is my second family. When I was diagnosed with TNBC I felt like falling in a black hole. But then I discovered the TNBC Foundation and after reading all the post I found support, love and knowledge. If I had a question everybody was right there for me. Couldn't have done it without you all.

Thank you
Sabine
DX TNBC 7/11 @ age 50, Stage 2A Grade 3, 1/19, LE/AD 8/11, BRCA1/2 neg.,
4 A/C, 10 Taxol, 2 Abraxane due to allerg. react. to Taxol, fin 3/12. 33 Rads 6/12. NED CT 8/12, 10/13, 10/14
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LottaLenya Quote  Post ReplyReply Direct Link To This Post Posted: Feb 06 2014 at 3:55pm
I found this website when I was diagnosed TNBC last May. It provides valuable information that enables me to be proactively involved in my treatment decisions.
Diagnosed 4/2013. 2A, grade 3, no nodes, BRCA-. Lumpectomy LB 5/2013, 2.5 cm. ACT followed by RADS. Completed treatment.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote mainsailset Quote  Post ReplyReply Direct Link To This Post Posted: Feb 06 2014 at 2:24pm
Being diagnosed with Tneg is a moment where your whole world turns upside down and your close circle of lifelong friends and family struggle to find words and hugs of support.

Not so the Tneg family. Despite having an intimate knowledge of the fear that chases us all, the members here never miss a beat in helping one another in ways that are remarkable and humbling. There is courage here and on the days where my own courage falters I always know someone here will pick me up, dust off my sorry behind and set me on my path once again.
dx 7/08 TN 14x6.5x5.5 cm tumor

3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: Feb 06 2014 at 2:13pm
I found this site 3 years after my treatments ended.  The wonderful support here helped me to reach my 7th year NED with much less stress.  It also offers me a wonderful opportunity to help Support other triple negative sisters.
 
Lillian - from North Carolina, dx 6/9/2006
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote arleneb Quote  Post ReplyReply Direct Link To This Post Posted: Feb 06 2014 at 1:38pm
Thank you for the quote Donna...and for helping us stay on top of SPAM and Advertisements on the Forum!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Feb 06 2014 at 1:29pm
Finding the TNBC Forum after diagnosis and in the middle of my treatment was a lifeline!  It helped me feel I wasn't alone in this battle.  I've learned so much from all the members and information posted.  It helped me select two clinical trials and share in the experiences of other members who were also involved in those trials. 

Donna - from Missouri, dx in 2009 and 2010
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote arleneb Quote  Post ReplyReply Direct Link To This Post Posted: Feb 06 2014 at 12:49pm
Thanks Susan!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote rosered71169 Quote  Post ReplyReply Direct Link To This Post Posted: Feb 06 2014 at 12:16pm
Originally posted by ArleneB ArleneB wrote:

We just need a few quotes if you could please take a moment to help.

- Arlene
 
Having a "rare aggressive form" of breast cancer, I find the TNBC website forum an invaluable resource. I generally ask my questions about diagnosis, treatment and side effects here first to get feedback from others in similar situations and support from the group.
 
Susan - Northern Ohio - 2/21/12 - IDC with lymph node involvement


Edited by rosered71169 - Feb 06 2014 at 12:17pm
IDC 2-21-2012 @ age 42 TNBC, Stage IIA, Gr 3, 1.5cm Tumor Rt Breast, 3 Lymph Nodes, Neoadj Chemo, TACx6,BRCA Neg, Bilateral Mastectomy 7-30-12, 28 Rads, Bilateral DIEP 5-22-13...3 Beautiful Daughters
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arleneb View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote arleneb Quote  Post ReplyReply Direct Link To This Post Posted: Feb 06 2014 at 10:17am
We just need a few quotes if you could please take a moment to help.

- Arlene
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arleneb View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote arleneb Quote  Post ReplyReply Direct Link To This Post Posted: Jan 31 2014 at 11:28am
TNBC Foundation Community,

We are in the process of composing an annual report for 2013 and would like to highlight the ways TNBC Foundation has been helpful to patients and families.

  • Did you find support and/or helpful information on the forum?
  • Did you find a clinical trial using our matching service?
  • Did you call our helpline and receive support and information?

Please post a one-sentence quote to this thread that we may use for this report which will be available online. Please include your first name, geographical location and dx date(s) if you are comfortable sharing.

If you would prefer to email your quote, please send to arlene@tnbcfoundation.org

Thank you for your help with this project.

Arlene Brothers
Manager, Special Projects
TNBC Foundation
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