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Team Donna

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Forum Name: TNBC Metastasis/Recurrence Users
Forum Description: A place to discuss metastatic disease
URL: http://forum.tnbcfoundation.org/forum_posts.asp?TID=7399
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Topic: Team Donna
Posted By: 123Donna
Subject: Team Donna
Date Posted: Nov 03 2010 at 7:55pm
I just talked to my oncologist.  It appears that the spot that lit up in the PET scan and showed on the MRI was an internal mammary lymph node.  One node is enlarged, about 1".  The problem is it's in a tricky area behind the rib cage and hard to get at.  She's going to be talking to some surgeons/thoracic surgeons on how best to biopsy the node.  I know that it may be something other than a recurrence until we have the biopsy and know for sure.  However, my onc's going at this as if it's a recurrence, which would mean radiation and possibly chemo againCry.

Have any of you had a recurrence in this area?  What kind of treatment did you have?  Did it clear it (NED)?

What do I need to know or ask my medical team?  Any help would be appreciated.

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15




Replies:
Posted By: livelife
Date Posted: Nov 03 2010 at 7:59pm
I am sorry.  I did have a recurrance there and did chemo and radiation.  It did clear up though. 
Christine


Posted By: harbin
Date Posted: Nov 03 2010 at 10:38pm
Hi Donna, I did have recurrence in mammory node. It was grown to about 4-5 cm before it was removed surgically. I had toracic surgeon to remove it. The tumor was between 2nd and 3rd ribs and also next to sternal bone. The operation was not small, but my surgeon did excellent job. He had to cut off parts of the two ribs and sternal bone. After the operation, I had radiation and chemo. The tumor area is cleared after those treatment. However, the recent PET/CT discovered that 2 nodules in my lungs. I am current under chemo and was just selected in PARP trial last week.  I hope and pray for you that your biopsy will find the enlarged node is not cancerous.

-------------
4/08 dx IDC,stg2,neg. nodes,4xAC,8xTexol& Avastin,BRCA-
3/10 Recurr Chestwall,surgery
6/10 Lung mets
10/10 Parp
05/11 Surgery on 2 lung nodules
08/11 Parp failed
10/11 Cyberknife 1 lung nodule


Posted By: bjoangtx
Date Posted: Nov 03 2010 at 11:54pm
Donna,
 
I hope everythingh is benign but my mind immediately goes to the worst case scenario whenever they do/find anything. I had radiation after chemo and I asked if they had radiated he internal mammary nodes because in the studies I had found high grade tumors with lymph node involvement (my Ki67 was 80%) needed to be careful about those nodes. He seemed surprised when I asked and like so many of my docs didn't give me a straight answer. I can't have radiation again,too close to my heart and I've already  done it on the left side. I'd ask cam on edges about chemo therapy types. I have found him to be direct and explicit with his recommendations and explanations. Something I appreciate.
I don't post much but I follow yours. We were dx at the same time(I was 8/09) but you've become such a force here on the forum. You've helped me several times with the studies you post and you're always so gently positive with anyone who posts.
However it goes I know you have a strong cheering section here. My thoughts ad prayers as well.
Joan


-------------
St 2 Gr 3 2/5 nodes dx 8/9 age 56 Neoadj ACT @ x 6 @3wks bi mst. 12/09 Infect expander 12/31 remvd, replcd 1/27. 28 rads 4/10 Brkn rib 5/10 PET   6/10 NED Recon 9/17 & 12/10 Ki67 85% basal


Posted By: 123Donna
Date Posted: Nov 04 2010 at 6:46am
Christine,

How long ago did you have chemo and radiation on those nodes?  What type of chemo did you receive?  What type of follow up care are your receiving?  Was it difficult to biopsy the node?

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: 123Donna
Date Posted: Nov 04 2010 at 6:52am
Harbin,

Do you think the recent lung nodules are the result of the mammory node?  How long ago did you have the surgery for the mammory node?  Do they monitor that area closely?  What type of chemo did you get after your surgery?

Thanks,

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: TNBC_in_NS
Date Posted: Nov 04 2010 at 8:39am
Glad you posted here Donna! You are getting some positive answers! Yeahhh!
Keep the faith my dear, you will soon be CLEAR!
xoxo h


-------------
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear


Posted By: Deann
Date Posted: Nov 04 2010 at 9:50am
Hi Donna - I am so sorry the PET/CT scan came back with the mammory node lit.  We spoke last week and as  I said then my prayers are with you that once biopsied it will come back okay.  Please try to keep positive, easier said than done I know, but I am sending prayers and positive thoughts your way.  When you went for the initial MRI before the PET/CT was that a routine MRI done annually or was it because of the pain you had been feeling on the one side you were experiencing?   Please keep us posted as you find out more about when they will biopsy it, etc.  Please know that we are all here for you, as you have been for everyone on this site. 

-------------
Dee
DX IDC TNBC July 09 at age 42, SNB Clear, Bilateral Mast. w/tissue expanders 9/25/09, Stage 1 Grade III, BRCA1+, TCx4 completed 12/31/09    


Posted By: Debris
Date Posted: Nov 04 2010 at 12:56pm
Donna, sending positive thoughts and prayers to you for quick resolution of this.
 
Heart
 
Deborah.


-------------
4/12 Xeloda/Tykerb
2 Carboplatin
12/11 Dx IA
9 Gemzar/Taxotere Dx IBC:FEC
5 Ixempra/Sprycel
2 25 Rad
10/10 BRCA1-/2suv
9 NED
6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin
06/08 Dx DCIS 0/SN Rads/AIs


Posted By: 123Donna
Date Posted: Nov 04 2010 at 1:25pm
Thanks all for the well wishes and prayers.  I'm having the biopsy on the 15th and should know the results by the 17th or 18th.  I guess I won't know for sure what it is until it's biopsied.  This latest Pet scan was a routine scan, nothing symptomatic.  The MRI was because the area on the PET that lit up needed to be looked at closer so I had a contrast MRI.  Prior to my bi-mx surgery initially, I had an MRI and  CT scan of the chest.   Both of those tests were clear for anything else besides the original tumor.  I feel better that my onc told me she has a plan either way.  I feel we're on top of things for now and just waiting for the biopsy and to find out the results.

