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Finally, it came to me...What we need here is...

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scared View Drop Down
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    Posted: Dec 26 2009 at 3:32pm
Hello,

It came to me what this site or it's users could REALLY use, and I have been here for awhile but today it hit me as to what that is and it is...

A live chat window where we could all talk to one another in real time.


So we would all be logged in as usual and on the side bar would be a list of those that are available for discussion.  We could then just listen if we want to or add a comment if we are so moved to.

I know there are some times I have been on here just dying to actually have other members to say hello and make some real friendships.  Sure, this site is nice as it is but this would be the NEXT step.  If you agree please let them know, if you think the idea sucks, that is ok too but I just want to know if it is a good idea or not.

Thanks,

Dave
Wife diagnosed 7/08 stage 2B 4.78cm with 3 nodes. 15 weeks of Adriamycin and Cytoxin, Mastectomy, 12 weeks of Taxol, and 6.5 weeks of radiation.
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Kellyless View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Dec 26 2009 at 5:24pm
I'm down with that.  I work from home, I'm on the computer at least 8 hours a day - I'd participate!
IDC, 2.2 cm, 1/24 nodes Stage IIb, grade 3, lumpectomy,
DD A/C x 4, T x 4, 36 rads finished treatment 9/2009
1/30/09 lumpectomy
3/6-6/12/09 chemo
7/13-8/26 rads
9/2014 6 yrs NED!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Dec 26 2009 at 6:21pm
Dave,

Sounds like a good idea to me.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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scared View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote scared Quote  Post ReplyReply Direct Link To This Post Posted: Dec 26 2009 at 6:26pm
So, what would the next step be to make this a reality?
Wife diagnosed 7/08 stage 2B 4.78cm with 3 nodes. 15 weeks of Adriamycin and Cytoxin, Mastectomy, 12 weeks of Taxol, and 6.5 weeks of radiation.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Dec 26 2009 at 6:59pm
Dave,

You'd probably have to contact ArleneB, the forum administrator, to see if they could modify the website.  We've tried to get the Alternative Support forum to allow different topics to post, but haven't been successful.  Right now its just one big thread.  Who knows, they may like this idea and ask the website people to make it happen.  I don't know what's involved to make the online chat a possibility.


DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote unklez Quote  Post ReplyReply Direct Link To This Post Posted: Dec 26 2009 at 7:41pm
I'd not hold my breath for this chat feature :-)

Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote mom&grandma Quote  Post ReplyReply Direct Link To This Post Posted: Dec 26 2009 at 7:41pm
Great Idea!
 
Bonnie
Bonnie, mom of Heather, age 32, Dx on 9/1/09 TN IDC Stage 1, 1.4 c, lumpectomy, 10/8/09, DD AC & T, 3/9/10 bilateral mastectomy and immediate reconstruction, BRCA 1/2-
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Dec 26 2009 at 8:03pm
Unklez,

You're probably right.
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Carol (Tenn) View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol (Tenn) Quote  Post ReplyReply Direct Link To This Post Posted: Dec 26 2009 at 10:24pm
Yep, I think Unklez is right. I asked Arlene for Spiritual Support forum and haven't heard a word...at least I think I did...I've slept since then...Confused
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13
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Post Options Post Options   Thanks (0) Thanks(0)   Quote unklez Quote  Post ReplyReply Direct Link To This Post Posted: Dec 26 2009 at 11:03pm
On breastcancer.org a new forum for the proposed mammo guidelines was created in a day.





Edited by unklez - Dec 26 2009 at 11:03pm
Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote kirby Quote  Post ReplyReply Direct Link To This Post Posted: Dec 27 2009 at 12:40am
I was part of the FPP forum for the book I Am Not My Breastcancer. Quite a few from that site [ including autumm and Caryn from this site] have done a Monday night chat for years. It takes place on a seperate site, Chatzy, which is very limiting. It is great to hop onto Monday chat when available. It would be nice to have a chat set up within this site because of the differences in people coming and going. FPP was a closed site open with a different purpose but still cancer related.
 
Great suggestion Dave.
kirby

dx Feb. 2001. Age 44
Lumpectomy

2cm. no nodes stage 1 grade 3

4 rnds AC, 35 rads
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Post Options Post Options   Thanks (0) Thanks(0)   Quote MaryinSarasota Quote  Post ReplyReply Direct Link To This Post Posted: Dec 27 2009 at 9:22am
Maybe in the meantime you could put your Yahoo IM or Messenger name on your stats (create a new account especially for here.) Just a suggestion.

