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Problems with sex after Chemo

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Category: TNBC Forums
Forum Name: Let's Talk About Chemotherapy
Forum Description: A place to discuss Chemotherapy
URL: http://forum.tnbcfoundation.org/forum_posts.asp?TID=11105
Printed Date: Nov 13 2018 at 3:30pm
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Topic: Problems with sex after Chemo
Posted By: MLindaG
Subject: Problems with sex after Chemo
Date Posted: Apr 14 2013 at 12:37am

Just wondering if anyone has any experience with what I'm experiencing.  Diagnosed with tnbc June 11, 2012.  Chemo began July and finished Dec. 20 2012.  Did A/C first round - taxol second round.  Did have a lot of mouth sores. Had surgery in Feb. and started RAD's March - should finish beginning of May.  First time we had difficulty having sex was end of August........extremely painful - felt like someone was sticking a red hot poker up me. (Sorry to be so graphic!) Unable to have sex since.  Talked with oncologist who said it was a side effect of the chemo and to see my OB/GYN.......So I waited until I had completed my chemo and made an appointment.   She attempted to do an exam........which she was able to see what I was talking about but unable to do the complete exam..........She said I had a ring of extremely red, raw and inflamed tissue........everything else looked normal.........She felt it was a yeast infection (Had no yeast infection symptoms) but I was like OK........so I took the pills 3 days apart..........no change in symptoms.  Called back and she said I should go back to my oncologist - I pushed back a bit and she consulted with others and called me back and put me on a yeast drug smaller dose than before for a month.  I have finished that course of drugs and see no difference in things at this point.  Am I expecting things to clear up too soon?  Do I need more time to see if it will resolve itself?  She is talking about hormonal creams next.......not sure if that will be OK with the Oncologist.........Anyone use that?  I am 7 years post menopausal.  Any advice would be appreciated.  Even a web site to point my OB/GYN to......she seems quite clueless.........




Replies:
Posted By: ddspain
Date Posted: Apr 14 2013 at 12:52pm
Hi !
I am new here and dont know anything to help you...however I am having the "hot poker" situation and I havent even started chemo yet . I assume it is the result of coming off hormone treatment because of the cancer. We tried lube which was a little better but not much.
I am so sorry...I am post menopausal as well.
I anxiously await advice from others !!!!!!




-------------
right mastectomy 3-20-13.
1.5 cm
grade 3 tumor
nodes clear
awaiting chemo


Posted By: MarissaK
Date Posted: Apr 14 2013 at 1:53pm
I had extreme inner-irritation and vaginal dryness all throughout chemo. My oncologist said bladder irritation is a less common, but normal side-effect of chemo. Intercourse was pretty much unbearable. I did not have an exam, but I had two pelvic ultrasounds because it was so concerning to me. Even the ultrasounds were tough! Everything looked normal. My discomfort started to ease up a couple months out from chemo.  I didn't have a period the entire time I was going through treatment & I think the hormonal wackiness I experienced from that probably contributed to my discomfort. Five and a half months post-chemo my period returned & has been normal and arriving like clock work ever since. I almost feel that my body is back to normal functioning.

The symptoms you're describing sound similar to my experience, it's just that yours is a delayed reaction months after finishing treatment. Those toxic drugs make our bodies behave in strange and unpleasant ways. I don't know much about hormonal creams, as I am pre-menopausal, but I'm guessing your discomfort will subside naturally. Everyone's healing time is different, so it may just take a little while.

Take care.


-------------
DX 5/18/12 at age 34. Stage IIIC IDC TNBC, grade 3, 3 cm (multiregional nodal involvement). DD ACT complete 9/5/12. BMX 10/15/12, ALND: 0/12 nodes. pCR. Rads x 25 + 3 boosts completed 2/6/13. BRCA neg


Posted By: TriplePositiveGirl
Date Posted: Apr 14 2013 at 2:16pm
Hi Ladies!

