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Just Finished Chemo and Looking Ahead

Printed From: TNBC Foundation
Category: TNBC Forums
Forum Name: Welcome New Members
Forum Description: A place to introduce yourself to our community
Printed Date: Jan 16 2019 at 9:39pm
Software Version: Web Wiz Forums 12.01 -

Topic: Just Finished Chemo and Looking Ahead
Posted By: JenHammer
Subject: Just Finished Chemo and Looking Ahead
Date Posted: Jan 11 2019 at 12:17pm
Hello! I was diagnosed with TNBC (Left breast, Stage IIB) on May 31 of this year and have been watching these forums since I found the site in August. Everyone on here is so positive; I can't thank you all enough for making this journey a little easier - even being a watcher and not an active participant. So finally I am saying hi. 

I started chemo on July 5 and just finished up yesterday (4 AC and 12 Taxol with Carbo mixed in every three weeks) and from my last ultrasound in November know that I have a partial response. Hey, I'll take that - at least there was response. I'm planning a double mastectomy next month as "the girls" are super dense and this diagnosis was made thanks to my annual mammogram. Obviously I can't be trusted to know my own boobs well enough! LOL. (I've been getting mammys since I was 35. 49 now so A LOT of life left to live!) 

My medical oncologist has already talked to me about the option of taking Xeloda after surgery and possibly getting into a trial as well. I've read the threads and reports regarding Xeloda and, at this moment, I don't know if my cancer is basal or non-basal. Ultimately I am willing to do whatever I can to try and keep this sucker at bay.

My tumor was bi lobed and one part seems to have responded better than the other so after surgery they are going to test what is remaining to make sure there isn't some bit of positive receptors hanging out in there. My medical oncologist said it is rare but it does at times happen. I am all about the checking! 

Again, I can't say how much this site has meant to me and I am thankful for all of you and your words of encouragement to those of us new to the forum.

I'm sure I'll be back in here, now that I've made the leap into saying hi, bugging you all for advice, suggestions, etc.

In a nutshell - HI!

IDC, 3.1 cm, Stage IIb, ACx4 (finished 9/6/18), Carbo/Taxol weekly for 12 weeks (started 9/27/18), surgery to follow, and then radiation

Posted By: 123Donna
Date Posted: Jan 11 2019 at 12:42pm
Hi Jen,

So glad this forum has been a help to you.  I've always thought this is a group of the most wonderful people helping each other.  Your dx was the same age I was.  I had dense breasts and my ob/gyn started mammograms when I was in my late 20's.  He was concerned about the density.  It's how we detected my bc at age 49.  I was blown away when I got the call back.  Definitely be proactive post surgery and look into all choices available to you.  You have to be your best advocate.  Let us know what the path report finds.  Wishing you the best!


DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Posted By: TKTK
Date Posted: Jan 12 2019 at 12:00am
I started my 4 AC and 4 Taxol treatments every two weeks starting September and just finished last week. Have a double mastectomy scheduled next month.

My doctors seem to think that based off of the results from the surgery, I may not even need radiation, and they certainly have not talked about continued chemo treatment like Xeloda or clinical trials... Now I'm concerned whether they aren't being combative enough.

Thanks for sharing your plan. I'll follow up with my doctor to ask...

Wish you all the best!!!

DX 8/27/2018 TN, ki67=72%, 3 nodules lumped together measuring 5cm, 0/1 nodes, AC & Taxol 4 rounds each, RAD51D+, BMX with no reconstruction scheduled for 2/11/2019

Posted By: Lisa s
Date Posted: Jan 12 2019 at 12:34am
Talk to your doctors.  Possibly they r waiting for surgery to see if you have a pathological complete response to treatment? If so no more chemo should be needed. i  believe xelod a is usually added after surgery if cancer still exists.  Donna can probably confirm this?

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