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Judy g View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Judy g Quote  Post ReplyReply Direct Link To This Post Posted: Sep 12 2010 at 12:38pm
Ok, so this is one more itching person out there.  Recently my right breast has been itching like crazy, for over a month now. This is the same breast that I had my lumpectomy on.
I'm not a paranoid person, but this little voice inside has been saying something isn't right, but I really just put it on the back burner because of the brain met thing I've been going through since June.  I just decided to see if there have been any posts about this, and sure enough.
I am having a Breast Ultrasound tomorrow and Bone Scan, I'm due for Mamo next month, I think I'm going to see if they can do the mamo tomorrow as well.
Crap, here I go again!
Judy
dx 4/09
lumpectomy 4/24 4.5cm
node positive; stage 2
A/C, Taxol, Radiation
Brain Met, 6 cm 5-28-10 (surgery)
Gamma Knife: July'10,August'10, Sept.'10
WBR, October 10 (x15)
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Post Options Post Options   Thanks (0) Thanks(0)   Quote zoomommy2 Quote  Post ReplyReply Direct Link To This Post Posted: Sep 12 2010 at 12:58pm
Judy,
 Praying for good results from your ultrasound and bone scan tomorrow.  I think the ultrasound is more definitive than the mammogram.  Just my experience over the years with the docs trying to decide between a cyst and a tumor.  The u/s always gave them the answer.
Lee in Denver
dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Judy g Quote  Post ReplyReply Direct Link To This Post Posted: Sep 12 2010 at 1:01pm
Hi Lee,
thanks, I just feel like "here I go again"
Judy
Judy
dx 4/09
lumpectomy 4/24 4.5cm
node positive; stage 2
A/C, Taxol, Radiation
Brain Met, 6 cm 5-28-10 (surgery)
Gamma Knife: July'10,August'10, Sept.'10
WBR, October 10 (x15)
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Post Options Post Options   Thanks (0) Thanks(0)   Quote zoomommy2 Quote  Post ReplyReply Direct Link To This Post Posted: Sep 12 2010 at 1:15pm
Judy,
I don't think there is probably any way to get rid of the "deja vu"  feeling.  As the song by Mercy Me goes, "I can only imagine."  Praying for peace and serenity awaiting your tests.  You aren't alone.
Lee in Denver
dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
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Post Options Post Options   Thanks (0) Thanks(0)   Quote fragilistic Quote  Post ReplyReply Direct Link To This Post Posted: Sep 13 2010 at 8:49am
I get those cramps from taxol, in my jaw and other places but no itching, although I experience a kind of creepy feeling on my skin (with taxol) not with other drugs. I did talk to someone at clinic who had it and the Dr. tried to explain it by saying the liver was trying to get the impurities out. He said take benydryl and it will go away, but it made her sleepy so that didn't work and it eventually went away she said. Anyway no real itching until now, when I read the posts I got ITCHY all over.
Diagnosed stage 3 in 2004-ACT Reocurrance, bone and lung 2008-Stage 4 Paclitaxol and sutent experimental. Now in the liver too as XELODA failed (5 rounds) on taxol again. In queue for PARP, we'll see
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Post Options Post Options   Thanks (0) Thanks(0)   Quote overwhelmed Quote  Post ReplyReply Direct Link To This Post Posted: Sep 13 2010 at 9:37am
It seems that every treatment brings some strange new side effect.  Last time my feet ached, but I think I know why.  I was delayed getting the prosthetic because there was just one company in town that was "in network" and they didn't even have the right size or shape for me to try.  I tried to go with a company that knew about fitting, but it would have cost too much.  At any rate I was told by someone from the out of network company that the prothetic needs to have weight to it for balance.  I was using something made of cotton with some batting and no weight.  I ached all over.  The day I got the prosthetic the aches and pains disappeared.  My shoulder, back, feet and legs no longer hurt.  I never would have thought those body aches were because I didn't have a prosthetic, but it seems they were.
 
