Print Page | Close Window

MEMBERS IN YOUR AREA...Are they close?

Printed From: TNBC Foundation
Category: TNBC Forums
Forum Name: Support Groups
Forum Description: Support Groups
URL: http://forum.tnbcfoundation.org/forum_posts.asp?TID=5627
Printed Date: Feb 20 2019 at 7:01am
Software Version: Web Wiz Forums 12.01 - http://www.webwizforums.com


Topic: MEMBERS IN YOUR AREA...Are they close?
Posted By: scared
Subject: MEMBERS IN YOUR AREA...Are they close?
Date Posted: Feb 01 2010 at 1:25am
Hello all,

I was on this forum before under a different name but I forgot it and made this one up, and when we were going through radiation treatment at Swedish Medical Center in Seattle, my wife and I met a member through this web site.

I was wondering if you have met any of this web sites members in person and how did it go?

Does anyone know anybody in the Pacific Northwest.


Dave


-------------
Wife diagnosed 7/08 stage 2B 4.78cm with 3 nodes. 15 weeks of Adriamycin and Cytoxin, Mastectomy, 12 weeks of Taxol, and 6.5 weeks of radiation.



Replies:
Posted By: Carol (Tenn)
Date Posted: Feb 01 2010 at 9:15am
I haven't met anyone yet. I am close to Cristy and Scott, because of Scott's work and am looking forward to meeting them in Union City, TN sometime this spring. Also, Helen's son lives in the Nashville area and we are planning to meet when she comes from NS, Canada to visit him.
If there is anyone else close by, give me a hollar.(that's southerneze for, let me know) LOL


-------------
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13


Posted By: kirby
Date Posted: Feb 07 2010 at 1:48pm
I am surprised this thread hasn't generated more comments. My computer has had major glitches so have not been on much. A group of us from the bay area of Ca. have been meeting for over a year now. With great success. We meet rather randomly, every 6- 8 weeks, maybe less. We pick a spot, hopefully fairly central to encompass those with greater distances. We have anywhere from 5-10 show up. It has been great communicating with others that live our reality. Getting new perspectives. I would say we are mostly social, with a liberal sprinkling of cancer. Especially humor. Any from the bay area are welcome to join us. Let us know who you are.

-------------
kirby

dx Feb. 2001. Age 44
Lumpectomy

2cm. no nodes stage 1 grade 3

4 rnds AC, 35 rads


Posted By: Lillie
Date Posted: Feb 07 2010 at 4:29pm
Hi everyone,

I have not met anyone face to face yet. Who besides myself lives in North Carolina? It would be neat for us Tar Heels to get together.

My husband and I are attending a convention Feb. 12th in Asheville, NC. We will be staying at the "Grove Park Inn"... Anyone here live in that area?

Just a thought!

love in Christ,

Lillie

PS: Yoo Hoo Carol, how far are you from Asheville?

-------------
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED


Posted By: Sethsnana
Date Posted: Mar 02 2010 at 9:57pm
I'm located in Iowa... Anyone on here from there?
 
xoxox
 
Renee


-------------
dx 11/09 1.6 cm IDS (nodes clear), lumpectomy and mammosite radiation. ACx4 + 12 weekly treatments of Taxol, started on 1/5/10.
Completed Taxtol 5/19/10. CT scans lungs,liver clear 6/7/10.


Posted By: Cathy Leigh
Date Posted: Mar 06 2010 at 7:41pm
Hi Carol, I am new to the board and located in Chattanooga, TN.  It is good to see someone from my home state-  I don't know how to read the abbreviations yet, and would like to know if your signature means you have had a recurrence?
 
CathyTongue


-------------
61 years old at dx 12/1/09
Left Mastectomy 2/4/10, 2 sentinel nodes negative and margins around tumor negative
Clean PET/CT scan on 3/2/10
ac/taxol began 4/2011-Finished 9/10. CT Scan 8/11 NED


Posted By: Carol (Tenn)
Date Posted: Mar 06 2010 at 11:58pm

Hello Cathy and welcomeHug...I'm so sorry that you have need of this site but I'm so happy to be here for you on your journey. Wonderful to come here to vent, to share, to encourage, to be encouraged and to not feel like you are all alone in this.

Yes, that's what it means....I had a recurrence just below the incision on my chest wall. I had a biopsy and it was a recurrence of primary tumor. The tumor had unclear margins. Went back for surgery, chest wall excision. I went for full body scan and bone scan in Jan and they were clear. I will see my onc. for a checkup on Tuesday. I will get blood tests and exam.
Sorry it's taken me so long to answer but it was a beautiful day and I stayed out most of it.
I don't know of anyone else from TN on the site.
When will your chemo start and what will it be. Mine was dose dense Adrimyacin/Cytoxen x4 then Taxetere x4 given bi-weekly. Then 35 radiation treatments.
If there's anything else I can help you with, just let me know.
You have found a wonderful, caring, thoughtful and knowledgeable community here It has been a blessing to me. I just wish I would have found it earlier.
Take care and have a wonderful evening, that is if you're still up.
We also have a Spiritual Support thread if that's something you might want to look into.
Love and Prayers,
Carol


-------------
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13


Posted By: KathyB
Date Posted: Mar 07 2010 at 7:40am
I would like to know who lives in the chicago area? I would love to meet up with you. Sometimes I feel so alone here,but I do have wonderful support at the hospital and with my family and friends,but its nice to meet with someone who can truly understand whay you're going thru. I do drive so no problem with that.
KathyB

-------------
diagnosed 10/09 1.7 cm
nodes negative
Stage 1 Grade 3
st chemo 1/10 AC w/avastin 4 cycles,taxol 12 wks w/avastin then radiation 6 wks.


