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Spotlight Stories - Submission Request

Printed From: TNBC Foundation
Category: TNBC Forums
Forum Name: TNBC Talk
Forum Description: A place to chat
Printed Date: May 24 2018 at 9:11pm
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Topic: Spotlight Stories - Submission Request
Posted By: arleneb
Subject: Spotlight Stories - Submission Request
Date Posted: Aug 06 2013 at 12:27pm
TNBC Foundation Community,

Many of you have already visited our Spotlight Stories page:" rel="nofollow -

We are always on the lookout for additional, inspirational stories to share with our visitors. If you would like to submit your story for consideration, please email your narrative along with a photo to:" rel="nofollow -

Thank you for helping us with this ongoing project.

- Arlene

Posted By: Melissa P.
Date Posted: Aug 08 2013 at 5:45pm
Posted in my TNBC online group, I hope you get some good stories from these ladies.
 Heart Melissa

"Hope for more Tomorrows"
TNBC dx August 2009, Age 41, Stage 2, 2cm, 0 nodes Lumpectomy/ACx4,Taxolx4/33rads
Triple Negative Breast Cancer, "I Won't Back Down!"

Posted By: arda
Date Posted: Jan 13 2014 at 2:47am
t seems that when women have IBC about 30-35% of the time it is also TNBC. It can be a very challenging combination to treat and after helping about ten women with IBC/TN over the last several years it has become a particular passion of mine. I am hoping that the efforts of the scientists present will help the women with IBC and IBC/TN. I know it is a small group, in numbers, and therefore challenging, funding-wise, but I so admire those who have dedicated their efforts to find a cure/better treatment for the IBC community.

Posted By: Melissa P.
Date Posted: Jan 13 2014 at 4:21pm
I agree, we need to bring more attention to both IBC and TNBC, both rare and aggressive... we need more awareness and funding... and a cure.

"Hope for more Tomorrows"
TNBC dx August 2009, Age 41, Stage 2, 2cm, 0 nodes Lumpectomy/ACx4,Taxolx4/33rads
Triple Negative Breast Cancer, "I Won't Back Down!"

Posted By: Jgari
Date Posted: Mar 02 2014 at 8:22am
I am in that group and very worried about constipation when my chemo begins

Posted By: rahul2630
Date Posted: Oct 04 2014 at 2:54am
Well done ! Such inspirational stories full of encouragement and life are essential for bright and hopeful future.

Posted By: dayle
Date Posted: Jun 17 2016 at 12:31am
hi....i have tnbc....stage 3c....i also suffer from ulcerative colitis and when i have a flare up it is something else..i have a great doctore in meridian , ms. that is very knowleedgeable and kind and compassionate....and he has helped me get into the first remission in 30 yrs so i just love him onot sure what info you wer wanting but let me know and i wil 

Posted By: Irishone65
Date Posted: Dec 16 2016 at 1:58pm
What is IBC?

Posted By: Irishone65
Date Posted: Dec 16 2016 at 1:59pm
Noticed it's been 7 years for you. No problems in 7 yrs?

Posted By: Jacklin
Date Posted: Dec 16 2016 at 2:18pm
IBC = Inflammatory Breast Cancer

Dx: Nov. 27/15, TNBC, left breast & lymph, BRCA -; Chemo: Dec 4/15 - Mar 4/16; 4 DD A/C, 3 DD Taxol; BMX/ALND: April 26/16; Stage 3C; Radiation: June 10-July 15/16; 1 cycle Xeloda: Aug 15 - 28/16

Posted By: Sara414
Date Posted: Jan 28 2017 at 8:21am
7 years? Not seeing story? What is the story? 7 years NED? What got you there? How are you doing now?

Posted By: mindy555
Date Posted: Oct 23 2017 at 3:43pm
Hi Sara,

We have many ladies 7 plus years.. I think about 13-14 or more years on this particular forum.  I'm well on my way to the 7 year mark.  A tiny bit of residual neuropathy, a toe nail problem.. I'd say that's minor in the big scheme of things. LOL

I feel extremely BLESSED to be surrounded by loving family, a grown son and daughter I couldn't be more proud of.  2 college student daughters (actually I really did marry young and my daughter started having babies young) with a total of 5 grands in our blended blessed family.  I love them all like there's no tomorrow!

Dx July 2011 56 yo
Stage I IDC,TN,Grade 3
Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia
Daughter also BRCA1+
Mass grew on Taxol
FEC 6x better
BMX 3/19/12 pCR NED
BSO 6/2012

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