Go To Main TNBC Website


  New Posts New Posts RSS Feed - Oncologist Recommendations (from members)
  FAQ FAQ  Forum Search   Events   Register Register  Login Login

Oncologist Recommendations (from members)

 Post Reply Post Reply Page  <1234>
Author
Grateful for today View Drop Down
Senior Member
Senior Member
Avatar

Joined: Sep 21 2011
Location: U.S.A.
Status: Offline
Points: 1835
Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Feb 02 2013 at 12:00am
fiddler,

Hoping you have found your treatment team.
But in case, you are still looking for additional information about oncologists knowledgeable
about TNBC in the state of Washington.

Yesterday, I posted on http://forum.tnbcfoundation.org/topic10891.html
about the C4YW: Annual Conference for Young Women Affected by Breast Cancer
to be held in Bellevue, WA (on Seattle's Eastside) in Feb.
I noticed that the workshop on TNBC will be given by Dr. Julie Gralow.
    Workshop Y | Triple-Negative Breast Cancer
    Julie R. Gralow, MD, Professor, Medical Oncology, University of Washington School of Medicine,
    Director, Breast Medical Oncology, Seattle Cancer Care Alliance, Member, Clinical Research Division,
    Fred Hutchinson Cancer Research Center
(This is all I know).

Maybe some one else (in addition to Rach who posted above ) will see your post and post if they
have information TNBC oncologists around Washington......or have information on David Dong, MD
at Swedish.

Glad you found this website. Sorry, you/some one has a breast cancer diagnosis.

General information:
Check if there is a NCCN (National Comprehensive Cancer Network) Cancer Center       
          https://www.nccn.org/members/network.asp    in your area.

Check if there is a NCI (National Cancer Institute) Cancer Center in your area.
     For appointments at a NCI Center, ask for the TNBC oncologist.
       http://www.cancer.gov/researchandfunding/extramural/cancercenters
       http://www.cancer.gov/researchandfunding/extramural/cancercenters/find-a-cancer-center



With caring and positive thoughts,
Grateful for today............Judy
                 
Back to Top
Grateful for today View Drop Down
Senior Member
Senior Member
Avatar

Joined: Sep 21 2011
Location: U.S.A.
Status: Offline
Points: 1835
Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Mar 18 2013 at 4:55pm
FYI: A member was looking for this thread today.
        Thought I would bump it up for new members.
      
Following was posted above on September 14, 2012:

Originally posted by Grateful for today Grateful for today wrote:



When one is looking for oncologists knowledgeable about TNBC, there are various resources.
What is posted here is informational (general information) from members.
These are not recommendations from the TNBC Foundation.
The decision about your treatment team is yours.



Some things to consider when gathering information for your TNBC treatment team.

1. Check if there is a NCCN (National Comprehensive Cancer Network) Cancer Center      
    https://www.nccn.org/members/network.asp       
    in your area.

2. Check if there is a NCI (National Cancer Institute) Cancer Center in your area.
     For appointments at a NCI Center, ask for the TNBC oncologist.
       http://www.cancer.gov/researchandfunding/extramural/cancercenters      
        http://www.cancer.gov/researchandfunding/extramural/cancercenters/find-a-cancer-center

3. Some members have 2nd opinions when making decisions on their treatment plan.
     2nd opinions for any/all parts (chemo-surgery-radiation) of the treatment plan (when indicated).
     If one's pathology report was not done by a breast pathologist, a pathology 2nd opinion by
     by a breast pathologist (at a NCCN or NCI center if possible) is something to strongly consider.

4. Some members have a local oncologist and have a consult with a NCCN/NCI oncologist.
    Then re-consult (2nd opinion) with the NCCN/NCI oncologist if needs arises
    (when frequent travel to a NCCN or NCI center is an issue)

5. The physicians on the TNBC Foundation Scientific Advisory Board are listed at:
http://www.tnbcfoundation.org/ourpeople.htm

6. Some members newly diagnosed will post on this forum topic/thread asking for information
     about resources in their area. Some members will start a new forum/thread with a title
     like: Looking for TNBC MDs in the _________ area.

7. Start to obtain your reports (labs/imaging/xrays/consults/pathology reports etc) and organize your
     own personal medical record.



