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lotusblossom
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Topic: 4 years with mets and counting! Posted: May 16 2013 at 5:06pm |
Hello, I just got my scan results today and I continue to have regression on Navelbine. I have been on this chemo for 21 months now. I was expecting to gets results of stable or even slight progression, but I am thrilled with this wonderful news!!!! Lotusblossom
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Suds
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Posted: May 16 2013 at 5:34pm |
This is such wonderful news! Gives hope to all of us! I hope and pray for this regression to last a long, long time. -Suds
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1/2012: 2cm mass, 1/16 nodes 4 AC, 4 T, mastectomy, 6.5 wks radiation Negative CT scan after chemo 3/2013: mets to nodes, brain, lung, early bone 4/2013: Neurosurgery + SRS 4/2013: Gem/Carbo started
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Gabj
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Posted: May 17 2013 at 1:17am |
This is wonderful news. May Navelbine work for many more.
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btstark2003
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Posted: May 17 2013 at 4:24am |
Lotusblossom, Wow! So inspiring. How do you feel? What else do you do to defeat the cancer, like with your diet, exercise and supplements. It sure seems to be working! Beth
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2008 Stg1 TNBC, LX, FEC+T, rads 2010 2.5cm tumor BRCA-, BMX,CMF 2011 LN mets, Gem/Carbo, surgery, rads 2012 lung mets, PI3Ki/taxo 2013 anti-PD-1 2014/15 Xeloda, IMMU-132, eribulin Aug 2015 Keytruda
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123Donna
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Posted: May 17 2013 at 8:16am |
Lotusblossum,
Congrats on the good news!
Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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snickers
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Posted: May 17 2013 at 9:48am |
Lotus Congratulations!! What kind of mets do you have? I had mets to liver and lungs and have been NED for about 7 months now. Still on Gemzar
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DX 10/31/11 6/13 lung/liver mets 9/13 NED lungs,liver met part.rem 5/4/13 NED lungs&liver 11/5/13 NED lungs..liver mets back LOTS LVR METS had y90 liver trtmt mets contrld 1/3/14 num brain mets
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lotusblossom
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Posted: Dec 05 2013 at 7:19pm |
Hi all,
Just thought I would update you all. I have now been on Navelbine for 27 months and continue to have good results. I have had mets for 4 1/2 years now and continue to have a very good quality of life.
I wish you all the vey best for the holiday season!
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123Donna
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Posted: Dec 05 2013 at 7:27pm |
lotusblossum,
That is great, no excellent, news! Thanks for sharing it with us!!
Hugs, Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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Adnerb
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Posted: Dec 05 2013 at 10:38pm |
Snickers and Lotusblossom, Good news for both of you! Hugs, Brenda
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'05 Stg1 TNBC Lump, SNB, A/C, 33 rads '09 Stg2 ER-, PR+, Her2-, Bil.Mast., T/C, Arimidex. '13 Stg4 Lung mets, ER+, PR-, Her2-, Carbo/Gemzar, Letrozole. '14 Abraxane in July '15 Abraxane in March
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simplelife4real
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Posted: Dec 06 2013 at 6:08am |
LotusBlossom, thank you for sharing how well you have been doing. That is awesome and gives hope to me and others.
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DX Aug 2013 @ age 60, Stage 2b, grade 3, 2.3 Cm, node positive, BRCA-; neoadjuvant taxolx12 and ACx4: 2/13/14 LX and ALND-2mm residual in 2 nodes
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hopeful57
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Posted: Dec 06 2013 at 9:35am |
That news gives all of us hope. Thank you for sharing. May you and yours have a blessed holiday.
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MothersDaughterTNBC
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Posted: Dec 06 2013 at 10:10pm |
Woo hoo Lotusblossom! So glad to hear the good news!!
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Mom's Diagnosis: 07/2013 - TNBC with lymph nodes and liver involvement 07/2013 - Adriamycin & Cytoxan 09/2013 - Doxil
https://www.facebook.com/PrayForJanice
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Lillie
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Posted: Dec 06 2013 at 10:32pm |
Dear Lotusblossom,
How wonderful to hear your excellent news. I am sure you have given many ladies hope, courage, and peace that no amount of money could buy.
Bless you,
Lillie
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Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED
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lotusblossom
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Posted: Feb 14 2014 at 8:51am |
Hi All,
Just a quick note to update you. I have been on Navelbine for 30 months. This is my fifth line of chemo since diagnosis at stage IV in June 2009. At that time, I had mets in lungs, biliary tract, spleen, hilar nodes, mediastinal nodes, axilla nodes and bones. I found out this week that all that remains is 1 nodule in the lungs, measuring 1 mm. Apparently, I am considered in remission, although I thought you had to be NED for that.
I was diagnosed stage IV at age 45. I am turning 50 next week.
Never give up hope.
Lotusblossom
Edited by lotusblossom - Feb 14 2014 at 8:51am
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sabinecalifornia
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Posted: Feb 14 2014 at 9:56am |
So very happy for you. Keep on fighting. Never give up!
Happy Valentines Day for you
Sabine
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DX TNBC 7/11 @ age 50, Stage 2A Grade 3, 1/19, LE/AD 8/11, BRCA1/2 neg., 4 A/C, 10 Taxol, 2 Abraxane due to allerg. react. to Taxol, fin 3/12. 33 Rads 6/12. NED CT 8/12, 10/13, 10/14
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Gretchen
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Posted: Feb 14 2014 at 10:10am |
Lotus, you said that navelbine was the 5th chemo you tried...what were the first 4?
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Kellyless
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Posted: Feb 14 2014 at 10:43am |
Lotusblossom, my grandmother had Mets in the bone for 21 years :) she was a legend at MD Anderson! You, like she, are an inspiration! Happy Valentine's Day!
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IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads 6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
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123Donna
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Posted: Feb 14 2014 at 10:52am |
Lotusblossom,
Wonderful news! Thank you for sharing. I'm so happy for you - you've achieved remission and turning 50! You give us all hope.
Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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Lillie
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Posted: Feb 14 2014 at 11:35am |
Dear Lotusblossom,
Continue the fight and keep inspiring others with this wonderful news.
God Bless,
Lillie
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Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED
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Loveforlife
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Posted: Feb 14 2014 at 12:47pm |
Lotus, Thanks for the update. It gives me hope! Happy Valentine's day to you.
Laura
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Dx 1/2011 2b, Gr 3, TNBC, AC/T chemo, L lumpectomy/re-excision/lymph node diss/rads. DX DCIS R Breast 4/2012 - Lumpectomy/Rads. DX Lung Spine mets 5/2013 Carbo/Gemzar 10/2013 Xeloda 1/2014 Ixempra
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