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: thenewme
Date Posted: Nov 04 2010 at 2:28pm
Oh Donna,
Oh ugh.  Ugh, ugh, ugh.  I'm so sorry about this, but HOPEFULLY it will be benign!!!  I originally had an IM node light up on my initial PET scan, but it was thought (hoped!) to be just inflammation from surgery, a recent sinus infection, or an anomaly.  They thought mine was in an area that was inaccessible so it was never biopsied, tested, or removed.  I didn't have another PET scan until after chemo/rads, and it had disappeared, so that's what I'm wishing for you too - that it just disappears!  Any chance you've had any kind of recent infection or anything?  Please do keep us updated and know we're thinking about you!

That's it - I'm giving you back the crown!  You be False Alarm Queen - it sure beats the alternative! Wear it well!



-------------
DX: IDC/TNBC 11/08 5-cm Stage IIb Grade 3. Age 39. Double Mast 12/08 (prophy right) with tissue expanders . ACx4-Tx3. Suspicious IM node. 25 Rads. BRCA NEG.


Posted By: 123Donna
Date Posted: Nov 04 2010 at 3:09pm
Thenewme,

Thanks, I'll take the crown anytime!  I did have a bad sinus infection/bronchitis in September that took a long time to get over.  I was on the Zpack, bronchial inhaler and mucinex.  I've been much better for about 3 weeks and no longer having symptoms.  It's comforting to know you has suspicious nodes and now they're clear.  Great news!


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: NinaE
Date Posted: Nov 04 2010 at 3:52pm
Donna, I've got my fingers crossed for you. The waiting is very hard, I know. I hope you're able to find some comfort and distraction these next few weeks.

(I do have mets to my internal mammary nodes but only the lung met was biopsied, so I don't have any concrete info for you about how that works.)


-------------
Stage IV at dx in Dec 09, at age 38. Mets to lung, axillary, IM and mediastinal nodes.

4xAC-->dd Taxol. Dbl mast, 6/10. Radiation, 8/10. NED since June 2010.


Posted By: thenewme
Date Posted: Nov 04 2010 at 6:52pm
Ohmigosh, Donna - I'm SOOO glad you had a recent severe sinus infection, LOL!!  I'm sure you know what I mean - just that I want THAT to be the reason for your IM node to be suspicious, like mine was!  I don't remember - did you have rads before?  They included my IM node in my rads since they weren't able to biopsy it.  With the IM node plus my left-upper-inner tumor, I was concerned about heart/lung damage from the rads - but as far as I know there are no significant effects so far.  My MUGA scan to check my heart after treatment was very good, and I think I have some very minimal lung damage, but in the scheme of things I don't mind.

In any case, I'm sending good vibes your way!  Hang in there and try to distract yourself as much as possible while you wait!   Got some good chick flicks to watch for distraction?

ETA-My double MX was delayed for several weeks because of....guess what.... a severe sinus infection, so I don't mean to downplay the misery of that!


-------------
DX: IDC/TNBC 11/08 5-cm Stage IIb Grade 3. Age 39. Double Mast 12/08 (prophy right) with tissue expanders . ACx4-Tx3. Suspicious IM node. 25 Rads. BRCA NEG.


Posted By: harbin
Date Posted: Nov 04 2010 at 6:57pm
 
Hi Donna, I think the mammory node and lung nodules are bot the met from TNBC. Although no one knows for sure how they happened. The mets could pop up anytime and anyplace when they want.
The tumor in the node was shown in January and I had the operation in April. (It was mis-diagnosed initially, it's a long story). My doc. has been monitoring me incl. the surgical area closely. I get PET/CT scan every 3 weeks. I had cisplatin for chemo after the surgery. Now I am on PARP. Please let me know if you have more questions. It looks like you have a great doc. but I really hope your finding is nothing serious. ALl the best.


-------------
4/08 dx IDC,stg2,neg. nodes,4xAC,8xTexol& Avastin,BRCA-
3/10 Recurr Chestwall,surgery
6/10 Lung mets
10/10 Parp
05/11 Surgery on 2 lung nodules
08/11 Parp failed
10/11 Cyberknife 1 lung nodule


Posted By: Allison
Date Posted: Nov 04 2010 at 8:29pm
Donna,

I am hoping for the best for you - I had hot nodes on the right side (cancer was on the left). These were discovered when I had a PET just prior to chemo. It was decided that they were reactive due to the flu shot that I had received just a few weeks before. Now, however, I'm extremely nervous. My Ki67 was 97%. Although I have had a few MRI's here and there I have not had a pet scan in quite a long time. I'm not due back to Borson's office until Feb. It's the quiet, lurking stuff that scares the begeebees out of me. I'm definitely going to talk to her about the possibility of a PET scan.

Truly hoping that your situation is b9. My thoughts and prayers will be with you. Hang in there!!

Allison


-------------
9/07 IDC, trip neg, BRAC-, Lumpectomy with SNB (all clear) 10/07, FEC & Taxatere 11/07 - 2/08, 32 rads, 3/08 - 5/08.


Posted By: 123Donna
Date Posted: Nov 04 2010 at 9:42pm
Allison,

I know how you feel.  I'd definitely talk to Dr. Borson about your concerns and maybe getting a PET scan if it will help relieve some fears.  You're three years out!  Congratulations.

You made me think of something else, I had a flu shot last month.  I know I'm grasping at straws, but trying to think of everything that may be the cause except the worst one.

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: Bonnie
Date Posted: Nov 05 2010 at 4:19pm
Donna:  Sorry to hear that you are dealing with this.  Ashley did have internal mammary lymph nodes light up at initial diagnosis.  AC and Ixempra didn't seem to help, but the Carpoplatin and Gemzar seemed to for about 3 months, but at 6 months they were glowing brighter than before.  We have more scans scheduled for November 22.  Our onc and surgeon really never gave us surgery as an option because they said it would be thoracic surgery and would delay Ashley getting started on chemo.  Better to let the chemo and radiation take care of those nodes.  Well, that was back in September 09, and the chemo did not take care of it, and she has never made it to radiation.  I think I'll ask about surgery again at our next appointment.  I'm praying for your biopsy results to be benign! 
Bonnie

-------------
Bonnie - Daughter Ashley dx TN 8/09 @ 22; St3, BRCA1/2-; AC&Ixempra done 2/10; mets to lung 3/10; G/C 3/10; PARP 6/10; sternum mets 9/10; NK012 failed; mets to liver, spine, kidney; Avastin/Xeloda


Posted By: 123Donna
Date Posted: Nov 05 2010 at 4:26pm
Bonnie,

Were the mammary nodes close to her original tumor?  I'm wishing her the best and hope that something works for her. 