In addition to the above, some considerations/information from members from recent posts are:
(Physicians are medical oncologists unless noted otherwise)


ALABAMA

Andreas Forero, MD              
Cancer Center University of Alabama          Birmingham, Alabama
http://www1.uabhealth.org/UAB_PF/physician_10084_AndresForero_Torres

CALIFORNIA

UCSF
- Hope S. Rugo, MD       
      UCSF Helen Diller Family Comprehensive Cancer Center        San Francisco     
      http://www.ucsfhealth.org/cgi-bin/expertDetail.cgi?doctorid=1085
http://cancer.ucsf.edu/people/profiles/rugo_hope.3648    
- Michelle Melisko ,MD                                                                                                            
      UCSF Helen Diller Family Comprehensive Cancer Center          San Francisco
      http://www.ucsfhealth.org/michelle.melisko

Stanford
-   Mark Pegram, MD       
          Stanford Cancer Institute                                 Stanford   CA
        http://med.stanford.edu/profiles/frdActionServlet?choiceId=facProfile&fid=32170
        http://cancer.stanford.edu/breastcancer/
-    George W.Sledge,Jr., MD       
        Stanford Cancer Institute               Stanford, CA
        http://www.tnbcfoundation.org/ourpeople_sledge.htm
        http://med.stanford.edu/profiles/medicine/frdActionServlet?choiceId=facProfile&fid=38346



FLORIDA

Edith Perez, MD                                   

Mayo Clinic       Jacksonville.Florida
http://www.mayoclinic.org/bio/12305359.html
http://mayoresearch.mayo.edu/staff/perez_ea.cfm

INDIANA

-Kathy Miller, MD   
   IU Simon Cancer Center Breast Cancer Program          Indianapolis, IN   
   http://www.cancer.iu.edu/patients/find_doctor/physician_bio.php?id=3008


MARYLAND

-Tatiana (Tanya) Prowell, MD
     Johns Hopkins                                Baltimore MD
     http://www.hopkinsmedicine.org/doctors/results/directory/profile/0012228/tanya-prowell?vip_doc=false&lastName=Prowell&nameSearch=Go&hch_doc=no&gs_doc=yes&jh_doc=yes&CLEARPAGECACHE=false&cp_doc=yes

MASSACHUSETTS

-Eric Winer, MD          
     Dana Farber Cancer Institute                   Boston
     http://doctors.dana-farber.org/directory/profile.asp?dbase=main&setsize=16&pgt=Eric+P.+Winer%2C+MD&grouptype_typeid_data=1&gs=c&nxtfmt=r&display=Y&pict_id=0000262
http://www.tnbcfoundation.org/ourpeople_winer.htm

-Ann Partridge, MD    
     Dana Farber Cancer Institute                    Boston
     http://doctors.dana-farber.org/directory/profile.asp?dbase=main&setsize=16&last_name=P&pgt=Ann+H%2E+Partridge%2C+MD%2C+MPH&grouptype_typeid_data=1&gs=c&nxtfmt=c&display=Y&pict_id=0000306

MICHIGAN

Lisa Newman, MD (Surgeon)
      University of Michigan Cancer Center        Ann Arbor, MI
http://surgery.med.umich.edu/general/patient/faculty/lanewman.shtml
http://www.tnbcfoundation.org/ourpeople_newman.htm

MISSOURI

- Dr. Matthew Ellis
        Washington University School of Medicine     Siteman Cancer Center        St. Louis, MO
        http://wuphysicians.wustl.edu/physician2.aspx?PhysNum=3106
http://hematology.wustl.edu/faculty/ellis/ellisBio.html
       
NEW YORK

Tiffany Traina, MD       
        Memorial Sloan Kettering Hospital                         New York, New York
http://www.mskcc.org/prg/prg/bios/955.cfm

NORTH CAROLINA

-Lisa Carey, MD       
        University of North Carolina-Lineberger Comprehensive Cancer Center          Chapel HIll, NC
        http://cancer.unc.edu/research/faculty/displayMember.asp?ID=25
http://www.tnbcfoundation.org/ourpeople_carey.htm
-Carey Anders, MD           
        University of North Carolina-Lineberger Comprehensive Cancer Center          Chapel HIll, NC
        http://cancer.unc.edu/research/faculty/displayMember.asp?ID=622
        http://findadoc.unchealthcare.org/directory/profile.asp? dbase=main&setsize=10&last=anders&pict_id=4060785

PENNSYLVANIA

-Susan Domchek, MD           
     Abramson Cancer Center                        Philadelphia
     http://www.penncancer.org/patients/find-a-doctor/85/
http://www.tnbcfoundation.org/ourpeople_domchek.htm

-Massimo Cristofanilli, MD     IBC - Inflammatory Breast Cancer expert)
     Kimmel Cancer Center At Jefferson     Philadelphia
     https://www.jeffersonhospital.org:443/healthcare%20professionals/massimo-cristofanilli
     http://www.jeffersonhospital.org/related?rel=vp&to=0fa744a3-c81a-4d7d-a9e4-cf04bbed896b&ri=eb9c9510-221c-4f38-a790-7c5beeb0bd76


TENNESSEE

Ingrid Mayer, MD
       Vanderbilt-Ingram Cancer Center       Nashville, TN
       http://www.vicc.org/dd/display.php?person=ingrid.mayer


