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MEMBERS IN YOUR AREA...Are they close?

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Carol (Tenn) View Drop Down
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Location: Paris,Tennessee
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol (Tenn) Quote  Post ReplyReply Direct Link To This Post Posted: Sep 01 2010 at 3:14pm
Ok West Tennesseans, Southwestern Kentuckians, South Eastern Missouri........I know you have to be out there somewhere. We can't let the Texans outdo us!
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13
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vickyann View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote vickyann Quote  Post ReplyReply Direct Link To This Post Posted: Sep 01 2010 at 10:12pm
Genie,
Let me know whe you are in Austin... I am taking my mother to her first chemo wednesday,port friday...Going back in there is hard for me......Cant let her down, is it ok that i hate this....for both of us......
 
Vickyann
Dx Christmas/07
Stage2 Grade 3
no nodule braca neg
lung nodule no growth
TAC x 6 no rad
finished chemo June 08 reconstruction 12/09
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Genie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Genie Quote  Post ReplyReply Direct Link To This Post Posted: Sep 01 2010 at 10:28pm
Vickyann, I am planning on coming to Austin on Sept. 11 to see my daughter. Maybe we can make arrangements to meet. She lives on the south side of Austin. Where in Austin are you located?

You & your mom are both in my thoughts and prayers. I know you will be a great support for your mom even though this is hard for you.
DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm.
KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC
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ozogsmom View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote ozogsmom Quote  Post ReplyReply Direct Link To This Post Posted: Sep 02 2010 at 2:52am
Guess i'm the only one so far from Michigan!! Anyone from the northern states?
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artlab View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote artlab Quote  Post ReplyReply Direct Link To This Post Posted: Sep 02 2010 at 7:05pm
I have not met anyone from this forum...but I have met two women that were on the Komen forums with me.  This past summer I traveled to NH to spend time with a former college roommate...and she was kind enough to drive me to Maine to meet my Komen friend.  Another friend was traveling to Long Island to visit an elderly aunt in an assisted living facility...and she was kind enough to stop on the way to have lunch with another Komen friend.
 
We had all gone through chemo/radiation during the same time period...it was fun to meet each other, talk, compare length of hair, curls, gray, etc.  I hope to meet yet another person in MD this fall.  I will be traveling to a convention in Baltimore.
 
I would highly recommend taking the opportunity to do this....of course, keeping safety in mind!!  The first trip, my friend was with me...but we did go to the person's home.  I had so much communication with her on both Komen and FB that I felt it was "safe".  The second person we met at a diner...both convenient and safe!!  (My children were concerned about this aspect of the meetings!)
 
I live in New Jersey.
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briestarr View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote briestarr Quote  Post ReplyReply Direct Link To This Post Posted: Sep 02 2010 at 8:25pm
I am still looking for someone in the west!!  There has to be someone here in Reno!!  I feel like I am the only one!!
 
Brie
DX TNBC Feb 2010
age 48
Lumpectomy 2cm
6 nodes removed, all clear
Chemo A/C and Taxol 8 sessions
Radiation 33x
BRCA 1 and 2 negative
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Cathy Leigh View Drop Down
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Joined: Mar 03 2010
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Cathy Leigh Quote  Post ReplyReply Direct Link To This Post Posted: Sep 03 2010 at 1:08pm
Carol, I seem to be the lone wolf from East TN, Chattanooga, I come to Nashville occasionally, maybe we can plan to see each other.
61 years old at dx 12/1/09
Left Mastectomy 2/4/10, 2 sentinel nodes negative and margins around tumor negative
Clean PET/CT scan on 3/2/10
ac/taxol began 4/2011-Finished 9/10. CT Scan 8/11 NED
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tnbcsucks View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tnbcsucks Quote  Post ReplyReply Direct Link To This Post Posted: Sep 03 2010 at 1:14pm
Where in MIchigan?
TNBC DX April, 2010,Lumpectomy May 3.5cm with clear nodes,Stage 2, Grade III Started Chemo on June 7: 4 A/C every other week and then 12 weeks of Taxol. followed by 6 weeks of radiation.
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TNBC_in_NS View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote TNBC_in_NS Quote  Post ReplyReply Direct Link To This Post Posted: Sep 03 2010 at 2:21pm
Well gals, I am in Nova Scotia Canada.  There are a few members from Toronto and Niagra Region, but I have yet to meet someone from Nova Scotia.  Although, my son-in-law's sister has been diagnosed with TNBC last month and has since had her mastectomy and is doing well.  Bless her heart! Keep trying, I am sure we will hit someone in the area.Wink 
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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outnumbered View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote outnumbered Quote  Post ReplyReply Direct Link To This Post Posted: Sep 03 2010 at 4:39pm
I am in Central NJ. I think there are several of us...
Maybe we can get together and bring dinner to Caryn...