What you are describing is not a yeast infection. I went thru this as well after chemo. Depending on your age, chemo can cause early menopause. Symptoms can include vaginal dryness and constriction (shrinkage) to where sex is very painful. You also might feel like you need to urinate more frequently. Unfortunately this did not change for me at all until I started using estrogen vaginal cream (estrodil i think is the name). I am using the lowest possible dose, and it has made a WORLD of difference. I consulted with an oncological gynecologist (mouthful to say that!!!) who said in the low doses that I am taking I am not at risk. Also, because we are triple negative, our cancers are not fueled by estrogen, so I felt better about using the cream. I do highly recommend this, and you all should ask your doctors about it. It has really been a help for me!
Lisa


Posted By: TriplePositiveGirl
Date Posted: Apr 14 2013 at 2:19pm
Hi Marissa - 

I noticed that you are only 35 years old, so there is a strong chance that your body will bounce back and you will not go through an early menopause. I was 45 when diagnosed, so unfortunately my body did not completely keep me out of menopause. On the plus side, I have not experienced hot flashes (I hope that doesn't happen!).

Lisa


Posted By: TriplePositiveGirl
Date Posted: Apr 14 2013 at 2:24pm
Hi MLinda -

I just re-read your post and saw you are post menopausal. I think that you should look into the Estrodil vaginal cream. It has made a huge difference for me. The nice thing about the cream vs. pills is that you can monitor the dosage (more or less) as you need it. It works pretty quickly and has eliminated the "hot poker" situation. As I mentioned, I consulted a specialist who felt that the low dose of estrogen alone was not putting me at risk. For me this was a huge quality of life issue. Also I was having some bladder issues that cleared up right away once I started using the cream.

Best of luck,
Lisa


Posted By: MarissaK
Date Posted: Apr 14 2013 at 3:52pm
I did have hot flashes too, oh and MAJOR dizziness! I googled it and it's actually called "menopausal dizziness". There are different forms of it. I already felt dizzy at times just from the chemo & when those menopausal symptoms kicked in there were times I thought I was gonna fall over I'd get so dizzy! Because of my age my onc did say it was prob only temp menopause though and, as I mentioned, my periods have since returned. The plus side is I don't have any of those symptoms now. The down side - I have to look forward to going through it all over again some day. I guess now I know what to expect!

-------------
DX 5/18/12 at age 34. Stage IIIC IDC TNBC, grade 3, 3 cm (multiregional nodal involvement). DD ACT complete 9/5/12. BMX 10/15/12, ALND: 0/12 nodes. pCR. Rads x 25 + 3 boosts completed 2/6/13. BRCA neg


Posted By: ddspain
Date Posted: Apr 14 2013 at 6:33pm
Thanks for the ideas. I am slightly ER positive so I am uncertain if that makes a difference. I am learning as I go here. I will be asking !!!!!!

I havent even started chemo yet.....


-------------
right mastectomy 3-20-13.
1.5 cm
grade 3 tumor
nodes clear
awaiting chemo


Posted By: Silver cloud
Date Posted: Apr 14 2013 at 7:06pm
I am somewhat jealous, at least your husband's are interested, mine has taken a "sabbatical" since diagnosis!
I do hope you ladies find a comfortable solution, sorry I really can't offer anything except I would definitely push your doctors for help. Intimacy is so important in a relationship, especially when we are going through so much and can feel alone and trying to adjust to physical changes.


Posted By: Natalie
Date Posted: Apr 14 2013 at 8:08pm
What a hot topic this is here, and very glad to see it. I have had problems in this department for many years. Up until I had my 2 boys I was fine, during pregnancy I was fine. It was after each and ever since that I have had dryness and lack of urge. I swore there was some hormonal connection for me, but all the repeated hormone tests I had to figure it out all came back normal, which really sucked because I enjoyed sex.
Fast forward to 2011 with my diagnosis, and the beast had to take what very little I had left. Chemo induced menopause since July of 2011. My periods were fine and consistent until then. I had no signs of perimenopausal either. My period never returned, and have all the symptoms to go with it (OH JOY).
I went to a visit with a gyno-onc and he seemed to feel I was not that dry. Did not recommend any creams at all even though triple negative. He felt there are to many studies supporting cancer and hormone treatments. He just pointed me in the direction of supplements first. 
Truth be told, I never went to get any supplements. I was on the fence with the whole thing anyway since my marriage had been a monumental source of unhappiness any way for a looong time. Would have been nice to know if I still had the ability though. Now don't even want to take the chance of being sexually frustrated.
just my own feelings, but wanted to share that I too have had issues since chemo.