TEXAS

IBC (Inflammatory Breast Cancer) Experts
at MD Anderson                        Houston, Texas
   Vicente Valero, MD    
        http://faculty.mdanderson.org/Vicente_Valero/
        http://www.mdanderson.org/patient-and-cancer-information/care-centers-and-clinics/care-centers/breast/inflammatory-breast-cancer-clinic/index.html
   Naoto Ueno, MD
        http://faculty.mdanderson.org/Naoto_Ueno/
        http://www.mdanderson.org/patient-and-cancer-information/care-centers-and-clinics/care-centers/breast/inflammatory-breast-cancer-clinic/index.html


CANADA
     There is some resource information on the TNBC Forum "Members in Canada"
        http://forum.tnbcfoundation.org/members-in-canada_topic10264.html#111580



Grateful for today.............Judy





















Edited by Grateful for today - Jul 27 2013 at 1:16am
Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 12827
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Apr 22 2013 at 8:13am
bumping up this thread for new members
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 12827
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Dec 15 2013 at 11:18am
bumping for new members
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 12827
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jan 05 2014 at 4:53pm
bumping for new members
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 12827
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Feb 13 2014 at 7:57pm
bumping for new members

DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
Kellyless View Drop Down
Senior Member
Senior Member


Joined: Jun 18 2009
Location: Dallas, Texas
Status: Offline
Points: 928
Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Feb 18 2014 at 11:46pm
I have to add my wonderful cancer facility, the other NCI facility in Texas (M.D. Anderson in Houston is the other). I started here in Dallas at a for profit hospital and received very poor care. Was lucky a friend insisted I go for a second opinion before beginning treatment - a life saving change I am sure. 
UT Southwestern Medical Center Simmons Cancer Center, Dallas, Texas
http://www.utswmedicine.org/conditions-specialties/cancer/programs/breast-cancer/
All of my incredible Drs here, in addition to treating patients, are research scientists working on breast cancer projects. My surgeon studies genetic breast cancers - and he's a genius! I have not one single complaint about anything here - nothing - and I've been going for 5 years! 
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/17 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 12827
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Oct 01 2014 at 8:02am
Any new recommendations?
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 12827
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Nov 06 2014 at 12:26pm
Please provide any new recommendations or changes to this list.  





Originally posted by Grateful for today Grateful for today wrote:

FYI: A member was looking for this thread today.
        Thought I would bump it up for new members.
      
Following was posted above on September 14, 2012:

Originally posted by Grateful for today Grateful for today wrote:



When one is looking for oncologists knowledgeable about TNBC, there are various resources.
What is posted here is informational (general information) from members.
These are not recommendations from the TNBC Foundation.
The decision about your treatment team is yours.



Some things to consider when gathering information for your TNBC treatment team.

1. Check if there is a NCCN (National Comprehensive Cancer Network) Cancer Center      
    https://www.nccn.org/members/network.asp       
    in your area.

2. Check if there is a NCI (National Cancer Institute) Cancer Center in your area.
     For appointments at a NCI Center, ask for the TNBC oncologist.
       http://www.cancer.gov/researchandfunding/extramural/cancercenters      
        http://www.cancer.gov/researchandfunding/extramural/cancercenters/find-a-cancer-center

3. Some members have 2nd opinions when making decisions on their treatment plan.
     2nd opinions for any/all parts (chemo-surgery-radiation) of the treatment plan (when indicated).
     If one's pathology report was not done by a breast pathologist, a pathology 2nd opinion by
     by a breast pathologist (at a NCCN or NCI center if possible) is something to strongly consider.

4. Some members have a local oncologist and have a consult with a NCCN/NCI oncologist.
    Then re-consult (2nd opinion) with the NCCN/NCI oncologist if needs arises
    (when frequent travel to a NCCN or NCI center is an issue)

5. The physicians on the TNBC Foundation Scientific Advisory Board are listed at:
http://www.tnbcfoundation.org/ourpeople.htm

6. Some members newly diagnosed will post on this forum topic/thread asking for information
     about resources in their area. Some members will start a new forum/thread with a title
     like: Looking for TNBC MDs in the _________ area.

7. Start to obtain your reports (labs/imaging/xrays/consults/pathology reports etc) and organize your
     own personal medical record.



