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tasoula_s View Drop Down
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    Posted: Nov 27 2011 at 5:49am
There is 1 week now my mum has a pain in her back(lower back pain).
She wants to ask you if any of you have or had persistent pain where is your lower back, where is spine.
She's wondering if that pain has something to do with her osteopenia or maybe is osteoarthritis.
She will visit her oncologist these days because there is 1 week now she has the pain and she is thinking if a bone scan is needed.She is afraid and i'm afraid also...every pain is an added stress....
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sue View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sue Quote  Post ReplyReply Direct Link To This Post Posted: Nov 27 2011 at 10:55am
Dear Tasoula,

I have been having right lower back, hip and thigh pain for about 3 weeks now. I mentioned it to my onc at my follow-up this past Monday, and am awaiting an appointment for a bone scan as per her recommendation, and she wants to see me in one month instead of three months for follow-up. At first I was blown away at the term "bone scan" and not very happy at all, but as the pain has continued, now I just want the scan so I can find out what the pain is and move ahead with treatment to relieve it. I also have the fear and stress of "what if it is cancer", and hope it is just arthritis or something age-related, but am so very glad to have a pro-active onc who wastes no time to diagnose a problem when it occurs.  
I will be praying for your mother that her situation is also age-related and not cancer.  

Love and Peace,
Sue
Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11.          
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tasoula_s Quote  Post ReplyReply Direct Link To This Post Posted: Nov 28 2011 at 12:26am
Dear Sue,
 
I will be praying for you also.....
I think this pain is coming from arthritis and from the cold weather....
If my mum's pain continues she will be having a bone scan also....
I was thinking that maybe is from osteopenia? Did you ever had a DEXA scan?
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Lillie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: Nov 28 2011 at 2:04pm
Dear Sue and Tasoula's Mom,

I'm praying that the pain both of you have in your back, spine, hips and otherwise is nothing associated with cancer. There are so many other causes for this type of pain that are more easily accepted.

God Bless,
Lillie
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: Nov 28 2011 at 7:29pm
Tasoula, do you remember your promise?  :)

Give it another couple weeks at least before you panic.  Everyone who's anyone gets back pain.
love,
d

DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: Nov 28 2011 at 7:29pm
AND she was just scanned up down and sideways.  NED NED NED NED
Deep breath!
(We all have PTSD)

DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tasoula_s Quote  Post ReplyReply Direct Link To This Post Posted: Nov 29 2011 at 12:48am
Thank you Lillie and Denise for your support....
She's in so much pain and just worry about her........
I have talk with her onco and she's having now pills and topical cream and tomorrow we will go to see him...He says that probably tha pain is like lumbago so it needs time.If continues he will order an MRI.
He says that because she has a lot of pain is not something
bad(that im afraid of!).
I will keep you  informed and thank you very much for always be here and supportive... 
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sue View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sue Quote  Post ReplyReply Direct Link To This Post Posted: Nov 29 2011 at 9:55am
Lillie,

Thank you for the prayers and support. I have been working more, so not on here as much lately. Hope you had a nice Thanksgiving. 

Love and Peace, 
Sue
  
Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11.          
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sue View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sue Quote  Post ReplyReply Direct Link To This Post Posted: Nov 29 2011 at 9:58am
Tasoula,

Thank you for the prayers.  I did just have a Dexascan a few weeks ago which showed minimal thinning bones, nothing out of the ordinary for my age. Hope your mum is resting and healing.  

Love and Peace, 
Sue
Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11.          
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Post Options Post Options   Thanks (0) Thanks(0)   Quote nmunoz Quote  Post ReplyReply Direct Link To This Post Posted: Nov 29 2011 at 10:38pm
Dear Tasoula,

Your mom's pain is probably something else... she had recent scans and they were fine. I won't tell you not to worry because we all do; with every pain and ache. But, for what it's worth I recently experienced lower back pain myself. I had pain in my lower back for almost three weeks and to make things worse while touching my back to find out where the pain was I also found a little soft, non painful, movable lump in that area towards the right side of my spine. Of course I thought the worse; I'm a TNBC survivor, why wouldn't I? I gave it a couple of weeks and thought about all the other explanations (without taking the other one our of my head); it could've been that my 3 year old had slept for several nights in a row with me in my bed, or that my desk and chair at the office are not in the best ergonomic position or even that I pulled a muscle while exercising. My dad is an orthopedist and he insisted that I went to see one so he practically made the appointment himself.