-------------
TNBC stage1 size 1.8, grade3 no nodes 4/11 Lumpectomy 5/11 4cycles DD A/C 4cycles DD Taxol. Double Mastectomy 12/11 BRCA all neg


Posted By: Katdoll
Date Posted: Apr 15 2013 at 12:49am
I had dramatic changes of the type you are experiencing as a result of cancer treatment.  There are solutions!  First, do talk to your oncologist about vaginal estrogen cream.  I know many women who are using it following cancer treatment with the blessing of their oncologist.  I use it and it has made a world of difference.  Second, the book below helped me a lot.  It has a wonderful positive approach and a ton of good practical advice.    Third, consider visiting a woman-owned "sex shop" or website.  Two good choices are Good Vibrations (San Francisco and online) and Babeland (Seattle and New York City and online).  It took me a while to get up the guts to go to call one of these places for advice, and then place an order, but I was so glad I did.  The sales associate was kind and friendly and had a lot of knowledge and experience advising on dealing with post-cancer and post-menopause issues like vaginal atrophy and constriction. 
 
 
http://www.amazon.com/Intimacy-After-Cancer-Womans-Guide/dp/0978810805/ref=sr_1_1?s=books&ie=UTF8&qid=1366000625&sr=1-1&keywords=intimacy+after+cancer" rel="nofollow">Product Details

http://www.amazon.com/Intimacy-After-Cancer-Womans-Guide/dp/0978810805/ref=sr_1_1?s=books&ie=UTF8&qid=1366000625&sr=1-1&keywords=intimacy+after+cancer" rel="nofollow - by Dr. Sally Kydd and Dana Rowett

 


-------------
Tested positive for BRCA1 mutation (187delAG) in 4/09 @ age 44; BSO 9/09; diagnosed w/TNBC in 10/09; 1 cm Stage 1 TNBC IDC, grade 3 + 1.5 cm DCIS; BMX 11/09, nodes clear; chemo (AC/T).


Posted By: 123Donna
Date Posted: Apr 15 2013 at 3:28pm
MLindaG,

Chemo creates so many side effects, even to other parts of our bodies.  Your experience is very similar to what I experienced with chemo the first time, which also put me into menopause.  Sexual intercourse was so painful due to the vaginal dryness.  I tried every lotion and lubricant, most of them causing burning, irritation and more pain.  It's been over 3 years for me and I can tell you sex does get better, but not like before chemo.   Someone mentioned coconut oil and I tried it.  It's the best thing that I've found and it works great.  Now this is the coconut oil you buy in the grocery store (bakery aisle).  No kidding.  A jar of organic coconut oil costs about $10.  The consistency is a solid until you touch it/rub it and then it becomes a liquid.  Smells good and doesn't burn or irritate the skin.




-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: TriplePositiveGirl
Date Posted: Apr 15 2013 at 5:04pm
Hi Everyone,

I thought I would add that the cream I use is Estrace (i had the name wrong!). I highly recommend it. I see Katdoll does too. Donna - I agree that the coconut oil is a good lubricant (olive oil too), and tried both, but I needed the Estrace cream as the lubricants didn't help with the constriction issue. Sex was still painful, just lubricated pain...lol (I have to laugh this is kinda funny). Coconut oil and its multiple uses! :)