In addition to the above, some considerations/information from members from recent posts are:
(Physicians are medical oncologists unless noted otherwise)


ALABAMA

Andreas Forero, MD              
Cancer Center University of Alabama          Birmingham, Alabama
http://www1.uabhealth.org/UAB_PF/physician_10084_AndresForero_Torres

CALIFORNIA

UCSF
- Hope S. Rugo, MD       
      UCSF Helen Diller Family Comprehensive Cancer Center        San Francisco     
      http://www.ucsfhealth.org/cgi-bin/expertDetail.cgi?doctorid=1085
http://cancer.ucsf.edu/people/profiles/rugo_hope.3648    
- Michelle Melisko ,MD                                                                                                            
      UCSF Helen Diller Family Comprehensive Cancer Center          San Francisco
      http://www.ucsfhealth.org/michelle.melisko

Stanford
-   Mark Pegram, MD       
          Stanford Cancer Institute                                 Stanford   CA
        http://med.stanford.edu/profiles/frdActionServlet?choiceId=facProfile&fid=32170
        http://cancer.stanford.edu/breastcancer/
-    George W.Sledge,Jr., MD       
        Stanford Cancer Institute               Stanford, CA
        http://www.tnbcfoundation.org/ourpeople_sledge.htm
        http://med.stanford.edu/profiles/medicine/frdActionServlet?choiceId=facProfile&fid=38346



FLORIDA

Edith Perez, MD                                   

Mayo Clinic       Jacksonville.Florida
http://www.mayoclinic.org/bio/12305359.html
http://mayoresearch.mayo.edu/staff/perez_ea.cfm

INDIANA

-Kathy Miller, MD   
   IU Simon Cancer Center Breast Cancer Program          Indianapolis, IN   
   http://www.cancer.iu.edu/patients/find_doctor/physician_bio.php?id=3008


MARYLAND

-Tatiana (Tanya) Prowell, MD
     Johns Hopkins                                Baltimore MD
     http://www.hopkinsmedicine.org/doctors/results/directory/profile/0012228/tanya-prowell?vip_doc=false&lastName=Prowell&nameSearch=Go&hch_doc=no&gs_doc=yes&jh_doc=yes&CLEARPAGECACHE=false&cp_doc=yes

MASSACHUSETTS

-Eric Winer, MD          
     Dana Farber Cancer Institute                   Boston
     http://doctors.dana-farber.org/directory/profile.asp?dbase=main&setsize=16&pgt=Eric+P.+Winer%2C+MD&grouptype_typeid_data=1&gs=c&nxtfmt=r&display=Y&pict_id=0000262
http://www.tnbcfoundation.org/ourpeople_winer.htm

-Ann Partridge, MD    
     Dana Farber Cancer Institute                    Boston
     http://doctors.dana-farber.org/directory/profile.asp?dbase=main&setsize=16&last_name=P&pgt=Ann+H%2E+Partridge%2C+MD%2C+MPH&grouptype_typeid_data=1&gs=c&nxtfmt=c&display=Y&pict_id=0000306

MICHIGAN

Lisa Newman, MD (Surgeon)
      University of Michigan Cancer Center        Ann Arbor, MI
http://surgery.med.umich.edu/general/patient/faculty/lanewman.shtml
http://www.tnbcfoundation.org/ourpeople_newman.htm

MISSOURI

- Dr. Matthew Ellis
        Washington University School of Medicine     Siteman Cancer Center        St. Louis, MO
        http://wuphysicians.wustl.edu/physician2.aspx?PhysNum=3106
http://hematology.wustl.edu/faculty/ellis/ellisBio.html
       
NEW YORK

Tiffany Traina, MD       
        Memorial Sloan Kettering Hospital                         New York, New York
http://www.mskcc.org/prg/prg/bios/955.cfm

NORTH CAROLINA

-Lisa Carey, MD       
        University of North Carolina-Lineberger Comprehensive Cancer Center          Chapel HIll, NC
        http://cancer.unc.edu/research/faculty/displayMember.asp?ID=25
http://www.tnbcfoundation.org/ourpeople_carey.htm
-Carey Anders, MD           
        University of North Carolina-Lineberger Comprehensive Cancer Center          Chapel HIll, NC
        http://cancer.unc.edu/research/faculty/displayMember.asp?ID=622
        http://findadoc.unchealthcare.org/directory/profile.asp? dbase=main&setsize=10&last=anders&pict_id=4060785

PENNSYLVANIA

-Susan Domchek, MD           
     Abramson Cancer Center                        Philadelphia
     http://www.penncancer.org/patients/find-a-doctor/85/
http://www.tnbcfoundation.org/ourpeople_domchek.htm

-Massimo Cristofanilli, MD     IBC - Inflammatory Breast Cancer expert)
     Kimmel Cancer Center At Jefferson     Philadelphia
     https://www.jeffersonhospital.org:443/healthcare%20professionals/massimo-cristofanilli
     http://www.jeffersonhospital.org/related?rel=vp&to=0fa744a3-c81a-4d7d-a9e4-cf04bbed896b&ri=eb9c9510-221c-4f38-a790-7c5beeb0bd76