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: TNBC_in_NS
Date Posted: Nov 05 2010 at 4:59pm
Donna, I remember when you said you had the flu shot!!!!! I forgot about the sinus infection????
Maybe these are residuals from the infections in your body during this time.?????
 
I ask our God to keep His hand upon you and your dear family with all this waiting, worrying and more needles....
 
Bless you my dear friend,
Helen in NS


-------------
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear


Posted By: dmwolf
Date Posted: Nov 06 2010 at 3:17pm
Donna, how are you holding up?  I'm thinking about you all the time.
I hope you've been able to find a nice out of the way room for the worry to live in, away from most of your life. 
love,
d


-------------
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.


Posted By: 123Donna
Date Posted: Nov 06 2010 at 8:09pm
Denise,

I'm trying to keep the worry at bay and stay in a happy place.  When that doesn't work, I've got the Ativan to fall back on.

Hugs,

Donna



-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: CiGi
Date Posted: Nov 07 2010 at 1:04pm
Keeping my fingers crossed for you Donna. 

-------------
Age 40, 4/28/10 lumpectomy (3 cm) TNBC Grade 3 Stage 2 0/3 nodes, TAC 6x 3 week cycles start 6/15 finish 9/27, 33 rounds rads 11/22. BRCA1 & 2 neg. Lymphedema rt hand 8/14. Joint pain Dec 2010.


Posted By: thenewme
Date Posted: Nov 08 2010 at 12:11am
Me too- I'm thinking about you, Donna!

-------------
DX: IDC/TNBC 11/08 5-cm Stage IIb Grade 3. Age 39. Double Mast 12/08 (prophy right) with tissue expanders . ACx4-Tx3. Suspicious IM node. 25 Rads. BRCA NEG.


Posted By: Pink Warrior
Date Posted: Nov 08 2010 at 1:04pm
I just came looking for your PET results.  I'm sorry they found something, Donna.  Add me to those praying that it's nothing.  It sounds like your doctor has a good handle on things though.  Try to stay in that happy place - You're in my thoughts.

Kim


-------------
Dx:10/09,IDC Stg 2,Gr 3,TN
BRCA 1&2 -
Partial DD EC/AC
Local recur 11/10
BMX 12/10 Right proph
TC x 4 Rads x 33
9/11 Skin mets, mediastinal & hilar nodes
Abraxane/Avastin


Posted By: diane1234
Date Posted: Nov 08 2010 at 1:17pm
Donna.....thoughts and prayers are with you dear sister...
May God Bless Us All,
Diane


-------------
dx 4/09 at 36 yrs old. dbl Mast. 5/09. 12 weekly Taxol 4 FAC tri weekly. 32 rads completed 2/2010. Its Back 5/2010!! Chest wall, Mediastinal node, Lft mammary node and liver. Back on chemo.


Posted By: diane1234
Date Posted: Nov 08 2010 at 1:18pm
ATIVAN......IS GOOD!!!!!

-------------
dx 4/09 at 36 yrs old. dbl Mast. 5/09. 12 weekly Taxol 4 FAC tri weekly. 32 rads completed 2/2010. Its Back 5/2010!! Chest wall, Mediastinal node, Lft mammary node and liver. Back on chemo.


Posted By: thenewme
Date Posted: Nov 12 2010 at 8:02pm
Donna,
Just a note to let you know I'm thinking about you as we head into the weekend!  Hope you have big, wonderfully distracting plans to keep your mind from wandering.

Hang in there!


-------------
DX: IDC/TNBC 11/08 5-cm Stage IIb Grade 3. Age 39. Double Mast 12/08 (prophy right) with tissue expanders . ACx4-Tx3. Suspicious IM node. 25 Rads. BRCA NEG.


Posted By: TNBC_in_NS
Date Posted: Nov 12 2010 at 8:10pm
Donna:
 
I too am thinking of you as you enter this weekend!  Please do something especially nice for yourself! Keep busy no matter what you do.... I will keep you in my prayers this w/e and of course on Monday! Sending you BIG HUGS, and hopes that this is nothing! "All CLEAR"!!!!
h.


-------------
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear


Posted By: 123Donna
Date Posted: Nov 14 2010 at 6:35pm
Tomorrow's the biopsy day.  I won't know the results until I meet with my onc on Thursday.  Just a few more days of agonizing!  Ativan is helping me get through this!

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: snugltz
Date Posted: Nov 14 2010 at 6:38pm
Will say many prayers for you Donna.

-------------
1 cm, 0/2 neg nodes, lumpectomy 6/16/10, cytoxin/taxotere 4x every three weeks, rad start 11/8 33X


Posted By: Bonnie
Date Posted: Nov 14 2010 at 6:52pm
Donna:  Just wanted you to know that I'm thinking of and praying for you.  I hate the waiting game - so hard to go through your daily routines.
Bonnie


-------------
Bonnie - Daughter Ashley dx TN 8/09 @ 22; St3, BRCA1/2-; AC&Ixempra done 2/10; mets to lung 3/10; G/C 3/10; PARP 6/10; sternum mets 9/10; NK012 failed; mets to liver, spine, kidney; Avastin/Xeloda


Posted By: abcmom
Date Posted: Nov 14 2010 at 7:01pm
Hang in there Donna!  I am praying for you!  Hugs my friend!

-------------
Diag 11/06/09 @ 40; Diag w/ TNBC Stage IIA, Grade 3 12/01/09 Node Neg. Dble MX with Recon 12/09 (twice)
Chemo 1/13/10 Chemo done 4/22/10 More recon surg 07/10, PET/CT Scan clear 07/10 NED 07/11


Posted By: sue
Date Posted: Nov 14 2010 at 7:55pm
Hi Donna.  Remember that it is always darkest before the dawn.  Praying for good news for you.   Sue

-------------
Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11.          


Posted By: dmwolf
Date Posted: Nov 14 2010 at 9:03pm
Donna, I'll be thinking of you wishing (and expecting!) all the best.  B9 !
love,
d


-------------
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.


Posted By: TNBC_in_NS
Date Posted: Nov 14 2010 at 9:32pm
Donna: 
I am here too! Wishing and praying mostly that all is B9! Hang in there girl, you are going to be fine..  Keep us posted as we will be wanting to know how the biopsy goes, hopefully they get a great sample and then find it to be nothing but scar tissue.....
Love and Big Hugs, h xoxo


-------------
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear


Posted By: LRM216
Date Posted: Nov 14 2010 at 11:46pm
Wishing you the best, Donna.

