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Greetings everyone! I have a question...

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gordon15 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote gordon15 Quote  Post ReplyReply Direct Link To This Post Posted: Jun 19 2017 at 4:50pm
RyB: thanks for the update on your Mom, we are fighting this with you.
wife: IDC/Lobular Stage2B 2008 lumpectomy/TAC+rads
TNBC Stage 3A/w/metaplastic/squamous Nov2015 Carboplatin-Gemzar chemo/masectomy Taxolchemo+rads 4-16
PET scan stable 9-2016/ 1-2017
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RyB1984 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote RyB1984 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 16 2017 at 5:45pm
Hello everyone!

Just doing my check in however I am always visiting the forum on a daily basis.
I still pray...EVERYDAY for you all and your battles that you come out STRONG and VICTORIOUS.

I just wanted to give you all an update on Mom's progress as she continues with Chemo (Carboplatin).
She has completed 3 treatments and this journey has been quite a rollercoaster. The fluid on the right lung has now decreased from 150CC's to 25ccs.........25CC'S everyone. That is excellent.
There is now strong talk of having the catheter taken out.
Almost 2 weeks ago, it felt like we had a setback. At the doctor's after having the fluid drained, my mother was still saying she had shortness of breath. Well.....this fluid decided to fill up on THE LEFT side.
Definitely was taken aback on that one. They drained 1000cc's on the left and has since NOT filled back up.

So on that note, a Cat scan, chest x-ray or pet scan (im getting them all mixed up lol) was taken and her body scan was just days later.
Long story short, both body and ALL other scans showed nothing suspicious or anything of cancer. All negative and normal. There was a lymph node that was slightly enlarged that has since shrunk some since. The doctor said this happened last year and then the lymph node went back to normal. Still, she confirmed it......we have no measurable size of disease in her body. P R A I S E god...This carboplatin is CLEARLY working one way or the other!!!!!!!

The only problem is that that 1000cc's fluid that was found on the left side of the pleural and was SUPPOSED to be sent off to be tested...well.... this past wed, the oncologist(according to my mom), came into the appointment MAD and HOT as hell because someone dropped the ball and the fluid was never tested and was disposed. Oh...no...the oncologist is/was so upset as this was an indicator on how this chemo is working on my mother. I believe there may be some talk now about her continuing with the Carboplatin but possibly doing a trial with Immunotherapy at Dana Farber now.

As of now, there seems to be some suspect of maybe something going on with her heart (possibly some kind of heart disfunction), possibly due to the AC from last year. She still has some shortness of breath. We have a visiting nurse that comes and the doctor checks her lungs and according to them, mom's lungs sound clear! (FINALLY) Since this has started, a company who delivers home oxygen has brought oxygen tanks to the house and momma dukes does oxygen every other day-every 2 days (really she is only required to use it when she needs it) as obviously this helps keeps the organs working correctly. I will say this home oxygen gives me personally, deja vu, as my father had to do the same thing but he had to have it on at all times and unfortunately, the ending result was that he died the day after Xmas, in 2005. Completely different situation but it's at times emotional.

Hopefully, we can tackle if there is a heart issue and why there is still shortness of breath as mom is ready to return to tennis and be very active again.

There's the update people.
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RyB1984 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote RyB1984 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 16 2017 at 6:35pm
Also want to add that they also did a scan of the brain as she was complaining of some headaches/migraine for a short while and that came out NEGATIVE as well too.
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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jul 16 2017 at 7:58pm
Your mother's response is extremely encouraging!  Best to her and your family.

Donna

DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote gordon15 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 18 2017 at 5:25pm
Great to hear from you! Oxygen , to me, is a good idea, that boosts energy for your Mom and I don't know if Carboplatin works all the time, but my wife was given Carboplatin-Gemzar chemotherapy, and she is stable today, hope the same progress for you Mom!
wife: IDC/Lobular Stage2B 2008 lumpectomy/TAC+rads
TNBC Stage 3A/w/metaplastic/squamous Nov2015 Carboplatin-Gemzar chemo/masectomy Taxolchemo+rads 4-16
PET scan stable 9-2016/ 1-2017
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SusaninVA Quote  Post ReplyReply Direct Link To This Post Posted: Jul 23 2017 at 5:15pm
Hi RyB,
So good to hear from you again.  I think all the way around, you had wonderful news to report!  I hope your Mom will gradually regain her strength and resume her tennis play in the near future.  It sounds like her doctors are keeping a close eye on her, and I'm so thankful to read that her scans came out clear.  I'm also glad to hear that you are keeping a close eye on her - you are a wonderful son! 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote RyB1984 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 23 2017 at 7:05pm
So as we have taken steps forward...of course, we take a step backwards.

Long story short, my mother had not been feeling well this week and on Friday, I brought her to the cancer center to be checked out. The doctor just didnt feel confident about letting her go home and momma dukes was admitted.
I had been suspecting that maybe she caught a cold, collapsed lung, possibly pneumonia....etc. Blood work was "good" but something was going on.
After tests, chest x ray and a cat scan....im just gonna thank you lord that its not somethint exceptionally bad, but Pneumonia is not fun. Yup, somehow my mom has pneumonia. Friday night before i left the hospital, she was running a fever. I knew something wasnt right while her oxygen levels never went lower than 95%.

Well, she began antibiotics yesterday and her fever broke last night as she was sweating.
Since then, all her blood work is going back to normal however the heaviness and shortness of breath is still there, but baby steps seems to be improving now as shes coughing it up.

Ughhh lol. They are going to keep her a few more days but i am at peace and relieved they made her stay at the hospital. Im just thankful shes being looked after and this week we start the next treatment plan (100% confirmed).

Thank you to all for the positive vibes n replies. Ill keep u all posted as usual. 😎😁 thank you susaninva for the kind words.
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