Posted By: Carol (Tenn)
Date Posted: Mar 07 2010 at 8:44am
Dear Kathy,
I was born and raised in Chicago but only have my sisters left there. My sister Gail is a 15 year survivor but not TN. I know there are several here from Illinois but I don't remember exactly who they are. Try posting on another board that is read more frequently like WELCOME NEW MEMBERS OR TNBC TALK.
Love and Prayers,
Carol


-------------
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13


Posted By: Marybk
Date Posted: Mar 08 2010 at 9:58pm
SmileI am in Ohio but could drive out of state.  I have never met anyone else with TNBC and all my friends have told me that since my treatment is done, I should be "over it" and moved on.  I can't discuss my life with them and can't seem to find a support network.  Would love to meet with anyone or chat online/phone.  I am 45.

-------------
age 45, TNBC, 1.9 cm, neoadjuvant chemo (4 AC, 4 Taxol dose-dense), rads, lumpectomy, then IV Zometa 3x, mom of 2 little boys, hubby terminally ill


Posted By: trip2
Date Posted: Apr 03 2010 at 12:20pm
I live in SE Oklahoma.
 
I have met another member, Myrna who lives nearby.  We met for last year's Komen walk in Oklahoma City and had a ball.  Also met Elizabeth and her sister.  They were in Tulsa on business and drove down to my house, 2 hrs to have lunch with us.  What lovely women. 
 
Also have met Steve, he is the same amazing man as he is in the forum. Funny, warm, charming and genuine.  Couldn't wait to give him a big hug.  We met for dinner while he was in Dallas, all of us driving to meet in the middle.  My husband and youngest daughter also were there.  Steve and my daughter clicked and I was so relieved that she was/is receptive to his help with her having my brca 1 mutation.
Also have met many of the Foundation members all of whom are so dedicated to the fight to get rid of this disease.  A year ago last February they flew me and my oldest daughter out to New Jersey to speak at their fundraiser, Tea & Talk, it was all just fabulous and they are all very nice, young hard workers.
 
Meeting even 3 people from the forum is amazing considering I live in the middle of nowhere.Heart


-------------
Stage 2 2003
Stage 1 2007
BRCA 1+


Posted By: Sugar77
Date Posted: Apr 03 2010 at 3:30pm
I live in the Toronto, Ontario area. I wonder if there is there anybody on this forum who lives near me?

Sherri


-------------
DX IDC TNBC Oct. 27, 2009, age at diagnosis 45, Stage 1, Grade 3, <1 cm, 0/2 nodes, lumpectomy, Taxotere/CytoxanX4, finished Feb. 8, 2010, radiation completed Apr. 21, 2010.


Posted By: jadesloge
Date Posted: Apr 03 2010 at 5:57pm
Dave,
I am in the Portland, OR area.


Posted By: mainsailset
Date Posted: Apr 03 2010 at 7:02pm
I'm in middle northern Washington state in a little valley. But Dave, dear friend, I'm coming across the great Cascades this month....am heading to the onc's office in Mt. Veron and then out to see what's left of the Tulip festival....

-------------
dx 7/08 TN 14x6.5x5.5 cm tumor

3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear


Posted By: 123Donna
Date Posted: Apr 03 2010 at 7:12pm
Dave,

My dh aunt and cousin live in Seattle.  We hope to visit them sometime later this year.  Dh Aunt's husband was treated for esophageal cancer at Swedish Medical Center several years ago.  They speak very highly of it.

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: ryleigh0605
Date Posted: Apr 03 2010 at 8:54pm
Hi everyone, I live in Abilene, TX, anyone close by?  Would be nice to meet some of you.  

-------------
Diana, mother of 2, grandmother of 3
dx 8/07
IDC with medullary features, 1.87cm grade 3, stage 1, 1 node-neg, BRCA neg, Biateral 9/07, ACx4


Posted By: spencer
Date Posted: Apr 03 2010 at 9:55pm
Hi Kathy,
I live in NW Indiana. You're the first person I've heard from that lives close to me. It will be 1 year in May that I finished my treatments. If you would like to talk further let me know I can send you an email. Cheree


-------------
Spencer 38 TNBC 1cm stage I grade II Dx Nov 08 BRCA 1 pos bil mast with reconst lymph node neg 4 treat A/C 12 Taxol
tx done May 09


Posted By: hhfheidi
Date Posted: Apr 03 2010 at 11:31pm
Delaware here (for now). Actually a displaced New Englander!
(Home is where the heart is...)


Posted By: EyesOTex
Date Posted: Jun 11 2010 at 7:52pm
I'm in central Texas, about 60 mi. north of Austin.


Posted By: Sugar77
Date Posted: Jun 11 2010 at 10:25pm
We have a group of around 10 ladies with TNBC in Mississauga/Oakville/Toronto area getting together. If anyone who sees this post lives in the area and is interested in joining us, please send me a private message for details.

Sherri


-------------
DX IDC TNBC Oct. 27, 2009, age at diagnosis 45, Stage 1, Grade 3, <1 cm, 0/2 nodes, lumpectomy, Taxotere/CytoxanX4, finished Feb. 8, 2010, radiation completed Apr. 21, 2010.


Posted By: CarynRose
Date Posted: Jun 11 2010 at 10:53pm
I'm in Central NJ, right smack in the middle of the state at it's skinniest part.  People from North Jersey think I'm in South Jersey and people from South Jersey think I'm in North Jersey.  I'm only 45 minutes from NE Philly and about the same time from the Jersey shore.  I know that Outnumbered lives about a half hour from me.  Anyone else??
 
Caryn


-------------
Orig dx 6/03 - St.2a, IDC
gr.3,0 nodes, TNBC/BRCA1+
7/07 St 4 mets to nodes/lungs. PACA/Rads NED 11/07-10/08
Lepto mets 10/08
Rads for 4 brain tumors 4/10.
Leptomets return 6/10


Posted By: janey32960
Date Posted: Jul 01 2010 at 12:08pm
Hi, I live in western Massachusetts.  If anybody is close, I'd like to hear from you.


Posted By: Carol (Tenn)
Date Posted: Jul 02 2010 at 8:26am
Obviously, I am from Paris, TN. That is in the northwest area of the state. Look on the map and find Kentucky Lake and then travel due south. Where the river forks to the west, I live right at the southern tip. Come see me!