TENNESSEE

Ingrid Mayer, MD
       Vanderbilt-Ingram Cancer Center       Nashville, TN
       http://www.vicc.org/dd/display.php?person=ingrid.mayer


TEXAS

IBC (Inflammatory Breast Cancer) Experts
at MD Anderson                        Houston, Texas
   Vicente Valero, MD    
        http://faculty.mdanderson.org/Vicente_Valero/
        http://www.mdanderson.org/patient-and-cancer-information/care-centers-and-clinics/care-centers/breast/inflammatory-breast-cancer-clinic/index.html
   Naoto Ueno, MD
        http://faculty.mdanderson.org/Naoto_Ueno/
        http://www.mdanderson.org/patient-and-cancer-information/care-centers-and-clinics/care-centers/breast/inflammatory-breast-cancer-clinic/index.html


CANADA
     There is some resource information on the TNBC Forum "Members in Canada"
        http://forum.tnbcfoundation.org/members-in-canada_topic10264.html#111580



Grateful for today.............Judy



















DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
susanb View Drop Down
Senior Member
Senior Member


Joined: Mar 02 2008
Location: United States
Status: Offline
Points: 110
Post Options Post Options   Thanks (0) Thanks(0)   Quote susanb Quote  Post ReplyReply Direct Link To This Post Posted: Nov 06 2014 at 3:51pm
My oncologist, Dr. Charles Shapiro is moving to NYC. I am not sure where but he is a great triple negative oncologist and I am sad that he is leaving Ohio.
Dx June 06 stage 1 at age 46, no nodes, clean margins, Ki-67 at 54, Bilateral Mastectomy, 4 rounds AC, complete hysterectomy Aug O7. Mother and Grandmother both died of breast cancer dx in their 30's.
Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 12827
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Nov 06 2014 at 4:55pm
Dr. Matthew Ellis recently relocated to Houston, Texas as the new director of the Lester and Sue Smith Breast Center at Baylor College of Medicine.



DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 12827
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jan 27 2015 at 7:23pm
Any updates to this list?  Additions/changes/deletions?  Please reply and I'll add them to this list and repost.

When one is looking for oncologists knowledgeable about TNBC, there are various resources.
What is posted here is informational (general information) from members.
These are not recommendations from the TNBC Foundation.
The decision about your treatment team is yours.



Some things to consider when gathering information for your TNBC treatment team.

1. Check if there is a NCCN (National Comprehensive Cancer Network) Cancer Center      
    https://www.nccn.org/members/network.asp       
    in your area.

2. Check if there is a NCI (National Cancer Institute) Cancer Center in your area.
     For appointments at a NCI Center, ask for the TNBC oncologist. 
       http://www.cancer.gov/researchandfunding/extramural/cancercenters      
        http://www.cancer.gov/researchandfunding/extramural/cancercenters/find-a-cancer-center

3. Some members have 2nd opinions when making decisions on their treatment plan.
     2nd opinions for any/all parts (chemo-surgery-radiation) of the treatment plan (when indicated).
     If one's pathology report was not done by a breast pathologist, a pathology 2nd opinion by
     by a breast pathologist (at a NCCN or NCI center if possible) is something to strongly consider.

4. Some members have a local oncologist and have a consult with a NCCN/NCI oncologist.
    Then re-consult (2nd opinion) with the NCCN/NCI oncologist if needs arises 
    (when frequent travel to a NCCN or NCI center is an issue)

5. The physicians on the TNBC Foundation Scientific Advisory Board are listed at:
http://www.tnbcfoundation.org/ourpeople.htm

6. Some members newly diagnosed will post on this forum topic/thread asking for information
     about resources in their area. Some members will start a new forum/thread with a title
     like: Looking for TNBC MDs in the _________ area.

7. Start to obtain your reports (labs/imaging/xrays/consults/pathology reports etc) and organize your 
     own personal medical record. 



In addition to the above, some considerations/information from members from recent posts are:
(Physicians are medical oncologists unless noted otherwise) 


ALABAMA 

Andreas Forero, MD               
Cancer Center University of Alabama          Birmingham, Alabama 
http://www1.uabhealth.org/UAB_PF/physician_10084_AndresForero_Torres

CALIFORNIA 

UCSF
- Hope S. Rugo, MD       
      UCSF Helen Diller Family Comprehensive Cancer Center        San Francisco     
      http://www.ucsfhealth.org/cgi-bin/expertDetail.cgi?doctorid=1085
http://cancer.ucsf.edu/people/profiles/rugo_hope.3648    
- Michelle Melisko ,MD                                                                                                            
      UCSF Helen Diller Family Comprehensive Cancer Center          San Francisco
      http://www.ucsfhealth.org/michelle.melisko