I went to the doctor a couple of weeks ago and the truth is that by then (5 weeks after it started) the pain was almost gone. He told me that the lump I felt was just fat (yeyyyy for fat! ) and after examining me he determined it was probably a pulled muscle. He didn't even ordered any tests as the pain was almost gone (now it is gone). He was very nice and really heard what I was telling me and told me he understood my concerns, especially as a TNBC survivor. He told me it was OK to worry and that I could go back at any moment if I felt any other concern . I had a PET back in June that was clean so I guess that helped too. In any event, this is my story. Maybe if I'd had gone to see the doctor earlier it would've spared me some sleepless nights. Have you considered seeing a specialist in back pain? If your oncologist believes it could be lumbago then that may be the best route to follow.

My pain got much better after I took anti-inflamatories everyday for a few days (that was before I saw the doctor as my dad prescribed me) I don't know if your mom has tried it but this may help. My doctor also mentioned that when my back bothers me I shouldn't do any kind of back stretching or any activity that strains that area in any way. He also said to massage the area with some ice covered by a towel. Maybe that can help too.

I hope your mom feels better and I will be sending good energy your way.

Best,

Natalia

Edited by nmunoz - Nov 29 2011 at 10:42pm
Natalia, 38 years

Dx TNBC 10/22/08, BRCA1+

Double Mx 11/20/08 with Recon.

3/37 nodes

Rads 7 weeks done 8/09

ACx4 every 2 weeks and Tx12 weeks. Avastin e/3 weeksx10 (Clinical Trial) Done Dec/09
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tasoula_s Quote  Post ReplyReply Direct Link To This Post Posted: Nov 30 2011 at 12:44am
Thank you Natalia for the reply....
 
We will go today to see her oncologist and my mum insists to see an orthopedist-rheumatologist.
Did you see an orthopedist doctor? Did he prescribed you an anti-inflamatory  gel and pills for back pain?
There is now 10 days she's having the pain and i believe also is a muscle or arthirtis.
She is having anti-inflammatory pills and gel.
She is thinking that maybe is from the weight bearing exercise she's having...
I will keep you posted when coming back from doctor....
Thank you and all the best to all of you!!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tasoula_s Quote  Post ReplyReply Direct Link To This Post Posted: Nov 30 2011 at 12:48am
Thank you Sue.....how are you feeling? Are you taking any pills for your back pain?
I believe also that the pain is age related or any pulled muscle....
Do you do any kind of exercise?
 
I'm praying for you...
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sue Quote  Post ReplyReply Direct Link To This Post Posted: Nov 30 2011 at 9:30am
Hi Tasoula,

Thank you for your prayers.  Hope your mum is better today. I have been taking Advil which helps sometimes but not other times, but the pain is not as bad to my inner thigh right now, so I am hoping that was just a strain from work. I was working in a repetitive motion, physical job. Have since changed work to a less physical job with less repetitive motion. Now I have pain mostly in my lower right back/buttock and right outer knee/calf that comes and goes every few minutes or so and is not completely relieved with Advil or change in position. Still waiting for the call to schedule bone scan and ready to have it done and move past this pain. 

Love and Peace,
Sue
Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11.          
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Nov 30 2011 at 10:50am
Hi Tasoula,

Positive thoughts that your Mum's visit goes well today.

When the oncologist clears your Mum from an oncology point of view, sounds like your mum is
planning to see an orthopedist/rheumatologist.
Are you considering asking the MD for a physical therapy referral?
That is the name of the physical therapist that gets the best results for people with back pain?
Maybe friends or relatives might also know a great physical therapist.
If your Mum decides to see a physical therapist, try to get the name of the best physical therapists
in your area.....the right one can make all the difference in the world.

