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    Posted: Feb 17 2010 at 10:27am

We continually get requests for recommendations of doctors who are knowledgeable with regard to triple negative breast cancer. TNBC Foundation does not endorse any specific doctors but we welcome you to share your personal recommendations with other members.

Please reply back with your personal recommendations (Dr. Name, address and phone) and reasons for recommending.
 
DO NOT reply back with names of doctors to avoid as this could be interpreted as slander.
 
Thank you for your help.


Edited by ArleneB - Feb 03 2012 at 3:42pm
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Karen W. Quote  Post ReplyReply Direct Link To This Post Posted: Feb 24 2010 at 5:33pm
Dr. George Sledge is in Indianapolis, IN and see's patients at IU Simon Cancer Center.  He is considered one of the best in the United States for Triple Negative!!!!!! He has made this his passion. Contact him at:

George W. Sledge, Jr. M.D.

Phone: (317) 274-0920;

RT 473
535 Barnhill Dr.
Indianapolis, IN 46202

Phone: (317) 274-0920

DX July 07; lumpectomy,Chemo 4 sesions,36Rad; DX Oct 09;36 Rad;Metastatic Clavical lymph nodes in neck; chemo pending****CHEMO NO LONGER PENDING. DR SLEDGE SAYS NO CHEMO SHOULD BE USED (4 my case)
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: Feb 24 2010 at 5:45pm
At UCSF:

Hope Rugo
Michelle Melisko
Mark Moasser (though his real expertise is in Her2+)
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote scared Quote  Post ReplyReply Direct Link To This Post Posted: Feb 25 2010 at 2:10pm
Our oncologist was highly rated in the Seattle Area by a local magazine that lists this area's best doctors and she was for breast cancer oncology.

For Radiation oncology in Seattle at the same cancer clinic Dr. Astrid Morris.
 
 
The clinic had an open house about breast cancer and she is on the leading edge of several local clinics that treat Triple Negative Breast Cancer:
 

Kristine J. Rinn, M.D.

Oncology - Medical, Oncology - Medical: Swedish Cancer Institute
Rinn-Kristine.jpg Accepting New Patients
Accepting New Medicare Patients
Accepting New Medicaid/DSHS Patients


Want to make an appointment?
Call Kristine J. Rinn, M.D.'s office directly at (206) 386-3900
Swedish Cancer Institute-Medical Oncology, http://www.swedish.org/cancer
Education and Certification:
Medical School: University of Washington, WA
Residency: University of Washington, WA
Fellowship(s): University of Washington, WA; Fred Hutchinson Cancer Research Center, WA - Medical Oncology
Board Certification(s): Oncology; Internal Medicine
Additional Qualifications: Internship: University of Washington, WA
Clinical Interests/Special Procedures Performed:
Breast Cancer, Practice Limited to Breast Cancer
Philosophy of Care:
Our clinic provides integrated care for all patients with breast cancer or consultation regarding breast cancer risk and prevention.
Payment Methods Accepted:
American Express, Bill Insurance, Cash, Check, Discover Card, Master Card, Medicaid/DSHS, Medicare, Money Order, VISA
Primary Office Location:
1221 Madison St.
2nd Floor
Seattle, WA 98104
Phone: (206) 386-3900
Fax: (206) 215-3962
Appointment Hours
Monday Not Available
Tuesday Not Available
Wednesday 8:30 am to 5:00 pm
Thursday 8:30 am to 5:00 pm
Friday 8:30 am to 5:00 pm
Saturday Not Available
Sunday Not Available




Edited by scared - Mar 02 2010 at 10:56am
Wife diagnosed 7/08 stage 2B 4.78cm with 3 nodes. 15 weeks of Adriamycin and Cytoxin, Mastectomy, 12 weeks of Taxol, and 6.5 weeks of radiation.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Feb 25 2010 at 3:10pm
St. Louis, MO area

Breast Surgeon:  
Dr. Marlys Schuh

Dr. Julie Morganthaler

Oncologist:
Dr. Matthew Ellis
Washington University School of Medicine in St. Louis, MO
Siteman Cancer Center

Plastic Surgeon:
Dr. Judith Gurley
14825 North Outer 40 Road; Suite 350           
Chesterfield, MO 63017        
(636) 812-4300    
http:///www.judithgurley.com/

Dr. Charles Nathan
Parkcrest Plastic Surgery






Edited by 123Donna - Sep 26 2012 at 8:39pm
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Feb 25 2010 at 3:16pm
LOVE my doctors, they are all research scientists & medical school professors - as well as take care of patients.   
 