Frgilistic, I had that creepy feeling on my skin last night.  It felt like a bug was crawling on my leg, but each time I looked or tried to brush it away, nothing was there.  I am on Taxotere.  Maybe it's from that. 
DX ILC TNBC 3/10 at 50, Stage IIb; Grade 3; 5.1 to 7 cm,SNB neg;TC-6 rnds, 30 rads, Avastin-18 rnds, BRAC 1&2-
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Post Options Post Options   Thanks (0) Thanks(0)   Quote fragilistic Quote  Post ReplyReply Direct Link To This Post Posted: Sep 13 2010 at 12:02pm
Thanks Hummie and overwhelmed and everybody else. I think I can hold until for a while longer, maybe a long while. In the meantime I do think the taxol kind of drugs cause that creepy feeling and I put lotion on that is supposed to be for your feet that has peppermint or something in it and it kind of numbs the crawly feeling when I get it. (Don't put it on your lips though,seriously.) Today I'm playing the cancer card to get my son to come over and rake the leaves. The exercise might do me good, but I'm just too lazy:) I still have a full deck left.
Diagnosed stage 3 in 2004-ACT Reocurrance, bone and lung 2008-Stage 4 Paclitaxol and sutent experimental. Now in the liver too as XELODA failed (5 rounds) on taxol again. In queue for PARP, we'll see
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Post Options Post Options   Thanks (0) Thanks(0)   Quote bashamk Quote  Post ReplyReply Direct Link To This Post Posted: Sep 13 2010 at 8:04pm
Yes! Sound just like me. Horrible itching, mainly the nipple, started about 6 months before they found my lump. I always thought it was something weird with me, nice to hear I'm not the only one!
dx 6/25/09 age 45, IDC TNBC,
stage 1, grade 3, 1.5 cm
Lumpectomy, T/C x 4, 33 rads
Dx Dec 2015 Stage 4 metaplastic
Cell growth on nerves in shoulder to rt arm; mediastinal nodes; Bone; skin mets
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Post Options Post Options   Thanks (0) Thanks(0)   Quote mamawof4 Quote  Post ReplyReply Direct Link To This Post Posted: Sep 13 2010 at 8:07pm
I itch in the middle of my breast. It drives me crazy. They say its heat rash but I am going to have the dr check me out good when I go back in a couple of weeks. After seeing this thread.
dx 4/9/09 with stage 2a grade 3,one node cancerous, lumpectony,10 radiation treats via mamma site,8 chemo treat with 4 a/c and 4 iexempra thur clinical trial finished 11/25/09 PALB2 gene+
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Post Options Post Options   Thanks (0) Thanks(0)   Quote MMGabriel Quote  Post ReplyReply Direct Link To This Post Posted: Sep 13 2010 at 10:20pm
How odd to read this post today.  About a week after the my Taxol treatment, I broke out in a horrible rash (last Thursday).  The Dr said it was unrelated to the chemo.  They gave me steroids, but the rash got worse over the weekend.  Based on some investigative work, I think this was bacterial folliculitis or something similar.  Basically related to the empty hair follicles on the trunk of my body.  The steroids and putting bacitracin ointment made it subside.  It was horrendous, particularly after going through the Taxol side effects the previous weekend.  

In a stronger state, I think this would not have happened because my body would have fought off whatever caused the rash.

And, just as it is starting to clear up, I have another treatment on Friday.  <Big Sigh>