Lisa


Posted By: MLindaG
Date Posted: May 22 2013 at 5:06pm
Big smileHi everyone!!  I want to thank all that gave their advice!!  I finally went to a new gyno and she was fabulous!  She was able to give me a good exam with a smaller type speculum which was painful but not over the top.  I did not have the red/raw horrible skin that I had a couple of months ago which was encouraging.  She feels that I have atrophy.  Here was her suggestions.......1) use replens to add moisture 2) gave me a referral to a physical therapist - she wants me to use a vibrator (small) to move the tissue so that it will get the blood flowing in that area......she also said that I could buy this on my own if I did not want to go to a physical therapist.........I'm trying to figure out which way I want to go on this........seems a bit weird to me..........3) gave me a prescription for lidacaine cream to numb the area at first until things start to feel a bit better 4) gave me a prescription for some type of hormonal cream 5) Always use a lubricant..........she suggested olive oil.........but I like the smell of coconut oil and I'm thinking that might be good! LOL  Sooooooo I'm feeling so much better about all this and that I might get myself back to a normal......... She said.........if you don't use it you lose it.......I asked her what I could have done differently or what I could tell my onc if he runs into someone that has this problem.  I had horrible mouth sores throughout both A/C and taxol which relates to the problem in the vagina as both are similar in nature.  She felt that my skin might have completely shed itself which can take a long time to regenerate.  She thought that if I had used the replens throughout the process it might have helped the tissue but she wasn't sure.  I'm going to talk to my onc about it and see what he has to say.  So I'll keep you posted on what I think works and what doesn't and how long it takes.  She told me it could take a while.  Sounds like you ladies knew what you were talking about!!  Wink

-------------
Dx TNBC 6/12; age 59; Stage 3, Grade 3; 3.5 cm, 3/10 nodes + chest wall nodes; A/C x4, T x 12 completed 12/12 with PCR, 2/13/13 lump; IMRT Rads x 33 completed 5/22/13 BRCA 1 negative.


Posted By: JulieKCA2013
Date Posted: May 22 2013 at 8:59pm
Thanks for the information!   I am halfway through so I will heed your advice.  Good to see you smile and not so frustrated.  :) 

-------------
Dx 3-7-13 TNBC, 5cm pT2N1M0
3-19-13 ACx4, 5-14-13 Taxolx4
7-17-13 BMX ypT1N2M0(.9mm) 4/24 nodes.
10-8-13 completed Rads x 30
12-3-13 completed Eribulin Trial
10-18-13, 3-19-14 Bone/Ct Scan Clear


Posted By: 123Donna
Date Posted: May 22 2013 at 11:28pm
MLindaG,

Thanks for all your information.  It will help so many on this forum.  This is one subject doctors really never talk about when they tell you you have breast cancer.  There are so many side effects from the surgery, chemo and radiation and the impact on intimacy should be explained and helpful recommendations offered.

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: MLindaG
Date Posted: Jun 13 2013 at 11:31pm
Quick update........Went to the physical therapist which just so happened to be the same physical therapist that I went to for checking on lymphodema in my left arm- so it was a little easier since I already knew her.  When I called and they said she would do an internal examine I was a bit apprehensive but it went fine and she feels I have two possible problems - atrophy of the tissue and tight muscles - so we have sessions once a week........believe it or not they can hook you up to the computer and shows you  how tight your muscles are..........so working on relaxing those muscles is an important part of the process.  So I'm very hopeful that this will eventually get better.  

-------------
Dx TNBC 6/12; age 59; Stage 3, Grade 3; 3.5 cm, 3/10 nodes + chest wall nodes; A/C x4, T x 12 completed 12/12 with PCR, 2/13/13 lump; IMRT Rads x 33 completed 5/22/13 BRCA 1 negative.


Posted By: 123Donna
Date Posted: Aug 15 2013 at 9:04pm
LBBC: Let's Talk About Sex (and Breast Cancer) (Let's Talk About It Video Series for Young Women)

http://www.youtube.com/watch?feature=player_embedded&v=rUzVG1q2d8E" rel="nofollow - http://www.youtube.com/watch?feature=player_embedded&v=rUzVG1q2d8E




-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: MLindaG
Date Posted: Aug 15 2013 at 9:55pm
Another update!! Big smile  Things are going very well and the physical therapist has dismissed me!!   I am doing the vagifem pill which I am going to continue.  Things are good.......some discomfort but I'm hoping that gradually gets better as well.  At least we can do it!!

