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Falling, off balance, after treatments?

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trip2 View Drop Down
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    Posted: Jul 06 2008 at 5:55am
Has anyone who has finished their treatments been having problems falling or being off balance.  I know we have some neuropathy.  Picking up a piece of paper off the floor 4 times, cognitive thing I guess, course know we are going to forget our names or what we did an hour ago.Smile
 
I saw a posting of this on another forum and found it interesting that it has been happening to other women, myself included and wondered if anyone over here is having this problem and if so any clues as to why.
My docs are giving me Meclizine to help with balance.
 
Thanks guys,
love you all ,
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Sadie Rose Quote  Post ReplyReply Direct Link To This Post Posted: Jul 06 2008 at 6:40am
 

Pam,

 
I sure did.  I thought it was from the neuropathy, but I don't think that was the only cause.  My muscles were weak so I did a little physical therapy.  It helped a little.  The thing that really helped was working with a balance specialist.  I made a an appointment with an ear specialist who referred me to the specialist.  The treatment involved retraining my balance.  After just three visits my balance was so much better.  I find I buy shoes that are sporty and help me stay sturdy on the ground.  I do yoga every day and that helps. 

Hope you find something that works for you.  It takes a lot of energy if you are fighting your balance all the time.

Warmly,

Sadie

 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 06 2008 at 8:32am
Thank you Sadie RoseSmile
 
I have walked into walls, seems my direction is off,  fell into the tub twice, wasn't taking a shower but beside the tub and ripped my curtain.  Been falling some in the house and lucky that it has been on soft things like carpet or over onto a chair or something.  I'm scared to death I'll do it in the middle of a store.  Hubby has threatened to stop me from driving.
 
I see my primary tomorrow for some blood test results and she really doesn't understand why this is happening.  In March we had done scans and tests of all kinds and everything was fine.  That was before I started falling, just walking like a person who has been inbibing.
I'll use your idea of the shoes.  Around home I haven't even been wearing any.  I'm a flip flop gal and keep falling out of those so afraid that is a accident waiting to happen.
 
I just got off the phone with another trip neg and she has falling/balance problems.  I am just wondering if it could be some sort of side effect?
 
My Primary has suggest Physical Therapy but I wasn't too enthused, just didn't sound like my answer but she's just trying to help.
 
It's not meds, I don't drink and very little neruopathy left.
It just scares me.
I don't want to dump over a rack of potato chips, ya know?Confused
 
Thx again, you're a sweetheart,
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Edited by trip2 - Jul 06 2008 at 8:37am
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Jul 06 2008 at 10:19am
My dear Pam,
 
Remember when I had the vertigo back in December? Well, the only treatment which helped, and corrected it was the vestibular rehabilitation therapist. Sadie Rose apparently found one. Meclyzine only adds to the dizziness, and the ENT both here and in Pittsburgh told me to not take it. I threw all that I had in the trash. The doc in Pittsburgh is lovingly called the "Dizzy doctor".  When I went here to the therapist, it took 2 days in a row. Then I went back about a week later, and POOOF!!! it was gone. Doc in Pittsburgh said that when I have an "episode", to call the therapist right away. Since this episode lasted so long, he said I will have more.
 
I really thought that I had a brain tumor. Had every teat that is out there. Spent much money. Not the case, and most of the time it is vertigo. Get rid of those flip-flops!!! Do not drive when you are even the slightest bit dizzy. Vertigo will/can impair your driving. When you turn your head even a little fast, such as to look for oncoming traffic, either right or left,you can experience a whirling sensation. I didn't drive for well over a month.
 
SHALL I CALL YOUR HUBBY?????LOL
 
Sit in a chair, and focus on one object in the middle of your sight, and then move your head to the right, and then to the left, first slowly and then faster, each time going back to the object in the center. If that makes you dizzy....trust me sweetie...you have vertigo. You have to learn to correct this yourself at times. Believe it or not...a disco ball helps. In order to correct this, you have to make yourself dizzy. That's what the therapist does, and then corrects it.
 
I know that you live a distance from specialized therapists, but you might be surprised when you call a therapy clinic and ask the, just like I did. My friend Kasey told me about them, and she had watched them work with her Mom for vertigo. Sometimes you do need just a little physical therapy after the corrections.
 