Medical Oncologist - Dr. Amy Harker-Murray
 
Breast Surgical Oncologist - Dr. David Euhus
 
Radiation Oncologist - Dr. Ann Spangler
 
UT Southwestern Medical Center
Simmons Comprehensive Cancer Center
     2201 Inwood Rd
     2nd Floor, Suite 106
     Dallas, Tx 75390
214-645-4673 (HOPE)
 
I'll refrain from saying the doctors I started with and got TERRIBLE care from, since you asked.........but if you are in Dallas and looking for care PM me and I WILL TELL YOU!!!
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote arleneb Quote  Post ReplyReply Direct Link To This Post Posted: Mar 01 2010 at 2:10pm
Thank you all! Please keep the recommendations coming!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Paddler Quote  Post ReplyReply Direct Link To This Post Posted: Mar 10 2010 at 10:17pm
 
 
Canada ... Toronto
 
Dr. Rebecca Dent
Sunnybrook Hospital - Odette Cancer Centre
 
Triple negative is her specialty -- well published. Leading a number of triple negative studies.
 
Like all specialists in Canada you need to be referred by your GP, surgeon, another oncologist, etc.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Mar 12 2010 at 1:28pm
Does anyone have any recommendations for MD Anderson?  A new member on this site is looking for a second opinion. 
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote The Texas Woman Quote  Post ReplyReply Direct Link To This Post Posted: Mar 12 2010 at 1:43pm
I'm an MDAnderson patient and I've not had a choice in any of my doctors. It took me five weeks to get in as a new patient (might be quicker this time of year) and I was just glad to get ANYBODY there. With a reputation like theirs, I don't imagine they hire just anybody so I was glad to take the rotation roulette. Plus, you can self-refer yourself now. Don't need a doctor to do it. Second plus, if I was going to the trouble of seeing someone there, I'd stick with them. My sister goes there too and she lives in Denver. They've given her years of good life when other doctors had written her off (ovarian cancer). I'll have my mastectomy there this month. Just done with chemo. Including signature even though it needs updating. Have to figure out how to do that.
Dx: 7/09 TN IDC Stage llB, T2, N1, Grade 3 and associated DCIS, BRCA Neg, Taxol x 12, FAC x 4, left mastectomy March 2010
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Dec 04 2011 at 7:47pm
Greetings.

What do members think about updating this original post
from 2/17/2010 on “Oncologists Recommendations”?
Think it would be great to have updated info on TNBC experts
in various states and at the various cancer centers on the forum.
To start: I took info from several of Steve’s posts   (and probably
missed some of his posts with referral names…so will ask Steve to add/update
after the SABC whenever his schedule allows)
and from a post by “Outnumbered”
and from the original posting on “Oncologists Recommendations”.
Have not checked yet if any websites initially posted are still active.
Know there are probably other TNBC experts that have been
mentioned on the forums that I have not included......so please
post any TNBC expert you know and don't see on the list.

Not sure what the best plan is to update.
Listed the The National Comprehensive Cancer Network (NCCN) below.
There is a list of the NCI cancer centers by state at http://cancercenters.cancer.gov/
Listed some of the TNBC experts that have been noted on the forums below.

Please add any new names or centers with location.
(include full address and phone number if possible).
If any MD’s no longer at places on below list, please post.
Once the addtions/updates have been posted, a master list can be compiled
If you have other ideas on how to update the list, please share.
Remember the initial post on this forum:
….“We continually get requests for recommendations of doctors who are knowledgeable with regard to TNBC.   Please reply back with your personal recommendations (Dr. Name, address and phone) so that we may compile a list organized by location.   DO NOT reply back with names of doctors to avoid as this could be interpreted as slander.”….

Please post if you have any questions.