-------------
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13


Posted By: Genie
Date Posted: Jul 02 2010 at 12:50pm
I'm in San Antonio, TX. Would love to know if anyone else is in this area. It would be great to meet!

-------------
DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm.
KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC


Posted By: LauraT
Date Posted: Jul 02 2010 at 1:14pm
I'm in a suburb of Atlanta, GA.  Would love to meet anyone close by.
 
Laura


-------------
DX 10/09 @44, Stage I IDC tnbc, DCIS other side, Neoadjuvant TCx4, Bilateral Mastectomy w/Recon 1/10, 1.2cm 0/7 Nodes, 5/11 Mets to Lungs/Lymph Nodes, Avastin/Taxol, 10/11 Bone Mets, Xgeva


Posted By: melwud
Date Posted: Jul 19 2010 at 1:34pm
Caryn,

Im in Toms River area so we must be close....Any other jersey shore ladies out there?

Melissa


Posted By: Cathy Leigh
Date Posted: Jul 19 2010 at 2:50pm
Hi everybody, I am in Chattanooga, Tn

-------------
61 years old at dx 12/1/09
Left Mastectomy 2/4/10, 2 sentinel nodes negative and margins around tumor negative
Clean PET/CT scan on 3/2/10
ac/taxol began 4/2011-Finished 9/10. CT Scan 8/11 NED


Posted By: mamawof4
Date Posted: Jul 19 2010 at 3:30pm
I am just little north of Cincinnati Ohio and would love to find someone close.

-------------
dx 4/9/09 with stage 2a grade 3,one node cancerous, lumpectony,10 radiation treats via mamma site,8 chemo treat with 4 a/c and 4 iexempra thur clinical trial finished 11/25/09 PALB2 gene+


Posted By: CiGi
Date Posted: Jul 19 2010 at 4:29pm

Caryn and Melissa - I'm in Jersey too.  I'm in Bound Brook, work in Princeton.  Grew up in South Plainfield.  Also lived in Middlesex, Avenel and Edison.  Never moved to any other state. 



-------------
Age 40, 4/28/10 lumpectomy (3 cm) TNBC Grade 3 Stage 2 0/3 nodes, TAC 6x 3 week cycles start 6/15 finish 9/27, 33 rounds rads 11/22. BRCA1 & 2 neg. Lymphedema rt hand 8/14. Joint pain Dec 2010.


Posted By: chloesmom
Date Posted: Jul 19 2010 at 6:47pm
anyone from the memphis area?


Posted By: Lisa L
Date Posted: Jul 19 2010 at 7:35pm
Hi all!  I am in Central Illinois.  I also post on the Komen boards and have been able to meet about 20 women from the central US who post there.  I have also been very fortunate to meet or own Rena, who is a lovely person, even though we live thousands of miles apart!  There nothing like meeting a pink sister, or brother!

-------------
Dx 8/05 age 43
mast & lat flap 10/05
Triple neg
BRCA neg
IDC 4.5cm rt br
0/1 sen node
6 A/C 5 Taxol, 25 rads 11/05-6/06
Central Illinois
Currently NED


Posted By: Carol (Tenn)
Date Posted: Jul 20 2010 at 6:52am
Hi,
Well, I see we have a couple of Tennesseans besides myself. I live in Springville, which is about 15 miles from Paris, about 75 miles from Paducah, and 110 or so west of Nashville.


-------------
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13


Posted By: Lillie
Date Posted: Jul 20 2010 at 10:24am
The North Carolina group is on here. In Greensboro, Winston Salem, New Bern, Wilmington and others. Please, if there are others, let me know. I really am interested in getting together. I live near Wilson, NC which is about 50 miles E of Raleigh and 40 miles W of Greenville. Come on Tar Heels.....

Love in Christ,
Lillie

-------------
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED


Posted By: vickyann
Date Posted: Aug 06 2010 at 11:48pm
Hello,
Austin Texas here! go Lornhorns..:-) My daughter is a senior University of TExas, so have to say that!
Healing to all...
 


-------------
Vickyann
Dx Christmas/07
Stage2 Grade 3
no nodule braca neg
lung nodule no growth
TAC x 6 no rad
finished chemo June 08 reconstruction 12/09


Posted By: Lillie
Date Posted: Aug 07 2010 at 11:38am
Hello all,

I do have plans to meet face to face with Lori (Overwhelmed) in Greenville, SC at some future date. She lives very, very close to where my daughter lives and I'll be going there sometime soon.

I'm Also, Leaving On a Jet Plane.
Don't Know When I'll Be Back Again.
Going to see Carol in Tennessee (sometime) (This is a BIG DREAM, but it is possible)

So, God Willing, I'll get to meet some of my precious TNBC friends face to face.

God Bless,
Lillie

-------------
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED


Posted By: LauraT
Date Posted: Aug 07 2010 at 12:14pm

Greenville is just 1 1/2 hours from my house!  Can I come, too?

Laura



-------------
DX 10/09 @44, Stage I IDC tnbc, DCIS other side, Neoadjuvant TCx4, Bilateral Mastectomy w/Recon 1/10, 1.2cm 0/7 Nodes, 5/11 Mets to Lungs/Lymph Nodes, Avastin/Taxol, 10/11 Bone Mets, Xgeva


Posted By: mjhoover@gmail.com
Date Posted: Aug 07 2010 at 4:11pm
San Antonio here!! near babcock and prue rd. heading to md anderson tomorrow for 2nd opinion. go to start cancer center on medical...


Posted By: Lillie
Date Posted: Aug 07 2010 at 4:48pm
Dear Laura,

Imagine, Laura, Lori and Lillie and maybe others.

Of course you can come. The more the merrier. I'm going to see what I can arrange. My daughter's birthday is September 20th, so somewhere around that time may work really well....

God Bless,
Lillie

-------------
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED


Posted By: Genie
Date Posted: Aug 07 2010 at 6:13pm
MJ, I am also in SA - live in Hollywood Park. My onc is Allison Garner with STOH. She is great - she also treated my sister who was also TN.

