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Natalie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Natalie Quote  Post ReplyReply Direct Link To This Post Posted: Mar 17 2012 at 12:07pm
Lee,
 
I hope you feel better soon, it is a rough road. Yes i seemed to have a tougher time with each one, I think it was just the gradual toll it took on me. Went in on cycle 1 really nervous, afterwards sayin hey this ain bad...
 
My eyelashes & brows came off on Taxol. Nausea, swollen red feet that hurt went away also on Taxol. Much easier to tolerate for me, except the wrenching bone pain after Nuelasta injection really kkicked in BIG time.
Be very kind to yourself as much as possible, and keep pumping the fluids.
Maybe try some ginger tea?
 
All my Best,
Natalie
TNBC stage1 size 1.8, grade3 no nodes 4/11 Lumpectomy 5/11 4cycles DD A/C 4cycles DD Taxol. Double Mastectomy 12/11 BRCA all neg
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Post Options Post Options   Thanks (0) Thanks(0)   Quote turtle Quote  Post ReplyReply Direct Link To This Post Posted: Mar 17 2012 at 1:10pm
Lee,

Glad to hear you may it thru Mother Nature's tornado, now it's just dealing with the storm the docs are dishing out. My second round of TAC went much better, thanks to everyone's suggestions, especially being more proactive about the constipation, and taking Claritin right away for the Neulasta side effects. I think it's really the Neulasta that has wiped me out the most. Achiness & fatigue was better this time around though. Running errands today with my daughter--and getting ready for her science fair presentation on cancer!

Wishing you all the best for your upcoming scans. I found some B6 and thankfully they are swallowable size pills. 

It's a nice warm day here in NC, so I'm off to enjoy some sunshine. 
DX IDC TNBC 1/15/12 @ 46; MRI 2.4cm gr3 BRCA2+ 6174delT; LMX 1/31/12 2.5cm, pT2pNO(i)pMX, lymphovascular invasion present; 2/20/12 TAC X 6; 7/2/12 Rad X 25; 9/27/2012 2nd mastectomy & BSO surgery
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Mar 18 2012 at 12:16am
Hi Lee,

Hope Sunday will find things a little better.

It seems most people find taxol "easier" than AC......
Acknowledging there are some who had the opposite experience with the AC being "easier" than taxol.
In my experience, I did feel better on taxol than on the AC.
Hoping and anticipate the side effects of chemo will lesson as the AC part is over.

You mentioned wooziness, light-headedness, unsteadiness .
The anemia concern will be monitored by your providers.......and hopefully will stabilize and then
have the HGB improve on it's own now that the AC is completed.

It sounds like your wooziness, light-headedness and unsteadiness is different from what I experienced.
From the beginning of AC, I had a feeling of feeling lightheaded (hard to describe feeling)
and needing to hold onto something.
It lasted a short time....maybe minutes.....maybe 2-3 times per chemo cycle. It came at various times
after chemo.....sometimes day 3 and sometimes a day or two before the next chemo was due.   It went
away by itself. I could never tell when it would occur. After I finished all my chemo, it went away completely.
My MD could not explain it except that it was probably chemo related.   It did not seem
to be related to anxiety. Had this feeling prior to HGB dropping.
So your situation sounds different from what I had.......but since there was a little similarity thought
I would mention.....especially since my experience resolved.   

Thinking of only very good results for your Monday MRI.

With lots of caring and positive thoughts,

Grateful for today.............Judy

Edited by Grateful for today - Mar 18 2012 at 12:19am
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Lee21 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lee21 Quote  Post ReplyReply Direct Link To This Post Posted: Mar 18 2012 at 8:32am
Thank you all for your kind thoughts.  It's likely to be the cumulative effects of all the insults my body has taken -- hopefully they will resolve and it is reassuring to know that others before me have taken the path and recovered.
Steve -- thank you always for being in your thoughts.
Natalie -- thank you for the ginger tea suggestion.  I have been drinking green tea religiously.
Turtle -- glad to hear that you tolerated cycle 2 better and you are having a great time with your daughter.  Tell her about the 17 year old from Michigan who won top prize for his project on breast cancer (accepted already into MIT, Caltech,....waiting to hear from Harvard...-- been to White House also).
Judy -- thank you always for sharing so generously. 