I hate it when I type before thinking. Please disregard the above. We should keep the chat here where it belongs.


Edited by MaryinSarasota - Dec 27 2009 at 12:25pm
53 @ Dx 5/08 Stage 1, grade 3, IDC 1.6 cm, 0 nodes, TNBC, lumpectomy, chemo TAC-6, radiation-34 12/18/08
NED-10/09, PBM w/TE recon. 7/10, removal of TE/infec 8/10. CT chest. Rec fat-graft & stem cells
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol (Tenn) Quote  Post ReplyReply Direct Link To This Post Posted: Dec 27 2009 at 9:28am
We don't want to any way diminish this site after TNBC has worked so hard to give us this forum.
Just thinkin'

Edited by Carol (Tenn) - Dec 27 2009 at 9:28am
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13
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Post Options Post Options   Thanks (0) Thanks(0)   Quote unklez Quote  Post ReplyReply Direct Link To This Post Posted: Dec 27 2009 at 12:04pm
Dear Carol,

I think there is a lot of good in this website and I hate to be skittish during the holidays but creation of this forum or a new sub-forum is hardly difficult these days with all the web tools available.

The TNBC Foundation organizers seem to have some philosophical concerns with creating a proper forum for complimentary and alternate discussions. Oh well, we could always just add threads in the Support Forum.


Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote TNBC_in_NS Quote  Post ReplyReply Direct Link To This Post Posted: Dec 27 2009 at 12:10pm
I agree with Carol. We need to keep a chat space here in TNBC site!
We would benefit from a chat site though!!!
Admins please put your heads together to make this happen!!! yeah!!!
 
Helen in Nova Scotia
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol (Tenn) Quote  Post ReplyReply Direct Link To This Post Posted: Dec 27 2009 at 3:35pm
Dear Unklez,
Which is what we are doing...adding new threads....
Maybe they just have other, what they think, are more important things to do....We'll see.
Love Ya,
Carol
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13
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Post Options Post Options   Thanks (0) Thanks(0)   Quote unklez Quote  Post ReplyReply Direct Link To This Post Posted: Dec 28 2009 at 12:39am
Originally posted by Carol (Tenn) Carol (Tenn) wrote:

Dear Unklez,
Which is what we are doing...adding new threads....
Maybe they just have other, what they think, are more important things to do....We'll see.
Love Ya,
Carol

Yea we will see. Love ya too.

Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: Jan 05 2010 at 2:26pm
Does this mean that I would have to comb my hair and have my make-up on? Just kidding.......

I know one thing, I am a true Southerner, and it comes through loud and clear in my voice. When I worked a public job I had phone contact with people from all over the world. I kidd you not, people would call just to hear me talk.

If we do this, I might just listen.....

I love you guys,

Lillie
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2015-9 yrs NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Debris Quote  Post ReplyReply Direct Link To This Post Posted: Jul 19 2010 at 1:34pm
It seems this discussion did indeed lead to a "Chat Room" - but I've yet to see anyone chatting?  I've tried to go in a couple of times, but I already talk to myself, so there's no point in online chatting to myself too...
SO, do folks actually use the chat room, and if so, when and how?
 
Talk to you soon!??
4/12 Xeloda/Tykerb
2 Carboplatin
12/11 Dx IA
9 Gemzar/Taxotere Dx IBC:FEC
5 Ixempra/Sprycel
2 25 Rad
10/10 BRCA1-/2suv
9 NED
6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin
06/08 Dx DCIS 0/SN Rads/AIs
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Galina2 Quote  Post ReplyReply Direct Link To This Post Posted: Nov 02 2010 at 9:20pm
Hello, scarred,
 
I came back after a long time, just brosing.
 
How are you doing? How's your wife doing?
We just go through the journey and do not think about our loved one.  I just have learned, both my kids started smoking, when I was going through chemo....
 
I hope you are doing well.... live chat can be done on SKYPE.  See you there.
Believing is 50%!Dx 7/10/07, Lumpectomy 8/24/07, double mast/no recont. 10/01/07, IDC, 3 cm, Grade 3, 0/4 nodes, Stage IIA, ER-/PR- HER2- Age 48, chemo 11/23/07 lung spots 3/08
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