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123Donna 
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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 Posted: Dec 03 2010 at 7:37pm |
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Diane,
Great news about the NED and zero circulating tumor cells! You and hubby need to celebrate and dance with NED for a long, long time. Concentrate on getting your body healthy and healed. I'm so happy for you. Donna |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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Lillie
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Joined: Jul 10 2009 Location: Eastern NC Status: Offline Points: 3616 |
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Posted: Dec 03 2010 at 9:52pm |
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Dear Diane,
I am so happy for you. I remember the pain and despair in your posts a few months ago when you had the recurrence. You have been through soooo much to get back to a NED stage. I know it has been difficult, but thank you for sharing your journey. You give others hope when things are looking pretty bleak. Please enjoy your family and work on getting physically healthy again. God Bless, Lillie |
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Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
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MaryinSarasota
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Joined: Nov 08 2008 Location: Sarasota Status: Offline Points: 362 |
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Posted: Dec 04 2010 at 9:09am |
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Connie, I can barely think straight.... I can't believe it.. to see Connie in a post... to see Connie posting... I am so happy I might pee.
Diane, you are in the group of the bravest and stubborn people I know. I am so happy for you. Mary  |
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53 @ Dx 5/08 Stage 1, grade 3, IDC 1.6 cm, 0 nodes, TNBC, lumpectomy, chemo TAC-6, radiation-34 12/18/08
NED-10/09, PBM w/TE recon. 7/10, removal of TE/infec 8/10. CT chest. Rec fat-graft & stem cells |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Dec 05 2010 at 12:47pm |
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Diane I am so very very happy for you....enjoy your break and the holidays..what a blessing!
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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abcmom
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Joined: Dec 15 2009 Location: Summerville, SC Status: Offline Points: 738 |
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Posted: Dec 05 2010 at 7:07pm |
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That is wonderful Diane!! Merry Christmas!
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Diag 11/06/09 @ 40; Diag w/ TNBC Stage IIA, Grade 3 12/01/09 Node Neg. Dble MX with Recon 12/09 (twice)
Chemo 1/13/10 Chemo done 4/22/10 More recon surg 07/10, PET/CT Scan clear 07/10 NED 07/11 |
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Dec 05 2010 at 11:05pm |
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Dear Diane,
what marvelous news!!! congrats!!! all the best, Steve
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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nmunoz
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Joined: Jan 20 2009 Location: Miami, FL Status: Offline Points: 371 |
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Posted: Dec 06 2010 at 3:24pm |
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Great news Diane!!! I'm really happy for you and I will be praying for things to stay this way.
Hugs, Natalia |
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Natalia, 38 years
Dx TNBC 10/22/08, BRCA1+ Double Mx 11/20/08 with Recon. 3/37 nodes Rads 7 weeks done 8/09 ACx4 every 2 weeks and Tx12 weeks. Avastin e/3 weeksx10 (Clinical Trial) Done Dec/09 |
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diane1234
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Joined: Jun 05 2009 Location: Arkansas Status: Offline Points: 292 |
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Posted: Dec 06 2010 at 3:30pm |
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Cleaned out some cabinets today....YIIPPPEEE.....trying to live in the NOW and not look to far in the TOMORROW.....I believe that is how we are TRULY called to live. Of course at 37 years old I TRUUULLLLYYY feel MUCH older. Working on re-building strenght again. That way if this UGLY beast does rear his UGLY head. I CAN KNOCK THE CRAP OUT OF HIM AGAIN!!!! Yes the road has been VERY HARD. I continue to pray for the TRUE CURE....OH LORD JUST BE WITH US ALL..... Connie.....I think of you ALL THE TIME!!!!
Donna keep on keeping on....I continue to pray for us ALL!!!!!!!!
May God Bless Us All,
Diane
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dx 4/09 at 36 yrs old. dbl Mast. 5/09. 12 weekly Taxol 4 FAC tri weekly. 32 rads completed 2/2010. Its Back 5/2010!! Chest wall, Mediastinal node, Lft mammary node and liver. Back on chemo.
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zoomommy2
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Joined: Sep 26 2009 Location: Denver, CO Status: Offline Points: 1356 |
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Posted: Dec 06 2010 at 4:53pm |
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Diane,
You go, girl!
Lee in Denver
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dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Dec 20 2010 at 7:30am |
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I am so sad right now. Please pray for Diane. Her husband, Craig, posted this on her Carepages.
http://www.carepages.com/carepages/diva21 Prayer Needed Posted 2 hours ago
This will be short & not as good as dianes updates. We have
been here in the hospital since Wednesday under the hope &
thoughts that this was due to a low immune system & a sinus
infection. We are very upset to say the symptoms continued so they
did a MRI and it showed that this curse has showed back up in her
brain in short "mets" . We are waiting to do a another MRI of the
spine. The symptoms persist and they think it is due to it being in
her nervous system. They advised us not to travel in her shape.
Right now even going from the bed to the bathroom is a chore !
Diane agreed so for Now CTCA is not an option. We should met with a
doctor tomorrow after the MRI and get more of an idea of where it
has spread and what the options are. Hopefully we can get these
doctors to consult with CTCA. Again we ask for more prayers. I am
posting this due to they are keeping her on allot of meds for her
pain and she mostly sleeps. Edited by 123Donna - Dec 20 2010 at 8:06am |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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TNBC_in_NS
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Joined: Jul 26 2009 Location: NS Canada Status: Offline Points: 2028 |
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Posted: Dec 20 2010 at 9:40am |
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Speechless!!!! and my mind is swirling all over the place with this news!!!