-------------
DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm.
KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC


Posted By: Teddy
Date Posted: Aug 07 2010 at 9:38pm
I live in Alto tx which is east texas


Posted By: Carol (Tenn)
Date Posted: Aug 08 2010 at 5:51am
Come on Tennessee, Alabama, S. Kentucky, W. Arkansas, N. Georgia. N. Mississippi.....everyone within maybe 200 miles of Nashville.

-------------
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13


Posted By: Katastrophe
Date Posted: Aug 08 2010 at 6:43am
I think im a little further than the rest of you, I am a little left of the milky way, take the big dipper south and turn right at pluto and you will find me.
 
Perth Western Australia .... AKA... another planet
 
Come on down girls, I will have tea and crumpets waiting for ya!
 
Luv Kat xxx


-------------
Age 49. Stg2 gr3 19mm lump in L/br 1 lymph node in L/br 3/14 lymph nod under left arm full clear bil/mast 6rds Chemo 3wkly 25rds Rad 18rds of Avastin finished treatment on 19th August 10.


Posted By: trip2
Date Posted: Aug 08 2010 at 5:13pm
Oh I wish Kat.  I've never had tea and crumpets, would love to do that and visit.
 
I feel like I'm on another planet living in the middle of nowhere in Oklahoma, lol.


-------------
Stage 2 2003
Stage 1 2007
BRCA 1+


Posted By: Carol (Tenn)
Date Posted: Aug 09 2010 at 8:17am
Pam,
Are you originally from OK?


-------------
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13


Posted By: LauraT
Date Posted: Aug 09 2010 at 8:27am

Lillie,

Let me know when and where and I'll do my very best to get there!!

Laura



-------------
DX 10/09 @44, Stage I IDC tnbc, DCIS other side, Neoadjuvant TCx4, Bilateral Mastectomy w/Recon 1/10, 1.2cm 0/7 Nodes, 5/11 Mets to Lungs/Lymph Nodes, Avastin/Taxol, 10/11 Bone Mets, Xgeva


Posted By: Tech girl
Date Posted: Aug 09 2010 at 8:33am
Hi Laura,
I too live in a northern suburb of Atlanta looking for other women who have breast cancer.  I was disgnosed on 4/13/10 with IDC, triple negative, Stage 1 grade 2, breast cancer.  No nodes were positive.  Haven't found a support group or someone else that is experiencing the same thing that I am.  I will be having my last chemo treatment on the 11th and can't wait to be done with chemo.
Would love to hear from you...hope you are doing well.
Karen


Posted By: Carol (Tenn)
Date Posted: Aug 09 2010 at 8:46am
Good Morning Karen  Hug
Welcome to our community. It's sad that we have to be here at all but this is a community of women on "the journey." You will find the most loving, caring, knowledgeable people ready and willing to lend support in any way we can.
This is a wonderful place to "be with" others that are facing the same experiences as you did or will be doing. It's a place where you can vent, as we all sometimes do or let us know about upcoming treatment or test results or praise reports. Speaking of which, I'd like to invite you to visit our Spiritual Support thread if that's something you might be interested in.
It will be a milestone to reach your last tx and I know you will celebrate. Will you be taking radiation?
If you will go to Member Control Panel you will find a place to enter your stats in the Signature area. It will keep you from having to answer the same questions over and over again as each of our members respond.
Again, WELCOME!
Love and Prayers,
Carol  Heart


-------------
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13


Posted By: Tech girl
Date Posted: Aug 09 2010 at 1:27pm
Hi Carol,
Hope you are doing well today.  thanks for the information about where to put my description...I think I have it fixed now.
I would be interested in your spiritual thread so if you want, you can send me the info.
Do I understand that you have had a return of your cancer?  My doctor has told me that with triple negative cancer if will return sooner than later.  I have to admit that that scares me to death to have it return.  How are you doing?  Are you in any treatments right now?  I pray that it will go away for good. Please hang in there!
I look forward to talking with other women who has this disease.  We are strong and we will get through this.Smile


-------------
Karen-55yrs old
DX 4-13-10
Triple Negative, IDC, Neg Nodes, 1.9 CM
Stage 1, Grade 2
Lumpectomy/Reduction 5-10, Cytoxin & Taxotere X 4
Rads 6 1/2 weeks


Posted By: overwhelmed
Date Posted: Aug 09 2010 at 1:52pm

Laura,

Then I am a 1 1/2 from you.  So, you must be from the NE side of Atalanta.  You are welcome to join Lillie and I when we get together.  Anyone else near Greenville, SC?
 
Lori/ Overwhelmed


-------------
DX ILC TNBC 3/10 at 50, Stage IIb; Grade 3; 5.1 to 7 cm,SNB neg;TC-6 rnds, 30 rads, Avastin-18 rnds, BRAC 1&2-


Posted By: overwhelmed
Date Posted: Aug 09 2010 at 1:57pm
You too Tech Girl.  Once Lillie comes our way, we can all meet.  I do have a friend from Greenville who is TN and a little over three years out.  We met after finding from another friend that we had this in common.  She's been a great support for me.  For those of us recently diagnosed it is great to see people like her and like Lillie who are a few years past treatment.

-------------
DX ILC TNBC 3/10 at 50, Stage IIb; Grade 3; 5.1 to 7 cm,SNB neg;TC-6 rnds, 30 rads, Avastin-18 rnds, BRAC 1&2-


Posted By: Carol (Tenn)
Date Posted: Aug 09 2010 at 4:19pm

Karen,

Yes, I've had a recurrence. One year practically to the day from my original diagnosis. I took another round of radiation with it. I had a scare last month, had it biopsies and it was negative...!
I am doing great now. The fatigue gets better all the time.
The Spiritual Support thread is right here on tnbcf. Just clk on the "Forum Jump" in the lower left corner and clk on Support Groups and then Spiritual Support. Look forward to seeing you there.
If you have any other questions that I or someone else can help with, don't hesitate to ask.
Try not to scared about recurrence. We can spend the rest of our life being scared, worrying and all the other useless things or we can look forward to each new day and live it to the fullest. Believe me I know it's easier said than done. But it's something I try to do each and every day and I hope you will too. And you know, this is a great place to vent those fears...I've done it a few times myself..ha...Moi???? Yep, sure have!!
Love and Prayers,
Carol
 


-------------
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13


Posted By: LauraT
Date Posted: Aug 09 2010 at 5:58pm
Lori-Yes! I would love to join you guys!  Have car, will travel:).  Depending on the traffic, it may take me a bit longer to get to Greenville area, but that's OK, it would be SO worth it to meet some of my very special sisters.
 