Grateful for today…………….Judy

------------------------------------------------------------------
The National Comprehensive Cancer Network (NCCN) is a not-for-profit alliance of 21 of the world’s leading cancer centers.
     City of Hope Comprehensive Cancer Center Los Angeles, California
     Dana-Farber/Brigham and Women’s Cancer Center│Massachusetts General Hospital Cancer
                    Center    Boston, MA                                                
        Duke Cancer Institute Durham, North Carolina
     Fox Chase Cancer Center   Philadelphia, PA
     Fred Hutchinson Cancer Research Center/Seattle Cancer Care Alliance WA
     H. Lee Moffitt Cancer Center & Research Institute   Tampa, FL
     Huntsman Cancer Institute at the University of Utah
     Memorial Sloan-Kettering Cancer Center New York
     The Ohio State University Comprehensive Cancer Center – James Cancer Hospital and Solove Research
               Institute
     Robert H. Lurie Comprehensive Cancer Center of Northwestern University IL
     Roswell Park Cancer Institute   New York
     The Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins MD
     Siteman Cancer Center at Barnes-Jewish Hospital and Washington University School of Medicine   
               St.Louis, Missouri
     St. Jude Children’s Research Hospital/University of Tennessee Cancer Institute
     Stanford Cancer Institute      CA
     UCSF Helen Diller Family Comprehensive Cancer Center    SF, CA
     University of Alabama at Birmingham Comprehensive Cancer Center
     University of Michigan Comprehensive Cancer Center
     The University of Texas MD Anderson Cancer Center
     UNMC Eppley Cancer Center at The Nebraska Medical Center
        Vanderbilt-Ingram Cancer Center    Nashville, Tennessee

NCI (National Cancer Institute) has a list by state of both
Cancer Centers and Comprehensive Cancer Centers at http://cancercenters.cancer.gov/

-----------------------------------------------------------------------

TNBC MDs

From Steve’s TNBC forum posts:


CALIFORNIA
Dr. Hope Rugo..UCSF..San Francisco..

--------------------------------------------------------

FLORIDA:
Dr. Edith Perez at Mayo Clinic in Jacksonville
http://www.mayoclinic.org/bio/12305359.html
http://mayoresearch.mayo.edu/staff/perez_ea.cfm


Dr. Mark Pegram at Sylvester, Univ. of Miami
http://www.sylvester.org/research/research-knowledgebase/scientist?name=m_pegram

--------------------------------------------------------

MARYLAND
Dr Tatiana (Tanya) Prowell
Johns Hopkins
Baltimore MD

-------------------------------------------------------------

MASSACHUSETTS
Dr. Ann Partridge at Dana Farber Cancer Institute in Boston
-------------------------------------------------------------

NEW YORK

Dr. Tiffany Traina....Memorial Sloan Kettering Hospital, NYC
http://www.mskcc.org/prg/prg/bios/955.cfm

---------------------------------------------------------
NORTH CAROLINA

Dr. Lisa Carey...UNC Chapel Hill, NC..

http://cancer.unc.edu/research/faculty/displayMember.asp?ID=25

---------------------------------------------------------------------------

PENNSYLVANIA

Dr. Susan Domchek at Abramson Cancer Center in Philadelphia

------------------------------------------------------------

TEXAS

Dr. Ana Maria Gonzalez Angulo at MD Anderson Cancer Center in Houston
http://faculty.mdanderson.org/Ana_Gonzalez-Angulo/Default.asp?SNID=1481996111




/////////////////////////////////////////////////////////////////////////////


From Outnumbered ‘s post on TNBC forum:
MASSACHUSETTS
Dr Eric Winer at Dana Farber in Boston. I'm not sure if he is seeing new patients, but anyone who has trained under him must be wonderful (Dr Toppmeyer did).

NEW JERSEY
Deb Toppmeyer at Cancer Institute of NJ (CINJ is very close to the New Brunswick train station). Trained under Dr Eric Winer.


////////////////////////////////////////////////////////////////////////
From Ms Bliss posted on the forum:
CALIFORNIA



