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New to the forum, Stage IIIA

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chillteacher View Drop Down
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    Posted: Nov 08 2018 at 4:05pm
Hello!

Diagnosed last month, TNBC Stage 3a, no genetic mutations and no cancerous tumors in breast. Has anyone else had positive axilla lymph nodes only? 

I began A/C chemo last week. Plan is A/C every other week for 2 months, a 3 week break and then Carboplatin and something else (?) for 12 weeks then at some point I need an axilla lymph node dissection. Mastectomy is possible as well. Anyone choose not to have mastectomy when no tumors are present in the breast? 

Grateful for this site and forum! :) 

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Monica5124 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Monica5124 Quote  Post ReplyReply Direct Link To This Post Posted: Nov 09 2018 at 1:57am
Can not help in your decision. Have your team recommended a mastectomy ? If you have an Mastectomy is there any reason you could not have reconstruction.Have they suggested chemo prior to surgery?  Have you gone to a University hospital.  You need to have a second and third opinion.  If not you need to consider having one. Take you for your post. Hoping for others to post to your request. 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Leahstuffle Quote  Post ReplyReply Direct Link To This Post Posted: Nov 09 2018 at 10:43am
Hello! I definitely am not having your experience, but it sounds like a fairly standard chemo regime for TNBC. The something else you mentioned is probably taxol, right? 

I personally am having a mastectomy, but I had a large tumor and I am ATM (genetic mutation) positive.

I second what Monica says - do you have a second opinion? I went as far as to see two medical oncologists and two surgeons before feeling confident in my treatment plan. 

If you need help finding doctors in your state or area that are specialists in TNBC, there's a list here: http://forum.tnbcfoundation.org/oncologist-recommendations-from-members_topic5721.html


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chillteacher View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote chillteacher Quote  Post ReplyReply Direct Link To This Post Posted: Nov 09 2018 at 7:03pm
I will definitely seek a 2nd opinion. I know a double mastectomy is the best way to prevent it from coming back, but I also want as little surgery as possible.  

Thank you for your responses!
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123Donna View Drop Down
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Post Options Post Options   Thanks (1) Thanks(1)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Nov 10 2018 at 5:32pm
There's a type of breast cancer with no primary site.  There have been a few members post about it.  Here's a thread from a few years ago:


DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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chillteacher View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote chillteacher Quote  Post ReplyReply Direct Link To This Post Posted: Nov 12 2018 at 10:33pm
Thank you Donna! Those posts were very helpful to read!
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