Karen-we're neighbors!  I live in Johns Creek.  There HAVE to be more of us in a big city like Atlanta.  Maybe you and I can get together and start from there.  It looks like our diagnosis and treatment was similar.  So glad that you found us even though I wish it wasn't because of tnbc!
 
Love,
Laura


-------------
DX 10/09 @44, Stage I IDC tnbc, DCIS other side, Neoadjuvant TCx4, Bilateral Mastectomy w/Recon 1/10, 1.2cm 0/7 Nodes, 5/11 Mets to Lungs/Lymph Nodes, Avastin/Taxol, 10/11 Bone Mets, Xgeva


Posted By: trip2
Date Posted: Aug 09 2010 at 6:53pm
Hi Carol,
 
No I am not from Oklahoma.  We moved here about 20 years ago from S. CA.


-------------
Stage 2 2003
Stage 1 2007
BRCA 1+


Posted By: trip2
Date Posted: Aug 09 2010 at 7:00pm
Hi Karen and welcome,
 
Congratulations on approaching your last infusion.  That last day when you step out of that chair feels sooo good.
 
It's pretty hard to find other tn's out there, another reason why this forum works so well since we can come together from around the world.
 
How have you been doing, getting along pretty well or having problems with your chemo?
 
I want you to remember that this does not come back to everyone.  The first few years after treatment they will watch you closely then your chance of it coming back starts to drop.
 
I have had tn twice, 2003 and 2007, now out over 3 years from the second time.  I plan on being done with it this time.Wink
 
Look forward to hearing from you,


-------------
Stage 2 2003
Stage 1 2007
BRCA 1+


Posted By: Peaches
Date Posted: Aug 26 2010 at 11:17pm
Aloha From Ft Worth, Texas.
Any other cowgirls in the sisterhood? 


-------------
Double Mast 1-21-10
Invasive Ductal
Stage 3, Grade 3
2+ Lymph nodes of 21 LN removed
Chemo 4 of AC, 4 of Taxol
Radiation-28 tx


Posted By: briestarr
Date Posted: Aug 27 2010 at 4:27am
I am in Reno, NV.  And I feel all alone in this mess...  now that I know exactly what I am up against.
No one here has heard of TNBC, I even had to explain it to two other BC patients!!  Wow, I am glad I found this site!  I think it would be a good idea to make up a map of where we all are from!! 
What do ya think? 


Posted By: Carol (Tenn)
Date Posted: Aug 27 2010 at 6:22am
Now that sounds interesting. Just how would you do that?

-------------
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13


Posted By: TNBC_in_NS
Date Posted: Aug 27 2010 at 10:47am
I would think that admin could do this for us as a separate page in the Forum.  They would be the only ones to update the map due to programming but we certainly can send our locations to them to pin mark the map for us to view.  This could be something to ask for too.
What do you think?  Set up a forum to survey this question? h.


-------------
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear


Posted By: briestarr
Date Posted: Aug 27 2010 at 11:45am
Yep yep... that does sound good!!  Like a google earth map!!

-------------
DX TNBC Feb 2010
age 48
Lumpectomy 2cm
6 nodes removed, all clear
Chemo A/C and Taxol 8 sessions
Radiation 33x
BRCA 1 and 2 negative


Posted By: trip2
Date Posted: Aug 27 2010 at 11:49am
Love the map idea, gives a better perspective of where we all are, hope something can be arranged.

-------------
Stage 2 2003
Stage 1 2007
BRCA 1+


Posted By: briestarr
Date Posted: Aug 27 2010 at 11:53am
Kirby
...
I am in Reno.  When are you going to meet again?  It would be nice to chat with you gals!!
 
Brie


-------------
DX TNBC Feb 2010
age 48
Lumpectomy 2cm
6 nodes removed, all clear
Chemo A/C and Taxol 8 sessions
Radiation 33x
BRCA 1 and 2 negative


Posted By: CiGi
Date Posted: Aug 27 2010 at 12:55pm
I'm on the east coast, Bound Brook New Jersey!  Anyone one from central Jersey??

-------------
Age 40, 4/28/10 lumpectomy (3 cm) TNBC Grade 3 Stage 2 0/3 nodes, TAC 6x 3 week cycles start 6/15 finish 9/27, 33 rounds rads 11/22. BRCA1 & 2 neg. Lymphedema rt hand 8/14. Joint pain Dec 2010.


Posted By: Neal
Date Posted: Aug 27 2010 at 1:40pm
Lilly, Laura et all.... I live in greensboro, NC but have people everywhere in the south. My father lives in Nashvillle and have sister in Gastonia, NC also. We are doing a road trip in Sept. doing cancer walk in Gastonia Sept. 6 and then to Nashville and then onto Maryland with stop in Va. to watch my son play high school soccer. Have friends in Wilson and also Greenville SC too!! Would love to meet some of my forum friends.



Posted By: Shelly Rae
Date Posted: Aug 27 2010 at 2:45pm
Anyone from Minnesota?
I am about 1.5 hours from Mpls / St. Paul


-------------
4/09 age 47 Stage 3a, Gr 3,1 node micro ACx4 Tx4 Rads x 33, done Dec.1,2009 NED


Posted By: Lillie
Date Posted: Aug 27 2010 at 5:16pm
Neal,
I live about 8 miles from Wilson. Lived in Wilson for over 30 years. Who are your friends in Wilson? I have a daughter in Greenville, SC. I will be making a road trip to SC sometime around Sept. 20th. My daughter's birthday. I go I-85 right by Greensboro to get to Greenville, SC. A member Lori Pumphrey lives In Greenville, SC and we are planning to get together. Also, Laura from Atlanta might meet up in SC with us. So...... I am dreaming big. Some of us girls are going to meet face to face one of these days soon. I can feel it.... OK, What do ya think?