Edited by outnumbered - Sep 03 2010 at 4:51pm
~Sara

DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG

BMX (nipple-areola-sparing) 8/5/08

Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09

BSO 9/3/09

NED since 08/05/2008
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Debris View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Debris Quote  Post ReplyReply Direct Link To This Post Posted: Sep 03 2010 at 5:27pm
Helen,
 
Good luck with Hurricane Earl headed your way!  Stay safe, and dry!
4/12 Xeloda/Tykerb
2 Carboplatin
12/11 Dx IA
9 Gemzar/Taxotere Dx IBC:FEC
5 Ixempra/Sprycel
2 25 Rad
10/10 BRCA1-/2suv
9 NED
6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin
06/08 Dx DCIS 0/SN Rads/AIs
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Rudy View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Rudy Quote  Post ReplyReply Direct Link To This Post Posted: Sep 03 2010 at 5:56pm
Hi,
Well, the water must be pretty good here because it seems I'm the only one from Florida. 
Atlanta girls would be my best bet, but not traveling much at the time.   BUT, if you get a wild hair and want to visit Orlando, let me know!
Ruth
57 yrs/dx 3/24 IDC/Stage 2 Gr3 3.5cm Cl trial (Ad/Tax)neoadj. chemo April. BiMX with exp June. ACx1 July. Implants August. Started chemo again Sept. A/Cx2. Called it quits Oct. Port removed Nov.
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Susie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Susie Quote  Post ReplyReply Direct Link To This Post Posted: Sep 03 2010 at 9:02pm
Alabama Calling Alabama!! I am getting in to this late.. I actually know of 4 of us in Birmingham with TNBC!! One dx about 3 weeks ago.
Anyone else from Alabama, somebody Huntsville...?
dx 10/08,age 56,.75 cm. Stage1 Grade3,lumpectomy,SN neg..,AC 12/08-02/09,35rads,03/09-05/09,BRCA2+(E1415X),06/09,oophorectomy 10/09,
Zometa - IV/mo.,07/09-08/10, lumpectomy #2 10/20/10 NED
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Carol (Tenn) View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol (Tenn) Quote  Post ReplyReply Direct Link To This Post Posted: Sep 04 2010 at 8:44am
How about we call a mass meeting in Nashville. Seems like it might be a middle of the area thing...how far is everyone from Nashville.
I am about 120 miles west.
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13
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LauraT View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LauraT Quote  Post ReplyReply Direct Link To This Post Posted: Sep 04 2010 at 9:09am

Nashville is a short 250 miles from Atlanta!

Laura

DX 10/09 @44, Stage I IDC tnbc, DCIS other side, Neoadjuvant TCx4, Bilateral Mastectomy w/Recon 1/10, 1.2cm 0/7 Nodes, 5/11 Mets to Lungs/Lymph Nodes, Avastin/Taxol, 10/11 Bone Mets, Xgeva
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Lillie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: Sep 04 2010 at 12:00pm
Hi Carol,

I don't know how many miles for me, but I can get a flight from Raleigh/Durham to Nashville for $124.00.   So count me in if it comes to pass.

God Bless,
Lillie
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED
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briestarr View Drop Down
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Location: Reno, NV
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Post Options Post Options   Thanks (0) Thanks(0)   Quote briestarr Quote  Post ReplyReply Direct Link To This Post Posted: Sep 04 2010 at 12:55pm
I am going to Atlanta in April...  for my 50th birthday... never been there and met friends there that have a home on the lake....(don't ask me which lake)  LOL.  I am looking forward in going.  I am going to stay about a week, so if anyone wants to meet up then, that lives in GA... let me know...
We will all plan a group hug event!!
I haven't met anyone here in Reno yet!!
 
Brie
DX TNBC Feb 2010
age 48
Lumpectomy 2cm
6 nodes removed, all clear
Chemo A/C and Taxol 8 sessions
Radiation 33x
BRCA 1 and 2 negative
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Carol (Tenn) View Drop Down
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Joined: Aug 06 2009
Location: Paris,Tennessee
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol (Tenn) Quote  Post ReplyReply Direct Link To This Post Posted: Sep 04 2010 at 1:14pm
Let's see....
 
Lillie can fly into Nashville, Brie and Laura can drive up from Atlanta...suzie is in Chattanooga...(I think it's suzie...) Suzie might be in B'ham..she can drive up..suzie is pretty near too...
That's 6 so far....
When in April...
Lillie, is that round trip or will I get to keep you?
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13
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Lillie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: Sep 04 2010 at 1:59pm
Hi Carol,

Man, this is sounding good to me. A group of TN sisters all in the same place at the same time. WOW

As for being able to keep me. If I get a one way ticket (Don) would have to come with me. He says if I ever leave him, he is coming too. If I get a round trip ticket, I think I could persuade him to stay behind for a few days......... Although, once I flew to spend a week with my daughter in SC and my son called and said, "Mamma, when are you coming home? Daddy is pitiful without you". I didn't know whether to be happy or mad. A grown man who can't fend for himself for a week is "pitiful".....

God Bless,
Lillie

Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED
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Susie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Susie Quote  Post ReplyReply Direct Link To This Post Posted: Sep 04 2010 at 6:18pm
Birmingham is a little less than 3 hours driving from Nashville!! Count me in!!
dx 10/08,age 56,.75 cm. Stage1 Grade3,lumpectomy,SN neg..,AC 12/08-02/09,35rads,03/09-05/09,BRCA2+(E1415X),06/09,oophorectomy 10/09,
Zometa - IV/mo.,07/09-08/10, lumpectomy #2 10/20/10 NED
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