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Metastatic TNBC

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Category: TNBC Forums
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Forum Description: A place to introduce yourself to our community
URL: http://forum.tnbcfoundation.org/forum_posts.asp?TID=13266
Printed Date: Aug 17 2018 at 2:35pm
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Topic: Metastatic TNBC
Posted By: ms11
Subject: Metastatic TNBC
Date Posted: Jan 16 2018 at 3:44pm
Has anybody had a primary ER+/PR+ breast cancer that metasized to a triple negative breast cancer at another site?



Replies:
Posted By: 123Donna
Date Posted: Jan 17 2018 at 8:52am
http://www.ascopost.com/issues/january-15-2012/expert-point-of-view-us-perspective/" rel="nofollow - http://www.ascopost.com/issues/january-15-2012/expert-point-of-view-us-perspective/




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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: ms11
Date Posted: Jan 17 2018 at 2:12pm
Thanks for the reference.


Posted By: MikeW
Date Posted: Jan 18 2018 at 11:40am
My wife's estrogen positive changed to triple negative about 8 months ago. She's on Xeloda and it seems to be working; numerous small mets to spine gone and only a couple stubborn mets left. Dr says Xeloda is effective but slow acting.


Posted By: Hockeymom04
Date Posted: Aug 08 2018 at 5:17pm
In 2004, I was diagnosed with ER+ PR-, Her2 Neu - breast cancer. 10 months later, after dose dense chemo and radiation and a complete hysterectomy, I was diagnosed as stage 4 as they found it in my ovaries. For 10 years I was stable on and aromatase inhibitor. Then, my tumor markers went up gradually and my scans started showing obscure readings in my colon. After two years, I had an abdominal laparoscopy. I was now triple negative. (Making a long story short). I have been on Abraxane, and recently Gemzar and will start Xeloda on Monday. I, too, am looking for those who were once ER positive and now TNBC, especially if metastatic. I have it in my bones and my colon. Any contact with others like me is welcomed.


Posted By: 123Donna
Date Posted: Aug 08 2018 at 7:49pm
A couple other threads that might offer more information on receptor status changes:

http://forum.tnbcfoundation.org/tumors-can-change-biologically-as-they-progress_topic10057_post103569.html?KW=Change#103569" rel="nofollow - http://forum.tnbcfoundation.org/tumors-can-change-biologically-as-they-progress_topic10057_post103569.html?KW=Change#103569

http://forum.tnbcfoundation.org/advice-please-change-in-er-after-chemo_topic11577_post117758.html?KW=Change#117758" rel="nofollow - http://forum.tnbcfoundation.org/advice-please-change-in-er-after-chemo_topic11577_post117758.html?KW=Change#117758




-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: Hockeymom04
Date Posted: Aug 09 2018 at 2:11pm
Thank you for the links. I appreciate the information. Can you tell me if you are currently on any type of treatment? And, if so, what, as well as, how are you doing?


Posted By: 123Donna
Date Posted: Aug 09 2018 at 5:02pm
Hockeymom,

I'm currently NED (no evidence of disease) and not in treatment.  I was dx in 2009 and then again in 2010.  I finished treatment in 2011.  I see the oncologist once a year now.

Donna


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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15




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