God Bless,
Lillie

-------------
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED


Posted By: briestarr
Date Posted: Aug 27 2010 at 5:46pm
We are all over the United States!!  How did this happen??

-------------
DX TNBC Feb 2010
age 48
Lumpectomy 2cm
6 nodes removed, all clear
Chemo A/C and Taxol 8 sessions
Radiation 33x
BRCA 1 and 2 negative


Posted By: Lillie
Date Posted: Aug 27 2010 at 5:47pm
Hi All,

I have also been in touch with Dawn in Greenville, NC. We live about 40 miles apart, so I feel sure she and I will be getting together sometime. ALSO, I have a friend in Paris, TN named Carol French... Does that name sound familiar to anyone???? She and I are going to meet one day also. Sooner or later. Earth or Heaven. Man...I am dreaming BIG??? I better check my bank account.

It doesn't hurt to dream. Usually, if my brain works long enough on a plan, with God's help, sometimes it comes to fruition.

Love,
Lillie

-------------
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED


Posted By: Neal
Date Posted: Aug 27 2010 at 7:07pm
My sons attend Woodberry Forest in Virginia (boys boarding school). The Fleming family (jack and mom and dad Jane & Pat are from Wilson).  

-------------
DX 09/29/2008 Tn Grade 3 2A 2M/Lumpt. 10/08 SN Negative
ACT/Avastin Trial Placebo/Rad. NED Age 53---2 Sons


Posted By: Neal
Date Posted: Aug 27 2010 at 7:10pm
I would love to meet you guys wherever you are going to get together. Please let me know when you are going to meet. I will try and be there as I feel so lonely sometimes with this.
Neal


-------------
DX 09/29/2008 Tn Grade 3 2A 2M/Lumpt. 10/08 SN Negative
ACT/Avastin Trial Placebo/Rad. NED Age 53---2 Sons


Posted By: bashamk
Date Posted: Aug 27 2010 at 8:48pm
Count me in! I'm in Charlotte, NC.

-------------
dx 6/25/09 age 45, IDC TNBC,
stage 1, grade 3, 1.5 cm
Lumpectomy, T/C x 4, 33 rads
Dx Dec 2015 Stage 4 metaplastic
Cell growth on nerves in shoulder to rt arm; mediastinal nodes; Bone; skin mets


Posted By: bashamk
Date Posted: Aug 27 2010 at 8:49pm
Almost makes you wonder if there is something in the water down here... ;)

-------------
dx 6/25/09 age 45, IDC TNBC,
stage 1, grade 3, 1.5 cm
Lumpectomy, T/C x 4, 33 rads
Dx Dec 2015 Stage 4 metaplastic
Cell growth on nerves in shoulder to rt arm; mediastinal nodes; Bone; skin mets


Posted By: overwhelmed
Date Posted: Aug 27 2010 at 8:56pm

Charlotte isn't far from Greenville, SC.



-------------
DX ILC TNBC 3/10 at 50, Stage IIb; Grade 3; 5.1 to 7 cm,SNB neg;TC-6 rnds, 30 rads, Avastin-18 rnds, BRAC 1&2-


Posted By: bashamk
Date Posted: Aug 27 2010 at 9:00pm
Just over an hour from Charlotte to Greenville? And, good shopping in between - Gaffney outlet. We need to get together sometime!

-------------
dx 6/25/09 age 45, IDC TNBC,
stage 1, grade 3, 1.5 cm
Lumpectomy, T/C x 4, 33 rads
Dx Dec 2015 Stage 4 metaplastic
Cell growth on nerves in shoulder to rt arm; mediastinal nodes; Bone; skin mets


Posted By: kirby
Date Posted: Aug 28 2010 at 1:59am
Briestarr,
 
we meet up intermittantly. Generally San Francisco/ Berkeley. We last met in June. Send me your email address or contact Suzanne on this site. She is [thankfully] our coordinator. If you have an idea of when you may be coming down or would like to throw the date out that will be cause for us all to get together.


-------------
kirby

dx Feb. 2001. Age 44
Lumpectomy

2cm. no nodes stage 1 grade 3

4 rnds AC, 35 rads


Posted By: briestarr
Date Posted: Aug 28 2010 at 2:37am
I am going back to work on Monday...  I won't be coming over the hill anytime soon, I have to get used to working all over again, been off for 6 months. And I just was there for my daughters kidney transplant that happened right in the middle of my Chemotherapy!  But, in case I do, I will email you or Suzanne.  Do you know anyone in Reno?  mailto:beebear1961@yahoo.com - beebear1961@yahoo.com   I really like this site...
I am glad I have met all of you!!
Brie


-------------
DX TNBC Feb 2010
age 48
Lumpectomy 2cm
6 nodes removed, all clear
Chemo A/C and Taxol 8 sessions
Radiation 33x
BRCA 1 and 2 negative


Posted By: vickyann
Date Posted: Aug 28 2010 at 11:52am
It is true very few ppl know what triple negative is, sadly...
I love the connection with others on this site.
Sometimes I feel this is a new york site, resources, founders etc.
I think 85% of ppl are positive and only 15% are negative.
So of course the money for cancer goes to the 85%. I wish we could
see money is really being spent on ther 15% It is my understanding
that the para is for recurrance. There still is nothing for prevention after
chemo. What do you think???

Austin Texas here...


-------------
Vickyann
Dx Christmas/07
Stage2 Grade 3
no nodule braca neg
lung nodule no growth
TAC x 6 no rad
finished chemo June 08 reconstruction 12/09


Posted By: mjhoover@gmail.com
Date Posted: Aug 28 2010 at 1:54pm
Hi Vickyann!
 
