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Jacklin
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Joined: Dec 26 2015
Location: Canada
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Topic: Team Donna Posted: Jul 11 2017 at 8:12pm |
Donna, I wish you all the best as you continue with the new normal. May your life be filled with love, laughter and health. It is great to see you 'graduate' from this forum, I cannot thank you enough for all your support, sharing your knowledge and always keeping your eyes open for new TNBC news. You will be missed, but I am so happy for you. Enjoy every moment of every day. Many blessings, Jacklin
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Dx: Nov. 27/15, TNBC, left breast & lymph, BRCA -; Chemo: Dec 4/15 - Mar 4/16; 4 DD A/C, 3 DD Taxol; BMX/ALND: April 26/16; Stage 3C; Radiation: June 10-July 15/16; 1 cycle Xeloda: Aug 15 - 28/16
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kirby
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Joined: Oct 09 2007
Location: bay area,california
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Points: 1088
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Posted: Jul 06 2017 at 8:30pm |
Good to see your post Donna....and all the others whose names I recognize. I rarely come on anymore but have always counted on reading Donna's updates on tx. It's been so long for me now that I rarely feel the need to keep updated! [ yes, mixed on whether that is good or bad!]
This forum has been a great lifeline for so many of us. I am truly grateful.
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kirby
dx Feb. 2001. Age 44 Lumpectomy
2cm. no nodes stage 1 grade 3
4 rnds AC, 35 rads
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rigatonismom
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Joined: Sep 22 2010
Location: Albuquerque, NM
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Points: 266
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Posted: Jul 03 2017 at 9:24am |
Hi Donna, I was a year later than you were but your journey and how you shared it on this forum was such a gift to me. Because of you, I talked to my onc about a PARP inhibitor and was put on a trial after the path showed I still had cancer cells after chemo. I'm not sure the PARP did anything for me but I think the additional round of the carboplatin probably did the trick. I have now been NED for six years. My Rad Onc told me when I saw him last "you know we didn't give you much chance when you came in, don't you". I had never heard the words but I did know. Thank you for all of your support through the years. Nita
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DX 09/10 TNBC Stage3c, grade3, Tumor 2.7cm, chemo started 9/29/10, AC x4, Taxol x12, lumpectomy 4/11/11-tumor .6cm, 3+/22 nodes, radiation x 30 finished 6/30/11.Clinical Trial Cisplatin,PARP 8/23/11
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mainsailset
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Joined: Jul 27 2008
Location: Washington State
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Points: 5004
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Posted: Jul 02 2017 at 7:53pm |
You've been such a great support person for all of us and I am simply delighted, still and again, that your onc broke up with you yet you'll continue to be looked after but have the wonderful freedoms of life!
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dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
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TriplePositiveGirl
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Joined: Oct 07 2010
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Posted: Jul 02 2017 at 1:38pm |
Hey Donna! I haven't posted here in quite a while but your post popped up in my email! I wish you continued good health and happiness. I know you have helped so many people here over the years. Your kindness and thoughtfulness is so appreciated.
Edited by TriplePositiveGirl - Jul 02 2017 at 1:39pm
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Diagnosed Jan 2010; Stage IIa, grade 2, 3.2cm in rt. breast, no nodes and BRCA-. 4 cycles Carbo/Gemzar 3/10; Lump 6/10; 2 cycles carbo/gem after surgery 8/10; 35 Rads finished 12/1/10. NED.
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Annie
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Joined: Dec 19 2008
Location: Canada
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Points: 887
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Posted: Jul 02 2017 at 1:26pm |
Donna, Donna, You are a sweetheart and we are all so thankful to you for your devotion in getting the information out to all here on this forum! You are a great blessing and yes we are a family for sure and one I am truly thankful for.
As the years go by I can truly say that all here understand, when ones near and dear to us so often do not. This has been a huge comfort and source of security many times over and over for me.
I know the new normal is not so normal but I too have become accustomed to it.
God Bless You now and always.
Love, Annie
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Annie TNBC Stage IIA Gr 3 1cm lesion 2/5 lymph nodes+ lumpectomy,FEC & D 30Rads finished(08/2009) BRCA- Chronic Cellulitis due to Radiation-- L.Mastectomy Jan 2012
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SagePatientAdvocates
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Posted: Jul 02 2017 at 1:05pm |
and we have, are and will always cherish you and what you have done for our marvelous TNBC forum.
From the bottom of my heart I wish you the very best, always...
and thank you for being such a wonderful resource for all of us..
hugs,
Steve
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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123Donna
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Joined: Aug 24 2009
Location: St. Louis, MO
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Points: 13509
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Posted: Jul 02 2017 at 11:57am |
Hello friends! I wanted to post an update and hopefully this will be the last one! 8 years ago on June 30th, I had my bilateral mastectomy for my first diagnosis. 6 years ago I was finishing treatment for my recurrence. Last year my oncologist broke up with me, but I will still be followed by the nurse practitioner yearly for a while since I'm not seeing any other doctors (radiologist, breast surgeons, etc). I'm thankful for the wonderful medical team I had throughout the process, especially my first onc who I will forever be thankful. I still deal with the residual problems from surgery, radiation and treatment, but realize it's the new normal. I try to find the beauty in each day (best advice from our friend Steve!) and stay active on this forum/message board. This place is home and was a lifeline for me when I was going through treatment and afterwards. I've met so many amazing people, some no longer with us which still breaks my heart. Some of you have become lifelong friends to me and we stay in touch on FB. It will be a bond that can never be broken. A big hug and thank you to all of you that helped me out along the way. I will never forget your kindness. Love to all.
Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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Lillie
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Location: Eastern NC
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Points: 3616
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Posted: Nov 30 2013 at 1:01pm |
Dear Barb,
So glad to hear that your back and hip pain are not related to cancer.
God Bless,
Lillie
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Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED
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123Donna
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Posted: Nov 29 2013 at 11:47pm |
Brenda,
The recurrence to the internal mammary node (regional node) I was told was Stage 3.
Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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Adnerb
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Posted: Nov 29 2013 at 10:41pm |
Donna, Are you technically stage 3 or 4? Thanks. Brenda
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'05 Stg1 TNBC Lump, SNB, A/C, 33 rads '09 Stg2 ER-, PR+, Her2-, Bil.Mast., T/C, Arimidex. '13 Stg4 Lung mets, ER+, PR-, Her2-, Carbo/Gemzar, Letrozole. '14 Abraxane in July '15 Abraxane in March
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123Donna
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Posted: Nov 29 2013 at 11:12am |
Barb,
So happy to hear the MRI was negative and hope you can find some relief to the back pain soon.
Adnerb,
In answer to your question if I'd get another port, yes. My first time I did not have a port and the chemo really did a number on my veins in my hand. To this day, I kind of freak out when they go for one of those veins. Not being able to use the other arm for blood draws makes needle sticks tough. With the recurrence I had a port and kept it until last year. I had a love/hate relationship with the port - it made chemo and blood draws so easy, but I always felt it and couldn't sleep on my left side because of it. If need be in the future, I'd get another one.
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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weekender09
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Posted: Nov 28 2013 at 8:42pm |
Happy Thanksgiving to me!! The MRI showed NED. Whew. Now to find out what the back pain etc. is from.
Barb
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02/12/13 DX TNBC, Grade III, Stage 3, 3.3cm tumor, IMN and 1 lymph Positive, Chemo A/C T complete 6/13 BRCA1-/BRCA2+ Variance, BIL 7/13, 33 RADS complete 10/13 Remssion :)
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Adnerb
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Posted: Nov 28 2013 at 7:44pm |
Donna, Hopefully you won't have to, but if you ever needed infused chemo again, would you get another port? Thanks.
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'05 Stg1 TNBC Lump, SNB, A/C, 33 rads '09 Stg2 ER-, PR+, Her2-, Bil.Mast., T/C, Arimidex. '13 Stg4 Lung mets, ER+, PR-, Her2-, Carbo/Gemzar, Letrozole. '14 Abraxane in July '15 Abraxane in March
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Adnerb
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Posted: Nov 28 2013 at 7:32pm |
Donna, I am happy to hear that you have NED!!! What a Happy Thanksgiving Day you must be having! Hugs, Brenda
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Lillie
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Points: 3616
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Posted: Nov 26 2013 at 9:27am |
Dear Barb,
Praying that your pain has nothing to do with cancer. There are so many things that can cause intense pain in the back, hips and legs.
DRAT.... The PTSD that so many have to go through after treatment for cancer.
Again, praying for NED
Love and God Bless,
Lillie
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Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED
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123Donna
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Posted: Nov 26 2013 at 8:33am |
Barb,
So sorry you are dealing with the pain. I can relate to the PTSD triggers of going to the treatment place, machines, smells, it just brings back those unwanted memories. I just try to close my eyes and put my mind in a happy place, like sitting on a sun soaked beach hearing the waves. Can you call your doctor to get the results earlier? I know when I had my scan they asked me if I wanted the results over the phone or come in the following week for an appointment with the onc to give me the results. I told the nurse I'd rather just have it over the phone. The waiting is the worst part! Hope you hear nothing but good news, NED, and that your pain subsides!
Hugs, Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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weekender09
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Posted: Nov 25 2013 at 9:50pm |
Donna: SO HAPPY FOR YOU! You always post something right when I need it. I am at week 4 of the low back and left hip pain. I have had 2 back surgeries so am accustomed to the various facets of back pain. What I am experiencing is nothing like I've ever endured before. Deep in the bone pain. I had my 6 week post RAD appointment last week and they decided we should do an MRI. I was staying away from the "C" word worries pretty well. Then the MRI test and I think I am suffering a PTSD from it - the locker, the laying flat for an hour test, the smells, then the tech comes in to give me an IV for contrast because of the previous cancer. Now all I can think about is "could it be back already?"
Due to the holiday I don't have my follow up until December 4th. Trying not to obsess which would be easier if the pain wasn't so excruciating. I suppose I could stay in bed drugged. LOL
Again thanks for the post. It helped me feel better.
Barb
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02/12/13 DX TNBC, Grade III, Stage 3, 3.3cm tumor, IMN and 1 lymph Positive, Chemo A/C T complete 6/13 BRCA1-/BRCA2+ Variance, BIL 7/13, 33 RADS complete 10/13 Remssion :)
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sabinecalifornia
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Posted: Nov 25 2013 at 3:42pm |
I am so very happy for you.
Have a happy Thanksgiving
Sabine
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DX TNBC 7/11 @ age 50, Stage 2A Grade 3, 1/19, LE/AD 8/11, BRCA1/2 neg., 4 A/C, 10 Taxol, 2 Abraxane due to allerg. react. to Taxol, fin 3/12. 33 Rads 6/12. NED CT 8/12, 10/13, 10/14
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mindy555
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Posted: Nov 24 2013 at 4:25pm |
Dear Linda,
Wishing you the very best with your surgery! I'm sorry the timing is such that it may interfere with Thanksgiving. I'll be saying a prayer and thinking of you.
Much love, Mindy
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Dx July 2011 56 yo Stage I IDC,TN,Grade 3 Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia Daughter also BRCA1+ Mass grew on Taxol FEC 6x better BMX 3/19/12 pCR NED BSO 6/2012
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