12/9/11 @59,IDC,grade3, TNBC,3cm(MRI),SLNB0,stage IIA, BRCA1 variant
1/30/12 DD AC-T, 6/7/12 Lumpectomy, ypT1b(0.8 cm), 7/9/12 Rads x 30
11/9/12, clinical trial cisplatin/rucaparib, cisplatin-only arm
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Post Options Post Options   Thanks (0) Thanks(0)   Quote debB Quote  Post ReplyReply Direct Link To This Post Posted: Mar 19 2012 at 7:18am
Lee,

I am hoping that your MRI shows very positive results today! I also hope you a feeling better...

Deb
Dx 4/29/11, 46 yrs old, 3.9 cm tumor, Stg 2 Grade 3 chemo 4 rounds DD AC, 12 weekly taxol, finish. Lumpectomy, 2mm residual tumor. 37 rounds rads completed. Cisplatin/PARP trial
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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Mar 19 2012 at 7:25am
Lee,

Hope the MRI shows excellent results from the chemo!

Donna


DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Wade Quote  Post ReplyReply Direct Link To This Post Posted: Mar 19 2012 at 9:46am
Hi Lee,

I hope you're feeling better, and the MRI shows good results. We're thinking of you today...

Best regards,
Wade & Kerri
Wife DX 5/2011@52 2.5x3.1cm;6/2011 DD A/C 4x,Abraxane 4x; Lumpectomy, SN biopsy 10/2011; 10/27/2011 NED; Rads start 11-22-2011, Rads fin 1-11-2012; 10-2013 NED; 07-18-2014 NED; November 2018 NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Mar 19 2012 at 9:49am
Dear Lee,

I second the emotion. You don’t want to hear me sing that. That would not add to your day. Smile

warmly,

Steve
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Lee21 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lee21 Quote  Post ReplyReply Direct Link To This Post Posted: Mar 19 2012 at 1:10pm
Thank you all for your wishes -- it means so much to me. I have never met a more supportive group of gals and guys.
Steve -- you are funny. 
Anyways, I'm back from my MRI.  The scanner broke so that delayed things for over an hour.  For those who have not had a MR scan before -- it's so not pleasant.  The noise is almost unbearable.  You'd think that they could have fixed these problems in the 20+ years the machines have been in use! It took about 25 min for the breast MRI -- I wonder if the whole body MRIs take longer?

12/9/11 @59,IDC,grade3, TNBC,3cm(MRI),SLNB0,stage IIA, BRCA1 variant
1/30/12 DD AC-T, 6/7/12 Lumpectomy, ypT1b(0.8 cm), 7/9/12 Rads x 30
11/9/12, clinical trial cisplatin/rucaparib, cisplatin-only arm
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debB View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote debB Quote  Post ReplyReply Direct Link To This Post Posted: Mar 19 2012 at 2:39pm
Lee,

Do you know when you can expect to get the results? I know you are anxious to see how things have been responding!

Deb

and I for got to add- I completely agree about the noise!!!! Why can someone not come up with a more humane machine!

Edited by debB - Mar 19 2012 at 2:40pm
Dx 4/29/11, 46 yrs old, 3.9 cm tumor, Stg 2 Grade 3 chemo 4 rounds DD AC, 12 weekly taxol, finish. Lumpectomy, 2mm residual tumor. 37 rounds rads completed. Cisplatin/PARP trial
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Lee21 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lee21 Quote  Post ReplyReply Direct Link To This Post Posted: Mar 19 2012 at 4:45pm
Deb

I am hoping I will get it by Wednesday -- my last MRI was done on 12-30 and the results were in the system on 1-4.  Hoping the delay then was just New Year.

Lee
12/9/11 @59,IDC,grade3, TNBC,3cm(MRI),SLNB0,stage IIA, BRCA1 variant
1/30/12 DD AC-T, 6/7/12 Lumpectomy, ypT1b(0.8 cm), 7/9/12 Rads x 30
11/9/12, clinical trial cisplatin/rucaparib, cisplatin-only arm
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Lee21 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lee21 Quote  Post ReplyReply Direct Link To This Post Posted: Mar 22 2012 at 8:08am
Just got my results this morning - bad news: minimal change in size after 4 cycles of AC.
Will see onc on Monday and waiting to see my 2nd opinion at this moment.