We are neighbors! I live in San Antonio and there is one other woman on here from San Antonio also. She is going to meet with me when I have chemo next Thursday. We have already talked on the phone. I have been to MD Anderson and have come home to have my treatments with the Start Cancer Center here in the Medical Center on the Northwest side. Feel free to drop me an email if you want to chat! my email is mailto:mjhoover@gmail.com - mjhoover@gmail.com I am also noticing that there is little research on TN. I just got dxed with recurrence to lungs, a couple lymph nodes and abdomen. A little of the tumor (30%) is Estrogen positive in the abdomen and 10% in the lung they biopsied at MDA. The oncologist I saw is a specialist and resarcher in TNBC. Her name is Dr. Gonzalez Alulo (not sure I have the second name spelled right). She has been doing research for several years on TNBC and it does seem to be the up and coming research. They had a symposium about TNBC at the Breast Cancer lecure series here in 2008. A bunch of oncologists come from all over to learn about breast cancer and it is held in December of each year right here in San Antonio. I am going to see if I can attend this year especially with all the clinical trials out there for Parp Inhibitors. I have to have one recurrence 'fail' before I can get into a Parp Clinical trial. I am currently on Avastin and Abraxane to see if the tumors will shrink and eventually go into remission. That is the hopel I have just completed my second round of chemo have one more to go and one week off, then do it all over again. Time will tell! Good to meet another Texan on here:) MJ


Posted By: janinvan
Date Posted: Aug 28 2010 at 4:55pm
Dave.......I'm in Vancouver, B.C.-- CANADA.....recently retired school teacher- who is going through recurrence of tnbc after late 1996 original.
I will probably have surgery soon for the swelling near/around my collar bone--which became worse during a 3/4 dose of oral capecitabine (xeloda)---broke through the skin--became necrotic gradually---even while on another chemo
I have good doctors-- but...?
If you want.. you could PM me, and even share your phone number ( I wouldn't bother you---I'm too busy)
Janice


Posted By: pamurph
Date Posted: Aug 31 2010 at 10:50pm
Hey Peaches, I will in Arlington, TX and would be interested in meeting with you. I saw earlier someone from Abilene, Tx and that isn't too far with you in the middle. Let me know if you are interested.

-------------
Dec 2009
IDC 1.6 Stage 1 Grade 3 Lt Lumpectomy, mammosite radiation completed; 6 Taxotere/Cytoxan treatments-1-4 2010. Port out 6/3. Rt breast LCIS dx 8-2010. Bil Mx 9/2/2010 w/ reconstruction


Posted By: Genie
Date Posted: Sep 01 2010 at 9:13am
M.J., I live in San Antonio also. Vickyann, my daughter lives in Austin so I visit with her in Austin occasionally. Would love to meet both of you.

Genie


-------------
DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm.
KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC


Posted By: Carol (Tenn)
Date Posted: Sep 01 2010 at 3:14pm
Ok West Tennesseans, Southwestern Kentuckians, South Eastern Missouri........I know you have to be out there somewhere. We can't let the Texans outdo us!

-------------
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13


Posted By: vickyann
Date Posted: Sep 01 2010 at 10:12pm
Genie,
Let me know whe you are in Austin... I am taking my mother to her first chemo wednesday,port friday...Going back in there is hard for me......Cant let her down, is it ok that i hate this....for both of us......
 


-------------
Vickyann
Dx Christmas/07
Stage2 Grade 3
no nodule braca neg
lung nodule no growth
TAC x 6 no rad
finished chemo June 08 reconstruction 12/09


Posted By: Genie
Date Posted: Sep 01 2010 at 10:28pm
Vickyann, I am planning on coming to Austin on Sept. 11 to see my daughter. Maybe we can make arrangements to meet. She lives on the south side of Austin. Where in Austin are you located?

You & your mom are both in my thoughts and prayers. I know you will be a great support for your mom even though this is hard for you.


-------------
DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm.
KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC


Posted By: ozogsmom
Date Posted: Sep 02 2010 at 2:52am
Guess i'm the only one so far from Michigan!! Anyone from the northern states?


Posted By: artlab
Date Posted: Sep 02 2010 at 7:05pm
I have not met anyone from this forum...but I have met two women that were on the Komen forums with me.  This past summer I traveled to NH to spend time with a former college roommate...and she was kind enough to drive me to Maine to meet my Komen friend.  Another friend was traveling to Long Island to visit an elderly aunt in an assisted living facility...and she was kind enough to stop on the way to have lunch with another Komen friend.
 
We had all gone through chemo/radiation during the same time period...it was fun to meet each other, talk, compare length of hair, curls, gray, etc.  I hope to meet yet another person in MD this fall.  I will be traveling to a convention in Baltimore.
 
I would highly recommend taking the opportunity to do this....of course, keeping safety in mind!!  The first trip, my friend was with me...but we did go to the person's home.  I had so much communication with her on both Komen and FB that I felt it was "safe".  The second person we met at a diner...both convenient and safe!!  (My children were concerned about this aspect of the meetings!)
 
I live in New Jersey.


Posted By: briestarr
Date Posted: Sep 02 2010 at 8:25pm
I am still looking for someone in the west!!  There has to be someone here in Reno!!  I feel like I am the only one!!
 
Brie


-------------
DX TNBC Feb 2010
age 48
Lumpectomy 2cm
6 nodes removed, all clear
Chemo A/C and Taxol 8 sessions
Radiation 33x
BRCA 1 and 2 negative


Posted By: Cathy Leigh
Date Posted: Sep 03 2010 at 1:08pm
Carol, I seem to be the lone wolf from East TN, Chattanooga, I come to Nashville occasionally, maybe we can plan to see each other.

-------------
61 years old at dx 12/1/09
Left Mastectomy 2/4/10, 2 sentinel nodes negative and margins around tumor negative
Clean PET/CT scan on 3/2/10
ac/taxol began 4/2011-Finished 9/10. CT Scan 8/11 NED


Posted By: tnbcsucks
Date Posted: Sep 03 2010 at 1:14pm
Where in MIchigan?