Stanford
-   Mark Pegram, MD       
          Stanford Cancer Institute                                 Stanford   CA
        http://med.stanford.edu/profiles/frdActionServlet?choiceId=facProfile&fid=32170
        http://cancer.stanford.edu/breastcancer/
-    George W.Sledge,Jr., MD       
        Stanford Cancer Institute               Stanford, CA
        http://www.tnbcfoundation.org/ourpeople_sledge.htm
        http://med.stanford.edu/profiles/medicine/frdActionServlet?choiceId=facProfile&fid=38346 



FLORIDA 

Edith Perez, MD                                    

Mayo Clinic       Jacksonville.Florida 
http://www.mayoclinic.org/bio/12305359.html 
http://mayoresearch.mayo.edu/staff/perez_ea.cfm

INDIANA 

-Kathy Miller, MD   
   IU Simon Cancer Center Breast Cancer Program          Indianapolis, IN   
   http://www.cancer.iu.edu/patients/find_doctor/physician_bio.php?id=3008


MARYLAND 

-Tatiana (Tanya) Prowell, MD 
     Johns Hopkins                                Baltimore MD 
     http://www.hopkinsmedicine.org/doctors/results/directory/profile/0012228/tanya-prowell?vip_doc=false&lastName=Prowell&nameSearch=Go&hch_doc=no&gs_doc=yes&jh_doc=yes&CLEARPAGECACHE=false&cp_doc=yes

MASSACHUSETTS 

-Eric Winer, MD          
     Dana Farber Cancer Institute                   Boston
     http://doctors.dana-farber.org/directory/profile.asp?dbase=main&setsize=16&pgt=Eric+P.+Winer%2C+MD&grouptype_typeid_data=1&gs=c&nxtfmt=r&display=Y&pict_id=0000262
http://www.tnbcfoundation.org/ourpeople_winer.htm

-Ann Partridge, MD    
     Dana Farber Cancer Institute                    Boston 
     http://doctors.dana-farber.org/directory/profile.asp?dbase=main&setsize=16&last_name=P&pgt=Ann+H%2E+Partridge%2C+MD%2C+MPH&grouptype_typeid_data=1&gs=c&nxtfmt=c&display=Y&pict_id=0000306

MICHIGAN 

Lisa Newman, MD (Surgeon) 
      University of Michigan Cancer Center        Ann Arbor, MI
http://surgery.med.umich.edu/general/patient/faculty/lanewman.shtml
http://www.tnbcfoundation.org/ourpeople_newman.htm

MISSOURI

Dr. Cynthia Ma (Breast Oncologist)
http://wuphysicians.wustl.edu/physician2.aspx?PhysNum=3358

Dr. Julie Margenthaler (Breast Surgeon)

       
NEW YORK 

Tiffany Traina, MD        
        Memorial Sloan Kettering Hospital                         New York, New York 
http://www.mskcc.org/prg/prg/bios/955.cfm 

NORTH CAROLINA 

-Lisa Carey, MD       
        University of North Carolina-Lineberger Comprehensive Cancer Center          Chapel HIll, NC 
        http://cancer.unc.edu/research/faculty/displayMember.asp?ID=25 
http://www.tnbcfoundation.org/ourpeople_carey.htm
-Carey Anders, MD           
        University of North Carolina-Lineberger Comprehensive Cancer Center          Chapel HIll, NC 
        http://cancer.unc.edu/research/faculty/displayMember.asp?ID=622
        http://findadoc.unchealthcare.org/directory/profile.asp? dbase=main&setsize=10&last=anders&pict_id=4060785

PENNSYLVANIA 

-Susan Domchek, MD           
     Abramson Cancer Center                        Philadelphia 
     http://www.penncancer.org/patients/find-a-doctor/85/
http://www.tnbcfoundation.org/ourpeople_domchek.htm

-Massimo Cristofanilli, MD     IBC - Inflammatory Breast Cancer expert) 
     Kimmel Cancer Center At Jefferson     Philadelphia
     https://www.jeffersonhospital.org:443/healthcare%20professionals/massimo-cristofanilli
     http://www.jeffersonhospital.org/related?rel=vp&to=0fa744a3-c81a-4d7d-a9e4-cf04bbed896b&ri=eb9c9510-221c-4f38-a790-7c5beeb0bd76


TENNESSEE 

Ingrid Mayer, MD 
       Vanderbilt-Ingram Cancer Center       Nashville, TN
       http://www.vicc.org/dd/display.php?person=ingrid.mayer 


TEXAS

Dr. Matthew Ellis recently relocated to Houston, Texas as the new director of the Lester and Sue Smith Breast Center at Baylor College of Medicine.

