Hi Everyone,
My name is Tracey and i'm a new member as of a few minutes ago. I am 46 and was diagnosed with Stage 1 triple negative breast cancer. I was devastated as we had just buried my best friend who passed of triple negative cancer. I often get told her story is not mine as she was state 3 when we were 29 then it came back at 40. Regardless, it sticks with me every day.
I started chemo (ACT), 8 cycles on November 2nd. things were going well until yesterday. I mentioned that I thought the tumor had grown and I felt something under my arm. I had an ultrasound and I was right. now the tumor is larger and 2 lymph nodes are enlarged. to say i'm crushed is an understatement and I haven't stopped crying. i'm a fighter but just so sad. I am meeting surgeon today and it sounds like they will push up surgery but then chemo again after. i'm so scared thinking it can be elsewhere and what other chemo is even out there. anyone experience something similar?
PS - Ann, you mentioned Tiffany Trainer. I have heard her name many times and I am going to Sloan. I am going to request she look at my case today during my appointment. I am surprised they haven't consulted her yet but will push because as you mentioned...we are our own advocates.
Sorry to be such a downer ladies. I am happy to find such a supportive group of women. it's always reassuring :)
lots of love my TNBC sisters!