-------------
TNBC DX April, 2010,Lumpectomy May 3.5cm with clear nodes,Stage 2, Grade III Started Chemo on June 7: 4 A/C every other week and then 12 weeks of Taxol. followed by 6 weeks of radiation.


Posted By: TNBC_in_NS
Date Posted: Sep 03 2010 at 2:21pm
Well gals, I am in Nova Scotia Canada.  There are a few members from Toronto and Niagra Region, but I have yet to meet someone from Nova Scotia.  Although, my son-in-law's sister has been diagnosed with TNBC last month and has since had her mastectomy and is doing well.  Bless her heart! Keep trying, I am sure we will hit someone in the area.Wink 


-------------
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear


Posted By: outnumbered
Date Posted: Sep 03 2010 at 4:39pm
I am in Central NJ. I think there are several of us...
Maybe we can get together and bring dinner to Caryn...

-------------
~Sara

DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG

BMX (nipple-areola-sparing) 8/5/08

Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09

BSO 9/3/09

NED since 08/05/2008


Posted By: Debris
Date Posted: Sep 03 2010 at 5:27pm
Helen,
 
Good luck with Hurricane Earl headed your way!  Stay safe, and dry!


-------------
4/12 Xeloda/Tykerb
2 Carboplatin
12/11 Dx IA
9 Gemzar/Taxotere Dx IBC:FEC
5 Ixempra/Sprycel
2 25 Rad
10/10 BRCA1-/2suv
9 NED
6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin
06/08 Dx DCIS 0/SN Rads/AIs


Posted By: Rudy
Date Posted: Sep 03 2010 at 5:56pm
Hi,
Well, the water must be pretty good here because it seems I'm the only one from Florida. 
Atlanta girls would be my best bet, but not traveling much at the time.   BUT, if you get a wild hair and want to visit Orlando, let me know!
Ruth


-------------
57 yrs/dx 3/24 IDC/Stage 2 Gr3 3.5cm Cl trial (Ad/Tax)neoadj. chemo April. BiMX with exp June. ACx1 July. Implants August. Started chemo again Sept. A/Cx2. Called it quits Oct. Port removed Nov.


Posted By: Susie
Date Posted: Sep 03 2010 at 9:02pm
Alabama Calling Alabama!! I am getting in to this late.. I actually know of 4 of us in Birmingham with TNBC!! One dx about 3 weeks ago.
Anyone else from Alabama, somebody Huntsville...?

-------------
dx 10/08,age 56,.75 cm. Stage1 Grade3,lumpectomy,SN neg..,AC 12/08-02/09,35rads,03/09-05/09,BRCA2+(E1415X),06/09,oophorectomy 10/09,
Zometa - IV/mo.,07/09-08/10, lumpectomy #2 10/20/10 NED


Posted By: Carol (Tenn)
Date Posted: Sep 04 2010 at 8:44am
How about we call a mass meeting in Nashville. Seems like it might be a middle of the area thing...how far is everyone from Nashville.
I am about 120 miles west.


-------------
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13


Posted By: LauraT
Date Posted: Sep 04 2010 at 9:09am

Nashville is a short 250 miles from Atlanta!

Laura



-------------
DX 10/09 @44, Stage I IDC tnbc, DCIS other side, Neoadjuvant TCx4, Bilateral Mastectomy w/Recon 1/10, 1.2cm 0/7 Nodes, 5/11 Mets to Lungs/Lymph Nodes, Avastin/Taxol, 10/11 Bone Mets, Xgeva


Posted By: Lillie
Date Posted: Sep 04 2010 at 12:00pm
Hi Carol,

I don't know how many miles for me, but I can get a flight from Raleigh/Durham to Nashville for $124.00.   So count me in if it comes to pass.

God Bless,
Lillie

-------------
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED


Posted By: briestarr
Date Posted: Sep 04 2010 at 12:55pm
I am going to Atlanta in April...  for my 50th birthday... never been there and met friends there that have a home on the lake....(don't ask me which lake)  LOL.  I am looking forward in going.  I am going to stay about a week, so if anyone wants to meet up then, that lives in GA... let me know...
We will all plan a group hug event!!
I haven't met anyone here in Reno yet!!
 
Brie


-------------
DX TNBC Feb 2010
age 48
Lumpectomy 2cm
6 nodes removed, all clear
Chemo A/C and Taxol 8 sessions
Radiation 33x
BRCA 1 and 2 negative


Posted By: Carol (Tenn)
Date Posted: Sep 04 2010 at 1:14pm
Let's see....
 
Lillie can fly into Nashville, Brie and Laura can drive up from Atlanta...suzie is in Chattanooga...(I think it's suzie...) Suzie might be in B'ham..she can drive up..suzie is pretty near too...
That's 6 so far....
When in April...
Lillie, is that round trip or will I get to keep you?


-------------
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13


Posted By: Lillie
Date Posted: Sep 04 2010 at 1:59pm
Hi Carol,

Man, this is sounding good to me. A group of TN sisters all in the same place at the same time. WOW

As for being able to keep me. If I get a one way ticket (Don) would have to come with me. He says if I ever leave him, he is coming too. If I get a round trip ticket, I think I could persuade him to stay behind for a few days......... Although, once I flew to spend a week with my daughter in SC and my son called and said, "Mamma, when are you coming home? Daddy is pitiful without you". I didn't know whether to be happy or mad. A grown man who can't fend for himself for a week is "pitiful".....

God Bless,
Lillie



-------------
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED


Posted By: Susie
Date Posted: Sep 04 2010 at 6:18pm
Birmingham is a little less than 3 hours driving from Nashville!! Count me in!!

-------------
dx 10/08,age 56,.75 cm. Stage1 Grade3,lumpectomy,SN neg..,AC 12/08-02/09,35rads,03/09-05/09,BRCA2+(E1415X),06/09,oophorectomy 10/09,
Zometa - IV/mo.,07/09-08/10, lumpectomy #2 10/20/10 NED



Print Page | Close Window

Forum Software by Web Wiz Forums® version 12.01 - http://www.webwizforums.com
Copyright ©2001-2018 Web Wiz Ltd. - https://www.webwiz.net