With positive and caring thoughts,

Grateful for today.....................Judy
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Post Options Post Options   Thanks (0) Thanks(0)   Quote denise07 Quote  Post ReplyReply Direct Link To This Post Posted: Nov 30 2011 at 9:42pm
Dear Tasoulla,
How is your mom doing? I just want to let you know I have osteopenia I found out when I was 40 I had a dexa scan a couple of times and it did show thining of the bone, I was on fosamx which did help with the bone loss but they took me of this year because you are only supposed to take it for 5 years and I was on it longer then that.Did they recommend fosamax for your mom?I do get pain and soreness down my back but they sad to take advil or alieve for that and it helps. I think that your mom had scans recently and they were ned that is a great thing that is what mkes me think this is osteopenia or arthritis related which can be very painful. Please up date us on how she is doing.
My prayers are with the both of you
Denise
DX Idc 10/07,st2,gr3,2/6 lymphnodes
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Post Options Post Options   Thanks (0) Thanks(0)   Quote denise07 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 05 2011 at 11:30pm
Tasoulla,
Any news? How is mom?
DX Idc 10/07,st2,gr3,2/6 lymphnodes
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tasoula_s Quote  Post ReplyReply Direct Link To This Post Posted: Dec 06 2011 at 12:57am
Denise, we went to oncologist and he recommended pills and gel for her back pain and if in a week is not gone then he will order an MRI.He believes is just a back pain(lumbago), nothing more!! She had a PET in August so we believe is nothing else there.
Now she started feeling better but the pain is still there(not so intense), so it started to recess.
As for the osteopenia the oncologist prescribed Zometa and as soon as she is feeling better she will have Zometa.Lets pray everything goes well..........
She's hesitating to take Zometa and she's not sure for having it but the doctor insists because he believes in its anticancer activity and in the prevention of osteoporosis........
The thing is now Christmas is coming and if having it next week and after having any side effcts from it, it will be very pity too loose good time......
It is from May she had the DEXA which showed osteopenia and oncologist worries that maybe it progress to osteoporosis so he recommends as soon as she feels better to have it.....
 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tasoula_s Quote  Post ReplyReply Direct Link To This Post Posted: Dec 06 2011 at 1:02am
Thank you all for the support and prayers...
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Post Options Post Options   Thanks (0) Thanks(0)   Quote nmunoz Quote  Post ReplyReply Direct Link To This Post Posted: Dec 06 2011 at 4:52pm
Hi Tasoula,

Is good to hear that your mom is feeling better and hopefully her pain will go away soon. I've been taking Zometa for the last couple of years; my oncologist ordered 6 doses (once every six months). I had a bone scan a couple of year ago and it showed a little osteopenia which was really border line. However, due to my age and the fact that I will have to have my ovaries removed soon as I am BRCA1+ which increases my risk for osteoporosis he wanted me to have the Zometa. The only side effect I've experienced so far was some pain in my bones after the first treatment. The nurses told me to take a couple of Advils the night before treatment and I have not experienced any pain in any of the other 4 treatments I've had. You can ask around here for the side effects that others have experienced. One important thing to do is to have the dentist check your mom out and do so every six months to make sure her teeth are ok as osteonecrosis of the jaw is a dangerous side effect that although remotely, does happen to people taking Zometa.

Best,

Natalia
Natalia, 38 years

Dx TNBC 10/22/08, BRCA1+

Double Mx 11/20/08 with Recon.

3/37 nodes

Rads 7 weeks done 8/09

ACx4 every 2 weeks and Tx12 weeks. Avastin e/3 weeksx10 (Clinical Trial) Done Dec/09
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tasoula_s Quote  Post ReplyReply Direct Link To This Post Posted: Dec 07 2011 at 12:48am
Thank you Natalia and i wish you always all the best to you!!
 
Did you ahd a DEXA before you started Zometa to see if you had osteopenia so to check afterwords what benefit you have gained from Zometa?
 
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