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Ogliomestatic Disease

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Sara0414 View Drop Down
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    Posted: Feb 05 2017 at 8:51pm
Has anyone been diagnosed with Ogliomestatic Disease (5 or fewer mets) with any luck of achieving NED? If so, how long did you sustain NED and where was your MET?
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Elpida View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Elpida Quote  Post ReplyReply Direct Link To This Post Posted: Mar 21 2017 at 10:44pm
Hi - I am ER/PR positive but was diagnosed Stage IV de novo with oligometastatic disease  - 1 pelvic bone met. I have been NED since July 2016
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Sara0414 Quote  Post ReplyReply Direct Link To This Post Posted: Mar 22 2017 at 12:08pm
What treatment did you do for it? A lot of doctors don't recognize the term because most Stage IV isn't caught early. Mine was accidentally but now they don't even know if it was cancer or not.
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nslay View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote nslay Quote  Post ReplyReply Direct Link To This Post Posted: May 02 2017 at 9:20pm
It looks like I am being diagnosed with Oligo-Metastatic Breast Cancer (OMBC), as far as my diagnosis has progressed, at this point (biopsy last week). I have only one nodule in the lung on my CT scan, but I haven't had my PET scan, yet. If the PET confirms that this is OMBC, then my oncologist says I will have surgery followed by chemo.

I would like to hear from anyone out there who has been treated for OMBC: their experience of treatment and their outcome, so far.

Thanks.
Nancy

-----------------------------------------
May 2015: TNBC dx of R side. Chemo, double mastectomy in 2015. Radiation Jan 2016. June 2016 dx w/pneumonitis secondary to radiation tx.
April 2017: TNBC of 1 nodule in R lung. Waiting for PET in May 2017
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Post Options Post Options   Thanks (0) Thanks(0)   Quote atlhoosier Quote  Post ReplyReply Direct Link To This Post Posted: May 08 2017 at 3:40pm
Sarah, I am curious, what makes them now unsure?  I just found out last week that a lung nodule that I have is cancer, but they can't tell what it is yet--either breast or lung. We have been watching this spot since December when it was first discovered, and it grew from Dec-Apr, however it did not show as hot on the PET that I had in Dec.  I am scheduled to have another PET this week.  My onco has never seen a single nodule in BC mets.
DX Jan 2014, 37yo
stage 2a, grade 3
TN, 4 tumors in LB, 0 in RB
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Sara0414 Quote  Post ReplyReply Direct Link To This Post Posted: May 08 2017 at 9:13pm
Actually, I have met several people that had a single met or 2 and are doing quite well that were tnbc. Rose Penney being one. Look her up. My onc said it is rare to catch mets so early. Typically, patients become symptomatic and they find it has spread all over when discovered. So I am not surprised your doctor has never seen a patient with a single met. My doctor said with catching it (if it truely icancer) then it will be easy to control and get back in remission. Mine is in the chest wall (2 lymph nodes) which is why right now they are saying Stage 3c . They didn't bronch the paratracheal lymph node until after I started chemo so when tested tit was necrotic tissue. With the lack of evidence they can't say is I am truely stage 3 or 4. They really don't know if it is cancer or not but either way they think they will get it all. My pet scan on March 1 showed no sign of cancer after 4 cycles of AC. Now I am doing 12 cycles of toxyl and carbo. As my onc said we are just mopping up the mess now then we will top it off with radiation. My biological changed too so it is important for them to test tumor. I went from tnbc to 15% estrogen positive. Low but I will go on a hormone inhibitor for 5 years as well.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote atlhoosier Quote  Post ReplyReply Direct Link To This Post Posted: May 10 2017 at 12:13pm
So I'm confused on why they don't know if it's cancer or not.  Can they not biopsy what they are seeing?  For mine, they did a biopsy, and confirmed it is cancer, but they can't tell what kind it is yet.  Still waiting on slides from the prior hospitals, which is getting frustrating.  Is the lady you mentioned on this forum?  I will try to look her up!
DX Jan 2014, 37yo
stage 2a, grade 3
TN, 4 tumors in LB, 0 in RB
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Post Options Post Options   Thanks (0) Thanks(0)   Quote RosePenny Quote  Post ReplyReply Direct Link To This Post Posted: 13 hours 40 minutes ago at 6:23pm
Hi
I was diagnosed originally in 2011, stage 3B. Triple negative, three lymph nodes cancerous. 
Double mastectomy, radiation and chemo. 

2013, single met to the lung. Lung lobe removed.

Ct scans every 6 months. 

I have been consistently clear in each CT scan for four years. Blessed. 

There is hope. 

hugs Rose
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nslay View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote nslay Quote  Post ReplyReply Direct Link To This Post Posted: 13 hours 2 minutes ago at 7:01pm
That is very encouraging.
Thank you for replying and encouraging me.

Nancy
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