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SagePatientAdvocates
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Topic: reflections of a grandfather (w/pic) Posted: Sep 07 2011 at 6:38am |
Dear all,
as many of you may have seen, I have become a grandfather, again. A beautiful little boy born about ten days ago. My daughter is his mother and she is doing well as is the little guy. I wanted to share what is in my heart with you...since, after all, you are my family, too.
I am transfixed by this child. I just keep staring at him, and staring at him, and staring at him, as I hold him. I have found what I feel is one of his favorite spots. It’s a big chair we have in the family room, that I sit in with him, and I have a way of holding him with his head gently nestled in the crook of my left arm and his body is supported by my arm and my belly. He generally falls asleep when I hold him, that way, and I am truly in heaven when he does...
He seems to know my voice...does he see me? I think he does and yes every once in awhile he has this lovely smile...yeah, yeah I know-probably gas  but I like to think he is smiling at me. And sometimes he breathes very fast and I gently rub his chest and tell him that “Grandpa loves you” and he quiets down and his breathing becomes more regular.
I also watch my wife with him, my daughter and son-in-law with him and I marvel at the love that surrounds this child and that warms my heart as well. My daughter and wife, separately, read him a book yesterday with such expressiveness. Their love for him filled me with incredible joy.
There is just something about him...that transports me to another place. I keep telling my wife, daughter and SIL, over and over “isn’t he beautiful...isn’t he wonderful?” I get these smiles in return and a “yes, honey” or “yes, Daddy” or “yes, Steve” and I realize I am saying it too much and that I am probably turning into one of those obnoxious grandfathers so I will probably not say it so much but in my singing heart I say it to myself over and over..."look at this marvelous child...soooooo lovely...little one, your presence graces our lives...I love you.....be healthy, my sweet child.” Writing “my sweet child” just now made me realize that I don’t think of him, solely, as a grandchild but as an extension of my daughter, somehow. Yes, yes, I know he is my grandson, not my son, but the feelings I have for him can’t be categorized so precisely. The love I have for my daughter, which has been incredibly profound for 31 years, is now also shared with my grandson. It is like he is a part of her and I love him as I love her. I am afraid I am perhaps incoherent so I shall stop going down that path. I think you guys get it. 
And my wife told me, yesterday, to continue to follow my heart regarding my advocacy work. So, I am off to MD Anderson today to be with a patient who got some very tough news yesterday. I realize that my grandson fills my heart but so does my work. Hopefully, with his help, I will find some balance. When I am with him, I am able to put cancer aside for some moments. Yes, it’s always there but when I have him in my arms, I have him in my arms and the world looks more hopeful. He truly, truly, fills my heart with joy. Thank you little one for being you.
I tell folks here, often, to please try to find the beauty in each day. Well, each time I hold my grandson I realize I have found it.
my love to all,
Steve
p.s. I wrote above..”I realize I am saying it too much..” and I think back maybe 6 months ago and I was out with my adored granddaughter, age 10, for dinner..just the two of us. There is a restaurant called Scott’s in Palo Alto and they have white butcher block paper on the table instead of tablecloths. It was very busy that night and the service was very slow, so I moved the plates to one side and started to write “I love you, always, Grandpa” and my granddaughter watched me so silently, yet intently, as I wrote. I filled up the whole sheet (literally maybe 100 times) with this message and I said to her “Grandpa went a bit over the top, huh?” and she looked at me so seriously and said “Grandpa when you love someone as much as you love me you can never tell them ‘I love you’ too often.” Wisdom from the mouth of babes that went straight to my heart. I began to cry at her words and her sincerity and her love for me and her realization of how much I love her. She came to me and comforted me and said “Grandpa, sorry, I didn’t mean to make you cry.” "No, sweetheart, they are tears of joy. We are so lucky to have it each other. It is just so beautiful.” And, as always, she understood. My little soulmate. She ‘gets’ me. So maybe it’s o.k. that I keep telling the world, for awhile, how beautiful my grandson is. I have a feeling you guys will let me know when it is too much... 
Edited by steve - Sep 14 2011 at 11:43pm
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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123Donna
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Posted: Sep 07 2011 at 7:50am |
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Steve,
Such sweet words and reflections of loving your grandchild. You are truly finding the beauty in each day. I'm so happy for you and your family. You deserve this happiness.
PS: Your outpouring of love for your family never gets old. It's one of the reasons you care for all of us so much.
