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hi new here and to cancer

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Losting View Drop Down
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    Posted: Apr 18 2017 at 6:20pm
hello everyone. just was diagnosed with a small cancerous tumor in my left breast. i'm 54. starting a chemo in a few weeks. wanted to talk with people with same issues and gather information. about treatments and medications.


Edited by Losting - Apr 22 2017 at 1:40pm
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sannef7 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sannef7 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 18 2017 at 7:11pm
Hi, 
My mom was just diagnosed recently, in the last 2 weeks. We don't have any known history of breast cancer in our family (hard to tell bc my grandmother on her side was adopted). Finding the right specialist made a world of difference. My mom needed someone compassionate, who would hold her hand and make her laugh. Not just throw scary new information at her in a dead-pan voice. 

Find someone who you're comfortable fighting this with, because that shouldn't have to be a focus of yours. If you have questions, let me know. Always willing to talk.

Sarah
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Post Options Post Options   Thanks (1) Thanks(1)   Quote barrycarrot Quote  Post ReplyReply Direct Link To This Post Posted: Apr 19 2017 at 10:43am

Just wanted to welcome you both. No one ever wants to join this group but there are great people here. Hopefully we can help you with any questions you have and offer our support.  Hang in there. I know how scary and overwhelming it is at first but it DOES get a little easier along the way and you'll realize there IS life after a diagnosis. Hugs!

 
Carrie
Age 38, DX: 12/10/15 Stage 1 TNBC, BRCA-, 7mm tumor in left breast, no nodes, ACT Chemo 1/4/16 - 4/15/16, Lumpectomy 5/16/16, PCR (Praise God!), radiation 6/22/16 -8/3/2016
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Janine2u Quote  Post ReplyReply Direct Link To This Post Posted: Jun 08 2017 at 9:44pm
Hi.  I'm new here and to TNBC.  My name is Janine and I am 51 YO and was diagnosed in May of this year.  I am being treated at MSK in NY.  I started my first of 4 AC Chemo treatments last Weds.  The next is on the 14th. After the 4 AC's , I move on to 12 Taxols, then double mastectomy and then 8 weeks Radiation.  

Like I said, I had the first AC last week (along with the Nulesta).  The dizzyness and bone pane are extreme.  I am nervous about the next round of AC, because I know all my hair will be gone.  I am trying to deal with that part on top of everything else they tell you about TNBC.  

Has anyone been through what I'm about to endure and can help me cope with the Chemo, Taxol, radiation, surgery, everything?

The unknown is the worst.
Thanks. 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Meadow Quote  Post ReplyReply Direct Link To This Post Posted: Jun 09 2017 at 2:36am
You may not find someone who has had your exact course of treatment, but many will have had all of the therapies you list. I was diagnosed at age 44. I had 4 rounds of AC and 4 of Taxol. Before chemo I had my ovaries and breasts removed (I have a BRCA mutation). Ovary removal was the worst of it for me. I didn't have radiation. It's tough to be at the beginning with so much to go. Take one day at a time. Hair loss is hard. It's easier if you get most of your hair cut off before it starts to fall out. It might even be interesting to experiment with a short haircut and you might find a style you like for when your hair starts growing back. Make sure you are prepared with wig, scarves, or both. Wigs itched my scalp like crazy, so I only wore scarves and "buffs" with a scarf pad underneath. I found being bald was not as bad as I thought it would be. It was hard for the first few days, but after that I didn't think about it much anymore. Sometimes it felt empowering. A cancer buddy of mind said "Nobody messes with a bald woman," and she was right! You will find loads of support here. It is wonderful, supportive community where you can feel safe asking questions and sharing your ups and downs. Keep writing.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Janine2u Quote  Post ReplyReply Direct Link To This Post Posted: Jun 09 2017 at 6:58am
Thank you for your response.  I will continue on this forum to see others stories and how they relate to mine.  I like the sense of "empowering"....THANK YOU
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Ednasal Quote  Post ReplyReply Direct Link To This Post Posted: Jun 13 2017 at 12:04pm
Hi ladies,

My mom was dignosed with TNBC in Nov of 2016. thankfully she finished chemo and is having surgery next week she is also expecting to have radiation after. According to her MRI there is no sign of cancer so we are excited hopefully it stays like that. Its been a tough rollocoaster but she stays positive and has not stopped working (as a housekeeping). I love her. Hope everything continues on the right path. Bless you all.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Canapoli Quote  Post ReplyReply Direct Link To This Post Posted: Jul 14 2017 at 10:53pm
Hi new to TNBC , age 52 dx may 2017 just about finished 4 of 4 AC the hardest thing for me was hydration at home and fatigue. Had a lot of low temperatures to 99.8 a lot which made me feel crappy. 4 rounds of taxol up next then meet with surgeon again. If lump and cancer gone then confused as to what surgery there is to do. Don't know family history so I was Brac tested and just found out today all genetic testing was negative. My biggest concern now is recurrence so as for surgery debating bilateral mastectomy vs lumpectomy. So glad I discovered this site. It explains so much more for those of us over 50. My doctors were all very on top of everything so chemo was started quickly for stage 1 grade 3 tnbc and no node involvement.

Edited by Canapoli - Jul 14 2017 at 11:33pm
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Robbiejean Quote  Post ReplyReply Direct Link To This Post Posted: Jul 15 2017 at 5:14am
Hi Janine! I too was treated at MSK for tnbc. 20 weeks of chemo, lumpectomy and then 7 weeks of radiation. I was diagnosed in April 2014 and I'm sti on the right side of the dirt. I was 44 at diagnosis. I want to encourage you that you are good hands. I did 12 weeks of taxol with carboplatin ever 3rd week. Taxol is very tolerable. I did the AC second and found it pretty harsh, but that could've been because I was pretty wore out by then. The nulasta shots are rough too, but the chemo nurses told me to take Zyrtec antihistamine and it does help.

My disease was 2.4 cm and the chemo shrunk it to .4 cm! Very good! Sometimes, by the end of chemo there is nothing left and I hope that is the case for you.
Your hair will start falling out. My scalp felt like my hair had been in a really tight pony tail for a long time and it ached so I shaved my thin hair before my 4th appt. There is a shop at MSK with great scarves and they even gave me a wig that someone had donated back after treatment. Ask the chemo nurse about cold packs for your scalp as it can keep your hair from faint out as much.

Your energy will be up and down. The good news is that your body is amazingly resilient and when your feeling tired and achy remember that it will pass. Take it as easy as possible and be good to yourself. Chemo can make you super forgetful, so let people help you and love you. You will be in my thoughts and prayers. Please post how things are going.
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