-------------
Dx TNBC 6/12; age 59; Stage 3, Grade 3; 3.5 cm, 3/10 nodes + chest wall nodes; A/C x4, T x 12 completed 12/12 with PCR, 2/13/13 lump; IMRT Rads x 33 completed 5/22/13 BRCA 1 negative.


Posted By: Jgari
Date Posted: Apr 03 2014 at 7:17pm
Going to get that estrace!! And coconut cream ASAP thanks girls, we need to have some fun through all we're dealing with and thank goodness. We have husbands who are still interested! Lol


Posted By: philly
Date Posted: Apr 04 2014 at 10:23am
I completely agree that this is a side effect of chemo that oncologists do not and must warn us about.  I thought it was just me!  It depressed me that an important part of my life had become so painful and I had lost a closeness to my husband when I needed it most.  My primary care doctor was apparently completely in the dark as he continued to treat repeated UTI's that were not really UTI's, but vaginal atrophy. Talked to my oncologist at my first follow up appointment about my symptoms.  Although I was post-menopausal at the time of my chemo,  she said the chemo (Bi-weekly A/C x 4; Taxol x 4) had completely depleted my body of any estrogen it had left.  She prescribed the Estring, a vaginal ring that continually releases a very low dose of estrogen, which you wear continually for 90 days then change.  Have had it for just under two months and it has changed my life.  Highly recommend discussing this possibility with your oncologist.


Posted By: 123Donna
Date Posted: Apr 04 2014 at 2:22pm
It's sad most oncologists do not counsel women on this side effect from treatment.  Intimacy is so important in relationships and one more thing to suffer from this stupid disease.  After my hysterectomy in September things got much worse and my gyno/oncologist prescriped Estrace cream which has worked wonderfully.  Definitely talk to your doctor as this shouldn't be a permanent condition for anyone to suffer this side effect.

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: TriplePositiveGirl
Date Posted: Apr 04 2014 at 4:18pm
I too have used the Estrace cream and had very good results. I find it very sad that oncologists don't prepare their patients better for this terrible side effect. Mine didn't. I had the estrace prescribed by my gynecologist after discussing my symptoms. I understand now there is a new pill on the market that is supposed to help with vaginal atrophy and painful sex (its is not an estrogen pill either) - its called Osphena. has anyone heard about this or tried it? I would be very interested to hear. Also here is the link for more info:  http://commonhealth.wbur.org/2013/03/new-drug-for-pain-during-sex

Lisa


-------------
Diagnosed Jan 2010; Stage IIa, grade 2, 3.2cm in rt. breast, no nodes and BRCA-. 4 cycles Carbo/Gemzar 3/10; Lump 6/10; 2 cycles carbo/gem after surgery 8/10; 35 Rads finished 12/1/10. NED.


Posted By: CrunchyGirl
Date Posted: Apr 07 2014 at 7:43pm
So did everyone stop having periods during chemo?
 I am about 5 months in and it came normal until now. iIt was a bit late last time and this time with some spotting. I'm about to demand a pregnancy test, but figure it is just the chemo. I am only 31, so I assume it will return?




Posted By: TriplePositiveGirl
Date Posted: Apr 07 2014 at 8:23pm
Crunchy,

Yes - periods do stop during chemo - but since you are only 31, i'm fairly certain your periods will resume after treatment ends. For me - I was 47 - my periods came back for a while, then stopped completely. Can't say I miss them :)
Lisa


-------------
Diagnosed Jan 2010; Stage IIa, grade 2, 3.2cm in rt. breast, no nodes and BRCA-. 4 cycles Carbo/Gemzar 3/10; Lump 6/10; 2 cycles carbo/gem after surgery 8/10; 35 Rads finished 12/1/10. NED.


Posted By: JulieKCA2013
Date Posted: Apr 07 2014 at 10:12pm
Crunchy I was 33 last year when I started chemo.  My last period was 3-12-13.  I started chemo 3-18 and haven't had a period since.  My doctor seems to think it won't be permanent,  I don't have any other menopausal symptoms.  