Hugs, Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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HappyGoLucky
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Posted: Sep 07 2011 at 12:05pm |
I feel the love you have for your grandchildren. Its ethereal and magical too. I held my grandbabies and felt like they were from me. Counted their lashes and stared at them as they breathe. God has given us this gift when life reproduces itself. And you most assuredly deserve every I love you you can utter to Ethan! I enjoy reading about him.
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janet c.
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Posted: Sep 07 2011 at 2:51pm |
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Steve,
You have a way with words. I could just see that precious baby smiling. We could never get tired of hearing such good news. I know it puts a smile on my face. I just adore babies. The only problem with them is that they grow up too quickly. My oldest son is now a senior in college. It feels like I was just bringing him to
pre-k and I was hysterical crying with my husband in the car. Life just flies by in the blink of an eye. Enjoy your family. You definitely deserve it for all that you do for everyone.
Janet
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dx 12/08 @47yrs.old TNBC stage 2a grade 3, 2.1cm. partial mastectomy sentinal node negative BRACA negative Cytocan/Taxatere x4 radiation 36 or 38rounds
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mindy555
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Posted: Sep 07 2011 at 4:52pm |
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It will never grow old for me Steve- please write more about your family and beautiful new grandson whenever your heart desires. It fills my heart with joy for you. I know the joy my 5 grand babes bring me- 3 of my daughters sweet girls and my fiance's grands Lily our 3 year old and Dax who just celebrated 6 months old.. And hey, they're mine too! So there. :)
Boy do I understand and relate to staring and studying those precious beings for hours on end.
Enjoy!!!!
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mindy555
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Posted: Sep 07 2011 at 5:02pm |
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Ethan... I love that name. I'm sure he's quite a boy!
Please don't stop sharing your beautifully expressed feelings about Ethan with us!!! I so adored you writing about your granddaughter. What a prize! It's true. Out of the mouth of babes... you can never talk about this beautiful boy too much... express how wonderful he is too much... tell everyone how much you love him too much.. I promise you that!!!! I love your granddaughter.. she's a gem!
I'm grateful we're your extended family and I'll be disappointed if I don't get a regular Ethan update. I want to hear it all.. your eloquent writing draws me in to all those amazing feelings Ethan brings you. What a true joy to read.
It reminds me of each of my own little blessings and how much each one of my grands with their own distinct little personalities has totally enriched my life. They're all so different and endearing in their own special way. My love for them is so deep words escape me. But I'm not much of a writer.. ha.
So please don't stop writing about this blessed boy now. We need more of this kind of thing on this forum.. and remember all the joyful aspects of our own lives.
You and Ethan have it going on. :) You're SO blessed to have each other.
Just know... hearing about Ethan is now my MOST favorite part this forum and I'm sure others here share my sentiments... :)
So there! Again! :) I look forward to more!!!! May I hold you to that? :)
Edited by mindy555 - Sep 07 2011 at 6:04pm
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dmwolf
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Posted: Sep 07 2011 at 5:18pm |
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Steve, that was SO beautiful. Thanks for sharing this experience with us. Ethan is incredibly lucky to have you. love, d (you made me smile on bart all the way to work)
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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HappyGoLucky
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Posted: Sep 07 2011 at 5:40pm |
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Yes we definitely should have an Ethan thread to make our lives more enriched....to grow with him and Steve .
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harbin
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Posted: Sep 07 2011 at 8:25pm |
Dear Steve, What a proud grandpa. Thank you for sharing your moment of happiness with us. You are such an amazing person and you have a big heart. We are so lucky to have you in this community too. - Harbin
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4/08 dx IDC,stg2,neg. nodes,4xAC,8xTexol& Avastin,BRCA-
3/10 Recurr Chestwall,surgery
6/10 Lung mets
10/10 Parp
05/11 Surgery on 2 lung nodules
08/11 Parp failed
10/11 Cyberknife 1 lung nodule
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abcmom
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Posted: Sep 07 2011 at 8:35pm |
Steve- That is just beautiful! I am glad you shared your story with us. You have such a wonderful way with words and such a wonderful heart! I think it is so awesome the love you have for your grandchildren. Hugs, Keri
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Diag 11/06/09 @ 40; Diag w/ TNBC Stage IIA, Grade 3 12/01/09 Node Neg. Dble MX with Recon 12/09 (twice)
Chemo 1/13/10 Chemo done 4/22/10 More recon surg 07/10, PET/CT Scan clear 07/10 NED 07/11
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Shelly Rae
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Posted: Sep 07 2011 at 10:23pm |
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Steve I hear what you are saying about grandchildren. My Granddaughter is 5 today. She is such a blessing to everyone who knows her. She very well could of not been born due to my daughter being in her senior year of high school when she found out she was having her and being scared. I have to say in five years a ton has changed. Mother and Father are married. Father has his 4 year degree from a private college. Mother has gotten her a 2 year degree while working full time and my granddaughter started kindergarten this year. She is such a wise child and really lights up a room when she walks in. Of course this is a Grandma speaking. LOL
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4/09 age 47 Stage 3a, Gr 3,1 node micro ACx4 Tx4 Rads x 33, done Dec.1,2009 NED
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nmunoz
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Posted: Sep 07 2011 at 10:44pm |
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Beautiful Steve. Thank you!