-------------
Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33


Posted By: Morgan513
Date Posted: Nov 15 2010 at 12:03pm
Good luck today, Donna!  My prayers are with you!




-------------
Lorrie,DX 04/08, Stage 2A Medullary, N0, M0; Lumpectomy, Chemo (TC x4) and Radiation. Enrolled in Bisphosphonate Phase III study.


Posted By: thenewme
Date Posted: Nov 15 2010 at 12:10pm
B9 B9 B9 B9 B9 B9......

-------------
DX: IDC/TNBC 11/08 5-cm Stage IIb Grade 3. Age 39. Double Mast 12/08 (prophy right) with tissue expanders . ACx4-Tx3. Suspicious IM node. 25 Rads. BRCA NEG.


Posted By: nmunoz
Date Posted: Nov 15 2010 at 1:07pm
Donna,

I hope that everything goes well with the biopsy. Will be praying for you and for good results too. I like that mantra: B9 B9 B9 B9 B9 B9 B9.

Hugs,

Natalia

-------------
Natalia, 38 years

Dx TNBC 10/22/08, BRCA1+

Double Mx 11/20/08 with Recon.

3/37 nodes

Rads 7 weeks done 8/09

ACx4 every 2 weeks and Tx12 weeks. Avastin e/3 weeksx10 (Clinical Trial) Done Dec/09


Posted By: TNBC_in_NS
Date Posted: Nov 15 2010 at 1:14pm
Donna:  B9 B9 B9...
xox h


-------------
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear


Posted By: CiGi
Date Posted: Nov 15 2010 at 2:32pm
Fingers still crossed.  B9 all the way. 

-------------
Age 40, 4/28/10 lumpectomy (3 cm) TNBC Grade 3 Stage 2 0/3 nodes, TAC 6x 3 week cycles start 6/15 finish 9/27, 33 rounds rads 11/22. BRCA1 & 2 neg. Lymphedema rt hand 8/14. Joint pain Dec 2010.


Posted By: hhhh
Date Posted: Nov 15 2010 at 2:57pm
donna, sending positive thoughts...i know everything will be ok.

-------------
Daughter of one of the most amazing women in the world...

she was diagnosed 8/2010, had lumpectomy, TAC X 6, rads.

52 yrs, stage 2A (3cm, no nodes), triple neg, grade 3


Posted By: LauraT
Date Posted: Nov 15 2010 at 3:59pm
Donna - hoping all goes well and joining the chant, too...B9, B9, B9!
 
Love and prayers,
Laura


-------------
DX 10/09 @44, Stage I IDC tnbc, DCIS other side, Neoadjuvant TCx4, Bilateral Mastectomy w/Recon 1/10, 1.2cm 0/7 Nodes, 5/11 Mets to Lungs/Lymph Nodes, Avastin/Taxol, 10/11 Bone Mets, Xgeva


Posted By: dmwolf
Date Posted: Nov 15 2010 at 4:12pm
Donna, are you home yet?   How did it go?
love you
d


-------------
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.


Posted By: denise07
Date Posted: Nov 15 2010 at 4:20pm
Praying for you,B9!!!!!!


Posted By: Lillie
Date Posted: Nov 15 2010 at 4:24pm
Dear Donna,

You have been on my mind for days. You are a Special lady. I'm joining the group with the B9, B9, B9, B9 chant.

I guess you can tell from the posts that "we love you."

God Bless,
Lillie

-------------
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED


Posted By: TNBC_in_NS
Date Posted: Nov 15 2010 at 4:24pm
Donna:  U there yet? Wink

-------------
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear


Posted By: Lorene
Date Posted: Nov 15 2010 at 4:24pm
Dear Donna,
 
I see your biopsy is today & am praying for your healthy result! 
 
3 John 2  Beloved, I pray that you may prosper in all things and be in health, just as your soul prospers.
 
It does seem likely to me a node could get inflamed from a sinus infection or a flu shot.  But, I'm not a Dr., but when we have colds, a lymph gland can become enlarged in the neck.  Anyway, praying for a CANCER-FREE biopsy!
 
God  Bless,
Lorene
 


-------------
dx10/01@age59,IDC TNBC, St.IIB,Gr3,2.5cm,3+nodes, epirubicin,5FU,cytoxan,33Rads,No recurrence, 2018


Posted By: 123Donna
Date Posted: Nov 15 2010 at 5:26pm
I love you all!  I could feel your prayers and B9 chants today.  It helped support and lift me up during the procedure.

The procedure went smoothly.  I was worried how this doc could get into the area under my implant.  Once we got to the hospital, the nurse said the interventional radiologist was wonderful and I was lucky to have him today.  I explained he was the only one my onc wanted to do the procedure.  She replied, I know why.  It made me feel that I was in good hands with a skilled surgeon.

So I'll explain the procedure in laymen's term.  Like I said, I was very curious how they could do this biopsy.  They took me into the surgery room and put me on the CT scan table.  They gave me fentanyl that helped relax and make me sleepy.  I was awake during the procedure.  I think they gave me a shot in the center of the chest to numb it, but I can't be sure because I never looked.  They had me laying more on my side with my right arm above my head.   While doing the procedure he had the CT scan to show him exactly where the needle was going.  He used a thin needle and inserted it in the center of my chest and went sideways under the implant into the mammary node.  He did this 5 or 6 times poking around and aspirating the node.  Once the procedure was done, they took me back to the room where I ate lunch and waited about 2 hours before going home.  I was still feeling the effects of the sedative and slept much of the afternoon away.  I feel more alert now, but still a little tired.  The center area of my chest hurts a little, like someone was poking around with a needle, lol!  They told me to take it easy today and the next 2 days.  I can return to work tomorrow.

I love your B9 chants and prayers.  I'm praying for the same results.   I have to wait until late in the day on Thursday to get the results.  My onc is squeezing me in as the last appointment of the day.  Until then, I'm thinking B9, B9, B9!

Hugs,

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: TNBC_in_NS
Date Posted: Nov 15 2010 at 6:15pm
Thanks for getting the news of your procedure to us!  God Bless ya! I have tears in my eyes just reading your post! I am so relieved that it is behind you now...and now we "Ladies in Waiting" wait for the B9, ALL CLEAR, Scar tissue, FAT he, he, he... Just so glad it is behind ya!
Love ya, get some rest and take the two days to recuperate!
Hugs, h.