From this topic on Polls/Surveys forum: Oncologists Recommendations
(started 2/17/10)
CALIFORNIA
At UCSF:
Hope Rugo
Michelle Melisko
Mark Moasser (though his real expertise is in Her2+)
(Addendum:
HOPE S. RUGO, MD      Clinical Professor, Department of Medicine (Hematology/Oncology); and Director, Breast Oncology Clinical Trials Program,
UCSF                                                                                                         
CONTACT   (415) 353-7070 (appts)
(415) 353-9683 (fax)                     
                      Box 1710, UCSF; San Francisco, CA 94143-1710)
-----------------------------------------------------------------
INDIANNA
Dr. George Sledge is in Indianapolis, IN and see's patients at IU Simon Cancer Center. He is considered one of the best in the United States for Triple Negative!!!!!! He has made this his passion. Contact him at:
George W. Sledge, Jr. M.D.              
RT 473
535 Barnhill Dr.
Indianapolis, IN 46202                          Phone: (317) 274-0920
-----------------------------------------------------------------------
MISSOURI
Dr. Rachel Borson                                                                    
St. Louis Cancer and Breast Institute
450 N. New Ballas Rd, Suite 270
St. Louis, MO 63141
314-989-1300
http://www.stlcancer.com/content.aspx?section=yourteam&id=31465
http://www.stlcancer.com/
Breast Surgeon:
Dr. Marlys Schuh
She's at the same location listed above.
http://www.stlcancer.com/content.aspx?section=yourteam&id=31474
Plastic Surgeon:
Dr. Judith Gurley
14825 North Outer 40 Road; Suite 350           
Chesterfield, MO 63017       
(636) 812-4300    http:///www.judithgurley.com/
---------------------------------------------------------
TEXAS
Medical Oncologist - Dr. Amy Harker-Murray
Breast Surgical Oncologist - Dr. David Euhus
Radiation Oncologist - Dr. Ann Spangler
                 at
UT Southwestern Medical Center
Simmons Comprehensive Cancer Center
     2201 Inwood Rd
     2nd Floor, Suite 106
     Dallas, Tx 75390
214-645-4673 (HOPE)

-------------------------------------------------------------------

WASHINGTON              
Kristine J. Rinn, M.D.                                   
Oncology - Medical, Oncology - Medical: Swedish Cancer Institute
For appt: Call Kristine J. Rinn, M.D.'s office directly at (206) 386-3900
Swedish Cancer Institute-Medical Oncology, http://www.swedish.org/cancer
For Radiation oncology in Seattle at the same cancer clinic Dr. Astrid Morris.

-------------------------------------------------------------------------




Edited by Grateful for today - Jan 24 2012 at 2:57pm
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Post Options Post Options   Thanks (0) Thanks(0)   Quote TNinTN Quote  Post ReplyReply Direct Link To This Post Posted: Dec 04 2011 at 9:01pm
TENNESSEE
 
Dr. Ingrid Mayer, Vanderbilt-Ingram Cancer Center (615) 322-2064
 
Wife age 53@dx TN IDC Stage IIA 7/10; BRCA1&2 Neg; BROCA Neg; LN Neg; taxol+cisplatin+/-RAD001x12(clinical trial); lumpectomy 12/10;ACx4; 33 Rads complete 4/11; NED 5/5/11
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Dec 04 2011 at 10:12pm

TNinTN:   Thanks for the contact info at Vanderbilt-Ingram.        Judy

------------------------------------

Addendum:

Just realized initial post did not included info by Ms Bliss:
From prior Ms Bliss post on the forum:
              CALIFORNIA
In LA, Dr Sara Hurvitz is a triple negative specialist. She is at the John Wayne UCLA Center in Santa Monica. She is very young, but incredibly bright and works with Dennis Slamon, the doctor who developed Herceptin.

Judy

---------------------

Additions to above initial post:
          TENNESSEE
Dr. Ingrid Mayer, Vanderbilt-Ingram Cancer Center (615) 322-2064
http://www.vicc.org/dd/display.php?person=ingrid.mayer
          CALIFORNIA
Dr Sara Hurvitz      ( John Wayne UCLA Center in Santa Monica, CA)
UCLA Hematology and Oncology Santa Monica:
(310) 829-5471 Information and patient appointments
(888) 662-8252 [(888) ONC-UCLA] Information and patient appointments
Email:
shurvitz@mednet.ucla.edu


Judy

__________________________________________
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Barbi Quote  Post ReplyReply Direct Link To This Post Posted: Dec 04 2011 at 11:16pm
I will second the recommendation by Martin for Dr. Ingrid Mayer at Vanderbilt (please see his post of contact info). Extremely informed, professional, great communicator, and extremely personable.
10/10,age49,St3,gr3,5+cm,1 node,BRCA-,T+Cisplatin+Rad0001(or placebo),Lump 1+cm,AND 0/15,AC,rads finished 7/6/11.Mets bone, liver,mamm node 8/11,abrax/tigatuzamab failed.Started bicalutamide 11/16/11.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Barbi Quote  Post ReplyReply Direct Link To This Post Posted: Dec 04 2011 at 11:18pm
Wish I could edit the above post to just add that I have had family members treated at numerous university hospitals throughout the United States and I have to say that Vanderbilt exhibits an extremely high level of patient satisfaction in numerous ways, from the free valet parking to the ability to view and print your labs and image readings and everything in between. Was quite impressed with the experience.
10/10,age49,St3,gr3,5+cm,1 node,BRCA-,T+Cisplatin+Rad0001(or placebo),Lump 1+cm,AND 0/15,AC,rads finished 7/6/11.Mets bone, liver,mamm node 8/11,abrax/tigatuzamab failed.Started bicalutamide 11/16/11.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Dec 15 2011 at 11:58pm
Hi,

There are some states that we do not have any TNBC expert MDs for.
Will be combining the above lists from the 3 different sources plus additions
as suggested.