IBC (Inflammatory Breast Cancer) Experts
at MD Anderson                        Houston, Texas
   Vicente Valero, MD    
        http://faculty.mdanderson.org/Vicente_Valero/
        http://www.mdanderson.org/patient-and-cancer-information/care-centers-and-clinics/care-centers/breast/inflammatory-breast-cancer-clinic/index.html
   Naoto Ueno, MD 
        http://faculty.mdanderson.org/Naoto_Ueno/
        http://www.mdanderson.org/patient-and-cancer-information/care-centers-and-clinics/care-centers/breast/inflammatory-breast-cancer-clinic/index.html


CANADA
     There is some resource information on the TNBC Forum "Members in Canada"
        http://forum.tnbcfoundation.org/members-in-canada_topic10264.html#111580

DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
Kellyless View Drop Down
Senior Member
Senior Member


Joined: Jun 18 2009
Location: Dallas, Texas
Status: Offline
Points: 928
Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Jan 28 2015 at 10:30am
For DALLAS TEXAS I cannot rave enough about UT Southwesterns Harold C. Simmons Cancer Center.  I fully believe if I hadn't switched to having my care there after my initial TERRIBLE malpractice worthy care at another Dallas facility I would not be alive today (SECOND OPINIONS SAVE LIVES!!).  It is an NCI designated research facility and I have received stellar care there for 6 years. 
http://www.utswmedicine.org/conditions-specialties/cancer/

My care here is so far and above the care I received at the first facility, at one point in the beginning stages of appointments here my husband looked at me and said, "are we being punked? Can they possibly give this level of attention to EVERY cancer patient??!?!?" And the answer is YES THEY CAN! and they do.  And as icing on the cake you can have all of your surgical or other hospital stays at Zale Lipshy University Hospital a stones throw away from the cancer center.  It is the Ritz Carlton of hospitals!  The hospital is so beautiful, the care there so exemplary, that again my husband and I felt like we'd stumbled on a beautiful medical secret - how can it be that EVERYONE isn't using this place?
https://www.utswmedicine.org/hospitals-clinics/zale-lipshy/
http://www.utsouthwestern.edu/newsroom/news-releases/year-2014/nov/recognized-for-patient-satisfaction.html
If you are in the early days of diagnosis - or if at any time you have the slightest feeling that you might want another opinion - GET A SECOND OPINION!  We feel such a sense of urgency to start our treatment once we hear CANCER, TN, AGRESSIVE that often we skip this second opinion step.  The absolute best decision I ever made was going for my second opinion. 

IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/17 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
Back to Top
positive_attitude View Drop Down
Groupie
Groupie
Avatar

Joined: Sep 15 2014
Location: Louisiana
Status: Offline
Points: 67
Post Options Post Options   Thanks (0) Thanks(0)   Quote positive_attitude Quote  Post ReplyReply Direct Link To This Post Posted: Jan 28 2015 at 11:03am
I was treated at MD Anderson. Then I temporarily moved to Arlington TX to be treated by Dr. Karel Dicke at Arlington Cancer Center. I feel so much better after I came to Arlington. Dr. Dicke is a brilliant and passionate 74-year-old doctor. He used to be the head of the Bone Marrow Transplant department at MD Anderson. Dr. George Blumenschein, former head of Breast Center at MD Anderson, founded Arlington Cancer Center with Dr. Dicke many years ago. They were ahead of their time. They have been using Cisplatin for stage III and IV breast cancer for 20 or 30 years and had great results. The following are some of their old papers:

http://www.researchgate.net/publication/13223020_Multimodality_therapy_for_locally_advanced_and_limited_stage_IV_breast_cancer_the_impact_of_effective_non-cross-resistance_late-consolidation_chemotherapy


http://clincancerres.aacrjournals.org/content/3/12/2633.full.pdf

In spite of his age, Dr. Dicke is very forward thinking and innovative. He has been using Caris and Foundation reports for years. He said that when chemo was first invented, doctors did not believe in chemo. Later, they all used it. When bone marrow transplant was first invented, doctors did not trust it; later they all adopted for certain cancers. Now many question Caris report and Foundation reports and do not use them. Years later, these tools will be the standard practice.

Dr. Dicke treats all kinds of cancers in addition to TNBC and other breast cancer. I feel good here because I am surrounded by many of Dr. Dicke's stage IV patients who are NED for many many years. Among them, many are stage IV breast cancer NED patients. According to Dr. Dicke, cancer treatment should be based on the protein expressed by the tumor and gene mutation instead of sticking to ACT or Carboplatin for breast cancer. If you are looking for an oncologist who goes beyond the standard of care, I would highly recommend Dr. Dicke.