-------------
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear


Posted By: abcmom
Date Posted: Nov 15 2010 at 6:34pm
Thanks for letting us know Donna!  B9 B9 and an all clear is heading your way!!

-------------
Diag 11/06/09 @ 40; Diag w/ TNBC Stage IIA, Grade 3 12/01/09 Node Neg. Dble MX with Recon 12/09 (twice)
Chemo 1/13/10 Chemo done 4/22/10 More recon surg 07/10, PET/CT Scan clear 07/10 NED 07/11


Posted By: dmwolf
Date Posted: Nov 15 2010 at 7:15pm
Thanks for checking in, Donna.   It sounds like the procedure wasn't too bad.  We'll be waiting with you, sweetie, hoping for and expecting the all clear.
love,
d


-------------
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.


Posted By: sue
Date Posted: Nov 15 2010 at 8:42pm

Thank you Donna for sharing the procedure.  Take the time to relax.  Sending prayers for B9 your way.  Sue



-------------
Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11.          


Posted By: Allison
Date Posted: Nov 15 2010 at 8:51pm
Donna,

Thinking of you - hope all went well today. Keeping my fingers crossed that everything is OK!!

Allison


-------------
9/07 IDC, trip neg, BRAC-, Lumpectomy with SNB (all clear) 10/07, FEC & Taxatere 11/07 - 2/08, 32 rads, 3/08 - 5/08.


Posted By: Pink Warrior
Date Posted: Nov 15 2010 at 9:15pm
Donna, my thoughts and prayers are with you!

B9 all the way!!

Kim


-------------
Dx:10/09,IDC Stg 2,Gr 3,TN
BRCA 1&2 -
Partial DD EC/AC
Local recur 11/10
BMX 12/10 Right proph
TC x 4 Rads x 33
9/11 Skin mets, mediastinal & hilar nodes
Abraxane/Avastin


Posted By: LRM216
Date Posted: Nov 15 2010 at 9:55pm
Donna,
 
So glad for you that the biopsy is now behind you.  Praying that after Thursday - All that you have been through will be just a fleeting memory, one that has excellent results!  
 
Linda
 
 


-------------
Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33


Posted By: SagePatientAdvocates
Date Posted: Nov 15 2010 at 10:17pm
Dear Donna,

just trying to get caught up on the board...sorry, I did not see this until now..I join the chorus of B9s...

I also just sent you my contact info if you would like to talk..

My prayers are with you..

all the best,

Steve 


-------------
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates


Posted By: TracyAMac
Date Posted: Nov 15 2010 at 11:14pm
Congrats Donna on getting through today's procedure. Wishing you good results on Thursday!

Tracy in Toronto 

-------------
TN&non-TN tumors April/10 Gr3&2;1 metaplastic
Rmast.1/9 nodes w/isolated t.cells
Taxotere&Cytoxan x6
Bone cancer 1980 age17;surgery&chemo AC+Methotrexate
BRCA-ve
On hormone therapy & Metformin Trial


Posted By: trip2
Date Posted: Nov 16 2010 at 2:11pm
b9 b9 b9!!

-------------
Stage 2 2003
Stage 1 2007
BRCA 1+


Posted By: thenewme
Date Posted: Nov 16 2010 at 3:28pm
B9! B9! B9!   Gah- the biopsy sounds just....umm....well, let's just say thank goodness for Fentanyl!!! It'll be worth the discomfort when you get the B9 results!   Hopefully they'll call before Thursday afternoon with the good results, but in case they don't - we'll be here chanting for you :-D


-------------
DX: IDC/TNBC 11/08 5-cm Stage IIb Grade 3. Age 39. Double Mast 12/08 (prophy right) with tissue expanders . ACx4-Tx3. Suspicious IM node. 25 Rads. BRCA NEG.


Posted By: dmwolf
Date Posted: Nov 17 2010 at 4:57pm
Donna, how are you doing?    I'm thinking of you.  What time is your appointment tomorrow?
love,
d


-------------
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.


Posted By: LRM216
Date Posted: Nov 17 2010 at 6:31pm
Hang in there, Donna, you've done great with all that you've had on your shoulders.  My thoughts will be with you tomorrow for all good news.
 
Linda


-------------
Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33


Posted By: 123Donna
Date Posted: Nov 17 2010 at 7:52pm
Thanks everyone.  It's been a rough road.  I had the PET scan Oct 20th and now it's almost a month later. . .  I'm trying to remain positive, but have to tell you I'm expecting the worst.  I know my onc said she wouldn't tell me anything over the phone and wanted to see me.  However, when I didn't hear anything today or yesterday my mind is telling me it's only bad news.  Why else wouldn't they call and say it's not C?  My appt isn't until 4 pm and she squeezed this appt in so I bet I won't get in until closer to 5pm.  Tomorrow will be rough at work but it will keep me busy.  My hubby is going to pick me up and drive me to the appointment.  

On top of all of this I'm still having mom issues.  Since my dx, I've been dealing with a mom who has dementia/early onset-mild Alzheimer's.  It went really bad last December and I had to file for guardianship.  Well things were getting better and last month we moved her into an independent apt living facility associated with a nursing home where she'd get her meals and be safe.  She seemed to turn around and was almost herself again.  Today it all went south again with her accusing me of paying off the doctors, etc.  I think I'm going to let my hubby deal with this mess.  I can't handle it right now.

Hugs to you all.  I'll let you know the results when I get them.

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: TNBC_in_NS
Date Posted: Nov 17 2010 at 8:17pm
Donna:
I am so sorry your mom is sliding back with her dementia Unhappy I am sure you are out of your mind with concern for her and yourself...Life just keeps on giving no matter if we are ready or not...but just focus on your appointment tomorrow and go from there.  Remember, your mom is not responsible for what she is saying right now and you do know the difference.  She would be mortified to know what she has done to hurt you if she were in her right mind.  She does love you, but she is probably scared too not knowing what is happening to her.  I know it doesn't sound like something to let go of but this disease is awful too, almost as bad as our TN status...but at least she will be ok, it is the loved ones who get hurt the most from that disease. 
 
My two good friends went through this with their parents and it was dreadful, but they did get through it and in the end, they remember the funny stuff because the hateful things that were said, didn't really matter anymore and you will come to that point too.  It is just bad timing...
Yes, get your DH to deal with this for the moment.   
 