For now, the following are the states that we do not have TNBC expert MDs for:

Alabama                                      
Alaska                                          
Arizona                                          
Arkansas                             
Colorado                 
Connecticut                
Delaware                
Georgia                        
Hawaii                        
Idaho                        
Illinois                     
Iowa                       
Kansas                      
Kentucky       
Louisiana         
Maine                      
Michigan         
Minnesota           
Mississippi             
Montana
Nebraska     
Nevada
New Hampshire                            
Nw Mexico
North Dakota
Ohio
Oklahoma
Oregon
Rhode Island
South Carolina
South Dakota
Utah
Vermont
Virginia
West Virginia
Wisconsin
Wyoming

If any one has additional resources for states for which there are already some resources,
please feel free to add.
(Note: Prior resources from different sources. Final list will be alphabetical)
Again, will see if there are additional resources before compiling one list.

If any questions, please post.
If any state inadvertently left out, please post.

Thanks.

Grateful for today................Judy
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Barbi Quote  Post ReplyReply Direct Link To This Post Posted: Dec 16 2011 at 9:02am
In Alabama, I am sure Dr. Andre Forerro would be considered a TNBC expert. He is at UAB and is the primary researcher on the abraxane/tigatuzumab trial. He has (has) a video clip on this site discussing TNBC and is part of the consortium as well. Sorry I don't have contact info handy, but will try to add it at a later date.
He is very kind and always seems to be "in the know" as I ask him about studies and results or gladly tells you if he's not familiar (a wonderful trait for a doctor).
10/10,age49,St3,gr3,5+cm,1 node,BRCA-,T+Cisplatin+Rad0001(or placebo),Lump 1+cm,AND 0/15,AC,rads finished 7/6/11.Mets bone, liver,mamm node 8/11,abrax/tigatuzamab failed.Started bicalutamide 11/16/11.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote susanb Quote  Post ReplyReply Direct Link To This Post Posted: Dec 16 2011 at 11:15am
In Columbus, Ohio the very best for any breast cancer is Dr. Charles Shapiro at the James Cancer Hospital at OSU. He is the head of the Breast Cancer Department there. He doesn't take many patients these days as that he is involved in a lot of research. I suspect he took me because I am triple negative.
Dx June 06 stage 1 at age 46, no nodes, clean margins, Ki-67 at 54, Bilateral Mastectomy, 4 rounds AC, complete hysterectomy Aug O7. Mother and Grandmother both died of breast cancer dx in their 30's.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Dec 17 2011 at 7:22pm
Barbi:    Thanks for the resource in Alabama.

Susan:   Thanks for the Ohio resource.


We may not end up with a resource in every state.......but then maybe we will.
The following states do not have any resource expert TNBC MD. If you can
give a resource for any of the following states, please post.
Alaska                                          
Arizona                                          
Arkansas                            
Colorado                  
Connecticut                 
Delaware                 
Georgia                         
Hawaii                         
Idaho                         
Illinois                     
Iowa                        
Kansas                     
Kentucky       
Louisiana          
Maine                     
Michigan          
Minnesota            
Mississippi              
Montana
Nebraska      
Nevada
New Hampshire                            
Nw Mexico
North Dakota
Oklahoma
Oregon
Rhode Island
South Carolina
South Dakota
Utah
Vermont
Virginia
West Virginia
Wisconsin
Wyoming

If you have any resources to add to states that there is already a resource for, please
also post so we can add to list.

Will wait to see if there any other resources posted before compiling a final state
list ( states alphabetically)

With caring and positive thoughts to call,

Judy
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kado Quote  Post ReplyReply Direct Link To This Post Posted: Jan 10 2012 at 9:18am
Hello all.   I was recently diagnosed with TNBC and am looking for an Oncologist in the Atlanta area that specializes in it.   I know there are no recommendations yet posted for Georgia but was hoping that perhaps one of you may have one.  I have an appt later this week with an oncologist recommended by my surgeon but wanted to be able to have a couple of opinions and definitely see someone with TN expertise.   Thanks very much. 
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