Author |
Topic Search Topic Options
|
Adnerb
Senior Member
Joined: Sep 21 2013
Location: San Diego
Status: Offline
Points: 156
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 29 2013 at 10:41pm |
Donna, Are you technically stage 3 or 4? Thanks. Brenda
|
'05 Stg1 TNBC Lump, SNB, A/C, 33 rads '09 Stg2 ER-, PR+, Her2-, Bil.Mast., T/C, Arimidex. '13 Stg4 Lung mets, ER+, PR-, Her2-, Carbo/Gemzar, Letrozole. '14 Abraxane in July '15 Abraxane in March
|
|
123Donna
Senior Member
Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 13509
|
Post Options
Thanks(0)
Quote Reply
Posted: Nov 29 2013 at 11:47pm |
Brenda,
The recurrence to the internal mammary node (regional node) I was told was Stage 3.
Donna
|
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
|
|
Lillie
Senior Member
Joined: Jul 10 2009
Location: Eastern NC
Status: Offline
Points: 3616
|
Post Options
Thanks(1)
Quote Reply
Posted: Nov 30 2013 at 1:01pm |
Dear Barb,
So glad to hear that your back and hip pain are not related to cancer.
God Bless,
Lillie
|
Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED
|
|
123Donna
Senior Member
Joined: Aug 24 2009
Location: St. Louis, MO
Status: Offline
Points: 13509
|
Post Options
Thanks(0)
Quote Reply
Posted: Jul 02 2017 at 11:57am |
Hello friends! I wanted to post an update and hopefully this will be the last one! 8 years ago on June 30th, I had my bilateral mastectomy for my first diagnosis. 6 years ago I was finishing treatment for my recurrence. Last year my oncologist broke up with me, but I will still be followed by the nurse practitioner yearly for a while since I'm not seeing any other doctors (radiologist, breast surgeons, etc). I'm thankful for the wonderful medical team I had throughout the process, especially my first onc who I will forever be thankful. I still deal with the residual problems from surgery, radiation and treatment, but realize it's the new normal. I try to find the beauty in each day (best advice from our friend Steve!) and stay active on this forum/message board. This place is home and was a lifeline for me when I was going through treatment and afterwards. I've met so many amazing people, some no longer with us which still breaks my heart. Some of you have become lifelong friends to me and we stay in touch on FB. It will be a bond that can never be broken. A big hug and thank you to all of you that helped me out along the way. I will never forget your kindness. Love to all.
Donna
|
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
|
|
SagePatientAdvocates
Senior Advisor
Joined: Apr 15 2009
Status: Offline
Points: 4748
|
Post Options
Thanks(0)
Quote Reply
Posted: Jul 02 2017 at 1:05pm |
and we have, are and will always cherish you and what you have done for our marvelous TNBC forum.
From the bottom of my heart I wish you the very best, always...
and thank you for being such a wonderful resource for all of us..
hugs,
Steve
|
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
|
|
Annie
Senior Member
Joined: Dec 19 2008
Location: Canada
Status: Offline
Points: 887
|
Post Options
Thanks(0)
Quote Reply
Posted: Jul 02 2017 at 1:26pm |
Donna, Donna, You are a sweetheart and we are all so thankful to you for your devotion in getting the information out to all here on this forum! You are a great blessing and yes we are a family for sure and one I am truly thankful for.
As the years go by I can truly say that all here understand, when ones near and dear to us so often do not. This has been a huge comfort and source of security many times over and over for me.
I know the new normal is not so normal but I too have become accustomed to it.
God Bless You now and always.
Love, Annie
|
Annie TNBC Stage IIA Gr 3 1cm lesion 2/5 lymph nodes+ lumpectomy,FEC & D 30Rads finished(08/2009) BRCA- Chronic Cellulitis due to Radiation-- L.Mastectomy Jan 2012
|
|
TriplePositiveGirl
Senior Member
Joined: Oct 07 2010
Location: Los Angeles, CA
Status: Offline
Points: 667
|
Post Options
Thanks(0)
Quote Reply
Posted: Jul 02 2017 at 1:38pm |
Hey Donna! I haven't posted here in quite a while but your post popped up in my email! I wish you continued good health and happiness. I know you have helped so many people here over the years. Your kindness and thoughtfulness is so appreciated.
Edited by TriplePositiveGirl - Jul 02 2017 at 1:39pm
|
Diagnosed Jan 2010; Stage IIa, grade 2, 3.2cm in rt. breast, no nodes and BRCA-. 4 cycles Carbo/Gemzar 3/10; Lump 6/10; 2 cycles carbo/gem after surgery 8/10; 35 Rads finished 12/1/10. NED.
|
|
mainsailset
Senior Member
Joined: Jul 27 2008
Location: Washington State
Status: Offline
Points: 5004
|
Post Options
Thanks(0)
Quote Reply
Posted: Jul 02 2017 at 7:53pm |
You've been such a great support person for all of us and I am simply delighted, still and again, that your onc broke up with you yet you'll continue to be looked after but have the wonderful freedoms of life!
|
dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
|
|
rigatonismom
Senior Member
Joined: Sep 22 2010
Location: Albuquerque, NM
Status: Offline
Points: 266
|
Post Options
Thanks(0)
Quote Reply
Posted: Jul 03 2017 at 9:24am |
Hi Donna, I was a year later than you were but your journey and how you shared it on this forum was such a gift to me. Because of you, I talked to my onc about a PARP inhibitor and was put on a trial after the path showed I still had cancer cells after chemo. I'm not sure the PARP did anything for me but I think the additional round of the carboplatin probably did the trick. I have now been NED for six years. My Rad Onc told me when I saw him last "you know we didn't give you much chance when you came in, don't you". I had never heard the words but I did know. Thank you for all of your support through the years. Nita
|
DX 09/10 TNBC Stage3c, grade3, Tumor 2.7cm, chemo started 9/29/10, AC x4, Taxol x12, lumpectomy 4/11/11-tumor .6cm, 3+/22 nodes, radiation x 30 finished 6/30/11.Clinical Trial Cisplatin,PARP 8/23/11
|
|
kirby
Senior Member
Joined: Oct 09 2007
Location: bay area,california
Status: Offline
Points: 1088
|
Post Options
Thanks(0)
Quote Reply
Posted: Jul 06 2017 at 8:30pm |
Good to see your post Donna....and all the others whose names I recognize. I rarely come on anymore but have always counted on reading Donna's updates on tx. It's been so long for me now that I rarely feel the need to keep updated! [ yes, mixed on whether that is good or bad!]
This forum has been a great lifeline for so many of us. I am truly grateful.
|
kirby
dx Feb. 2001. Age 44 Lumpectomy
2cm. no nodes stage 1 grade 3
4 rnds AC, 35 rads
|
|
Jacklin
Senior Member
Joined: Dec 26 2015
Location: Canada
Status: Offline
Points: 559
|
Post Options
Thanks(0)
Quote Reply
Posted: Jul 11 2017 at 8:12pm |
Donna, I wish you all the best as you continue with the new normal. May your life be filled with love, laughter and health. It is great to see you 'graduate' from this forum, I cannot thank you enough for all your support, sharing your knowledge and always keeping your eyes open for new TNBC news. You will be missed, but I am so happy for you. Enjoy every moment of every day. Many blessings, Jacklin
|
Dx: Nov. 27/15, TNBC, left breast & lymph, BRCA -; Chemo: Dec 4/15 - Mar 4/16; 4 DD A/C, 3 DD Taxol; BMX/ALND: April 26/16; Stage 3C; Radiation: June 10-July 15/16; 1 cycle Xeloda: Aug 15 - 28/16
|
|