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Forum LockedPA-NJ-NY Volunteers Needed for Panel Discussion

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arleneb View Drop Down
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Direct Link To This Post Topic: PA-NJ-NY Volunteers Needed for Panel Discussion
    Posted: Feb 06 2017 at 9:14am
**NEW DATE** April 5th - Philadelphia, PA, we are partnering with Living Beyond Breast Cancer for an educational panel on hereditary breast cancer.  As always, our goal is to include the triple negative voice in the discussion.  To that end, we are looking to include a panelist with a triple-negative diagnosis who has tested positive for a genetic mutation. It would be ideal to have this person share their story and how it affected not only them, but their family members as well.  

Please note that since the event is taking place in Philadelphia, we would like someone who lives within driving distance to Philadelphia.  Finally, as we look to include as many voices as possible, we ask that only panelists who have not been featured in one of our educational programs in the past 2 years apply.

Please email arlene@tnbcfoundation.org if you are interested in volunteering for this panel discussion.


Edited by arleneb - Mar 20 2017 at 1:00pm
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arleneb View Drop Down
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Direct Link To This Post Posted: Feb 09 2017 at 10:23am
If you are a TNBC patient or survivor in the Philadelphia area and have tested positive for a genetic mutation, please consider joining our panel.

We need to hear from you ASAP if you are available.


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Direct Link To This Post Posted: Feb 09 2017 at 11:10am
We are very excited about this educational program and hope to use it to give a voice to the many women with TNBC who have hereditary breast cancer. If you have a BRCA mutation and were diagnosed with TNBC, please consider joining the discussion to help shed light on the unique issues faced by those with hereditary BC. Thank you!

Hayley Dinerman
TNBCF Executive Director
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123Donna View Drop Down
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Direct Link To This Post Posted: Feb 09 2017 at 9:15pm
This is a wonderful opportunity for us in the TNBC Community!  I hope anyone in this area, that has TNBC or a survivor that tested positive for a genetic mutation, sees this announcement and can participate in the panel discussion.  

If you do, please report back and let us know about the experience.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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arleneb View Drop Down
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Direct Link To This Post Posted: Feb 10 2017 at 7:03am
Thanks Donna!

Here is a link to register for the webcast...

http://www.lbbc.org/programs-events/family-affair-hereditary-breast-cancer-and-you


- Arlene


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Direct Link To This Post Posted: Mar 20 2017 at 12:58pm
Due to last week's snow storm, this panel discussion was postponed to April 5th.

We are still looking for at least one volunteer who fits the criteria listed above.

Please send me an email if you are interested in participating on the panel

arlene@tnbcfoundation.org

- Arlene Brothers


Edited by arleneb - Mar 20 2017 at 1:00pm
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