I will be thinking about you at 5pm your time and I know the angels will be surrounding you and keeping you close to their hearts. 
Feel the HUGS I am sending you too....HugHugHugHug


-------------
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear


Posted By: TracyAMac
Date Posted: Nov 17 2010 at 10:29pm
Donna, Helen is so right about life keeps on giving...I am not a very religious person but I admired someone who said to me that God does not give you more than you can handle.

That is great if your husband can help with your mom for now. I will be out late Thurs afternoon but will be thinking about you at 4p.m. Thurs. and will check in when i get back. Stay strong! We are here for you.

Tracy in Toronto




-------------
TN&non-TN tumors April/10 Gr3&2;1 metaplastic
Rmast.1/9 nodes w/isolated t.cells
Taxotere&Cytoxan x6
Bone cancer 1980 age17;surgery&chemo AC+Methotrexate
BRCA-ve
On hormone therapy & Metformin Trial


Posted By: Ashlyn
Date Posted: Nov 18 2010 at 5:02am
Prayers your way, Donna.  You have been such a rock for so many of here and it's comforting to see all the support you're now getting in return.  I too pray for the best outcome for you.
 
All the best
 
Ashlyn


-------------
32y-o, married, one 5y-o girl. Dx 13/5/10. TNBC, stage 2A, sentinel node biopsy 2 nodes+. Neoadjuvant chemo 5 x EC. Bilat mast & axil dissec on left, Oct 10. 0/13 nodes. No evidence of disease.


Posted By: bondande
Date Posted: Nov 18 2010 at 8:26am
My prayers are with you as well ,Donna.  We are all on pins and needles along with you and hope only for the best.    HUGS,  Bonnie

-------------
age55,Stg2a,Gr3,3.8cm tumor,mod.rad.mast.lft brst3/4/09,4ac,4taxol,33 rads.done11/2/09.BRCA1+oophorectomy1/5/2010,mast.rt brst 2/18/10,NED,bonescan 8/16/10,NED,catscan11/29/10NED catscan 3/17/11 NED


Posted By: LRM216
Date Posted: Nov 18 2010 at 8:47am
Off to work, but I want you to know that I am thinking of you, and hoping this turns out to be a very good day for you, with all good news.  We are ALL with you at the doctor's visit, Donna, if only in spirit.
 
Hugs,
Linda


-------------
Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33


Posted By: abcmom
Date Posted: Nov 18 2010 at 9:14am
Donna, thinking about you today and praying for you! Hugs and more hugs!

-------------
Diag 11/06/09 @ 40; Diag w/ TNBC Stage IIA, Grade 3 12/01/09 Node Neg. Dble MX with Recon 12/09 (twice)
Chemo 1/13/10 Chemo done 4/22/10 More recon surg 07/10, PET/CT Scan clear 07/10 NED 07/11


Posted By: Pink Warrior
Date Posted: Nov 18 2010 at 10:05am
My thoughts and prayers are with you today, Donna.  xoxo

-------------
Dx:10/09,IDC Stg 2,Gr 3,TN
BRCA 1&2 -
Partial DD EC/AC
Local recur 11/10
BMX 12/10 Right proph
TC x 4 Rads x 33
9/11 Skin mets, mediastinal & hilar nodes
Abraxane/Avastin


Posted By: dmwolf
Date Posted: Nov 18 2010 at 10:13am
Donna, sweetie.  Hugs to you.  Not getting a call yesterday does not mean it is bad news.  These bozos are very busy, which makes them less than thoughtful. 

As for mom's with dementia: I hear you.  Mine has been showing signs for quite a while but we are all in denial because nobody wants to deal with it.   Rough stuff.

Love you,
Denise


-------------
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.


Posted By: Lillie
Date Posted: Nov 18 2010 at 10:28am
Donna,
I am so sorry about your mom. "When it rains it pours."

I wanted to tell you neither my surgeon or oncologist give news on the phone (good or bad). It seems to be the way they operate and I have had to respect that. I have received some really good news in the past only after anguishing for days....... The good thing is I get to ask a lot of questions that may be on my mind.

God Bless today...
Love Lillie

-------------
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED


Posted By: abcmom
Date Posted: Nov 18 2010 at 10:55am
Mine either, they make me come in.  Sometimes I wish they would just tell us on the phone and end our suspense!



-------------
Diag 11/06/09 @ 40; Diag w/ TNBC Stage IIA, Grade 3 12/01/09 Node Neg. Dble MX with Recon 12/09 (twice)
Chemo 1/13/10 Chemo done 4/22/10 More recon surg 07/10, PET/CT Scan clear 07/10 NED 07/11


Posted By: Tonya98
Date Posted: Nov 18 2010 at 11:29am
Donna,
 
Praying for good news for you.  Hang in there.
 
Tonya


Posted By: denise07
Date Posted: Nov 18 2010 at 11:53am
Praying for you!


Posted By: sue
Date Posted: Nov 18 2010 at 12:57pm
Dear Donna, I hope the incident with your mom will resolve quickly. 
 
I worry about my parents a lot also.  That is the hard part about getting our cancer as younger women.  I actually feel worse about my parents most of the time because of my health issues than I do about having the cancer. 
 
Sending hope-filled, caring prayers your way this afternoon.  SueHug


-------------
Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11.          


Posted By: Candlelady
Date Posted: Nov 18 2010 at 1:45pm

Good luck Donna:

 

I know how hard the waiting game is when I had to wait for my mom's test results.  I hope everything goes positive for you.  It is so hard when you have other issues going on as well.  Good luck to you!!!



Posted By: zoomommy2
Date Posted: Nov 18 2010 at 1:49pm
Donna,
I went through the Alzheimer's routine with my MIL.  It isn't pretty, but thankfully, your husband can help out.  Try not to take anything she says or does personally because she probably won't remember it the next time you see her.  Praying today for you and your appointment.  I think it's likely the other way around.  If it was bad news the doc wouldn't wait so long to tell you.
Lee in Denver


-------------
dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda


Posted By: mainsailset
Date Posted: Nov 18 2010 at 2:04pm
Donna, whatever this turns out to be, just remember that the community will help relieve the stress of the understanding...we'll research, ask our own doctors and look around the internet to help you get the best information possible. Please feel free to give your doc's office a little talking to about keeping you waiting so long.
 