How can one go from NED to METS so fast??????
What the heck is going on with these tests???? Are they all for naught!!!
What the heck is going on with the chemo??? All for Naught!!!
Bless you Diane & Hubby as you travel this rocky road. Stay strong and know that our love and prayers are being sent for you both.....
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Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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MaryinSarasota
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Joined: Nov 08 2008 Location: Sarasota Status: Offline Points: 362 |
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Posted: Dec 20 2010 at 9:55am |
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As Helen said... Speechless. This is unacceptable. I am so afraid for her, for all of us.
Diane and Craig.. thanks for letting us know. Tell her we sending her our best healing thoughts. Mary Hubley Donna.. thank you |
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53 @ Dx 5/08 Stage 1, grade 3, IDC 1.6 cm, 0 nodes, TNBC, lumpectomy, chemo TAC-6, radiation-34 12/18/08
NED-10/09, PBM w/TE recon. 7/10, removal of TE/infec 8/10. CT chest. Rec fat-graft & stem cells |
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sue
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Joined: Aug 13 2010 Location: NJ Status: Offline Points: 650 |
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Posted: Dec 20 2010 at 11:39am |
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Sending more love and prayers to you Diane and Craig. Hoping for strength and comfort as you travel this new path.
What a terrifying beast this cancer can be. Unbelievable. I pray every day for more research. With love and hugs, Sue
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Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11.
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abcmom
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Joined: Dec 15 2009 Location: Summerville, SC Status: Offline Points: 738 |
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Posted: Dec 20 2010 at 1:24pm |
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Oh my goodness! My heart just dropped. Unbelievable! Diane and Craig you are in our prayers and please give Diane a huge hug from us! We love her!
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Diag 11/06/09 @ 40; Diag w/ TNBC Stage IIA, Grade 3 12/01/09 Node Neg. Dble MX with Recon 12/09 (twice)
Chemo 1/13/10 Chemo done 4/22/10 More recon surg 07/10, PET/CT Scan clear 07/10 NED 07/11 |
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mjhoover@gmail.com
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Joined: Aug 03 2010 Status: Offline Points: 351 |
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Posted: Dec 20 2010 at 2:01pm |
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Wow what a big turn of events!!! Sending good wishes...I have a friend who had brain mets and they resolved it with gamma knife?? procedure and it took the cancer away from her brain. I have heard that whole brain rads can cause memory loss so if they offer that one you might want to research it thoroughly before you choose that one. I think a good rad oncologist might be the best person to speak with if you can find one in your area. So sorry Diane is feeling so bad with the pain and meds. You are wonderful Craig to support and take care of her too. Sending healing wishes your way! MJ
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Dec 20 2010 at 2:16pm |
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Well if this don't beat all!? Diane has been doing so well, I feel so sad and angry, Helen as you say how does this all happen so fast?
Diane please know we are here for you, sending our group hug, so glad you are getting some rest.
Thanks Donna for letting us know..
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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LauraT
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Joined: May 05 2010 Location: Georgia Status: Offline Points: 739 |
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Posted: Dec 20 2010 at 2:16pm |
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Diane and Craig - I am just stunned and praying for you both. Please know how much we all care for you here and how much we are pulling for you!
Love,
Laura
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DX 10/09 @44, Stage I IDC tnbc, DCIS other side, Neoadjuvant TCx4, Bilateral Mastectomy w/Recon 1/10, 1.2cm 0/7 Nodes, 5/11 Mets to Lungs/Lymph Nodes, Avastin/Taxol, 10/11 Bone Mets, Xgeva
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NinaE
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Joined: Dec 11 2009 Status: Offline Points: 181 |
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Posted: Dec 21 2010 at 1:51am |
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I hate this disease.
Diane and Craig, I'm thinking of you and your family. I hope you get some good news about treatment options. |
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Stage IV at dx in Dec 09, at age 38. Mets to lung, axillary, IM and mediastinal nodes.
4xAC-->dd Taxol. Dbl mast, 6/10. Radiation, 8/10. NED since June 2010. |
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zoomommy2
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Joined: Sep 26 2009 Location: Denver, CO Status: Offline Points: 1356 |
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Posted: Dec 21 2010 at 1:58am |
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I just read this and am speechless! I had prayed that a sinus infection was the problem. Praying she can get to CTCA as soon as she is able. Praying for Diane's comfort, strength, peace and continued faith as she fights the beast.
Lee in Denver
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dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
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Pink Warrior
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Joined: Dec 11 2009 Location: Missouri Status: Offline Points: 374 |
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Posted: Dec 21 2010 at 2:13pm |
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Dear Lord, what?!! I was elated reading through the posts and turned the page and... WHAT? How is this even possible?
Praying the new tests are horribly inaccurate. I'm stunned and speechless and angry. God bless and keep you, Diane and Craig. Praying, praying, praying.
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Dx:10/09,IDC Stg 2,Gr 3,TN
BRCA 1&2 - Partial DD EC/AC Local recur 11/10 BMX 12/10 Right proph TC x 4 Rads x 33 9/11 Skin mets, mediastinal & hilar nodes Abraxane/Avastin |
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