5/10 Dx IDC TNBC, age at diagnosis 39, Stage 2, Grade 3, 2.7cm, 0/3 Nodes; ACx4/Tx4 dose dense; 6 Weeks Radiation
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Judy g View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Judy g Quote  Post ReplyReply Direct Link To This Post Posted: Sep 14 2010 at 10:18am
Seems to be a lot of posts about itching from taxol, my original post/question has nothing to do with that as I have been done with chemo since last Sept.
so my itching is post chemo and post radiation.
I too had itching durning taxol and I think that is just one of the symptoms.
I had an ultrasound and then Mammo yesterday that showed nothing.  I put a call into my Rad. Onc. to talk to him about this as it seems that the breast itching is followed by a tumor several months later.
what I want to know is did anyone have the breast itching, have a mammo, and find the recurrance before it turned into a tumor?  for example, the mammo shows nothing, and then they had a breast MRI, or had a tissue biopsy and then find it, or simply let it run it's course and wait for something to show up?  I have this nagging voice saying something isn't right, and as I posted sometime earlier, I am not a paranoid person.
thanks, Judy
Judy
dx 4/09
lumpectomy 4/24 4.5cm
node positive; stage 2
A/C, Taxol, Radiation
Brain Met, 6 cm 5-28-10 (surgery)
Gamma Knife: July'10,August'10, Sept.'10
WBR, October 10 (x15)
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Beverly Quote  Post ReplyReply Direct Link To This Post Posted: Sep 14 2010 at 10:31am
I was having itching in my right breast 1yr after chemo a/c and taxol and rad.Nothing showed up on ultrasound or my 6 mnth pet scan.I had an mri of the breast and it showed something my Dr thought it was just a ganulated stitch so I pushed on about just taking it out and she said lets wait 4 months and do another mri.I was not happy with that and got a new onc who said why would we wait you need it out now so I had it removed and it was a recurrance it was 1 cm and now I am concidered stage 4 PED and on chemo again called cmf.This came as a shoke to me I was not told if it comes back as a recurrence that it is stage 4.Just wondering if anyone else has been DX with same thing? Hope this helps. Bev
diagnosed TNBC w/node positive in May/08 bilateral mastectomy w/reconstruction.Chemo A/C ans Taxol and Radiation.Married and mother of 20yr old son and twin girls 17.I am 38.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tnbcsucks Quote  Post ReplyReply Direct Link To This Post Posted: Sep 14 2010 at 10:41am
I also had the itchy nipple/breast prior to finding my lump.  I always thought that it was dry skin, as it was winter time.  I found my lump in March.  So any itchy nipple/boob will be checked out in the future.  It had to have had something to do with the tumor cause my right breast was never itchy like the left one!  Doing treatment 7 of 12 taxol now, and not having any rash or itchiness, so thankful for that.  I do get benadryl prior to it tho!
 
Take care everyone!
TNBC DX April, 2010,Lumpectomy May 3.5cm with clear nodes,Stage 2, Grade III Started Chemo on June 7: 4 A/C every other week and then 12 weeks of Taxol. followed by 6 weeks of radiation.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote bashamk Quote  Post ReplyReply Direct Link To This Post Posted: Sep 14 2010 at 8:13pm
Judy,
In answer to your question about finding it before it turns into a tumor, I personally don't think there is time. I say that because I was having a diagnostic mammogram every 6 months, I was on my 3rd (supposedly final) one when it was found. Itchiness started 3-2 months prior to that, which means logically it had been growing for awhile but they didn't catch it 3 months earlier, when they compared that mammo and ultrasound with the one 6 months prior. That tells me it just grows too darned fast to catch it that early. And, my surgeon told me he was really surprised the radiologist caught that, as he said he wouldn't have. Scary.
Here's a question....along with the intense itching, it made all my cysts (yes, I'm riddled with them) swell up in that breast. Had to go in to have a cyst aspirated, that's why they were looking so closely. Had the same thing happen in the other breast just a few months ago. They did a biopsy in a 'suspicious' area, but it came back negative. Am keeping my fingers crossed it's nothing.
dx 6/25/09 age 45, IDC TNBC,
stage 1, grade 3, 1.5 cm
Lumpectomy, T/C x 4, 33 rads
Dx Dec 2015 Stage 4 metaplastic
Cell growth on nerves in shoulder to rt arm; mediastinal nodes; Bone; skin mets
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Post Options Post Options   Thanks (0) Thanks(0)   Quote CiGi Quote  Post ReplyReply Direct Link To This Post Posted: Sep 14 2010 at 10:49pm
I'm not sure why breast thermography is not used more for detecting early breast cancer.  I've read a lot about it and it shows early stages of cancer where in many cases is does not show on a mammo.  Has anyone one had one?  And it does not use radiation for its imaging so it's much safer.   Maybe one day this technology will be used more for a radiation-free detection.  Just wanted to throw another option out there. 
Age 40, 4/28/10 lumpectomy (3 cm) TNBC Grade 3 Stage 2 0/3 nodes, TAC 6x 3 week cycles start 6/15 finish 9/27, 33 rounds rads 11/22. BRCA1 & 2 neg. Lymphedema rt hand 8/14. Joint pain Dec 2010.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote MMGabriel Quote  Post ReplyReply Direct Link To This Post Posted: Sep 15 2010 at 2:03pm
I will have to keep this in mind for the future.  I think anything that might be a hint of recurrance I would check out.  Better to err on the side of caution, particularly with TNBC.
5/10 Dx IDC TNBC, age at diagnosis 39, Stage 2, Grade 3, 2.7cm, 0/3 Nodes; ACx4/Tx4 dose dense; 6 Weeks Radiation
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Post Options Post Options   Thanks (0) Thanks(0)   Quote The Muse Quote  Post ReplyReply Direct Link To This Post Posted: Sep 16 2010 at 8:42am
I remember distinctly having itchy breasts prior to my finding a lump in my breasts.  I called my OBGYN because it was so severe.  They thought it was an allergic reaction to a detergent or shampoo.  I had just had an IUD put in place and I thought that the two might be related.  I also experienced pain for a few years in that same breast where the lump was found.  Doctors kept telling me that "Breast Cancer doesn't hurt."  That is such a lie!  I am now stage 3-4 with mets to lymph nodes.  I still feel itching from time to time on that side.  I really believe that it is our body fighting the disease.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote melwud Quote  Post ReplyReply Direct Link To This Post Posted: Jan 28 2011 at 8:15pm
I was a little anxious before i read these posts on the "itching". now i am kind of freaking out.  Feb 9th, i will be two years out from my double mast and reconstruction.  The cancer was on right side and luckily no lymph nodes were involved.  About 6 months ago, i started having an achy soreness under my left arm pit.  One of my lymph nodes was pretty enlarged based on ultra sound, but i was fighting a bug so they weren't overly concerned. Still they did a PET scan and it came back clean, thank god.