-------------
Dx 3-7-13 TNBC, 5cm pT2N1M0
3-19-13 ACx4, 5-14-13 Taxolx4
7-17-13 BMX ypT1N2M0(.9mm) 4/24 nodes.
10-8-13 completed Rads x 30
12-3-13 completed Eribulin Trial
10-18-13, 3-19-14 Bone/Ct Scan Clear


Posted By: littleradish
Date Posted: Apr 08 2014 at 5:04pm
Crunchy I was 37 when I was diagnosed last year and started chemo last April which was also my last period because of "chemo-pause" I had all the menopause symptoms man it sucked. I finished that chemo in July but had 4 more rounds in Sept/ Oct. My period came back in Jan. So basically it was gone about 9 months.

-------------
Diagnosed March 2013, TC chemo from April-July 4 rounds. Double mastectomy Aug of 2013 clear margins and no lymph nodes involved. 4 rounds of gemzar and cisplatin September to October


Posted By: Natalie
Date Posted: Apr 08 2014 at 5:37pm
Yep chemopause here too, but I was late 40s, had a lot of the symptoms. No return.

-------------
TNBC stage1 size 1.8, grade3 no nodes 4/11 Lumpectomy 5/11 4cycles DD A/C 4cycles DD Taxol. Double Mastectomy 12/11 BRCA all neg


Posted By: CrunchyGirl
Date Posted: Apr 09 2014 at 12:18pm
Thanks everyone, i had no idea about this chemopause, would have been nice if someone mentioned it. The only inkling I got was nurses asking if I was still menstruating. I guess my confused look didn't lead to more info. I have been getting hot flashes too i think, drinking peppermint oil in my smoothie helps tho. I would be great if it didn't return.

-------------
3cm in left 31yrs 4 Red devil, 12 taxol, neg nodes, surgery July 2014. Tumors shrunk by 1cm all negative. Now cancer Free!


Posted By: Powder
Date Posted: Apr 19 2014 at 8:52pm
Natalie...you just described my life!!  Had such painful intercourse after birth of my first child the doctor wanted to cut my pelvic floor muscles.  Told him no way and sought alternative treatment through acupuncture.  When I finally could tolerate sex again I got pregnant right away with my son.  I think I have only had sex a handful of times since.  Would like to think I may have a sex life one day again, but I had both ER, PR positive DCIS and IDC Triple Negative.  I don't think I will be able to take any hormone treatments of any kind.  Any help for someone like me??


Posted By: July31
Date Posted: Aug 16 2014 at 12:29am
Same issue, but my doctors said to stay away from estrogen creams and anything estrogen--even though I was triple negative.  They said sometimes a recurrence could be a different type.  I would love to be taking some kind of bio identical hormone replacement or even just the cream.  I'd like to hear from others.  Do your doctors say its okay?  -- July


Posted By: 123Donna
Date Posted: Aug 16 2014 at 11:43am
July,

My gyno/oncologist prescribed Estrace estrogen cream to use vaginally.  He had no problem with it and neither did my breast oncologist.  All the doctors were against using any type of oral estrogen.  Coconut oil also helps. 


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: Powder
Date Posted: Aug 16 2014 at 12:40pm
My doctor told me about a new drug in trials. Non hormonal, but acts as a bit of a numbing agent. Not great, but at least something may be coming.


Posted By: CrunchyGirl
Date Posted: Oct 02 2014 at 3:56pm
For all you ladies in your 30's, when did your periods return? And did your sex drive come back? 

I'm 4 months out and this is really affecting my relationship. I am going to try to get that cream though, I just don't like the idea of staying on anything hormonal long term.


-------------
3cm in left 31yrs 4 Red devil, 12 taxol, neg nodes, surgery July 2014. Tumors shrunk by 1cm all negative. Now cancer Free!


Posted By: LaurieR
Date Posted: Oct 02 2014 at 10:05pm
What about ladies in our 40s?!

I'm almost 4 months out. My period isn't back but quite a bit of my sex drive is.
I would speak to your GYN and see what they recommend. There are also some doctors who specialize in improving quality of life post-treatment.

Good luck and hang in there!