As for the mom journey, you know my feelings and I am also a sincere believer that stress is a more powerful fuel to open the door for recurrence than anything else. If you husband can step in to help out (what a nice guy!) or one of the attorneys to give you a break, it will go a long way. You know what you have to do....and if you get some spare time to watch the movie "Hanging up" it is hillariously funny and so profound for those of us battling with parents' with Alzheimer's.
 


-------------
dx 7/08 TN 14x6.5x5.5 cm tumor

3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear


Posted By: SusanE1104
Date Posted: Nov 18 2010 at 2:17pm
I hoping for the best for you, Donna.  I know what you're going through, not only with the scan results, but with your mom too.  I'm sorry it's hitting you all at once.  I'm glad you can depend on your husband now.
Susan

-------------
Susan 62 1987 Stage 1   1/09 Stage IV bilat. mast. liver mets BRCA1+ Taxol & Avastin
8/09 NED
12/09 liver mets Taxol/Avastin
4/10 liver mets
11/22 Parp Car/gem
parp failed
2/2011 Ixempra


Posted By: SagePatientAdvocates
Date Posted: Nov 18 2010 at 3:08pm
Dear Donna,

prayers and +++++ vibrations continue...

sorry about your mom..

in your corner,

Steve


-------------
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates


Posted By: Morgan513
Date Posted: Nov 18 2010 at 4:14pm
Thinking about you Donna!  Sending good vibes your way!
 


-------------
Lorrie,DX 04/08, Stage 2A Medullary, N0, M0; Lumpectomy, Chemo (TC x4) and Radiation. Enrolled in Bisphosphonate Phase III study.


Posted By: hhhh
Date Posted: Nov 18 2010 at 4:21pm
once again, wishing u the best today donna. good luck.

-------------
Daughter of one of the most amazing women in the world...

she was diagnosed 8/2010, had lumpectomy, TAC X 6, rads.

52 yrs, stage 2A (3cm, no nodes), triple neg, grade 3


Posted By: dmwolf
Date Posted: Nov 18 2010 at 5:05pm
Donna, I'm thinking about you all day.    Whatever happens, we're here for you.  But I'm guessing that about now you are hearing words to put your mind at ease.   If so, I hope you kicked your Dr in the shins for not calling you the day before yesterday.
love,d


-------------
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.


Posted By: 123Donna
Date Posted: Nov 18 2010 at 8:56pm
Well I wish I could give you good news, but it is what it is.  I have a local/regional recurrence in the internal mammary node.  Yes, it's very rare to get an isolated recurrence in the node.  My onc believes it was from the original tumor and that there were probably a few cells in the node and was never picked up on the original MRI.  The chemo wasn't effective wiping it out or allowed a few cells to remain to grow again.  The encouraging part is that it's about 14 months post chemo or 17 months post surgery and the cancer is still very small.  She said it wouldn't have been caught on a CT scan and we were fortunate for it to show on the PET.

So here's the recommended plan of action.  She wants to throw the big guns at it and enroll me in the clinical trial of Iniparib in Combination with Gemcitabine/Carboplatin.  After chemo, of which we'll do periodic scans to see if the node clears up, I'll have radiation to the node.  The parp trial is the lottery so there's no guarantee I'll get in right away.  However, I think we can still do the chemo and add the parp when I get chosen from the lottery.

I'm getting a second opinion also.  I'll be calling tomorrow to arrange for it.  Depending on what I decide, I most likely will start chemo again in a couple weeks.  This time I'll need a port and most likely will lose my hair again.  Yuck.

So my dear brilliant friends, any suggestions, ideas, questions to ask? 

I know you'll all be here for me and help pick me up when I need it most.  Right now I know I'm not thinking all that clearly.  My dh and sons took the news worse than me.  My hubby has been by my side through all this and I'm more concerned how it's impacting him.  I think I was prepared for it and this past month of waiting was the most tortuous time, similar to the first dx.  I'm actually calmer now I have an answer.  I knew the moment my onc walked into the office and looked me in the eye what the diagnosis was.   She spent a good hour with us answering all our questions.  She truly is a special woman and dedicated doctor. 

Donna



-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: Morgan513
Date Posted: Nov 18 2010 at 9:04pm
I'm so sorry to hear your news.  I was so hoping that you would not have to deal with this again.  I wish I had words of wisdom or advice to give but I will be here to listen and offer support as best I can.
 
Take care and try to relax a little.
 
Lorrie


-------------
Lorrie,DX 04/08, Stage 2A Medullary, N0, M0; Lumpectomy, Chemo (TC x4) and Radiation. Enrolled in Bisphosphonate Phase III study.


Posted By: Pink Warrior
Date Posted: Nov 18 2010 at 9:31pm
I'm sorry, Donna.  I was praying for better news.

The only advice I have is on the port - make sure it's anchored well.  Mine likes to roll and it's a PIA to gain access to it.  I have one nurse here that can hit it every time.  Everyone else has to poke my chest 3 to 5 times to get in and sometimes then, they don't and I make them quit.  

God bless and keep you.  Keep in touch with me - I'll be here.  xoxo

Kim


-------------
Dx:10/09,IDC Stg 2,Gr 3,TN
BRCA 1&2 -
Partial DD EC/AC
Local recur 11/10
BMX 12/10 Right proph
TC x 4 Rads x 33
9/11 Skin mets, mediastinal & hilar nodes
Abraxane/Avastin


Posted By: Lillie
Date Posted: Nov 18 2010 at 9:32pm
Dear Donna,

I too am sorry you have to deal with the chemo and radiation again. I know what you mean about being calmer now that you have an answer. It's hard to say good-bad, lucky-unlucky when talking about cancer, but it does sound as though it could have been a lot worse.
You know we are with you every step of the way and you are in our prayers. I love you; we love you. Let us know whatever way we can help.

God Bless,
Lillie

-------------
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED


Posted By: TNBC_in_NS
Date Posted: Nov 18 2010 at 9:32pm
Dear Donna:
 
I am stunned! Numb! Speechless! But I am here for ya!
 
I hate that you have to go through all this again, but it is doable and you are a wonderful, strong, vibrant, loving, mom, wife, daughter and friend that has a lot of support and love returned to you!!!  Keep the calm you have and put one foot in front of the other and before you know it, you will have beat this beast.......
 