It still gets sore fairly often. When I just went for my 6 month with oncologist, she did an exam to try and feel for it, and i hurt like hell for 2 days after.  They did another ultra sound just to make sure no change since they couldn't feel the enlarged lymph node the first time. No change, still big, but no bigger so no concern again. But when she did the ultrasound, with minimal pressure, I could tell immediately when she was on the lymph node that was enlarged, because it was tender even with lightest touch.

My port scar which is on my left side has always been pretty itchy...but now the itching is below the port closer to my boob. Basically the itch is at the top of where my breast starts to curve. and there are three little indentations (not sure if this is what everyone means when they refer to dimples) that were never there.  and while the itching feels like it is on the surface, when i push down on the spot, it really feels like the itch is deep on inside. It's like a can't get to the itch. It sucks...and now I am starting to be offically freaked...even though I just had a great check up and blood work. and a clean PET just 6 months ago. 
Am i overreacting???? when do we stop being paranoid?

melissa
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Post Options Post Options   Thanks (0) Thanks(0)   Quote MMGabriel Quote  Post ReplyReply Direct Link To This Post Posted: Jan 29 2011 at 12:37pm
You are not overreacting. I am not sure we ever stop being paranoid and that is not so terrible. (at least today I think that).

Could this be lymphedema? If fluid gathers in one spot, that could be a possibility. I had one lymph node that felt like a pea (some books say that is what cancer in the lymph nodes feels like) during treatment. This eventually went away. When I mentioned it at the dr, they wanted my to go to the lymphedema specialist (they took my sentinel nodes). From what I have heard, you really have to be careful of lymphedema because removal of the nodes makes it harder for your body to process fluids.

There are so many here with more knowledge - could this be a possibility?
5/10 Dx IDC TNBC, age at diagnosis 39, Stage 2, Grade 3, 2.7cm, 0/3 Nodes; ACx4/Tx4 dose dense; 6 Weeks Radiation
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tammy1966 Quote  Post ReplyReply Direct Link To This Post Posted: Feb 02 2011 at 9:52pm
I am new to this forum, i find this very interesting... I had a left mastectomy in August, I am triple neg. and my breast itched very very bad a long time before I had surgery.. This is very interesting. Maybe something someone needs to look into??? This site is very interesting. I have only 4 more taxol treatments (3 after tomorrow) I was diagnosed early stage 1 grade 3, no nodes involved.  Thanks to all you strong ladies for sharing stories.... Wink
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