Just wrote a dang novelLOL
Hugs,
Nancy
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Netterz Quote  Post ReplyReply Direct Link To This Post Posted: Jul 07 2008 at 12:48am
I was natural born with a gene from my mothers side, of being a complete clutz all my life, so doubt I would notice it if I had anything resulting from my treatments.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 07 2008 at 4:17am
Oh dear Netterz.Smile
 
Yes I have been klutzy off and on especially in my childhood.
Be careful and don't hurt yourself!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote krisa Quote  Post ReplyReply Direct Link To This Post Posted: Jul 07 2008 at 6:21am
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Edited by krisa - Oct 08 2008 at 12:40pm
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Post Options Post Options   Thanks (0) Thanks(0)   Quote JulieG Quote  Post ReplyReply Direct Link To This Post Posted: Jul 07 2008 at 12:54pm

This is very interesting, I thought it was just me.  I find that I hold on to walls a lot to walk and tend to bump into things quite a bit.  If it gets any worse I may see a therapist about it now that I know they can help.  Thank y'all so much for the info. 

JulieG
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 08 2008 at 7:42am
Hi Julie, no, it sure isn't just you.Smile
 
I took a copy of the L Armstrong article w/me to the doc yesterday and highlighted areas of interest that applied to me.  There were so many things I was doing that were in this article and she reviewed it with me and we decided that I probably do have peripheral neuropathy, it can come from chemo and rads.
 
She had two meds she could put me on, one was expensive so I turned it down, she said she understood but it was the best one so we went with second choice and may have to up the dosage. 
 
It can last a few months, years or never go away but I felt so much better to finally possibly be on the track of my problems which again have come from chemotherapy and rads.  Who knows what all this stuff is doing to our bodies to make us "well".  Honestly what a hornet's nest.Confused
 
Julie I reach for support too, just like you and bump into things.
My doc had said physical therapy also needed to happen to help treat me but I can't drive that far several times a week.
 
Good luck and talk to your doc if you have any more problems,
-
 
 
 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Sadie Rose Quote  Post ReplyReply Direct Link To This Post Posted: Jul 08 2008 at 5:19pm
Pam,
 
I'm so glad you got some answers.  A lot of the physical therapy exercises you could do on your own once a plan is set.  I think that helped my strengthen weak muscles that added to me not feeling stable on my feet.  The main thing that I remember feeling was like a bag full of sand that had tipped too far in one direction.  I remember holding the wall when I went down stairways.  I had to attend when I was stepping off a curb or over something on the floor.  Just a few sessions with the person who specialized in balance concerns and it was much improved.  I was amazed.
 
My treatment involved being placed in a harness so I couldn't fall and standing on a movable platform that would tip me side to side and forward and back in random rhythms.  There was a computer screen in front of me and my task was to keep the circle in the square that was in the center of the screen.  If I was balancing perfectly the circle was in the square.  If I wasn't I could work the platform to mover it there.  It helped me feel what balance was.  I had to spread my sessions out, but the specialist would have liked them closer together.  I hope this story makes sense. 
 
Warmly,
Sadie


Edited by Sadie Rose - Jul 08 2008 at 5:25pm
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Jul 09 2008 at 4:32am
Sadie Rose thank you for this information.  Ugh, being strapped on that table makes me woozy thinking about it.Dead  I was hoping maybe I could go one day and they could show me some things I could do at home to strengthen my leg muscles so they don't get worse.
 
I'm trying to learn about this and peripheral neuropathy is a separate nerve system that runs down to your feet and sends signals back to your brain, something like that, I need to study more, but when these nerves are affected your brain gets the wrong messages.  It can cause several symptoms which I have found out.
 
It can affect your relexes and in reference to driving one article said that as long as you can feel the balls of your feet on each peddle going back and forth than it should be ok but I'm still leery on that one. Would your reflexes be quick enough?
At this point I can walk out a door knowing I need to turn right and go straight into the opposite wall so my signals are not so good.
 
You are so right, you have to watch what you are doing with your feet.
I had heard for quite awhile that we can get neuropathy from chemo and rads, which is one way to get it but never realized it could cause so many other problems in your body also.  Also if can be mild, moderate or become severe so it isn't going to happen to everyone.
 
I wouldn't even have found the first article w/o the help of our wonderful Nancy, she is an Angel for sure.  Once I read that article I was excited to think finally!
 
I called the therapist yesterday to ask about a one day thing and of course they weren't in but I'll call today,
hugs,
 
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Edited by trip2 - Jul 09 2008 at 4:37am
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