Message |
CarynRose
Senior Member
Joined: 04 Aug 2007
Location: Robbinsville, NJ, USA
Online Status: Offline
Posts: 851
|
Topic: PINEHOUSE IS AN ANGEL NOW Posted: 13 Aug 2009 at 8:14pm |
She
passed away around 9pm PDT last night. I don't have any details on
funeral , but will report if I hear anything. If anyone else hears
something, please post.
Lani was my hero, my teacher, and my mentor and I will carry her
torch of education, faith, and strength for the rest of my life.
Love,
Caryn Rose
|
Orig dx 6/03 - St.2a, IDC
gr.3,0 nodes, TNBC/BRCA1+
7/07 St 4 mets to lymph node and lungs. PACA/Rads NED 11/07-10/08
Leptomeningeal mets 10/08 3/09-CSF benign
Dancing with NED and stable boy
|
IP Logged |
|
dmwolf
Senior Member
Joined: 22 Jan 2009
Location: Berkeley, CA
Online Status: Online
Posts: 420
|
Posted: 13 Aug 2009 at 8:25pm |
That makes me really sad. Caryn, once there's an obit, could you be
sure to share it with us? We'll want to honor and remember her. love, d
|
DX 2/08 stg II IDC; gr2,no nodes. Neoadjuvant chemo, first ACx2 (didn't
work) then CarboTaxotere x 6 (much better). Lumpectomy, Rads x 36 until
11/18/08; Clodronate.
|
IP Logged |
|
Nancy
Senior Member
Joined: 23 Jul 2007
Location: Altoona, PA
Online Status: Offline
Posts: 3201
|
Posted: 13 Aug 2009 at 10:45pm |
Dear Caryn,
I just posted your carepage entry and read about Lani. Oh Caryn,
she was always here for anyone who needed encouragement, guidance and
just pure love and compassion. I am so sad...
Love,
Nancy
|
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
|
IP Logged |
|
krisa
Senior Member
Joined: 21 May 2008
Location: Portland, OR
Online Status: Offline
Posts: 672
|
Posted: 13 Aug 2009 at 11:34pm |
I am too.
In the paper today, in anticipation of the Komen Race, inquiring minds
want to know the lessons learned from having cancer. Questions like
that really irritate me. read my lips! CANCER SUCKS!
|
lump12-07 chemo Jan-May AC/T DD
30 Rads 2.2 cm, n/node, grade 3, stage 2
Diagnosed granulosa ovarian cancer 2/09
"May the lord...give you His peace no matter what happens."
II Thessalonians 3:16 N
|
IP Logged |
|
trip2
Senior Member
Joined: 03 Jun 2007
Location: United States
Online Status: Offline
Posts: 5621
|
Posted: 14 Aug 2009 at 8:48pm |
I received an email from her husband this evening.
He said she passed away Wednesday August 12 surrounded by friends and family.
We miss you Lani.
|
Pam
Stage 2 gr 3 dx 12/02
Stage 1 gr 3 dx 2/07
BRCA 1+
|
IP Logged |
|
CarynRose
Senior Member
Joined: 04 Aug 2007
Location: Robbinsville, NJ, USA
Online Status: Offline
Posts: 851
|
Posted: 14 Aug 2009 at 9:47pm |
I got the same email from her boyfriend Paul. I asked him to let us
know about funeral arrangements and an address to send condolences.
Caryn
|
Orig dx 6/03 - St.2a, IDC
gr.3,0 nodes, TNBC/BRCA1+
7/07 St 4 mets to lymph node and lungs. PACA/Rads NED 11/07-10/08
Leptomeningeal mets 10/08 3/09-CSF benign
Dancing with NED and stable boy
|
IP Logged |
|
texasgirl
Groupie
Joined: 23 Jul 2007
Location: United States
Online Status: Offline
Posts: 44
|
Posted: 15 Aug 2009 at 5:26pm |
I got the same e-mail. We know have another triple angel looking after
us. I want to put what I put in the e-mail to Paul because
Julie (Calgal) and and Lani( Pinehouse) were some of the first people on the site and helped many people.
To Paul, Julie’s family and friends
Thank you so much for letting me know. It has been a couple of weeks since I have read her blog
I
am so sorry to hear of Lani passing. I met Lani and Julie at a
Mestastic Breast Cancer at MDA a couple of years ago. We met though
the Triple Negative Foundation Website and even though I was Stage 3,
my last chemo was during the conference. Afterwards we went and had
celebration dinner and didn’t really even talk about cancer. Lani
and Julie gave me great inspiration when the doctors were not giving me
much hope on a recurrence to Stage 4. They got me through the rest of
my treatments and my surgery. Every time I felt sorry for myself, I
thought of their courage and it put me in a better place. They also
helped deal with emotions after treatment because people think that
after your done your are cured everyone through everything was fine.
Lani actually convinced me to take a break from cancer stuff and
eventually recommended that I see a counselor.
I
am 1 ½ with no recurrence. I kept up with Julie and Lani and read her
blog. Lani is a true hero in my mind. She never gave up hope and
tried everything possible to fight this disease and never felt sorry
for herself. When the insurance companies were denying her certain
treatments I told her that my grandparents had a foundation and I could
see if they could help with cost. But, Julie the fighter wouldn’t let
the evil insurance companies get away with anything. Know that
wonderful dinner with Lani and Julie will always be in my heart.
Julie
and Lani are pioneers for the rest of triple negatives because of the
treatments they tried. I am going to make a contribution in her
memory on the Triple Negative Breast Cancer Foundation and FORCE. I
know these foundations were dear to her heart know that Julie’s sister
has this horrible disease, we have to stop letting these beautiful
young women die. I will continue to pray for all her loved ones.
|
dx 5/11/07 (Age 41), Stage IIIC, Grade 3, 12 weekly taxol, 4 FAC, 8.5
cm, Extensive positive nodes, Masectomy 0/17 nodes, 30 Rads, Currently
NED
|
IP Logged |
|
Wendy2
Senior Member
Joined: 10 Apr 2008
Location: United States
Online Status: Offline
Posts: 200
|
Posted: 17 Aug 2009 at 9:28am |
Deepest sympathy in yet another loss. We must keep fighting!
I must bring out a funny here though, in reading the posts, does Lani have a husband and a boyfriend? Good for her!! hee hee
In all seriousness, peace to Lani and her family.
Wendy
|
dx 3/06 TN, taxotere/cytoxin x4; radiation x 40; mets. to lungs, lymph
nodes 3/08 - to begin chemo 4/29/08 Abx/Avas., 9/08 Avastin
maintenance, 1/09 - off meds to see if Avastin causing headaches
|
IP Logged |
|
CarynRose
Senior Member
Joined: 04 Aug 2007
Location: Robbinsville, NJ, USA
Online Status: Offline
Posts: 851
|
Posted: 17 Aug 2009 at 1:21pm |
LOL. Lani was never married. She and Paul were together since the late 90's and they lived togther in Ca.
|
Orig dx 6/03 - St.2a, IDC
gr.3,0 nodes, TNBC/BRCA1+
7/07 St 4 mets to lymph node and lungs. PACA/Rads NED 11/07-10/08
Leptomeningeal mets 10/08 3/09-CSF benign
Dancing with NED and stable boy
|