Edited by Lee21 - Apr 03 2012 at 7:49am
12/9/11 @59,IDC,grade3, TNBC,3cm(MRI),SLNB0,stage IIA, BRCA1 variant
1/30/12 DD AC-T, 6/7/12 Lumpectomy, ypT1b(0.8 cm), 7/9/12 Rads x 30
11/9/12, clinical trial cisplatin/rucaparib, cisplatin-only arm
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Mar 22 2012 at 8:16am
Lee,

I just read this and am so sorry.  This really sucks, going through tx and finding little change.  I hope Dr. Sledge can give you some advice on how to proceed, eg, change chemo, surgery etc.  Please keep us posted.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Charlene Quote  Post ReplyReply Direct Link To This Post Posted: Mar 22 2012 at 8:46am
Lee,
I wish you had better news, but I'm sure much can still be done in finishing your treatment and helping you prevent recurrence.  Those of us who had surgery first don't even have the information that you have.  Praying for the right plan of attack that will make you feel better!
Charlene
DX 3/10 @59 ILC/TNBC
Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision
SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads
3/14:NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote turtle Quote  Post ReplyReply Direct Link To This Post Posted: Mar 22 2012 at 9:23am
Lee,

You've still got options, and are very versed and proactive about YOUR particular cancer, so I have a lot a confidence that you and your team will be able to address your treatment options effectively. We are in your corner as ever!!!
DX IDC TNBC 1/15/12 @ 46; MRI 2.4cm gr3 BRCA2+ 6174delT; LMX 1/31/12 2.5cm, pT2pNO(i)pMX, lymphovascular invasion present; 2/20/12 TAC X 6; 7/2/12 Rad X 25; 9/27/2012 2nd mastectomy & BSO surgery
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Mar 22 2012 at 11:32am
Lee,

So sorry the MRI result was not completely negative.

Maybe the glass can be both half full and half empty.
    Half empty..........the MRI was not negative.
    Half full..............you now have the opportunity to re-look and re-consult on your plan.

With your knowledge and ability to recognize important questions and considerations combined with
your MD and Dr Sledge's review and recommendations, there is no doubt there will be a good plan.
(Just a thought........would you consider to try to get some input/opinion from the MD you saw on
the consult in CA. Sometimes once one have seen a MD, some are willing to communicate with
you if there is new info.)   

With caring and positive thoughts,

Grateful for today...........Judy
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Wade Quote  Post ReplyReply Direct Link To This Post Posted: Mar 22 2012 at 12:13pm
Lee

I'm so sorry about the poor response to the A/C treatments...We're all hoping for the best for you.

Wade
 
Wife DX 5/2011@52 2.5x3.1cm;6/2011 DD A/C 4x,Abraxane 4x; Lumpectomy, SN biopsy 10/2011; 10/27/2011 NED; Rads start 11-22-2011, Rads fin 1-11-2012; 10-2013 NED; 07-18-2014 NED; November 2018 NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Mar 22 2012 at 1:34pm
Lee,

I remember a discussion after I joined about Adriamycin and whether it was as effective for BRCA (or maybe TNBC too).  You might find some discussion threads a year or two ago on this topic.  Sorry for the foggy brain, I just remember that this forum had a discussion on it.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote debB Quote  Post ReplyReply Direct Link To This Post Posted: Mar 25 2012 at 6:49pm
Lee,

Wishing you the best for your visit tomorrow with the oncologist.

Deb
Dx 4/29/11, 46 yrs old, 3.9 cm tumor, Stg 2 Grade 3 chemo 4 rounds DD AC, 12 weekly taxol, finish. Lumpectomy, 2mm residual tumor. 37 rounds rads completed. Cisplatin/PARP trial
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Mar 26 2012 at 2:09am
Dear Lee,

Sending you very caring and hopeful thoughts and wishes for Monday's appointment.


Grateful for today.............Judy
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