-------------
DX 1/14, age 47, Lump 2/14, DD AC/T 2/14-6/14, BMX 7/14, Rads (now)


Posted By: Powder
Date Posted: Oct 02 2014 at 11:17pm
I had very little drive to begin with. Period has not returned yet. Finished chemo 5 months ago and was 47 at diagnosis.


Posted By: littleradish
Date Posted: Oct 03 2014 at 11:43am
Crunchygirl

I am 38 and my sex drive is just gone. I started treatment in April 13 and that was my last person until Jan 2014. I had my period Jan,Feb,March,April, May and a little one in June.
It went away again July and Aug but came back last month. I am just over it! I want it either here or gone. It is pissing me off.

And my sex drive I don't know why it is gone. My breasts played a big part in that part of our life and it is missing now. Having no feeling isn't fun. I don't know what to do. I feel horrible for my husband.
Ugh!


-------------
Diagnosed March 2013, TC chemo from April-July 4 rounds. Double mastectomy Aug of 2013 clear margins and no lymph nodes involved. 4 rounds of gemzar and cisplatin September to October


Posted By: 123Donna
Date Posted: Aug 05 2015 at 10:24pm
Lidocaine benefits breast cancer survivors who experience pain during intercourse

Scientists at Oregon Health & Science University report that  http://www.news-medical.net/health/What-is-Breast-Cancer.aspx" rel="nofollow - breast cancer survivors who experience pain during sexual intercourse, a common side effect of breast cancer treatment, may achieve comfort when liquid lidocaine is applied strategically to prevent pain. Their research was published online today in the Journal of Clinical Oncology.

http://www.news-medical.net/news/20150728/Lidocaine-benefits-breast-cancer-survivors-who-experience-pain-during-intercourse.aspx" rel="nofollow - http://www.news-medical.net/news/20150728/Lidocaine-benefits-breast-cancer-survivors-who-experience-pain-during-intercourse.aspx


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: JanaGail
Date Posted: Aug 12 2015 at 11:04pm
Oh wow glad to have stumbled across this topic. So after my first chemo Jul 30th I started my period. I'm assuming I will hit a "chemopause" after the next treatment or two with the AC. I've always had a high sex drive and since the first chemo it hasn't changed. I wondered if the further in I got with chemo it would start to disappear or if the "chemopause" would kill it. I'm 42 so I also wondered if I would come out of the "chemopause". I surpressed my body for twenty years on the Pill and have only been off for three so hopefully since my ovaries haven't done a lot of work over the years they will bounce back. I have Factor Five Leiden so cant take any hormones if I stay in the menopause state. Getting married next summer so dont want to permanently lose my sex drive

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Dx 06/17/15 - Stage 2, Grade 3, TNBC, 7mm Breast Tumor, One Node 2.2 cm, BRCA1&2-, Neoadjuvant treatment: 4 AC, 12 Taxol (Aug-Dec 15) - Lumpectomy/Reduction/Reconstruction (12/21/15) - Rads (2016)


Posted By: 123Donna
Date Posted: Aug 13 2015 at 8:06am
JanaGail,

Many of the younger women who ended up in chemopause eventually started their period again after finishing treatment.  For some, it took a while (a year) before it returned.  I was 49 when diagnosed and started chemo and it put me into permanent menopause.  Good luck on your treatment and upcoming wedding!

Donna


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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: JanaGail
Date Posted: Sep 03 2015 at 11:28am
Well, I did my third AC & had my period during it - now this week I'm ovulating! I think my body is taking a stand against chemopause but I'm sure its still coming.

I'm curious as since I'm Factor Five and I cant take any hormones at all - would love to here from ladies who went through the chemopause how you are handling the painful sex or lack of drive aspect without any hormonal stuff? I did like the coconut oil suggestion. I figure if my body finally goes thru it then I want to be prepared :-)

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Dx 06/17/15 - Stage 2, Grade 3, TNBC, 7mm Breast Tumor, One Node 2.2 cm, BRCA1&2-, Neoadjuvant treatment: 4 AC, 12 Taxol (Aug-Dec 15) - Lumpectomy/Reduction/Reconstruction (12/21/15) - Rads (2016)



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