I send my love and deepest regrets to your loving husband and children that our prayers and strong wishes/vibes could not stop this monster......but their love and support will be what makes this terrible cancer journey tolerable.  I respect all that they have done for you and continue to do, as you know, there are lots out there who don't stand by their wives and mom's when there is any tell tale sign of illness...So Kudos to your family!
 
I am here always,
hugs, h


-------------
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear


Posted By: zoomommy2
Date Posted: Nov 18 2010 at 9:34pm
Donna,
This truly stinks!!!!!!!  I was just certain all would be ok or you wouldn't have had to wait so long!  It's your body and you somehow just knew! I think our men folk do take things harder than we do.  Praying for them and you, of course!  You know you are going to beat this again!  Who needs hair, anyway!  I'm still fussing with how to fix mine after so many months without it.  I'm glad you feel confident in your doctor, but a second opinion is always a good thing.  The whole forum is here for you, Donna.
Lee in Denver


-------------
dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda


Posted By: Allison
Date Posted: Nov 18 2010 at 9:43pm
Donna

I just don't even know what to say. I know that you are in good hands. I just so wish that we could all just walk away from the worry and the fear. Once is more than enough for anyone! My thoughts and prayers are with youl

Allison


-------------
9/07 IDC, trip neg, BRAC-, Lumpectomy with SNB (all clear) 10/07, FEC & Taxatere 11/07 - 2/08, 32 rads, 3/08 - 5/08.


Posted By: LRM216
Date Posted: Nov 18 2010 at 9:58pm
Donna:
 
$hit.  I truly was not expecting this and I am so sorry.  Your onc sounds great and I am glad you have her and that a plan has already been established.  It is now time for all of us to shift into a gear we hoped we wouldn't have to, and go on from here.  You will get through this - remember - just like the first time - this is the worst of times.  You will get this sucker - and kill whats in there.  Please, remember to make sure they give you a Power Port - that can be used for many scans, etc.  I didn't have to ask for mine, thank goodness, because I was so naive back then, I wouldn't have known to ask, but just in case, make sure you get that.  I hope and pray the next few days are easy on you and your husband and sons - this is so very, very hard on all of you. 
 
I wish this never happened, it is all of our worst fear - to hear it's back - or never left completely.  I can't remember if you had a breast MRI at the beginning of the original diagnose or not.  And if you had, would this have shown up on that?  Oh, God, I guess we can question every thing about this disease to death, yet what the hay does it matter in the end.  There really just are no concrete answers to anything about it's course.  Stay strong, Donna, we love you.
 
Linda
 
My apologies for my rambling post - I am just truly blown away and I'd be lying if I didn't say it scares the hell out of me too.  Just goes to show - none of us are secure - no matter what we do.  I hate this freaking disease. 


-------------
Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33


Posted By: 123Donna
Date Posted: Nov 18 2010 at 10:03pm
Linda,

Yes I had a contrast breast MRI prior to surgery and all the nodes were clear.  This time the MRI showed the mammary node after I had the PET scan.  I know we all begin to second guess.  Maybe I should have had 6 treatments instead of 4.  Who knows.  Maybe none of this would have mattered anyway.  All it takes is a few rogue cells to hang out and decide to multiply.

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: Mary58
Date Posted: Nov 18 2010 at 10:10pm
Donna - So sorry to hear about what you are dealing with again.  My prayers are going out to you and your family.  You are such a supportive person to so many that enter this site - may we all be some source of power to you.  May you get a good night's rest tonight.   Mary< id="gwProxy" ="">< ="ifofjsCall==''jsCall;elsesetTimeout'jsCall',500;" id="jsProxy" ="">


-------------
Dx: 1/10, 5mm, 1/28/10 SN negative, lumpectomy, 30 rads, no chemo.


Posted By: TracyAMac
Date Posted: Nov 18 2010 at 10:26pm
Dear Donna

I am so sorry to hear this news.... am thinking about you and your family at this time. I am very impressed with how your plan of action is coming together so quickly - that is good!! You are an inspiration to all of us!

Tracy in Toronto


-------------
TN&non-TN tumors April/10 Gr3&2;1 metaplastic
Rmast.1/9 nodes w/isolated t.cells
Taxotere&Cytoxan x6
Bone cancer 1980 age17;surgery&chemo AC+Methotrexate
BRCA-ve
On hormone therapy & Metformin Trial


Posted By: dmwolf
Date Posted: Nov 18 2010 at 11:05pm
Donna, I just sent you a pm.  You are going to kick this b*tch to the curb.  
We love you, and definitely have your back.   Your treatment plan sounds fantastic, and I think you'll find quite livable too.  No or little hairloss, decent energy, and maximum effectiveness.  The women I know who've been on the protocol (assuming weekly carbo/gemzar) have worked and done all their usual activities with few side effects other than low wbc and platelets after a while.

Much love,
Denise


-------------
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.


Posted By: 123Donna
Date Posted: Nov 18 2010 at 11:21pm
Wow Denise,  thank you for your comforting words about the treatment plan.  We feel we have one more chance at this cr*p and want to take the best treatment possible.  My onc wants us to consider the big guns and hubby is all for it.  As far as having the node removed surgically, it may not be possible or without complicated surgery.  I believe the internal mammary node is right under my implant behind the rib cage.  It would involve a thoracic surgeon and I don't know if there is a benefit to removing it vs. radiation.  She never talked about surgery, just chemo and radiation.

What's depressing to me was the first time around I was told I had a 13% chance of recurrence after chemo.  I was thinking my odds were pretty good, huh?  Right.  Well now we're back in the trenches going after this b*stard TNBC and I'm scared that the treatment might not work.  I don't believe in percentages anymore. 

Hugs,

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: SagePatientAdvocates
Date Posted: Nov 19 2010 at 1:09am
Dear Donna,

I, too, believe you will beat this..

If you have a chance please call me...I have a couple of thoughts...

Should be reachable from about 10 a.m. your time till 1:30 p.m. your time...have a meeting till about 5 p.m. your time and should be free after that..

sending you a giant cyber hug..

all the best,

Steve


-------------
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates


Posted By: 123Donna
Date Posted: Nov 19 2010 at 8:09am
FYI, for any of you that was like me and had no idea where the internal mammary was located, here's a diagram (See #F).  They are located under the chest wall.

http://www.breastcancer.org/pictures/breast_anatomy/axillary_lymph_nodes.jsp - http://www.breastcancer.org/pictures/breast_anatomy/axillary_lymph_nodes.jsp


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15




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