Rebecca

DX IDC TNBC May, 2014, 4.7cm, 5.8cm on Taxol. Taxol 4 weeks, AC 6. double mastectomy OCT 2014. 1.8cm residual in breast and 3mm a lymph node. BRCA-. 11/17 Abraxane,5FU.11/20, rads, 1/19 FUMEPx2
Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 12827
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Mar 25 2015 at 7:35am
Chicago, Illinois

Dr. Rita Nanda - Oncologist who specializes in TNBC at University of Chicago.



DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
cheeks View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jan 14 2011
Location: North Carolina
Status: Offline
Points: 652
Post Options Post Options   Thanks (0) Thanks(0)   Quote cheeks Quote  Post ReplyReply Direct Link To This Post Posted: Aug 07 2015 at 1:20pm
Bumping for a new member asking about a recommendation for her sister in Texas. I don't know if there is a more updated list since Grateful for today...Judy helped compile a few years ago. Hopefully, someone better at finding things can help.

Blair
Lump found 11/08
DX: 2/09 @52 TNBC
L. Mast. 3/26/09, SN-, BRCA-,
4.5 cm (post surgical)T2NOMO
Chemo: 4/09-10/09 Taxol x 12,
A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018.
Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 12827
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Aug 07 2015 at 6:55pm
Hi Blair,

I haven't seen any new posts/recommendations.  Besides what I'll post below, Kellyless posted another recommendation for Texas.  I think it's a couple of replies above this one.

TEXAS

Dr. Matthew Ellis recently relocated to Houston, Texas as the new director of the Lester and Sue Smith Breast Center at Baylor College of Medicine.

IBC (Inflammatory Breast Cancer) Experts
at MD Anderson                        Houston, Texas
   Vicente Valero, MD    
        http://faculty.mdanderson.org/Vicente_Valero/
        http://www.mdanderson.org/patient-and-cancer-information/care-centers-and-clinics/care-centers/breast/inflammatory-breast-cancer-clinic/index.html
   Naoto Ueno, MD 
        http://faculty.mdanderson.org/Naoto_Ueno/
        http://www.mdanderson.org/patient-and-cancer-information/care-centers-and-clinics/care-centers/breast/inflammatory-breast-cancer-clinic/index.html


DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
cheeks View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jan 14 2011
Location: North Carolina
Status: Offline
Points: 652
Post Options Post Options   Thanks (0) Thanks(0)   Quote cheeks Quote  Post ReplyReply Direct Link To This Post Posted: Aug 08 2015 at 11:13am
Thanks Donna
Lump found 11/08
DX: 2/09 @52 TNBC
L. Mast. 3/26/09, SN-, BRCA-,
4.5 cm (post surgical)T2NOMO
Chemo: 4/09-10/09 Taxol x 12,
A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018.
Back to Top
123Donna View Drop Down
Senior Member
Senior Member
Avatar

Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 12827
Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Sep 14 2015 at 9:41pm
Bumping for new members.
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Back to Top
myleftboob View Drop Down
Newbie
Newbie
Avatar

Joined: Feb 24 2015
Location: Indiana
Status: Offline
Points: 38
Post Options Post Options   Thanks (0) Thanks(0)   Quote myleftboob Quote  Post ReplyReply Direct Link To This Post Posted: Oct 04 2015 at 1:19pm
I highly recommend Dr. Kathy Miller at IU Simon Cancer Center for the treatment of TNBC. Dr. Miller graduated from Johns Hopkins School of Medicine and has been an oncologist, professor and researcher at IU Simon for years. She did an amazing job in my case, and when questions were raised about my TNBC status (path did first test and even though it showed 1 on IHC, they then did a FISH test which showed borderline results for HER-2 +), she went through a detailed chart to show me why my tumor was indeed triple negative and encouraged me to participate in a phase III clinical trial involving adding Carboplatin and Veliparib to Taxol and A/C. Clearly, it worked as I had clean sentinel lymph nodes and no residual evidence of disease (tumor was completely gone) after neoadjuvant chemotherapy. Dr. Miller can be found at IU Hospital's website. Her office is at:

Dr. Kathy Miller
Indiana Cancer Pavilion, Suite 473
535 Barnhill Drive
Indianapolis, IN 46202
317-944-3553
Dx 2-13-15, IDC 2-B, Gr 3, TNBC; Port 3-12-15; MRI 3-19-15 T 3.8 x 3.5 x 3.7 cm ALN 2.5 cm; MRI 6-17-15 T 1.2 x 1.2 x 1.4 cm ALN 1.2 cm; Chemo: 11 Taxol, 4 A/C; Lumpectomy/SLNB: 9-22-15 pCR; 19 Rads
Back to Top
 Post Reply Post Reply Page  <1234>
  Share Topic   

Forum Jump Forum Permissions View Drop Down

Forum Software by Web Wiz Forums® version 11.05
Copyright ©2001-2016 Web Wiz Ltd.