Un abrazote,
Natalia
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Natalia, 38 years
Dx TNBC 10/22/08, BRCA1+
Double Mx 11/20/08 with Recon.
3/37 nodes
Rads 7 weeks done 8/09
ACx4 every 2 weeks and Tx12 weeks. Avastin e/3 weeksx10 (Clinical Trial) Done Dec/09
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Debris
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Posted: Sep 08 2011 at 2:24am |
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Steve, I can only echo what others have said.
It is sooo good to be able to share in these special moments of joy and wonder with you.
Thanks for all you share on this forum.
Deborah.
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4/12 Xeloda/Tykerb
2 Carboplatin
12/11 Dx IA
9 Gemzar/Taxotere Dx IBC:FEC
5 Ixempra/Sprycel
2 25 Rad
10/10 BRCA1-/2suv
9 NED
6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin
06/08 Dx DCIS 0/SN Rads/AIs
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DianeEE
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Posted: Sep 08 2011 at 2:40pm |
Thanks for sharing your positive thoughts, Steve. It's so nice to read positive, life-affirming messages from you. It brings back memories of when my sons were infants. It doesn't seem like that long ago even though they are 10 and 12 now. Yes, please keep sharing. It's helps me to remember to be positive when life with 2 preteen boys gets crazy!
Diane
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DX 11/2010 age 43,BRCA2+,6 rounds TAC,bx mast/ovary removal 5/2011,TNBC tumor 5.1 cm,02/14 nodes positive,37 rads,Cisplatin&PARP trial.Recurrence 2/2012,TN IBC,Abraxane didn't work, Ixempra & Xeloda
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Barbi
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Posted: Sep 08 2011 at 7:38pm |
Thanks for sharing Steve. You are verbalizing what so many of us have felt with our children and grandchildren, and what we all live for - unconditional love going one way or the other and hopefully both ways. And I believe you will find the balance you need - just follow your heart. I think I speak for many when I say how much we appreciate your posts, your email and calls, your visits to those that need it, your assistance in finding the right doctors. And all of us want to see you spending the precious time with your family, as well. Love from us all.
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10/10,age49,St3,gr3,5+cm,1 node,BRCA-,T+Cisplatin+Rad0001(or placebo),Lump 1+cm,AND 0/15,AC,rads finished 7/6/11.Mets bone, liver,mamm node 8/11,abrax/tigatuzamab failed.Started bicalutamide 11/16/11.
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SagePatientAdvocates
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Posted: Sep 14 2011 at 11:39pm |
Taken September 14th, 2011
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Genie
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Posted: Sep 14 2011 at 11:42pm |
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Steve, what a beautiful picture! Thank you so much for sharing! The love you have for Ethan shines through in this photo. This made my day.
Hugs from San Antonio, Genie
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DX 3/10/08 at age 67, IDC. Stage 1, Grade 3, 1.5 cm. KI-67 99% at MX . Bilateral mastectomy 4/1/08 Node-, BRCA 1/2-,BARD1+, TX:Cytoxan/Taxotere x4,3 in family with TNBC
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DianeEE
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Posted: Sep 14 2011 at 11:45pm |
Oh My! What a beautiful picture; so peaceful. Thanks for sharing--
Big hugs from Michigan too--
Diane
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DX 11/2010 age 43,BRCA2+,6 rounds TAC,bx mast/ovary removal 5/2011,TNBC tumor 5.1 cm,02/14 nodes positive,37 rads,Cisplatin&PARP trial.Recurrence 2/2012,TN IBC,Abraxane didn't work, Ixempra & Xeloda
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kirby
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Posted: Sep 14 2011 at 11:56pm |
Steve,
That is a beautiful picture.
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kirby
dx Feb. 2001. Age 44 Lumpectomy
2cm. no nodes stage 1 grade 3
4 rnds AC, 35 rads
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123Donna
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Posted: Sep 15 2011 at 12:42am |
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Oh Steve, such a precious picture of the two of you. I love it!
Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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